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Sleep clinic
hi all I said is do an update following on from my latest appt with endocrinology The endocrinologist dr David Hughes at Derby private medical was fab pragmatic and said very practically you are being fobbed off this isn’t an endocrinology issue, it’s definitely neurological!! He listened to all my
hi all I said is do an update following on from my latest appt with endocrinology The endocrinologist dr David Hughes at Derby private medical was fab pragmatic and said very practically you are being fobbed off this isn’t an endocrinology issue, it’s definitely neurological!! He listened to all my
Zenawarrior73
in
Restless Legs Syndrome
18 days ago
Does anyone have experience of Radical Prostatectomy surgery or External Beam Therapy (with hormone therapy)?
Good morning, a fairly specific question: I had a HA in 2018 followed by single stent, diagnosis: Ischaemic heart disease, usual medication, rehab and all fine. In 2021 I was diagnosed with Chronic Inflammatory demyalinating polyneuropathy (CIDP), rare and little known condition - not related to the
Good morning, a fairly specific question: I had a HA in 2018 followed by single stent, diagnosis: Ischaemic heart disease, usual medication, rehab and all fine. In 2021 I was diagnosed with Chronic Inflammatory demyalinating polyneuropathy (CIDP), rare and little known condition - not related to the
ken-b
in
British Heart Foundation
8 months ago
Recurence
Hi wondered what side effects with niropirad as am being offereredjust out hospital after total hysterectomy omentom removed and shock stoma was given mopup chemo that put me in hospital just don't feel ready for more treatments as last year in out of hospital no normal life been told they removed
Hi wondered what side effects with niropirad as am being offereredjust out hospital after total hysterectomy omentom removed and shock stoma was given mopup chemo that put me in hospital just don't feel ready for more treatments as last year in out of hospital no normal life been told they removed
PaumicB123
in
My Ovacome
3 months ago
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. . & Pissed off Update
You guys are the best. Sue, Jools, Blue, Truly, everyone, I came here because I knew you would be there for me. It's crazy how this support can be so vital and helpful. Really. I've shared this - I recently changed blood pressure meds. The improvement was DRASTIC. My blood pressure
You guys are the best. Sue, Jools, Blue, Truly, everyone, I came here because I knew you would be there for me. It's crazy how this support can be so vital and helpful. Really. I've shared this - I recently changed blood pressure meds. The improvement was DRASTIC. My blood pressure
Leeserann
in
Restless Legs Syndrome
1 month ago
Has anyones Endo returning after hysterectomy?
It's been awhile since I've posted.I got an MRI report back, after urologist found abnormality after bladder stretch. The MRI found endometriotic deposits by the rectosigmoid colon. I have extensive surgery and hysterectomy in January. Having a bowel shave, rectosigmoid colon as well DIE within the
It's been awhile since I've posted.I got an MRI report back, after urologist found abnormality after bladder stretch. The MRI found endometriotic deposits by the rectosigmoid colon. I have extensive surgery and hysterectomy in January. Having a bowel shave, rectosigmoid colon as well DIE within the
Jasmin24
in
Endometriosis UK
8 months ago
Timings of medications, help please.
Can anyone help me with the timings for the following medications which I need to take each day apart from the Risedronate once a week, please? I have spoken to the pharmacy and they were not particularly helpful. Levothyroxine and Risedronate both have to be taken on an empty stomach I believe. Not
Can anyone help me with the timings for the following medications which I need to take each day apart from the Risedronate once a week, please? I have spoken to the pharmacy and they were not particularly helpful. Levothyroxine and Risedronate both have to be taken on an empty stomach I believe. Not
Katkin1
in
PMRGCAuk
4 months ago
Next step is apparently hysterectomy?
Just seen specialist consultant who did my excision operation for stage 4 endo in May. He discharged me and said next stage would be hysterectomy when my pain becomes unbearable again. How long till that might happen I'm wondering. But depressing news but I guess to be expected?
Just seen specialist consultant who did my excision operation for stage 4 endo in May. He discharged me and said next stage would be hysterectomy when my pain becomes unbearable again. How long till that might happen I'm wondering. But depressing news but I guess to be expected?
