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Radical hysterectomy
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Post hysterectomy- endo and adenomyosis. Questions welcome!
Hi. So. My story starts like most. Painful, heavy periods but mine started when I was 13. I'm 41 now and was only 'officially' diagnosed with Endo in Feb 2020 after a lap during which they found an ovarian cyst so big it was touching my kidney. They found stage 4 endo all over the fallopian tube and
Hi. So. My story starts like most. Painful, heavy periods but mine started when I was 13. I'm 41 now and was only 'officially' diagnosed with Endo in Feb 2020 after a lap during which they found an ovarian cyst so big it was touching my kidney. They found stage 4 endo all over the fallopian tube and
Freddie20620
in
Endometriosis UK
3 years ago
Endometriosis and ADHD !
Hey ladies. I am currently waiting for my first laposcopy. In horrendous pain at the mo following having the mirena removed after 10 months. It really effected my ADHD because of the progesterone in it. The nurse has said that all other treatments for endo are progesterone based and suggested a hysterectomy
Hey ladies. I am currently waiting for my first laposcopy. In horrendous pain at the mo following having the mirena removed after 10 months. It really effected my ADHD because of the progesterone in it. The nurse has said that all other treatments for endo are progesterone based and suggested a hysterectomy
VicB8t
in
Endometriosis UK
3 years ago
Does hysterectomy and removal of endometriosis elsewhere ever bring relief from symptoms?
Is it possible to get relief from symptoms with a hysterectomy combined with removal of endometriosis from elsewhere with a surgeon who has a lot of experience in this area? It’s an option I have but I’m not managing to find any posts about positive outcomes. I’m not sure if that’s because it doesn’t
Is it possible to get relief from symptoms with a hysterectomy combined with removal of endometriosis from elsewhere with a surgeon who has a lot of experience in this area? It’s an option I have but I’m not managing to find any posts about positive outcomes. I’m not sure if that’s because it doesn’t
Puffling1
in
Endometriosis UK
3 years ago
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The constant pain is making me so low
I’m in the uk and suffering with chronic abdominal pain, following a loooong time with undiagnosed endo and a hysterectomy in 2019. The GP has supposedly tried everything and since I decided not to continue taking pregabalin, they have given up on me. I have a referral to the pain management clinic (
I’m in the uk and suffering with chronic abdominal pain, following a loooong time with undiagnosed endo and a hysterectomy in 2019. The GP has supposedly tried everything and since I decided not to continue taking pregabalin, they have given up on me. I have a referral to the pain management clinic (
PenelopeClearwater
in
Pelvic Pain Support Network
3 years ago
Granulosa cell tumour - chemo advice
Hi all, I've recently been diagnosed with granulosa cell tumour, after a large 'cyst' was found on my left ovary. I had a full hysterectomy, omentectomy and during surgery my surgeon found a small nodule on the r.h. peritoneum. The histology has shown that this is granulosa cell tumour, and has been
Hi all, I've recently been diagnosed with granulosa cell tumour, after a large 'cyst' was found on my left ovary. I had a full hysterectomy, omentectomy and during surgery my surgeon found a small nodule on the r.h. peritoneum. The histology has shown that this is granulosa cell tumour, and has been
pachacuti
in
My Ovacome
3 years ago
Proteolytic Enzymes... Has anyone had any success with them?
I already take Curcumin and Vit K2 on top of ADCAL supplements and wondered if anyone has used Proteolytic Enzymes. Are they worth the money? I am currently on 7.5mg Steriods and taking Alendronic acid too.
I already take Curcumin and Vit K2 on top of ADCAL supplements and wondered if anyone has used Proteolytic Enzymes. Are they worth the money? I am currently on 7.5mg Steriods and taking Alendronic acid too.
Mamamia21
in
PMRGCAuk
3 years ago
Tranexamic acid - any advice?
In short, I have endo & adeno and am currently treatment free whilst waiting for a hysterectomy (I'm 45). My periods are pretty heavy and painful and a doctor has suggested trying Tranexamic acid for a few months. I just wondered if anyone else has tried this in a similar situation and did it work? Thanks
In short, I have endo & adeno and am currently treatment free whilst waiting for a hysterectomy (I'm 45). My periods are pretty heavy and painful and a doctor has suggested trying Tranexamic acid for a few months. I just wondered if anyone else has tried this in a similar situation and did it work? Thanks
Username12345678
in
Endometriosis UK
3 years ago
Can patients with low-risk PCa benefit from radical treatment?
