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Radical hysterectomy
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"Focus" has left the room. How to get it back?
Hi! I just agreed with my consultant a couple of days ago that I'll have a "full pelvic clearance" surgery for endometriosis. I was pretty much obsessively worried about Endo before the appointment, and if anything could be done for me, and what that might be. And now that I have an answer, I just can't
Hi! I just agreed with my consultant a couple of days ago that I'll have a "full pelvic clearance" surgery for endometriosis. I was pretty much obsessively worried about Endo before the appointment, and if anything could be done for me, and what that might be. And now that I have an answer, I just can't
Hidden
in
Endometriosis UK
3 years ago
Mid York’s BSGE referral and more
Hello fellow endo warriors, Has anyone any experience of getting referred to the mid York’s trust BSGE centre at Pinderfields? My consultant gynaecologist (at Bradford) wants to do a diagnostic laparoscopy to confirm stage 4 endo and bowel implications. She won’t just perform a hysterectomy despite me
Hello fellow endo warriors, Has anyone any experience of getting referred to the mid York’s trust BSGE centre at Pinderfields? My consultant gynaecologist (at Bradford) wants to do a diagnostic laparoscopy to confirm stage 4 endo and bowel implications. She won’t just perform a hysterectomy despite me
Astro_kat
in
Endometriosis UK
3 years ago
Has anyone with RA used Blessed CBD Medical cannabis
Hello, after 2 years of treatment I stopped my Biologic Benepali last April 2021 (after 2 yrs it caused a severe, itchy, neck, chest and face rash that wouldn't go away with Betnovate and Piriton). Later in April, I had a steroid injection and my 2nd Astra Z (no after effects) On 16th June I paid £500
Hello, after 2 years of treatment I stopped my Biologic Benepali last April 2021 (after 2 yrs it caused a severe, itchy, neck, chest and face rash that wouldn't go away with Betnovate and Piriton). Later in April, I had a steroid injection and my 2nd Astra Z (no after effects) On 16th June I paid £500
Snoofy
in
NRAS
3 years ago
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adenomyosis Diagnosis
I was diagnosed with endo 5 years ago and diagnosed with adenomyosis on Friday. The consultant told me I have good egg reserve for the moment so to take my coil out and try and get pregnant straight away because I will need a hysterectomy in a few years! I’m 34, single, no children and now I feel numb
I was diagnosed with endo 5 years ago and diagnosed with adenomyosis on Friday. The consultant told me I have good egg reserve for the moment so to take my coil out and try and get pregnant straight away because I will need a hysterectomy in a few years! I’m 34, single, no children and now I feel numb
A1987
in
Endometriosis UK
3 years ago
Chest pain
Hi all, its been a little while since I have posted anything on here. I'm currently waiting to have a hysterectomy, but the daily pain /struggle I am in, I feel so lost and trapped I don't know where to turn. Whilst I am lucky I have supportive family and friends, I feel like no one fully understands
Hi all, its been a little while since I have posted anything on here. I'm currently waiting to have a hysterectomy, but the daily pain /struggle I am in, I feel so lost and trapped I don't know where to turn. Whilst I am lucky I have supportive family and friends, I feel like no one fully understands
Cardiff87
in
Endometriosis UK
3 years ago
What is the maximum time you can be on prostap 3 injections?