Apricottree
in
Endometriosis UK
8 months ago
Help, shall I take a break or not
I have stage 4 endometriosis and adenomyosis with bowel and bladder adhesions and cyst's on both ovaries. I've been waiting for four years for my hysterectomy and I still don't have a date. My recent hormone injection appointment was cancelled and I'm wondering whether to take the opportunity to take
I have stage 4 endometriosis and adenomyosis with bowel and bladder adhesions and cyst's on both ovaries. I've been waiting for four years for my hysterectomy and I still don't have a date. My recent hormone injection appointment was cancelled and I'm wondering whether to take the opportunity to take
Em_46
in
Endometriosis UK
8 months ago
Advice needed please!
Hi all, I am 51 years old and have suffered from Endo for the past 7 years approx and had an op to remove some about 4 years ago. This seemed to help for a while but it came back as I believe is often the case. I have been on the mini pill since the op and the condition has been almost manageable and
Hi all, I am 51 years old and have suffered from Endo for the past 7 years approx and had an op to remove some about 4 years ago. This seemed to help for a while but it came back as I believe is often the case. I have been on the mini pill since the op and the condition has been almost manageable and
Husky777
in
Endometriosis UK
8 months ago
bone protection
2 weeks in to Pred and very grateful for all the excellent advice. Resting a lot more, taking AdCal/ Vit D supplements and following advice in here have upped dietary intake of calcium ( enjoying hot milk before bed!). Have been told I don’t need a Dexa scan. have got Vit D/ K2 from Amazon. Can I
2 weeks in to Pred and very grateful for all the excellent advice. Resting a lot more, taking AdCal/ Vit D supplements and following advice in here have upped dietary intake of calcium ( enjoying hot milk before bed!). Have been told I don’t need a Dexa scan. have got Vit D/ K2 from Amazon. Can I
Scaredofpred
in
PMRGCAuk
4 months ago
At a loss
I was prescribed Ropinirole .25 mg I took that for 4 days and could not handle the side effects. Day 4 was terrible. After reading the posts, it seems as if I am screwed if I don't take any medication for it so I guess I will just have to live with this condition drug free. I was never a pill popper
I was prescribed Ropinirole .25 mg I took that for 4 days and could not handle the side effects. Day 4 was terrible. After reading the posts, it seems as if I am screwed if I don't take any medication for it so I guess I will just have to live with this condition drug free. I was never a pill popper
Tree1228
in
Restless Legs Syndrome
2 months ago
R223 - PSA 26 Doubled since February
My husband has had 3 treatments of R223, had to postpone 4th treatment because of flu. On Monday had bloods taken in preparation of 4th treatment on 18th April 2024. Blood results ALP 76, at started of R223 106, HB 92 down from 102, (has Proctitis and occasional bleed, calcium a little low, taken
My husband has had 3 treatments of R223, had to postpone 4th treatment because of flu. On Monday had bloods taken in preparation of 4th treatment on 18th April 2024. Blood results ALP 76, at started of R223 106, HB 92 down from 102, (has Proctitis and occasional bleed, calcium a little low, taken
Janhpr
in
Advanced Prostate Cancer
4 months ago
Exercise? Diet? Therapy? Has this helped you?
Hey there! I am on a mission to research and implement different techniques to help me lose some weight, increase my core strength and endurance. A little bit about me: I am 27 years old and have suffered most of my life with joint and chronic mechanical back pain, Hypermobility, Spina Bifida Occulta
Hey there! I am on a mission to research and implement different techniques to help me lose some weight, increase my core strength and endurance. A little bit about me: I am 27 years old and have suffered most of my life with joint and chronic mechanical back pain, Hypermobility, Spina Bifida Occulta
UndercoverHippie
in
Fibromyalgia Action UK
2 months ago
Has anyone here discovered they have endometriosis/and or adenomyosis at a later stage in life? Just found out at 50!
