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Welcome to Stage Denial
Greetings, fellow warriors fighting prostate cancer. Mababa here, with a funny-sounding username that's a joining of my first name initial with the last part of the name of the city where I was born: Addis Ababa, seventy-one years and six months ago. Actually, I'm not quite in the fight yet, so I can't
Greetings, fellow warriors fighting prostate cancer. Mababa here, with a funny-sounding username that's a joining of my first name initial with the last part of the name of the city where I was born: Addis Ababa, seventy-one years and six months ago. Actually, I'm not quite in the fight yet, so I can't
mababa
in
Advanced Prostate Cancer
10 months ago
Speech therapy
I would like to know if there are any members in this group who has speech problems with low voice pitch , because of which they are undergoing speech therapy conducted by Parkinson voice project
I would like to know if there are any members in this group who has speech problems with low voice pitch , because of which they are undergoing speech therapy conducted by Parkinson voice project
Ripraniya
in
Cure Parkinson's
1 year ago
prostrap injections
Hi All, thank you for the add- I am new here. I have ademomyosis, fibroids and also possibly endometriosis. I am listed for a total hysterectomy but start (thursday!) prostrap injections to see how I would cope with no ovaries (with add back HRT) and to check the effect on my terrible ovulation symptoms
Hi All, thank you for the add- I am new here. I have ademomyosis, fibroids and also possibly endometriosis. I am listed for a total hysterectomy but start (thursday!) prostrap injections to see how I would cope with no ovaries (with add back HRT) and to check the effect on my terrible ovulation symptoms
ForestFi
in
Endometriosis UK
10 months ago
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Actemra
hi I started the injection on Tuesday and haven’t felt right since. Lightheaded dizzy at times and on and of sickness. Has anyone els had side effects from this, and how long did they last. Iv been on a lot of injections for RA but my body seems to reject them I’m just hoping this isn’t the case and
hi I started the injection on Tuesday and haven’t felt right since. Lightheaded dizzy at times and on and of sickness. Has anyone els had side effects from this, and how long did they last. Iv been on a lot of injections for RA but my body seems to reject them I’m just hoping this isn’t the case and
Larachez2102
in
NRAS
11 months ago
Menopause Hot Flush Medication Gets Approval
Another article from the Guardian regarding an alternative to HRT for those suffering from hot flushes during menopause. However it looks like its only going to be available privately for now. https://www.theguardian.com/society/2023/dec/18/veoza-fezolinetant-menopause-drug-hot-flushes-wins-uk-approval
Another article from the Guardian regarding an alternative to HRT for those suffering from hot flushes during menopause. However it looks like its only going to be available privately for now. https://www.theguardian.com/society/2023/dec/18/veoza-fezolinetant-menopause-drug-hot-flushes-wins-uk-approval
Sparklingsunshine
in
Thyroid UK
10 months ago
Cyproterone and Blood Pressure
I am currently on LHRH hormone therapy in preparation for radiotherapy followed by HDR brachytherapy for my locally advanced PCa, T3a Gleason 8, no visible mets fortunately. I have been suffering from quite unpleasant hot flushes which have shown no signs of going away. I discussed this with my consultant
I am currently on LHRH hormone therapy in preparation for radiotherapy followed by HDR brachytherapy for my locally advanced PCa, T3a Gleason 8, no visible mets fortunately. I have been suffering from quite unpleasant hot flushes which have shown no signs of going away. I discussed this with my consultant
tunybgur
in
Advanced Prostate Cancer
10 months ago
New Mama
Hi all, I'm new to the whole pregnancy world! I've been trying for a baby for over 7 years (was with an abusive partner at the time) but after being with my new partner for a few months I'm now expecting! The thing I want to ask is going to sound weird and no one seems to know what I mean or say that
Hi all, I'm new to the whole pregnancy world! I've been trying for a baby for over 7 years (was with an abusive partner at the time) but after being with my new partner for a few months I'm now expecting! The thing I want to ask is going to sound weird and no one seems to know what I mean or say that
KR2022
in
Pregnancy and Parenting Support
11 months ago
Does this sound like osteoarthritis - or something else?
