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New member requiring advice
I have been recently diagnosed with PMR and have been on 15mg Prednisolone for 5 weeks together with Omeprazole, Adcal and Alendronic Acid. Any advice on do's and don'ts would be really helpful, in particular about diet as I don't want to gain weight. Incidentally I find that taking the Prednisolone
I have been recently diagnosed with PMR and have been on 15mg Prednisolone for 5 weeks together with Omeprazole, Adcal and Alendronic Acid. Any advice on do's and don'ts would be really helpful, in particular about diet as I don't want to gain weight. Incidentally I find that taking the Prednisolone
Retallack
in
PMRGCAuk
5 years ago
Indigestion
Hi I’m two and a half years into PMR and now tapered to 9.5 mg Pred. Quite suddenly I am getting attacks of quite fierce indigestion which seem to come after taking AdCal. Is it that or my body getting as fed up with Pred as I am (😀)? Has anyone else found this an issue?
Hi I’m two and a half years into PMR and now tapered to 9.5 mg Pred. Quite suddenly I am getting attacks of quite fierce indigestion which seem to come after taking AdCal. Is it that or my body getting as fed up with Pred as I am (😀)? Has anyone else found this an issue?
Thelmarina
in
PMRGCAuk
5 years ago
Total Gastrectomy check up.
Yesterday I attended an appointment at the hospital some four hours journey from home with the surgeon that performed a Total Gastrectomy on me a little over nine years ago. The appointment was at his request and I had not seen him over the pat fours years. Now he wishes to see me on a yearly basis.
Yesterday I attended an appointment at the hospital some four hours journey from home with the surgeon that performed a Total Gastrectomy on me a little over nine years ago. The appointment was at his request and I had not seen him over the pat fours years. Now he wishes to see me on a yearly basis.
lonestray
in
Oesophageal & Gastric Cancer
5 years ago
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Health update
Hello I have not posted for sometime but not because I have forgotten my fellow PMR sufferers. Since I stopped my steroid treatment at the beginning of November 2018, family issues, including a bereavement have kept me very busy. Together with work (really looking forward to retirement but still 2 years
Hello I have not posted for sometime but not because I have forgotten my fellow PMR sufferers. Since I stopped my steroid treatment at the beginning of November 2018, family issues, including a bereavement have kept me very busy. Together with work (really looking forward to retirement but still 2 years
Mitziecat
in
PMRGCAuk
5 years ago
Cannabis oil
. Has anyone used medical cannabis oil for polymyositis?
. Has anyone used medical cannabis oil for polymyositis?
Pinetown
in
Myositis UK
5 years ago
Gastrectomy
Has anyone recently undergone a Gastrectomy that can offer some advice to a caller that has contacted our helpline today? If so, please can you contact him direct at captainkirk1946@gmail.com. Peter has given the OPA permission to post this request on his behalf - 10/09/19. Thank you in anticipation
Has anyone recently undergone a Gastrectomy that can offer some advice to a caller that has contacted our helpline today? If so, please can you contact him direct at captainkirk1946@gmail.com. Peter has given the OPA permission to post this request on his behalf - 10/09/19. Thank you in anticipation
The_OPA
Partner
in
Oesophageal & Gastric Cancer
5 years ago
Sural Nerve Graft post RP to fix Erectile Dysfunction
Hi guys, I’ve been researching nerve grafting for Erectile dysfunction post radical prostatectomy. I just miss the good old days of spontaneity and the Tri-mix injections are...well...just not spontaneous. Do any of you have experience with this procedure? Have any of you overcome ED after several
Hi guys, I’ve been researching nerve grafting for Erectile dysfunction post radical prostatectomy. I just miss the good old days of spontaneity and the Tri-mix injections are...well...just not spontaneous. Do any of you have experience with this procedure? Have any of you overcome ED after several
Hidden
in
Advanced Prostate Cancer
5 years ago
ADT used to stop producing H-Testoterone (ng/dL)?
Stage 4, 6 Mets. to the bone. July , 2013 positive biopsy Gleason score 8. Radical prostatectomy August 2013, IMRT (43) March 2014, start ADT eligard July 2014 to November 2016, since December 2016 I’m in Eligard with Zytiga and prednisone 5mg. Quality of life, so far good. But I worry that the PSA is
Stage 4, 6 Mets. to the bone. July , 2013 positive biopsy Gleason score 8. Radical prostatectomy August 2013, IMRT (43) March 2014, start ADT eligard July 2014 to November 2016, since December 2016 I’m in Eligard with Zytiga and prednisone 5mg. Quality of life, so far good. But I worry that the PSA is
kikepana
in
Advanced Prostate Cancer
5 years ago
How do you cope with family indifference?
Hi my MPN family. To understand my question you will first have to understand my story. I have never been close to my siblings because of the way they treated our parents and how my parents care was left to me with no help from the others. I was diagnosed with breast cancer in 2009 and had a double
Hi my MPN family. To understand my question you will first have to understand my story. I have never been close to my siblings because of the way they treated our parents and how my parents care was left to me with no help from the others. I was diagnosed with breast cancer in 2009 and had a double
jillydabrat
in
MPN Voice
5 years ago
Thoughts on IVF success?
Just read an old post on here which suggests ladies who have first time success usually don't have problems themselves and is much more likely to lie with the guys. Started to get me worried. My OH has 2 children from his marriage then had a vasectomy. He has since had it reversed which has been successful
Just read an old post on here which suggests ladies who have first time success usually don't have problems themselves and is much more likely to lie with the guys. Started to get me worried. My OH has 2 children from his marriage then had a vasectomy. He has since had it reversed which has been successful
Jessy1280
in
Fertility Network UK
5 years ago
What do you think?