Right now I am sad and very angry. I have been under my local gynae and gastroenterology departments for over 20 years. That’s 20+ years of endless gastro tests for my ongoing digestive issues (I’ve had 2 colonoscopies, 2 gastroscopes, blood tests, fit tests, a scan for bile acid malabsorption). During
Right now I am sad and very angry. I have been under my local gynae and gastroenterology departments for over 20 years. That’s 20+ years of endless gastro tests for my ongoing digestive issues (I’ve had 2 colonoscopies, 2 gastroscopes, blood tests, fit tests, a scan for bile acid malabsorption). During
rustydog
in
Endometriosis UK
8 months ago
Failed Endometrial Ablation: Prostap
Hi folks, Here goes, I had an ablation done but I’ve never had endometriosis - long story - it’s failed and I’m due to have the Prostap injection. I’m worried about weight gain a developing hashimoto’s, I’m paralysed and osteoporosis is also a worry. I’m very high risk for hysterectomy surgery, so
Hi folks, Here goes, I had an ablation done but I’ve never had endometriosis - long story - it’s failed and I’m due to have the Prostap injection. I’m worried about weight gain a developing hashimoto’s, I’m paralysed and osteoporosis is also a worry. I’m very high risk for hysterectomy surgery, so
Chingri2021
in
Endometriosis UK
8 months ago
Do Sulforaphane, Melatonin, and Cayenne Pepper work?
I've been a lurker for a while. First time post. I have had a radical prostatectomy, chemo (docetaxel - 6 infusions 3 weeks apart), radiation (38 doses) and Lupron (18 months). I am done with all treatment for now. PSA minimum was 0.02, now at 0.04. I've been reading a lot about sulforaphane (BROQ)
I've been a lurker for a while. First time post. I have had a radical prostatectomy, chemo (docetaxel - 6 infusions 3 weeks apart), radiation (38 doses) and Lupron (18 months). I am done with all treatment for now. PSA minimum was 0.02, now at 0.04. I've been reading a lot about sulforaphane (BROQ)
SisuMike
in
Advanced Prostate Cancer
9 months ago
HGS stage 3b
Has anyone been through similar. I was diagnosed in May 2020 after total hysterectomy bue due to bladder injury in surgery was unable to start chemotherapy due to risk of sepsis. I had 1st reoccurance in sept 2021 and finished carbo/taxol in jan 2022. I have been on Lynparza for 2 years just finished
Has anyone been through similar. I was diagnosed in May 2020 after total hysterectomy bue due to bladder injury in surgery was unable to start chemotherapy due to risk of sepsis. I had 1st reoccurance in sept 2021 and finished carbo/taxol in jan 2022. I have been on Lynparza for 2 years just finished
0151tmac69
in
My Ovacome
4 months ago
Could it be MS?
For the last 11 months, I have been experiencing numbness and tingling in both feet. I have noticed when its cold I feel worse. I also have numbness, tingling and weakness on my left side in my hand and lower arm. I had a MRI in April 2023 with no contrast; both came back normal. My symptoms have
For the last 11 months, I have been experiencing numbness and tingling in both feet. I have noticed when its cold I feel worse. I also have numbness, tingling and weakness on my left side in my hand and lower arm. I had a MRI in April 2023 with no contrast; both came back normal. My symptoms have
brwnbaby
in
My MSAA Community
8 months ago
I am not sure what to do next ?
Sorry its bit of a long one and I am dyslexic so please bare with me but I am really unsure what to do . I am 33 and for 13 years I was miss diagnosed with stomach issues that the hospital said was a number of things e.g ibs, gallbladder. It wasn't untill 2 years ago I found out what it was which was
Sorry its bit of a long one and I am dyslexic so please bare with me but I am really unsure what to do . I am 33 and for 13 years I was miss diagnosed with stomach issues that the hospital said was a number of things e.g ibs, gallbladder. It wasn't untill 2 years ago I found out what it was which was
nicola19cola
in
British Heart Foundation
8 months ago
Diagnostic Imaging Not Yet Enough for Biopsy-Free Radical Prostatectomy - MedPage Today, November 27, 2023
Biopsy-free PCa diagnostics would be welcomed by anyone who has had one or more needle biopsies. This article in MedPage Today summarizes the current status for the several methodologies being studied as alternatives. Good info for those currently on AS or just watching a rising PSA. From the lead-in
Biopsy-free PCa diagnostics would be welcomed by anyone who has had one or more needle biopsies. This article in MedPage Today summarizes the current status for the several methodologies being studied as alternatives. Good info for those currently on AS or just watching a rising PSA. From the lead-in
cujoe
in
Fight Prostate Cancer
9 months ago
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