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ENTERIC COATING....MAY NEED SOME WARNINGS
Having just gone through my worst flare of my 15 months of actively dealing with GCA and PMR......I've ended up spending most of my time in bed with time to think. Hubby and I have done some posting about our decision to split my daily dosage ( 18mg ) to relieve some of my morning PMR pain. For three
Having just gone through my worst flare of my 15 months of actively dealing with GCA and PMR......I've ended up spending most of my time in bed with time to think. Hubby and I have done some posting about our decision to split my daily dosage ( 18mg ) to relieve some of my morning PMR pain. For three
cjatthesea
in
PMRGCAuk
8 years ago
Alternative therapy update
Still doing well with the low level light therapy. New people who haven't been following my progress so unsure what I'm talking about can go to my profile and find earlier posts. Currently I appear to be doing well at 5 mg. For a few days I wondered if it was really going to be okay, but today I felt
Still doing well with the low level light therapy. New people who haven't been following my progress so unsure what I'm talking about can go to my profile and find earlier posts. Currently I appear to be doing well at 5 mg. For a few days I wondered if it was really going to be okay, but today I felt
HeronNS
in
PMRGCAuk
8 years ago
Fun!
I have had plaque psoriasis since I was 2/3, just on elbows and behind ears initially but now head to toe. Fun! Annoying but I will survive. Light therapy worked best but I live nearly an hour from the hospital, every other day got ridiculous so I had to stop but useful while pregnant. On humira but
I have had plaque psoriasis since I was 2/3, just on elbows and behind ears initially but now head to toe. Fun! Annoying but I will survive. Light therapy worked best but I live nearly an hour from the hospital, every other day got ridiculous so I had to stop but useful while pregnant. On humira but
Jane-wood
in
Beyond Psoriasis
8 years ago
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Guilty pleasures
I have had chronic pain for years so I have an electric bed, sauna with monochromatic light therapy and hot tub. All awesome ways to treat whole body. The lighting also a good source of vitamin D. I agree with electric blanket as well. I get chills from low grade temps.
I have had chronic pain for years so I have an electric bed, sauna with monochromatic light therapy and hot tub. All awesome ways to treat whole body. The lighting also a good source of vitamin D. I agree with electric blanket as well. I get chills from low grade temps.
Damaged
in
NRAS
8 years ago
Hormones?
Hello I asked a month or so back for some advice re my daughter and her post lap treatment options - she was advised to have the hormone injection but we have resisted due to her young age (19) and she was put on the pill she has not been getting on with it or the painkillers she was prescribed. We
Hello I asked a month or so back for some advice re my daughter and her post lap treatment options - she was advised to have the hormone injection but we have resisted due to her young age (19) and she was put on the pill she has not been getting on with it or the painkillers she was prescribed. We
Andrea67
in
Endometriosis UK
8 years ago
Alternative therapies
Just a little update. I'm starting to taper to 5 mg prednisone, continue to benefit from low intensity light therapy offered by a physiotherapist, plus my good diet (low refined carbs, high whole foods) and varied exercise regimen. I also actively avoid stressful situations. This is a taper using
Just a little update. I'm starting to taper to 5 mg prednisone, continue to benefit from low intensity light therapy offered by a physiotherapist, plus my good diet (low refined carbs, high whole foods) and varied exercise regimen. I also actively avoid stressful situations. This is a taper using
HeronNS
in
PMRGCAuk
8 years ago
Progress report from alternative treatment front
Just a little update for those who have been following my guinea pig treatments with low level light therapy for PMR. I appear to have successfully tapered to 6 mg prednisone and am now starting a taper to 5.5. As before, depending how things go, I may try to cheat the system halfway through the taper
Just a little update for those who have been following my guinea pig treatments with low level light therapy for PMR. I appear to have successfully tapered to 6 mg prednisone and am now starting a taper to 5.5. As before, depending how things go, I may try to cheat the system halfway through the taper
HeronNS
in
PMRGCAuk
8 years ago
A little light therapy info
I keep trying to find information about low intensity light therapy and polymyalgia, and here, at last, is something: http://www.chewvalleylaserclinic.co.uk/clinic_team.htm
I keep trying to find information about low intensity light therapy and polymyalgia, and here, at last, is something: http://www.chewvalleylaserclinic.co.uk/clinic_team.htm
HeronNS
in
PMRGCAuk
8 years ago
Autoimmune Diseases
The Immune System Before looking into autoimmune diseases themselves, it’s important to have an understanding of the system that it affects. The immune system is a combination of the organs, tissues, cells and associated process that provide resistance and protect the body from pathogens that can otherwise
The Immune System Before looking into autoimmune diseases themselves, it’s important to have an understanding of the system that it affects. The immune system is a combination of the organs, tissues, cells and associated process that provide resistance and protect the body from pathogens that can otherwise
Maria-Light
in
Women's Health
8 years ago
Light therapy update
So, as some reading this will already know I've been getting low level light therapy as an experiment to help reduce inflammation. It had seemed helpful as I reduced from 8 to 7 mg, but no way really to know if the LLLT was helping or if I would have been okay anyway. Over Christmas there was a bit
So, as some reading this will already know I've been getting low level light therapy as an experiment to help reduce inflammation. It had seemed helpful as I reduced from 8 to 7 mg, but no way really to know if the LLLT was helping or if I would have been okay anyway. Over Christmas there was a bit
HeronNS
in
PMRGCAuk
8 years ago
light therapy. does it help?
