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A difficult customer
Hello i've just joined this group so will summarise my experiences. I have a very understanding oncologist who has been very supportive but also refers to me, not always in jest, as her "difficult one". The reason is that I have rejected most of what is referred to as Standard Care here in the UK. I
Hello i've just joined this group so will summarise my experiences. I have a very understanding oncologist who has been very supportive but also refers to me, not always in jest, as her "difficult one". The reason is that I have rejected most of what is referred to as Standard Care here in the UK. I
Notewell
in
Advanced Prostate Cancer
5 years ago
Fibrosis stage 2 and hepb chronic
Hi , my viral load is 159000000, and fibrosis stage2 with 8.1kps , 33yrs old weight 135lbs, never have drink alcohol and never have smoke in my life. Is my viral load very dangerous, what treatment you guys take? Doc recommend me vemlidy, anyone use it and how is it?
Hi , my viral load is 159000000, and fibrosis stage2 with 8.1kps , 33yrs old weight 135lbs, never have drink alcohol and never have smoke in my life. Is my viral load very dangerous, what treatment you guys take? Doc recommend me vemlidy, anyone use it and how is it?
Lalaloo2211
in
British Liver Trust
5 years ago
Radium-223 treatment in CRPC & presence of Primary Tumor.
New Italian study. Only 44 men, but .... "The presence of the primary prostate tumor seems to play a detrimental role in mCRPC patients undergoing 223Ra treatment in absence of other concomitant anticancer therapy. On the other hand a previous RP might play a protective role." "Discussion" "Radium 223
New Italian study. Only 44 men, but .... "The presence of the primary prostate tumor seems to play a detrimental role in mCRPC patients undergoing 223Ra treatment in absence of other concomitant anticancer therapy. On the other hand a previous RP might play a protective role." "Discussion" "Radium 223
pjoshea13
in
Advanced Prostate Cancer
5 years ago
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Radium 223 and external beam radiation
Wondering if anyone out there had external beam radiation to bone mets while on Radium 223? My husband had his first Radium 223 infusion this past Wednesday but he has a bone met in his spine that is causing severe pain. When we asked our oncologist if he could get it radiated, he said no due to high
Wondering if anyone out there had external beam radiation to bone mets while on Radium 223? My husband had his first Radium 223 infusion this past Wednesday but he has a bone met in his spine that is causing severe pain. When we asked our oncologist if he could get it radiated, he said no due to high
MeliaQuinn
in
Advanced Prostate Cancer
5 years ago
My mother 56y-left breast Ca-stage 1A (Sep 2019)
Hello my mother 56 y diagnosed with left breast cancer stage 1A. Modified radical mastectomy done on Sep 23, 2019. no chemo or radiotherapy was given. she is on hormonal therapy now with letrazole 2.5mg daily a pill. Any one has the same type of cancer years ago and undergoing any treatment now. please
Hello my mother 56 y diagnosed with left breast cancer stage 1A. Modified radical mastectomy done on Sep 23, 2019. no chemo or radiotherapy was given. she is on hormonal therapy now with letrazole 2.5mg daily a pill. Any one has the same type of cancer years ago and undergoing any treatment now. please
bramadasu
in
Breast Cancer India
5 years ago
Vitamin B Strong tablets
Hello there, I have PA, diagnosed in 2012. I've had the B12 injections since every 12 weeks. Along with the injections, I have been prescribed Vitamin B Strong tablets daily. I am just wondering how much of a difference the tablets will make to any blood test I have regarding my B12 levels? I haven't
Hello there, I have PA, diagnosed in 2012. I've had the B12 injections since every 12 weeks. Along with the injections, I have been prescribed Vitamin B Strong tablets daily. I am just wondering how much of a difference the tablets will make to any blood test I have regarding my B12 levels? I haven't
StaffsLass
in
Pernicious Anaemia Society
5 years ago
Vitamin timings
Hi, If taking the following medixation and supplements, are there any certain times best to take them to avoid any interference. Levothyroxine 125 Selenium Zinc Vitamin B complex Vitamin D Magnesium (Read this needs to be taken if taken vitamin d)
Hi, If taking the following medixation and supplements, are there any certain times best to take them to avoid any interference. Levothyroxine 125 Selenium Zinc Vitamin B complex Vitamin D Magnesium (Read this needs to be taken if taken vitamin d)
mishoakes
in
Thyroid UK
5 years ago
Help with upcoming decisions
