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Radical mastectomy
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No period after endo excision
Hi, I had a cystectomy in 2018 to remove a large cyst from right ovary. Surgeon advised no endometriosis as this was a concern due to family history. Fast forward to 2023, severe pain again. Send for scans, further large cysts were found again in my right ovary. When I had catch up with GP she advised
Hi, I had a cystectomy in 2018 to remove a large cyst from right ovary. Surgeon advised no endometriosis as this was a concern due to family history. Fast forward to 2023, severe pain again. Send for scans, further large cysts were found again in my right ovary. When I had catch up with GP she advised
Bekiibee
in
Endometriosis UK
2 months ago
Blood in urine
Hi all. This is my first post here. I had a robotic radical prostatectomy three months ago. In the first few weeks after surgery, my urine was clear, but then I started showing blood on my pads during walks. This has continued ever since and I'm now at 12 weeks after surgery. These are pink spots, not
Hi all. This is my first post here. I had a robotic radical prostatectomy three months ago. In the first few weeks after surgery, my urine was clear, but then I started showing blood on my pads during walks. This has continued ever since and I'm now at 12 weeks after surgery. These are pink spots, not
LoveDrumming
in
Prostate Cancer Network
2 months ago
husband Fibro and interstitial cystiyis
my husband age 63 today is struggling with the pain of both Fibro and IC even though on duloxetine, mirabegron , high dose Gabapentin , tonne of paracetamol …(hospital will no longer supply the Elmiron pentosan polysulphate). Guys urology in London offered bladder removal or bladder lesion laser - I
my husband age 63 today is struggling with the pain of both Fibro and IC even though on duloxetine, mirabegron , high dose Gabapentin , tonne of paracetamol …(hospital will no longer supply the Elmiron pentosan polysulphate). Guys urology in London offered bladder removal or bladder lesion laser - I
Fibrofibrofibro
in
Fibromyalgia Action UK
2 months ago
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Walsh's Folly?
I posted earlier that I had to ask ChatGPt "who came up with the 'gasoline on a fire' characterization regarding the relationship of testosterone and prostate cancer" and that Chat GPT had answered -- Dr. Patrick Walsh -- (father of the radical prostatectomy.) In that post, discussion turned to Walsh's
I posted earlier that I had to ask ChatGPt "who came up with the 'gasoline on a fire' characterization regarding the relationship of testosterone and prostate cancer" and that Chat GPT had answered -- Dr. Patrick Walsh -- (father of the radical prostatectomy.) In that post, discussion turned to Walsh's
VoxHope
in
Advanced Prostate Cancer
2 months ago
Input on Timing of Initial ADT after RP/SRT Failed
After surgery and salvage radiation therapy (SRT) have failed, it appears I'm headed for androgen deprivation therapy. Like many things in the world of prostate cancer, the recommendations as to when to start ADT seem to be all over the place, so I'm seeking any insights folks may have based on your
After surgery and salvage radiation therapy (SRT) have failed, it appears I'm headed for androgen deprivation therapy. Like many things in the world of prostate cancer, the recommendations as to when to start ADT seem to be all over the place, so I'm seeking any insights folks may have based on your
dans_journey
in
Advanced Prostate Cancer
2 months ago
THIS IS NOT GOOD over 40 Liver Lesions
ON PET SCAN THEY FOUND 3 stating not psma avid on MRI stating they are psma avid How bad is this ? PSA went from in a month 0.77 to 3.61 PSA al Range May 2, 2024 3.61 ng/mL 3.61ng/mL <=3.99 ng/mL <=3.99 ng/mL Apr 4, 2024 0.77 ng/mL 0.77ng/mL <=3.99 ng/mL <=3.99 ng/mL Mar 7, 2024 0.4 ng
ON PET SCAN THEY FOUND 3 stating not psma avid on MRI stating they are psma avid How bad is this ? PSA went from in a month 0.77 to 3.61 PSA al Range May 2, 2024 3.61 ng/mL 3.61ng/mL <=3.99 ng/mL <=3.99 ng/mL Apr 4, 2024 0.77 ng/mL 0.77ng/mL <=3.99 ng/mL <=3.99 ng/mL Mar 7, 2024 0.4 ng
Shorehousejam
in
Advanced Prostate Cancer
2 months ago
Need practical advice re:RRP for 76 year-old in fair shape
Hi everyone, My husband, just turned 76, is having a robotic radical prostatectomy on 5/13. He is (so far) Gleason 4+3, high Decipher score., clean PSMA. We eventually chose surgery as he's also been in retention for many months due to a median lobe, he preferred that to doing a HoLep followed by radiation
Hi everyone, My husband, just turned 76, is having a robotic radical prostatectomy on 5/13. He is (so far) Gleason 4+3, high Decipher score., clean PSMA. We eventually chose surgery as he's also been in retention for many months due to a median lobe, he preferred that to doing a HoLep followed by radiation
AliceinW57
in
Prostate Cancer Network
2 months ago
Any proof that removing a tumor off prostate bed by radiation or surgery is better than just systemic therapy ?