Hi everyone, I had a Bone scan yesterday and commented that my Dr put me on Alendronic tablets back in August and although I questioned her at the time she reassured me I needed them. The hospital were very surprised as they suggested Dr should have waited for Bone scan results as Adcal would be sufficient
Hi everyone, I had a Bone scan yesterday and commented that my Dr put me on Alendronic tablets back in August and although I questioned her at the time she reassured me I needed them. The hospital were very surprised as they suggested Dr should have waited for Bone scan results as Adcal would be sufficient
Fredddie
in
PMRGCAuk
5 years ago
Medical marijuana?
Anyone try medical marijuana for anxiety I smoked when I was younger but it always made me paranoid I'm looking into trying to get a marijuana card trying get some feedback
Anyone try medical marijuana for anxiety I smoked when I was younger but it always made me paranoid I'm looking into trying to get a marijuana card trying get some feedback
Fishingnj
in
Anxiety and Depression Support
5 years ago
Confused about where or even if to start on an IVF journey
So I started thinking about Children 6 years ago when I was 37. We decided after lots of discussion to adopt. We went down that route but my partners daughter, gave us a terrible reference. She has never met me (her choice) and is mentally ill but apparently that still means we were rejected. Even though
So I started thinking about Children 6 years ago when I was 37. We decided after lots of discussion to adopt. We went down that route but my partners daughter, gave us a terrible reference. She has never met me (her choice) and is mentally ill but apparently that still means we were rejected. Even though
tiddy
in
Fertility Network UK
5 years ago
Treatment
I’m curious how many with lobular breast cancer here are on Ibrance/Letrozole or other combinations and have not had any other therapy; i.e., mastectomy, chemotherapy, radiation.
I’m curious how many with lobular breast cancer here are on Ibrance/Letrozole or other combinations and have not had any other therapy; i.e., mastectomy, chemotherapy, radiation.
Hidden
in
SHARE Metastatic Breast Cancer
5 years ago
Obesity at diagnosis and prostate cancer prognosis and recurrence risk following primary treatment by radical prostatectomy
https://cebp.aacrjournals.org/content/early/2019/08/28/1055-9965.EPI-19-0488?rss=1 Background: The association of obesity at diagnosis with prostate cancer progression is uncertain. This study aimed to examine the relationship between body mass index (BMI; 18.5-<25, 25-<30, 30-<35, ≥35kg/m2) and prognostic
https://cebp.aacrjournals.org/content/early/2019/08/28/1055-9965.EPI-19-0488?rss=1 Background: The association of obesity at diagnosis with prostate cancer progression is uncertain. This study aimed to examine the relationship between body mass index (BMI; 18.5-<25, 25-<30, 30-<35, ≥35kg/m2) and prognostic
GranPaSmurf
in
Advanced Prostate Cancer
5 years ago
Post surgery help
My mum has got breast mastectomy in stage 4 metastatic yesterday...she is in pain now.. can u suggest do s and donts after surgery
My mum has got breast mastectomy in stage 4 metastatic yesterday...she is in pain now.. can u suggest do s and donts after surgery
priya565
in
Breast Cancer India
5 years ago
Life's ups and downs
Sometimes things chug along nicely and sometimes things gum up the works so that nothing goes right. Not sure where I'm at, at the moment but things [i]could[/i] be better. The last week in June I put my house up for sale, the 3rd of July having found a lump in my breast i went to the walk in clinic
Sometimes things chug along nicely and sometimes things gum up the works so that nothing goes right. Not sure where I'm at, at the moment but things [i]could[/i] be better. The last week in June I put my house up for sale, the 3rd of July having found a lump in my breast i went to the walk in clinic
Magpuss
in
Lung Conditions Community Forum
5 years ago
AMS 800 Urinary Sphincter
My radical prostatectomy was in March 2017; in August 2018 I had an AMS 800 urinary sphincter implanted. When I recovered from the implantation I was left with a tiny sore spot on the surface of my scrotum. All three of my urologists are mystified, since the sore spot isn't where the work was done. Has
My radical prostatectomy was in March 2017; in August 2018 I had an AMS 800 urinary sphincter implanted. When I recovered from the implantation I was left with a tiny sore spot on the surface of my scrotum. All three of my urologists are mystified, since the sore spot isn't where the work was done. Has
Hidden
in
Prostate Cancer And Gay Men
5 years ago
Endometriosis diagnosed 30 years ago and have had nothing done since then where do I go for help support and advice.
I was diagnosed over 30 years ago with endometriosis and have had problems with polyps, fibroids and cysts with painful periods since being a teenager at 15!but am now 2 years into the menopause at 53 and still having problems. how do I get a private hysterectomy done as I am still in agony. What do
I was diagnosed over 30 years ago with endometriosis and have had problems with polyps, fibroids and cysts with painful periods since being a teenager at 15!but am now 2 years into the menopause at 53 and still having problems. how do I get a private hysterectomy done as I am still in agony. What do
Elena1234
in
Endometriosis UK
5 years ago
Extra cover for dental extraction
Hi. This is my first post and I need some advice. I’ve had PMR for just over three years and am currently taking 2.5mg pred. I also currently have raging tooth ache and although I am trying to deny it I’m pretty sure I am going to have to see a dentist and pretty sure they’ll want to extract it as I’
Hi. This is my first post and I need some advice. I’ve had PMR for just over three years and am currently taking 2.5mg pred. I also currently have raging tooth ache and although I am trying to deny it I’m pretty sure I am going to have to see a dentist and pretty sure they’ll want to extract it as I’
Orpheus82
in
PMRGCAuk
5 years ago
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