hello all, My husband will be heading to the oncologist next Tuesday after trying to rechallenge with Zytiga and dexamethasone after 5 rounds of docetaxel. he has been off chemo since June 26. since that time he has had several biopsies to get a sample to enter into the Vision trial, all of which were
hello all, My husband will be heading to the oncologist next Tuesday after trying to rechallenge with Zytiga and dexamethasone after 5 rounds of docetaxel. he has been off chemo since June 26. since that time he has had several biopsies to get a sample to enter into the Vision trial, all of which were
Dalipup
in
Advanced Prostate Cancer
5 years ago
NEW RESULTS, I FEEL LIKE I’M DYING
Hi all, Just a refresher, I had total thyroidectomy for papillary cancer in 2017, have not been well since surgery. All vitamin & mineral levels are optimal. I take synthroid 100mcg, 7.5 mcg cytomel, taken together at 7am with a full glass of water, breakfast at 10am. Supplements : 400mg magnesium glycinate
Hi all, Just a refresher, I had total thyroidectomy for papillary cancer in 2017, have not been well since surgery. All vitamin & mineral levels are optimal. I take synthroid 100mcg, 7.5 mcg cytomel, taken together at 7am with a full glass of water, breakfast at 10am. Supplements : 400mg magnesium glycinate
Rosebud1955
in
Thyroid UK
5 years ago
Radium 223
Is radium 223 still an effective treatment.
Is radium 223 still an effective treatment.
linpisarn
in
Advanced Prostate Cancer
5 years ago
Novel methods for mapping the cavernous nerves during radical prostatectomy.
The article below was published four years ago. Has there been progress in technologies to definitively assess whether nerves have been "spared" and "healing" is taking place following a prostatectomy? https://www.ncbi.nlm.nih.gov/pubmed/26256860
The article below was published four years ago. Has there been progress in technologies to definitively assess whether nerves have been "spared" and "healing" is taking place following a prostatectomy? https://www.ncbi.nlm.nih.gov/pubmed/26256860
baw1955
in
Erectile Dysfunction Support
5 years ago
Novel methods for mapping the cavernous nerves during radical prostatectomy.
The article below was published four years ago. Has there been progress in technologies to definitively assess whether nerves have been "spared" and "healing" is taking place following a prostatectomy? https://www.ncbi.nlm.nih.gov/pubmed/26256860
The article below was published four years ago. Has there been progress in technologies to definitively assess whether nerves have been "spared" and "healing" is taking place following a prostatectomy? https://www.ncbi.nlm.nih.gov/pubmed/26256860
baw1955
in
Fight Prostate Cancer
5 years ago
Men with Prostate Cancer can be Spared Radiotherapy after Surgery
This large RCT found that early salvage radiotherapy (SRT) is not inferior to 'standard' treatment with adjuvant RT (ART) with respect to biochemical failure in patients with pT3 disease and/or positive surgical margins (SMs) after radical prostatectomy (RP). https://www.esmo.org/Press-Office/Press-Releases
This large RCT found that early salvage radiotherapy (SRT) is not inferior to 'standard' treatment with adjuvant RT (ART) with respect to biochemical failure in patients with pT3 disease and/or positive surgical margins (SMs) after radical prostatectomy (RP). https://www.esmo.org/Press-Office/Press-Releases
Gemlin_
in
Advanced Prostate Cancer
5 years ago
Watchful Waiting Worked
Nearly 3 yrs ago I chose radiation over radical prostatectomy to halt aggressively growing cancer. My PSA following radiation is now down to .020. I am grateful to my urologist and to those who have advised me and executed an apparently successful procedure. I wish those who are not so fortunate courage
Nearly 3 yrs ago I chose radiation over radical prostatectomy to halt aggressively growing cancer. My PSA following radiation is now down to .020. I am grateful to my urologist and to those who have advised me and executed an apparently successful procedure. I wish those who are not so fortunate courage
Wildandcrazybob
in
Advanced Prostate Cancer
5 years ago
zytiga failed going on oxfigo radium 223
Had 4 bone mets in pelvis 9/18 started on zytiga and predisone psa was 4 in 3 months went to 0.68 by 8/19 up to 8.13 MO stopped Zytiga took bone scan 9/19 now have 9 mets 4 on spine now doing radiation on 2 mets that are on spine. Went for 2nd opinion with Dr Hussain in Chicago Il (excellent)
Had 4 bone mets in pelvis 9/18 started on zytiga and predisone psa was 4 in 3 months went to 0.68 by 8/19 up to 8.13 MO stopped Zytiga took bone scan 9/19 now have 9 mets 4 on spine now doing radiation on 2 mets that are on spine. Went for 2nd opinion with Dr Hussain in Chicago Il (excellent)
Racer26
in
Advanced Prostate Cancer
5 years ago
B1 and /or B12 ??
