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Bloods
Been off the drink now 14 months been for a assessment for TP just waiting to see if i can get on list, my recent blood test showed my bilirubin is 81 now down from 140, INR still 2.1 is that a big jump forward for the good 140 to 81 if any one with decompensated liver what are yours
Been off the drink now 14 months been for a assessment for TP just waiting to see if i can get on list, my recent blood test showed my bilirubin is 81 now down from 140, INR still 2.1 is that a big jump forward for the good 140 to 81 if any one with decompensated liver what are yours
lonmallin50
in
British Liver Trust
1 year ago
advise please
can anyone help with more information as I am still unsure what’s going on. I was diagnosed with fatty liver last week. I understand what I have to do to keep a check on it. But I am having problems understanding why this has happened. Last year I had an ultrasound and it showed normal liver but dilated
can anyone help with more information as I am still unsure what’s going on. I was diagnosed with fatty liver last week. I understand what I have to do to keep a check on it. But I am having problems understanding why this has happened. Last year I had an ultrasound and it showed normal liver but dilated
Bettina2023
in
British Liver Trust
1 year ago
fibroscan vs mre/mri
My fibroscan and MRE/MRI result are st totally 2 different spectrum. Which is the correct one? Fibroscan show my CAP is 400 and Kpa of 10.9. MRE/MRI show i have no fatty liver or fibrosis. How can they differ so much?
My fibroscan and MRE/MRI result are st totally 2 different spectrum. Which is the correct one? Fibroscan show my CAP is 400 and Kpa of 10.9. MRE/MRI show i have no fatty liver or fibrosis. How can they differ so much?
Reneling
in
British Liver Trust
1 year ago
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Advice if possible
Hi, Apologies in advance for the long story but I have been so worried about this and am hoping there may be someone on here with similar experience who may be able to reassure me. I am a 65 year old female. I rarely drink alcohol, am only 5 lbs into the overweight bracket, do some form of exercise
Hi, Apologies in advance for the long story but I have been so worried about this and am hoping there may be someone on here with similar experience who may be able to reassure me. I am a 65 year old female. I rarely drink alcohol, am only 5 lbs into the overweight bracket, do some form of exercise
Husband2022
in
British Liver Trust
1 year ago
advice please
I was referred for a fibroscan after a blood test. It took approx 11 months for scan which happened a few weeks before Christmas. The scan revealed I had nafld with a score of 36. This was all conducted by a specialist nurse, as yet I have not seen a consultant and had no further tests or scans. I had
I was referred for a fibroscan after a blood test. It took approx 11 months for scan which happened a few weeks before Christmas. The scan revealed I had nafld with a score of 36. This was all conducted by a specialist nurse, as yet I have not seen a consultant and had no further tests or scans. I had
gavinlwright
in
British Liver Trust
1 year ago
liver dialysis
hello Has anyone heard of this new treatment “Liver Dialysis’ apparently cleans your liver out of toxins, improves your bloods? I’m seeing my transplant team for the first time on 9th Aug and apparently I think I’m boarderline if I need a transplant, so was wondering if this treatment would be better
hello Has anyone heard of this new treatment “Liver Dialysis’ apparently cleans your liver out of toxins, improves your bloods? I’m seeing my transplant team for the first time on 9th Aug and apparently I think I’m boarderline if I need a transplant, so was wondering if this treatment would be better
Harriet-sarah
in
British Liver Trust
1 year ago
Good news
Whilst I am still struggling with getting help for my son, I had a bright spot of news this week. Had a consultation with my liver nurse, first time face to face since lockdown. My bloods have been great for several years, ultrasounds all good too. I had a Fibroscan as I hadn’t had one for around 4
Whilst I am still struggling with getting help for my son, I had a bright spot of news this week. Had a consultation with my liver nurse, first time face to face since lockdown. My bloods have been great for several years, ultrasounds all good too. I had a Fibroscan as I hadn’t had one for around 4
scampi2122
in
British Liver Trust
1 year ago
THE “C” WORD