I have been on prostap 3 since October 2020, with add-back HRT, Tibolone, since January 2021, almost 8 months. I'm due to have the next prostap 3 injection next month. I'm on the waiting list for an "urgent" (been waiting almost 9 months); hysterectomy, cyst and ovary removal, with bowel involvement
I have been on prostap 3 since October 2020, with add-back HRT, Tibolone, since January 2021, almost 8 months. I'm due to have the next prostap 3 injection next month. I'm on the waiting list for an "urgent" (been waiting almost 9 months); hysterectomy, cyst and ovary removal, with bowel involvement
77yellow
in
Endometriosis UK
3 years ago
Please help - pain after hysterectomy
Hi Can anyone help me hysterectomy 4 years ago today have got right ovary. Approx 1 year ago admitted with excessive pain endometriosis all over pelvis endometrioma on right ovary They say I have so much nerve damage I get regular UTI I am on prostap, tibilone, codeine, pregablin about to start sertraline
Hi Can anyone help me hysterectomy 4 years ago today have got right ovary. Approx 1 year ago admitted with excessive pain endometriosis all over pelvis endometrioma on right ovary They say I have so much nerve damage I get regular UTI I am on prostap, tibilone, codeine, pregablin about to start sertraline
emma422
in
Endometriosis UK
3 years ago
Hysterectomy 4 years ago and pain - need some support
Hi Can anyone help me hysterectomy 4 years ago today have got right ovary. Approx 1 year ago admitted with excessive pain endometriosis all over pelvis endometrioma on right ovary They say I have so much nerve damage I get regular UTI I am on prostap, tibilone, codeine, pregablin about to start sertraline
Hi Can anyone help me hysterectomy 4 years ago today have got right ovary. Approx 1 year ago admitted with excessive pain endometriosis all over pelvis endometrioma on right ovary They say I have so much nerve damage I get regular UTI I am on prostap, tibilone, codeine, pregablin about to start sertraline
emma422
in
Pelvic Pain Support Network
3 years ago
Medical Cannabis
Hi, I have reponded to several private messages recently re the above, so just in case it`s of interest to a wider audience, I`m coming to the end of a two Month trial via the Project Twenty21. of Satoline oil 5%THC. unfortunately for me it hasn`t made the slightest difference to my RLS, the only slight
Hi, I have reponded to several private messages recently re the above, so just in case it`s of interest to a wider audience, I`m coming to the end of a two Month trial via the Project Twenty21. of Satoline oil 5%THC. unfortunately for me it hasn`t made the slightest difference to my RLS, the only slight
Bumble34
in
Restless Legs Syndrome
3 years ago
My sister has been diagnosed with ovarian cancer. I'm new here so would appreciate any information given.
My younger sister was diagnosed with ovarian cancer at the begining of March this year. What an absolute shock that was. Obviously devastated. I have joined this forum to try to understand the treatments and just what she is going through. She was diagnosed with stage 3c, and I have to say they were
My younger sister was diagnosed with ovarian cancer at the begining of March this year. What an absolute shock that was. Obviously devastated. I have joined this forum to try to understand the treatments and just what she is going through. She was diagnosed with stage 3c, and I have to say they were
nettiebobs
in
My Ovacome
3 years ago
Medical marijuana
Hi all, If you've read about me, I been through the wars, and still am. Anyone had any luck with medical marijuana for chronic pain management?
Hi all, If you've read about me, I been through the wars, and still am. Anyone had any luck with medical marijuana for chronic pain management?
Sensei_Mark
in
Neuro Support
3 years ago
Extreme endometriosis
Hi lovely ladies, I have recently been diagnosed with extreme endometriosis and am awaiting confirmation on having to have a full hysterectomy. I’m in quite a bit of pain, most of the time, and was wondering if anyone had any solutions to help? I’m currently on Menfenamic acid for the pain which doesn
Hi lovely ladies, I have recently been diagnosed with extreme endometriosis and am awaiting confirmation on having to have a full hysterectomy. I’m in quite a bit of pain, most of the time, and was wondering if anyone had any solutions to help? I’m currently on Menfenamic acid for the pain which doesn
Dustydoggo
in
Endometriosis UK
3 years ago
Whoa
So I’m 52… have always been told that I was disgustingly healthy. Active mother of two. Then in 2016, I almost bled to death was hospitalized, blood transfusions and had an emergency hysterectomy. 2018 on annual blood test noticed platelets were in 800,000’s. Doctor looked at 2017 test and platelets
So I’m 52… have always been told that I was disgustingly healthy. Active mother of two. Then in 2016, I almost bled to death was hospitalized, blood transfusions and had an emergency hysterectomy. 2018 on annual blood test noticed platelets were in 800,000’s. Doctor looked at 2017 test and platelets
Bug68
in
MPN Voice
3 years ago
Adhesion advice
Hi everyone I had a partial hysterectomy laparoscopy in October last year ovaries were left in and removal of endometriosis adhesions around bowel area and around c section scar It felt like I never properly recovered from this surgery and for the last day 4 months I was still in constant pain and
Hi everyone I had a partial hysterectomy laparoscopy in October last year ovaries were left in and removal of endometriosis adhesions around bowel area and around c section scar It felt like I never properly recovered from this surgery and for the last day 4 months I was still in constant pain and
cathhomer
in
Endometriosis UK
3 years ago
Sudden Bleeding after hysterectomy
Please help! I had a total hysterectomy, ovaries cervix womb tubes everything is gone 2 weeks ago, I had a vaginal cuff stitched in , I initially spotted lightly for two days then nothing at all for around 9 days, all of a sudden I started spotting again and it's much heavier than before, I'm not sure
Please help! I had a total hysterectomy, ovaries cervix womb tubes everything is gone 2 weeks ago, I had a vaginal cuff stitched in , I initially spotted lightly for two days then nothing at all for around 9 days, all of a sudden I started spotting again and it's much heavier than before, I'm not sure
Thereshope
in
Healthy Happy Woman
3 years ago
Starting the endo diagnosis journey but I'm still not sure...