Here is my history PSA rising now 0.77 Going for pet scan tomorrow Tumour on prostate bed had Radical Prostatectomy with Lymph node removal 03/2023 Stage 4 Oligo Metastatic Prostate Cancer Original PSA 942.40 at diagnosis 06/2022 Gleason 8 / 9 ductal without large cribform gland, cT3b
Here is my history PSA rising now 0.77 Going for pet scan tomorrow Tumour on prostate bed had Radical Prostatectomy with Lymph node removal 03/2023 Stage 4 Oligo Metastatic Prostate Cancer Original PSA 942.40 at diagnosis 06/2022 Gleason 8 / 9 ductal without large cribform gland, cT3b
Shorehousejam
in
Advanced Prostate Cancer
2 months ago
Thinking about giving up on diagnosis
Hi everyone. I finally had my first consultation at an endometriosis specialist centre. I saw a female doctor for the first time ever since my problems started a few years ago, which was nice. She couldn't believe that my GP surgery wouldn't let me continue with the combined pill and said I would HAVE
Hi everyone. I finally had my first consultation at an endometriosis specialist centre. I saw a female doctor for the first time ever since my problems started a few years ago, which was nice. She couldn't believe that my GP surgery wouldn't let me continue with the combined pill and said I would HAVE
CitizenErased
in
Endometriosis UK
1 month ago
10-year update still shows no benefit to ART vs early SRT
ART
= adjuvant radiation therapy, within 6 months after radical prostatectomy (RP)
early SRT
= salvage radiation therapy, after PSA ≥ 0.1ng/ml or 3 consecutive rises. Median was 0.2 ng/ml. Median 1 ½ years after RP. Patients risked nothing by waiting, and gained urinary and fecal continence
ART
= adjuvant radiation therapy, within 6 months after radical prostatectomy (RP)
early SRT
= salvage radiation therapy, after PSA ≥ 0.1ng/ml or 3 consecutive rises. Median was 0.2 ng/ml. Median 1 ½ years after RP. Patients risked nothing by waiting, and gained urinary and fecal continence
Tall_Allen
in
Advanced Prostate Cancer
3 months ago
Suddenly Urinary Leakage just walking around, then I have to push / strain to urinate, PSA rising, prostatectomy leakage resolved
Can anyone give me an idea what is going on? No UTI, No Urinary Infections I was tested Suddenly having Urinary Leakage just walking around, then I have to push / strain, to urinate. I had a Radical Prostatectomy in 03/2023 leakage resolved. I didn’t have radiation as much as I was waiting
Can anyone give me an idea what is going on? No UTI, No Urinary Infections I was tested Suddenly having Urinary Leakage just walking around, then I have to push / strain, to urinate. I had a Radical Prostatectomy in 03/2023 leakage resolved. I didn’t have radiation as much as I was waiting
Shorehousejam
in
Advanced Prostate Cancer
3 months ago
preventative mastectomy
Good afternoon, Not been on here for a while , I was wondering if anyone here with the BRCA gene has had a preventative mastectomy, if so how was your experience? Did you have any regrets? We’re you happy with the surgery? What type ,if any reconstruction did you have? I was diagnosed with BRCA2 in
Good afternoon, Not been on here for a while , I was wondering if anyone here with the BRCA gene has had a preventative mastectomy, if so how was your experience? Did you have any regrets? We’re you happy with the surgery? What type ,if any reconstruction did you have? I was diagnosed with BRCA2 in
March2017
in
My Ovacome
7 months ago
Prostate cancer radiotherapy side effects.