Before I get kicked off this forum, “C” stands for Cirrhosis. And yes on my ultrasound report it mentions the dreaded “C” word. But there really is no difference between Cirrhosis and fybrosis except the degree of fybrosis at some arbitrary stage is classed as Cirrhosis. Immediately we hear or see
Before I get kicked off this forum, “C” stands for Cirrhosis. And yes on my ultrasound report it mentions the dreaded “C” word. But there really is no difference between Cirrhosis and fybrosis except the degree of fybrosis at some arbitrary stage is classed as Cirrhosis. Immediately we hear or see
Oztrax
in
British Liver Trust
1 year ago
Questions
As I stated in my first post here, they told me my MRE results were "mild scarring."I thought it was gonna be a lot worse although I know scarring is to be taken seriously. I am awaiting to see stomach doctor and will no doubt learn more about what I'm dealing with. I have read early fibrosis doesn't
As I stated in my first post here, they told me my MRE results were "mild scarring."I thought it was gonna be a lot worse although I know scarring is to be taken seriously. I am awaiting to see stomach doctor and will no doubt learn more about what I'm dealing with. I have read early fibrosis doesn't
Rbbooks
in
British Liver Trust
1 year ago
Due to have 2 days of tests Starting Monday for TP suitability. Very nervous ! First time I've posted.
So I'm just 60 and diagnosed decompensated ARLD.in September 22. A month later they have found Varices and then a lesion on liver. Have been sober 9 months, on strict diet and keep to it most of the time. Theve banded 2 Varices and put me on beta blockers. You know before I got unwell presenting with
So I'm just 60 and diagnosed decompensated ARLD.in September 22. A month later they have found Varices and then a lesion on liver. Have been sober 9 months, on strict diet and keep to it most of the time. Theve banded 2 Varices and put me on beta blockers. You know before I got unwell presenting with
Gus63
in
British Liver Trust
1 year ago
Hepatic encephalopathy
I've been been diagnosed with fatty liver after CT and 2 ultrasounds and normal bloods but I itch all the time and get confused and really scared I get muscle cramps and stomach cramps chest pain my stomach looks like a football and I've put on 8lb with in 2 weeks I also have spider veins on my chest
I've been been diagnosed with fatty liver after CT and 2 ultrasounds and normal bloods but I itch all the time and get confused and really scared I get muscle cramps and stomach cramps chest pain my stomach looks like a football and I've put on 8lb with in 2 weeks I also have spider veins on my chest
Hidden
in
British Liver Trust
1 year ago
NAFLD
was interested if anyone with NAFLD/NASH diagnosis and F2 fibrosis have a had consistent low or normal AST/ALT ? Basically any blood test I have had is right in the normal range, this includes antibodies, platelets etc. How can I be so fatigued if there are no signs in blood work, ever ? My fibroscan
was interested if anyone with NAFLD/NASH diagnosis and F2 fibrosis have a had consistent low or normal AST/ALT ? Basically any blood test I have had is right in the normal range, this includes antibodies, platelets etc. How can I be so fatigued if there are no signs in blood work, ever ? My fibroscan
Oztrax
in
British Liver Trust
1 year ago
Update on my father. Triplet therapy?
After my last post, my father underwent spinal cord decompression surgery - they did laminectomy and partial corpectomy of the fractured vertebrae and did pedicular screw fixation to stabilize the spine. It's been 2 weeks since surgery and he is prescribed bed rest for 4-6 weeks. After 1-2 more weeks
After my last post, my father underwent spinal cord decompression surgery - they did laminectomy and partial corpectomy of the fractured vertebrae and did pedicular screw fixation to stabilize the spine. It's been 2 weeks since surgery and he is prescribed bed rest for 4-6 weeks. After 1-2 more weeks
gio2x
in
Advanced Prostate Cancer
2 years ago
Mild Scarring
Hello, everyone, I've been lurking here since last year. I want to thank you for your inspiring stories and wealth of positive information you exchange and for being brave enough to share your struggles and losses. I am 43 from usa, just diagnosed with mild scarring of my liver through mre. I am not
Hello, everyone, I've been lurking here since last year. I want to thank you for your inspiring stories and wealth of positive information you exchange and for being brave enough to share your struggles and losses. I am 43 from usa, just diagnosed with mild scarring of my liver through mre. I am not
Rbbooks
in
British Liver Trust
1 year ago
Does anyone have experience of Lenvatinib as a treatment for liver cancer?