Hi everyone, I wonder if I can please get some help. I’ve been experiencing widespread body pain for c.3 years. I initially put this down to the menopause and earlier this year I started to focus on my under active thyroid - I’m not yet optimally medicated for that (takes a while). In May I decided
Hi everyone, I wonder if I can please get some help. I’ve been experiencing widespread body pain for c.3 years. I initially put this down to the menopause and earlier this year I started to focus on my under active thyroid - I’m not yet optimally medicated for that (takes a while). In May I decided
J972
in
NRAS
10 months ago
my life is miserable life due to hormone treatment (eligard) want to quit asap . questions to ask ? /experiences ?
Im a very active 61 - had zero symptoms - no peeing in the night etc and 15 PSA was only flagged while doing pre op for a hip replacement in January. Next PSA was 17 in March so in for biopsy - 8 positive biopsy samples of 48 taken but only one of concern with Gleason of 8. PET scan indicated borderline
Im a very active 61 - had zero symptoms - no peeing in the night etc and 15 PSA was only flagged while doing pre op for a hip replacement in January. Next PSA was 17 in March so in for biopsy - 8 positive biopsy samples of 48 taken but only one of concern with Gleason of 8. PET scan indicated borderline
moon1878
in
Prostate Cancer Network
10 months ago
Do your mental struggles show something wonderful about you?
As many know, I am a big advocate of Dr David Burns' work. He wrote "Feeling Great" and does the "Feeling Good" podcast. He developed TEAM CBT which is Testing, Empathy, Agenda-setting, Methods Cognitive Behavioral Therapy. He uses a hypothetical situation and asks if there was a magic button that cured
As many know, I am a big advocate of Dr David Burns' work. He wrote "Feeling Great" and does the "Feeling Good" podcast. He developed TEAM CBT which is Testing, Empathy, Agenda-setting, Methods Cognitive Behavioral Therapy. He uses a hypothetical situation and asks if there was a magic button that cured
LoveforAll41
in
Anxiety and Depression Support
10 months ago
Clinical trial: keep an eye on this
First results should be available by the first months of 2024. Radiation Medication (Radium-223 Dichloride) Versus Radium-223 Dichloride Plus Radiation Enhancing Medication (M3814) Versus Radium-223 Dichloride Plus M3814 Plus Avelumab (a Type of Immunotherapy) for Advanced Prostate Cancer Not Responsive
First results should be available by the first months of 2024. Radiation Medication (Radium-223 Dichloride) Versus Radium-223 Dichloride Plus Radiation Enhancing Medication (M3814) Versus Radium-223 Dichloride Plus M3814 Plus Avelumab (a Type of Immunotherapy) for Advanced Prostate Cancer Not Responsive
Maxone73
in
Advanced Prostate Cancer
10 months ago
Advice on natural hormone replacement while taking Warfarin.
Hello, I take Warfarin for the rest of my life after a PE. Currently 52 and in Menopause. I can never take an actual hormone replacement because of the ( pulmonary embolisms) I have takin Provitalize for 9 months now, it only helped with a few symptoms for a short amount of time. needing something
Hello, I take Warfarin for the rest of my life after a PE. Currently 52 and in Menopause. I can never take an actual hormone replacement because of the ( pulmonary embolisms) I have takin Provitalize for 9 months now, it only helped with a few symptoms for a short amount of time. needing something
Smokedalmonds
in
Anticoagulation Support
10 months ago
Chemo Vs ADT
So this is possibly the dumbest question I have asked. But the knowledge on this forum is worth tapping into even for people like me who struggle with all the complexities of PC. So, - ADT suppresses PC but will not kill it. Chemo on the other hand finds the PC cells and kills them. So why do
So this is possibly the dumbest question I have asked. But the knowledge on this forum is worth tapping into even for people like me who struggle with all the complexities of PC. So, - ADT suppresses PC but will not kill it. Chemo on the other hand finds the PC cells and kills them. So why do
Mike58
in
Advanced Prostate Cancer
10 months ago
Declining psa #8
Gm folks, hope all is well during this Christmas season… I’ve just received my 8th psa test after getting off ADT, 9 months of using alternative meds ivermectin, cbd oil turmeric zinc ashwaganda n dim a natural estrogen blocker solely. Psa came in at .95 down from 1.29, 6 weeks ago and down from 1.95
Gm folks, hope all is well during this Christmas season… I’ve just received my 8th psa test after getting off ADT, 9 months of using alternative meds ivermectin, cbd oil turmeric zinc ashwaganda n dim a natural estrogen blocker solely. Psa came in at .95 down from 1.29, 6 weeks ago and down from 1.95
Nfler
in
Advanced Prostate Cancer
10 months ago
SE from ADT and two natural remedies I always use. Anger=kava kava, insomnia=wild lettuce.
