Pityriasis lichenoides chronica: Hello everyone I am... - MY SKIN

MY SKIN

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Pityriasis lichenoides chronica

Susievintage profile image
4 Replies

Hello everyone

I am a 49 year old woman, and I have had pityriasis licehnoides chronica for over twenty years. It is no comfort to read that it is more common in males than in females, or that the most common occurrence is in adolescent boys!

It's the usual PLC stuff: thousands of non-itchy but rather unattractive raised spots all over my legs and - in times of stress - my arms, chest and stomach too. My legs are not my greatest asset anyway - think pit pony - but I do dream of lovely clear skin...

Over the years I have tried all the standard treatments - antibiotics, topical steroid creams and light therapy - but all to no avail.

Had anyone managed to get rid of (or lessen) their PLC, or does anyone know of any trials of new treatments?

Yours in spotty anticipation...

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Susievintage profile image
Susievintage
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4 Replies
Susievintage profile image
Susievintage

Thank you, Daniel, but PLC is a very different condition to psoriasis and eczema. There is no itching (thank goodness!) - just constant replenishment of spots.

Best wishes from Susan

LouiseLiberated profile image
LouiseLiberated

Suze, that was a very comprehensive reply to Susievintage.

I hope she appreciated it because I certainly gleaned new information from it. My cousin has had PLC for several years, and I'll tell her of the new drug you're on.

Carole (cousin) has trouble sleeping at night and longs to itch her spots. Her dermatologist recommended medical haelan tape to put over the offending crust-like blisters so she doesn't scratch in bed.

It doesn't sound like it will ever be cured judging from the other woman's comments which is very disheartening. It sounds like permanent chickenpox!

I don't think creams would help though since they can't penetrate underneath the skin from which this is coming. On the other hand, it's invariably soothing and keeps dry skin at bay.

Thanks for the insight on this stubborn autoimmune disease.

Louise

in reply toLouiseLiberated

It's so ironic that people who have this seem to be too depressed to talk about it or venture any new advice. That's really sad.

Pleva_Awareness profile image
Pleva_Awareness

Hello my name is Eddie Kim, and I am 16. I have suffered from PLEVA ever since I was in pre-school and it has been a nightmare for me. I could not pass by this post because I know how it feels. My mother and I have created a Korean Website to contact patients over the country and share information, which led to more than 60,000 posts about it. Currently, I have been perfectly cured and symptoms have not shown up for years. I currently am working on an instagram page to share those information by translating them and posting consistently. Please follow @pleva_awareness for more information.

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