New (disturbing) meta-analysis below [1]. "Radical prostatectomy, radiotherapy and active surveillance are three widely used treatment options for patients with low-risk prostate cancer, but the relative effects are controversial." "Twenty-two studies containing 185,363 participants were pooled for the
New (disturbing) meta-analysis below [1]. "Radical prostatectomy, radiotherapy and active surveillance are three widely used treatment options for patients with low-risk prostate cancer, but the relative effects are controversial." "Twenty-two studies containing 185,363 participants were pooled for the
pjoshea13
in
Advanced Prostate Cancer
3 years ago
HRT AFTER HYSTERECTOMY
Hey all, About 3 months ago I had major excision surgery for my endometrios which involved a full hysterecomy (with ovaries removed) and a bowel resection. I have a temporary ileostomy at the moment so will be having another op in a few months time. I have been on Tibolone for about a year now as was
Hey all, About 3 months ago I had major excision surgery for my endometrios which involved a full hysterecomy (with ovaries removed) and a bowel resection. I have a temporary ileostomy at the moment so will be having another op in a few months time. I have been on Tibolone for about a year now as was
fdennis07
in
Endometriosis UK
3 years ago
Opp update
Hi Folks as you know I went to see anaesthetist yesterday regarding my upcoming hysterectomy , he checked my neck and lungs to make sure they were ok and asked if I had any questions - so I said “ yes are you doing the operation with epidural or general” he replied that no we have to do your up with
Hi Folks as you know I went to see anaesthetist yesterday regarding my upcoming hysterectomy , he checked my neck and lungs to make sure they were ok and asked if I had any questions - so I said “ yes are you doing the operation with epidural or general” he replied that no we have to do your up with
svfarmer
in
LUPUS UK
3 years ago
Post op 3m follow up and hysterectomy query
Hi all I have my 3 month post diagnostic laparoscopy/excision follow up appointment with my surgeon on Friday. The pain has definitely improved, more so that it isn't all the time anymore. I do still experience pain around my period but it isn't prolonged after I've stopped bleeding. I have said from
Hi all I have my 3 month post diagnostic laparoscopy/excision follow up appointment with my surgeon on Friday. The pain has definitely improved, more so that it isn't all the time anymore. I do still experience pain around my period but it isn't prolonged after I've stopped bleeding. I have said from
Hunter-23
in
Endometriosis UK
3 years ago
omeprazole, adcal and prednisilone
Can someone please remind me of the mantra for taking these ? I am sure i read not to take Omeprazole with Pred as it affects absorption and know for sure that Omeprazole affects the absorption of calcium and Vit B12. I am currently stable on 5mgs but after 8 weeks my body is still saying no to further
Can someone please remind me of the mantra for taking these ? I am sure i read not to take Omeprazole with Pred as it affects absorption and know for sure that Omeprazole affects the absorption of calcium and Vit B12. I am currently stable on 5mgs but after 8 weeks my body is still saying no to further
larkthebark
in
PMRGCAuk
3 years ago
Prostate-Specific Antigen: Predicting for Biochemical Failure During Salvage Radiation Therapy After Prostatectomy
For anyone thinking about Salvage Radiation Treatment (SRT) this article makes the point that you should have your PSA measured before, during (25th session) and after treatment...my Doctor did not believe this was necessary; I see now that it was. Luckily I had my own tests done at ultra low levels
For anyone thinking about Salvage Radiation Treatment (SRT) this article makes the point that you should have your PSA measured before, during (25th session) and after treatment...my Doctor did not believe this was necessary; I see now that it was. Luckily I had my own tests done at ultra low levels
RMontana
in
Active Surveillance - Prostate Cancer
3 years ago
Positive warrior
Hi new here. Little bit about me, diagnosed sept 2018 3c, had the normal rounds of chemo before complete hysterectomy, I consider myself lucky with the surgery coped really well and recovery was good, I can honestly say I have been very lucky to have had no horrible side affects with the chemo and surgery
Hi new here. Little bit about me, diagnosed sept 2018 3c, had the normal rounds of chemo before complete hysterectomy, I consider myself lucky with the surgery coped really well and recovery was good, I can honestly say I have been very lucky to have had no horrible side affects with the chemo and surgery
Mubblins
in
My Ovacome
3 years ago
Has anyone been to Spire Hospital fylde to have prolapse surgery? Or any positive experiences of surgery anywhere in northwest ?