just purchased a light therapy box and started using it. Been having trouble sleeping for months and I would really like to get some rest at night. Has anyone used one before and does it help? thanks
just purchased a light therapy box and started using it. Been having trouble sleeping for months and I would really like to get some rest at night. Has anyone used one before and does it help? thanks
Kainan
in
Mental Health Support
9 years ago
Skins on fire
Hi everyone, Ive recently reduced and stopped the prednisalone I was on for 11 months as I have an autoimmune disease (Wegners) WG. My skin has gone ballistic, my whole body has erupted with psoriasis , forgot to say I've had psoriasis for 35 yrs, its usually pretty well controlled but now its horrendous
Hi everyone, Ive recently reduced and stopped the prednisalone I was on for 11 months as I have an autoimmune disease (Wegners) WG. My skin has gone ballistic, my whole body has erupted with psoriasis , forgot to say I've had psoriasis for 35 yrs, its usually pretty well controlled but now its horrendous
Llinos
in
Beyond Psoriasis
9 years ago
Report from the alternative treatments frontline
I have been getting low intensity light therapy about two times a week for several weeks. This morning I woke up with a sore back and after thinking about yesterday's activities decided it was a short trip into the library with an unexpectedly heavy box of books I was donating that had triggered the
I have been getting low intensity light therapy about two times a week for several weeks. This morning I woke up with a sore back and after thinking about yesterday's activities decided it was a short trip into the library with an unexpectedly heavy box of books I was donating that had triggered the
HeronNS
in
PMRGCAuk
9 years ago
Low level light therapy - report from a guinea pig
I have now had two low level light therapy treatments. The first one was just over twenty minutes with LED light applied to my lower spine. I felt pretty well after that and noticed an unexpected effect - I've long had a tender area where my two vertebrae are that are affected by OA , and that area
I have now had two low level light therapy treatments. The first one was just over twenty minutes with LED light applied to my lower spine. I felt pretty well after that and noticed an unexpected effect - I've long had a tender area where my two vertebrae are that are affected by OA , and that area
HeronNS
in
PMRGCAuk
9 years ago
Bile Acid Malabsorption ( BAM )
Does anyone have bile acid/salt malabsorption? I have this and it's pretty bad at the moment. I also have coeliac disease, b12 deficiency, Graves' disease but no thyroid plus a few others. My life is ruled by the loo, food and meds. How do you all cope. I'm just about to start colesevalam as I can't
Does anyone have bile acid/salt malabsorption? I have this and it's pretty bad at the moment. I also have coeliac disease, b12 deficiency, Graves' disease but no thyroid plus a few others. My life is ruled by the loo, food and meds. How do you all cope. I'm just about to start colesevalam as I can't
madmoms2
in
Bowel Disease Support
9 years ago
Bioflex
Going to try low level light therapy to help me on my journey of pred reduction. First appointment next week. Curious to see how it goes.
Going to try low level light therapy to help me on my journey of pred reduction. First appointment next week. Curious to see how it goes.
HeronNS
in
PMRGCAuk
9 years ago
Light box therapy
I'm about to begin light therapy. It's used for 'seasonal affective disorder'. Has anyone tried it? Reactions? Thanks.
I'm about to begin light therapy. It's used for 'seasonal affective disorder'. Has anyone tried it? Reactions? Thanks.
califdream
in
Mental Health Support
9 years ago
Has anyone been given the wrong medical treatment for their Sweet's syndrome?
I would be interested to know how many patients have been given the wrong medical treatment for their Sweet's syndrome. The situation has improved a lot in the past 5 years, but some patients are still being given the wrong treatment, particularly antibiotics (sulphonamides, tetracyclines, or antibiotics
I would be interested to know how many patients have been given the wrong medical treatment for their Sweet's syndrome. The situation has improved a lot in the past 5 years, but some patients are still being given the wrong treatment, particularly antibiotics (sulphonamides, tetracyclines, or antibiotics
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
9 years ago
Severe flare ups
My other half & my 3 year old daughter both suffer with eczema. I have been with my partner for 12 years and at the moment I am seeing him go through the longest & worst flare up since we've been together. His usual patches are front of neck, inner arms, behind knees and he always has to moisturise
My other half & my 3 year old daughter both suffer with eczema. I have been with my partner for 12 years and at the moment I am seeing him go through the longest & worst flare up since we've been together. His usual patches are front of neck, inner arms, behind knees and he always has to moisturise
Lolab4
in
MY SKIN
9 years ago
Pityriasis lichenoides chronica
Hello everyone I am a 49 year old woman, and I have had pityriasis licehnoides chronica for over twenty years. It is no comfort to read that it is more common in males than in females, or that the most common occurrence is in adolescent boys! It's the usual PLC stuff: thousands of non-itchy but rather
Hello everyone I am a 49 year old woman, and I have had pityriasis licehnoides chronica for over twenty years. It is no comfort to read that it is more common in males than in females, or that the most common occurrence is in adolescent boys! It's the usual PLC stuff: thousands of non-itchy but rather
Susievintage
in
MY SKIN
9 years ago
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