I was diagnosed with liver cancer at the end of September last year, 2022. After a scan I was told that I had one large tumour and several smaller ones, that the large tumour was near the main artery and was of a size that ruled out conventional treatment, liver transplant, radiotherapy, embolisation
I was diagnosed with liver cancer at the end of September last year, 2022. After a scan I was told that I had one large tumour and several smaller ones, that the large tumour was near the main artery and was of a size that ruled out conventional treatment, liver transplant, radiotherapy, embolisation
majorda
in
British Liver Trust
1 year ago
Confused and stressed
I have decompensated liver not alcohol related ten years on methatrixate and fatty liver diagnosed at Easter and hospitalised six weeks ago with ascetics now on reduced fluid spirolactOne 50mgs lactulose 10 mils four times a day carvedilol 6.25mgs a day l have varices macrogol 2sachets a day and frusamideI
I have decompensated liver not alcohol related ten years on methatrixate and fatty liver diagnosed at Easter and hospitalised six weeks ago with ascetics now on reduced fluid spirolactOne 50mgs lactulose 10 mils four times a day carvedilol 6.25mgs a day l have varices macrogol 2sachets a day and frusamideI
Missmanor2
in
British Liver Trust
1 year ago
New to group need help I'm so Scared
My husband went to hospital in Jan and was given ascitic drain, they drained 7 5 litres ans he lost 10kg overnight, they told us he had liver failure, this was genuinely the first we knew. He gave up drinking immediately and we thought he'd improve but...... in reality he has been in bed ever since!
My husband went to hospital in Jan and was given ascitic drain, they drained 7 5 litres ans he lost 10kg overnight, they told us he had liver failure, this was genuinely the first we knew. He gave up drinking immediately and we thought he'd improve but...... in reality he has been in bed ever since!
123toyouto
in
British Liver Trust
1 year ago
I don’t understand my diagnosis as it’s changed from being overdosed by opiates (hospital error). Now it’s change.
In 2019 I was found on the floor & I don’t know or recall nothing. I could not see as I had balloon out so big that I was unrecognisable. It was a while to get my sight back but I was also told that I was had Liver failure. All my different consultants got together and realised that I was on so much
In 2019 I was found on the floor & I don’t know or recall nothing. I could not see as I had balloon out so big that I was unrecognisable. It was a while to get my sight back but I was also told that I was had Liver failure. All my different consultants got together and realised that I was on so much
Teanna
in
British Liver Trust
1 year ago
Liver fibrosis
i did my fibroscan yesterday and the result came back alarming. My CAP value is at 400 and Fibrosis score 10.9. I’m arranging for a MRE to confirm diagnosis. Doctor says that this is still reversible. I’m so scared tha I’m having living cirrhosis. I’m only 39 yo with 2 young kids. Would appreciate
i did my fibroscan yesterday and the result came back alarming. My CAP value is at 400 and Fibrosis score 10.9. I’m arranging for a MRE to confirm diagnosis. Doctor says that this is still reversible. I’m so scared tha I’m having living cirrhosis. I’m only 39 yo with 2 young kids. Would appreciate
Reneling
in
British Liver Trust
1 year ago
Thiamin
Hi, my gp has prescribed Thiamine, she hasn't said how long I need to take it for ? I have a little bit of fatty liver, but that's all I know, what sort of question should I be asking and how worried should I be?
Hi, my gp has prescribed Thiamine, she hasn't said how long I need to take it for ? I have a little bit of fatty liver, but that's all I know, what sort of question should I be asking and how worried should I be?
Jajay
in
British Liver Trust
1 year ago
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