Diagnosed PD two years ago iI am trying to get an alternative treatment to modopar 125 , This website offers a lot of experiences namely with vitamin B ;. My question is that i read posts mentining B1 and other B12. Can anybody having noticed improvment dollowing a cure of vitamin let me knox the
Diagnosed PD two years ago iI am trying to get an alternative treatment to modopar 125 , This website offers a lot of experiences namely with vitamin B ;. My question is that i read posts mentining B1 and other B12. Can anybody having noticed improvment dollowing a cure of vitamin let me knox the
PARKINPONS2
in
Cure Parkinson's
5 years ago
18F-fluciclovine PET-CT and 68Ga-PSMA-11 PET-CT in patients with early biochemical recurrence after prostatectomy: A prospective, single-...
The use of PSMA PET-CT scans resulted in higher detection rates, and therefore, this diagnostic modality was recommended when PET-CT imaging is considered for subsequent treatment management decisions in patients with prostate cancer and biochemical recurrence after radical prostatectomy and low PSA
The use of PSMA PET-CT scans resulted in higher detection rates, and therefore, this diagnostic modality was recommended when PET-CT imaging is considered for subsequent treatment management decisions in patients with prostate cancer and biochemical recurrence after radical prostatectomy and low PSA
GranPaSmurf
in
Advanced Prostate Cancer
5 years ago
17 years with metastatic prostate cancer - operation 2 and a dance with Lu
It’s been around eleven months since my last post, so I thought I’d put together an update for those of you who are interested. It’s quite a long one. Apologies for that, but hopefully it will be of interest. It’s also helped me just to set it all out. A kind of therapy, if you will. So, after a few
It’s been around eleven months since my last post, so I thought I’d put together an update for those of you who are interested. It’s quite a long one. Apologies for that, but hopefully it will be of interest. It’s also helped me just to set it all out. A kind of therapy, if you will. So, after a few
Hidden
in
Advanced Prostate Cancer
5 years ago
Veru-111 Advice
My Dad is going to be screened for the Veru-111 trial soon. I’ve been looking all over the internet trying to find others that may have gone through this trial. I understand it’s new, but I’m just looking for feedback on what others may know. I’ve read the handout from the hospital and a couple of sites
My Dad is going to be screened for the Veru-111 trial soon. I’ve been looking all over the internet trying to find others that may have gone through this trial. I understand it’s new, but I’m just looking for feedback on what others may know. I’ve read the handout from the hospital and a couple of sites
Amandaslp78
in
Advanced Prostate Cancer
5 years ago
never ending crying spells
Im on psych drugs for 12 years. was on a lot of drugs since 2008 including paxera, cymbalta, zoloft, risperdal, solian, abilify, rexapin and so on. the reason was just depression when it all started. I was on 60 mg cymbalta and 100 mg solian between 2012-2018. drugs started not working I told my dr.
Im on psych drugs for 12 years. was on a lot of drugs since 2008 including paxera, cymbalta, zoloft, risperdal, solian, abilify, rexapin and so on. the reason was just depression when it all started. I was on 60 mg cymbalta and 100 mg solian between 2012-2018. drugs started not working I told my dr.
Hidden
in
Anxiety Support
5 years ago
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