I’m a seventy seven year old who had a radical prostatectomy eight years ago. Following one of my regular PSA tests the result showed, after scans in September 2023, a return in the prostate bed and adjacent lymph nodes. Began hormone implants straight away followed by twenty doses of targeted radiotherapy
I’m a seventy seven year old who had a radical prostatectomy eight years ago. Following one of my regular PSA tests the result showed, after scans in September 2023, a return in the prostate bed and adjacent lymph nodes. Began hormone implants straight away followed by twenty doses of targeted radiotherapy
Gingerurgent
in
Pelvic Radiation Disease Association
3 months ago
Month 5 of ORGOVYX
After radical prostatectomy and radiation treatment, I’m now on ORGOVYX and my testosterone has decreased from 672 to 11. I’ll be coming off the medication in one month. If anyone has used ORGOVYX, do you stop cold turkey or is there a tapering off of the drug? Thank you.
After radical prostatectomy and radiation treatment, I’m now on ORGOVYX and my testosterone has decreased from 672 to 11. I’ll be coming off the medication in one month. If anyone has used ORGOVYX, do you stop cold turkey or is there a tapering off of the drug? Thank you.
BettyandBob
in
Prostate Cancer Network
3 months ago
Had Davinci RP w/ LNR 8 Reoccurrence in Bed, PSA Rising 0.77 CANNOT Do Radiation active Crohn Disease / Colitis, What about Cryotherapy?
Please Help Me Out, What Can I Do? After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team
Please Help Me Out, What Can I Do? After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team
Shorehousejam
in
Advanced Prostate Cancer
3 months ago
update
this is an update on the pregnancy scare I’ve taken now 5 urine tests all neg, still no period I am now 7 days late. But I want to also thank everyone that took the time to comment. I’m hoping it’s just hormones or stress. I am stressed and even more thinking I’m pregnant. I have a blood tests scheduled
this is an update on the pregnancy scare I’ve taken now 5 urine tests all neg, still no period I am now 7 days late. But I want to also thank everyone that took the time to comment. I’m hoping it’s just hormones or stress. I am stressed and even more thinking I’m pregnant. I have a blood tests scheduled
Icantwaittobemeagain
in
Anxiety and Depression Support
2 months ago
PSA rising after salvage treatment
Hi, It's been a while since I was on this forum, but I am in need of some advice. I had a radical prostatectomy in 2021 followed by salvage radio therapy. My psa levels have been rising slowly since then and I wondered if there was any advice as to what it might mean and if there is anything I should
Hi, It's been a while since I was on this forum, but I am in need of some advice. I had a radical prostatectomy in 2021 followed by salvage radio therapy. My psa levels have been rising slowly since then and I wondered if there was any advice as to what it might mean and if there is anything I should
MotoGuzziFan
in
Prostate Cancer Network
3 months ago
I introduce myself to you
Hi all After reading the messages for a long time, I finally took the time to update my profile to describe my history of the disease. That's it Take care of yourself, I live in France, I was born in April 1963, I am married and I stopped my professional activity 10 months ago Diagnosed 09/2019,
Hi all After reading the messages for a long time, I finally took the time to update my profile to describe my history of the disease. That's it Take care of yourself, I live in France, I was born in April 1963, I am married and I stopped my professional activity 10 months ago Diagnosed 09/2019,
graal05
in
Advanced Prostate Cancer
3 months ago
Surgery was hugely succesful, thank the Lord! 😇🙏
Going into surgery with stage 4 clear cell cancer a week ago, I was advised they will take out all cancer they can see & will have a better understanding of spreading & the way forward.Woke up to better than that! They got it all out, easily & cleanly, full radical hysterectomy and appendix. Signs they
Going into surgery with stage 4 clear cell cancer a week ago, I was advised they will take out all cancer they can see & will have a better understanding of spreading & the way forward.Woke up to better than that! They got it all out, easily & cleanly, full radical hysterectomy and appendix. Signs they
Kazzh
in
My Ovacome
4 months ago
Private health insurance
has anyone been successful in getting a laparoscopy or cystectomy (cyst removal) in uk on private health insurance after already having had fertility treatment? I'm thinking of taking some out to check for silent endometriosis but worried they won't accept me as they will class fertility treatment as
has anyone been successful in getting a laparoscopy or cystectomy (cyst removal) in uk on private health insurance after already having had fertility treatment? I'm thinking of taking some out to check for silent endometriosis but worried they won't accept me as they will class fertility treatment as
Flora14
in
Fertility Network UK
4 months ago
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