Hello - earlier this year I started the endo diagnosis journey after nearly 20 years of traipsing in and out of the doctors with multiple symptoms. I've been told it's IBS, it's your hormones and you're a woman, it's just one of those things you have to live with. Last year I had enough, I started bleeding
Hello - earlier this year I started the endo diagnosis journey after nearly 20 years of traipsing in and out of the doctors with multiple symptoms. I've been told it's IBS, it's your hormones and you're a woman, it's just one of those things you have to live with. Last year I had enough, I started bleeding
Mar3485
in
Endometriosis UK
3 years ago
Could this be Lupus? A very long journey...
Hello all! I've been suffering for 30 or so years with many symptoms. Since puberty I have suffered with absent seizures, hand shakes, joint pain so bad I can't walk, stiff hands in the mornings (my little fingers get locked and need to be manipulated), stuttering (when I'm not feeling good), rashes
Hello all! I've been suffering for 30 or so years with many symptoms. Since puberty I have suffered with absent seizures, hand shakes, joint pain so bad I can't walk, stiff hands in the mornings (my little fingers get locked and need to be manipulated), stuttering (when I'm not feeling good), rashes
London1979
in
LUPUS UK
3 years ago
Hysterectomy recovery tips
Hello ladies. I'm one of the lucky ones to finally have surgery, unfortunately for me a hysterectomy was my only choice left. I know it might not be the end of endo but I've made my peace with it and anything to try and have less pain, I'll do it. Anyway, it's almost been a week and the pain is starting
Hello ladies. I'm one of the lucky ones to finally have surgery, unfortunately for me a hysterectomy was my only choice left. I know it might not be the end of endo but I've made my peace with it and anything to try and have less pain, I'll do it. Anyway, it's almost been a week and the pain is starting
BellyEllieBob
in
Endometriosis UK
3 years ago
Effect of Erythropoietin on Erectile Function after Radical Prostatectomy: The ERECT Randomized Clinical Trial - Journal of Urol - July 2021
Results of a small study on the effects of the use of drug Erythropoietin prior to radical prostatectomy to improve erectile function after surgery. No positive benefit shown and the study seems to confirm that a good surgeon who can spare the nerves (that's why it's called nerve-sparing surgery) is
Results of a small study on the effects of the use of drug Erythropoietin prior to radical prostatectomy to improve erectile function after surgery. No positive benefit shown and the study seems to confirm that a good surgeon who can spare the nerves (that's why it's called nerve-sparing surgery) is
cujoe
in
Fight Prostate Cancer
3 years ago
If you had a hysterectomy and/or oophorectomy- what was the trigger?
Hi, I have an appointment next week and try to anticipate what might be coming and prepare questions. It will be my first gynae appointment but I already have the MRI scan results via my GP. I have recto vaginal endo, my pouch of Douglas is full, I have DIE along my uterosacral ligaments, tethering
Hi, I have an appointment next week and try to anticipate what might be coming and prepare questions. It will be my first gynae appointment but I already have the MRI scan results via my GP. I have recto vaginal endo, my pouch of Douglas is full, I have DIE along my uterosacral ligaments, tethering
CurlyandConfused
in
Endometriosis UK
3 years ago
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