Hi I have just discovered I have bladder prolapse and a slight bowel one. I am thinking of going for surgery privately because this has totally shocked me and made me feel so down . I had been experiencing slight bladder leakage when my bladder was full and if I coughed it laughed etc but nothing else
Hi I have just discovered I have bladder prolapse and a slight bowel one. I am thinking of going for surgery privately because this has totally shocked me and made me feel so down . I had been experiencing slight bladder leakage when my bladder was full and if I coughed it laughed etc but nothing else
Sixties123
in
Pelvic Pain Support Network
3 years ago
How do I choose between Cyberknife (SBRT) monotherapy vs HDR Brachytherapy+EBRT?
M59, Gleason 4+3 (second opinion confirmed by Jonathan Epstein at John Hopkins), PSA7.8 average past 1 year, T2C stage. Haven't been operated or radiated before. Currently am being offered: 1) 5 fraction Cyberknife (SBRT) therapy that is concentrated to the prostate. 2) 1 time high dose rate Bracytherapy
M59, Gleason 4+3 (second opinion confirmed by Jonathan Epstein at John Hopkins), PSA7.8 average past 1 year, T2C stage. Haven't been operated or radiated before. Currently am being offered: 1) 5 fraction Cyberknife (SBRT) therapy that is concentrated to the prostate. 2) 1 time high dose rate Bracytherapy
FiguringOut
in
Advanced Prostate Cancer
3 years ago
How do I choose between Cyberknife (SBRT) monotherapy vs HDR Brachytherapy+EBRT?
M59, Gleason 4+3 (second opinion confirmed by Jonathan Epstein at John Hopkins), PSA7.8 average past 1 year, T2C stage. Haven't been operated or radiated before. Currently am being offered: 1) 5 fraction Cyberknife (SBRT) therapy that is concentrated to the prostate. 2) 1 time high dose rate Bracytherapy
M59, Gleason 4+3 (second opinion confirmed by Jonathan Epstein at John Hopkins), PSA7.8 average past 1 year, T2C stage. Haven't been operated or radiated before. Currently am being offered: 1) 5 fraction Cyberknife (SBRT) therapy that is concentrated to the prostate. 2) 1 time high dose rate Bracytherapy
FiguringOut
in
Active Surveillance - Prostate Cancer
3 years ago
How do I choose between Cyberknife (SBRT) monotherapy vs HDR Brachytherapy+EBRT?
M59, Gleason 4+3 (second opinion confirmed by Jonathan Epstein at John Hopkins), PSA7.8 average past 1 year, T2C stage. Haven't been operated or radiated before. Currently am being offered: 1) 5 fraction Cyberknife (SBRT) therapy that is concentrated to the prostate. 2) 1 time high dose rate Bracytherapy
M59, Gleason 4+3 (second opinion confirmed by Jonathan Epstein at John Hopkins), PSA7.8 average past 1 year, T2C stage. Haven't been operated or radiated before. Currently am being offered: 1) 5 fraction Cyberknife (SBRT) therapy that is concentrated to the prostate. 2) 1 time high dose rate Bracytherapy
FiguringOut
in
Fight Prostate Cancer
3 years ago
How do I choose between Cyberknife (SBRT) monotherapy vs HDR Brachytherapy+EBRT?
M59, Gleason 4+3 (second opinion confirmed by Jonathan Epstein at John Hopkins), PSA7.8 average past 1 year, T2C stage. Haven't been operated or radiated before. Currently am being offered: 1) 5 fraction Cyberknife (SBRT) therapy that is concentrated to the prostate. 2) 1 time high dose rate Bracytherapy
M59, Gleason 4+3 (second opinion confirmed by Jonathan Epstein at John Hopkins), PSA7.8 average past 1 year, T2C stage. Haven't been operated or radiated before. Currently am being offered: 1) 5 fraction Cyberknife (SBRT) therapy that is concentrated to the prostate. 2) 1 time high dose rate Bracytherapy
FiguringOut
in
Prostate Cancer Caregivers
3 years ago
Pain on right after eating
Does anyone get pain on the right lower side around by the hip/ovary area straight after eating? I have endo have had hysterectomy with ovaries left in and further excision on right same sort of area as this pain. I also have a bladder prolapse which blocks my bowel which maybe causing these pains. Grateful
Does anyone get pain on the right lower side around by the hip/ovary area straight after eating? I have endo have had hysterectomy with ovaries left in and further excision on right same sort of area as this pain. I also have a bladder prolapse which blocks my bowel which maybe causing these pains. Grateful
EndoJaz
in
Endometriosis UK
3 years ago
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