Hi fellow warriors, i am sharing this because after being an herbalist and wild medicine harvester there are two absolutely essential herbs i use to counter ADT side effects. Be advised I make my own so cost does not factor into how much or how often i take it. The most important is wild lettuce (
Hi fellow warriors, i am sharing this because after being an herbalist and wild medicine harvester there are two absolutely essential herbs i use to counter ADT side effects. Be advised I make my own so cost does not factor into how much or how often i take it. The most important is wild lettuce (
KocoPr
in
Fight Prostate Cancer
10 months ago
PSA post Salvage Radiation
Prior post: My husband, at diagnosis had 3+4 on a couple of samples and chose to have surgery. He had clean margins and reached undetectable PSA after Prostatectomy. Near the end of 5th year after surgery his PSA became detectable. He did salvage radiation at .09 PSA. His PSA went down to .08 after
Prior post: My husband, at diagnosis had 3+4 on a couple of samples and chose to have surgery. He had clean margins and reached undetectable PSA after Prostatectomy. Near the end of 5th year after surgery his PSA became detectable. He did salvage radiation at .09 PSA. His PSA went down to .08 after
Silverlings
in
Advanced Prostate Cancer
10 months ago
Why ADT after Ray treatment?
OK, I'm sure there is a logical answer to this question but at present it is evading me. So for all of us who decide to take the ADT path for a few months to stabilize our PCa and then hit it with the big guns such as a month (or more) of IMRT and in my case a follow-up of HDR Brachy Boost therapy,
OK, I'm sure there is a logical answer to this question but at present it is evading me. So for all of us who decide to take the ADT path for a few months to stabilize our PCa and then hit it with the big guns such as a month (or more) of IMRT and in my case a follow-up of HDR Brachy Boost therapy,
Mike58
in
Prostate Cancer Network
9 months ago
Do I need 6th Pluvicto infusion? PSA undetectable for 6 months.
I've been on the PSMAddition trial having had 5 of 6th infusions. PSA undetectable (<0.02) since June (it was 0.31 in early May when accepted into trial with relatively low burden PSMA-avid lesions). Aug 4 CT/bone scans showed significant reductions in size and activity of lesions (prior to 3rd treatment
I've been on the PSMAddition trial having had 5 of 6th infusions. PSA undetectable (<0.02) since June (it was 0.31 in early May when accepted into trial with relatively low burden PSMA-avid lesions). Aug 4 CT/bone scans showed significant reductions in size and activity of lesions (prior to 3rd treatment
LongTimeRunning
in
Advanced Prostate Cancer
10 months ago
Quick follow up to PSA Bounce
RO called today and told me not to be concerned that my 1st PSA was 12 after original was 9 in March. He said that there are likely a few reasons. - remaing inflammation in prostate from treatment (I was tested 58 days after completing SBRT) -possible mild prostatitis -possible infection He said
RO called today and told me not to be concerned that my 1st PSA was 12 after original was 9 in March. He said that there are likely a few reasons. - remaing inflammation in prostate from treatment (I was tested 58 days after completing SBRT) -possible mild prostatitis -possible infection He said
Chasbearcat999
in
Prostate Cancer Network
10 months ago
I am still struggling with treatment decisions - Help please.
I am struggling to decide on my treatment. The main point of conflict is HT or not, and LDR Brachytherapy (if I am eligible - because of a previous HOLEP) or IMRT. I also wonder if I should push hard for a 10-day earlier consultation at the risk of bad feeling. I welcome advice. In the UK - Referral
I am struggling to decide on my treatment. The main point of conflict is HT or not, and LDR Brachytherapy (if I am eligible - because of a previous HOLEP) or IMRT. I also wonder if I should push hard for a 10-day earlier consultation at the risk of bad feeling. I welcome advice. In the UK - Referral
Nordman
in
Advanced Prostate Cancer
8 months ago
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