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My story of my 23 year battle with Pca.
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
Professorgary
in
Advanced Prostate Cancer
7 months ago
3rd time hair loss in 2 years
Hi all, I'm coming up on my 2 year anniversary of BC diagnosis. Just over 1 years since I was diagnosed stage 4. This last week I started a new chemo for targeted therapy. This is my 3rd med switch in a year due to progression. I knew it was possible that I could lose my hair again. (1st time with
Hi all, I'm coming up on my 2 year anniversary of BC diagnosis. Just over 1 years since I was diagnosed stage 4. This last week I started a new chemo for targeted therapy. This is my 3rd med switch in a year due to progression. I knew it was possible that I could lose my hair again. (1st time with
Warrio
in
SHARE Breast Cancer Support
11 months ago
Florinef Dosage
For those that require adrenal hormone replacement such as Hydrocortisone, Florinef and DHEA (I know most Endocrinologist do not even mention DHEA to their patients and say it unnecessary, as one does not need it to 'live', even though it is the most most abundant hormone in the human body, and studies
For those that require adrenal hormone replacement such as Hydrocortisone, Florinef and DHEA (I know most Endocrinologist do not even mention DHEA to their patients and say it unnecessary, as one does not need it to 'live', even though it is the most most abundant hormone in the human body, and studies
bluejadedwho
in
AMN EASIER
7 months ago
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HRT and thyroxine
Morning all, I have been stable on 175ugs of levo for about two years now and I also take HRT. In a couple of months I will be having a THR and have to stop HRT for four weeks. Does anyone know if this will affect how much levo I may need. I know you aren't medical but it would give me an idea as to
Morning all, I have been stable on 175ugs of levo for about two years now and I also take HRT. In a couple of months I will be having a THR and have to stop HRT for four weeks. Does anyone know if this will affect how much levo I may need. I know you aren't medical but it would give me an idea as to
Sherlock11
in
Thyroid UK
7 months ago
Options?
Endometriosis formally diagnosed via laparoscopy 2023, however had no effect and still in chronic pain. Due to other medical issues can’t go on any contraceptives and HRT. Tried the Decapaptyl (GNRH) injections but bleed 24/7 with them?! Endo BGSE specialist has said there are no other options as hysterectomy
Endometriosis formally diagnosed via laparoscopy 2023, however had no effect and still in chronic pain. Due to other medical issues can’t go on any contraceptives and HRT. Tried the Decapaptyl (GNRH) injections but bleed 24/7 with them?! Endo BGSE specialist has said there are no other options as hysterectomy
Cats1311
in
Endometriosis UK
7 months ago
Does anyone know of a connection between undermedication and histamine intolerance, or if there are histamines in Armour thyroid?
My histamine intolerance symptoms have gone crazy of late, to the extent I've had to significantly change my diet. Histamine intolerance is something I have suffered with on and off for years, but nothing like it is now. I have 2 theories, namely one I am undermedicated or two Armour may be behind
My histamine intolerance symptoms have gone crazy of late, to the extent I've had to significantly change my diet. Histamine intolerance is something I have suffered with on and off for years, but nothing like it is now. I have 2 theories, namely one I am undermedicated or two Armour may be behind
Reefseeker
in
Thyroid UK
11 months ago
Catabolic Wasting, Cachexia and Sarcopenia - Life Extension Foundation, Section Update: 03/2021
As most men with PCa are oldER and may be on some form of testosterone-blocking treatment, like ADT, odds are they are also struggling with the muscle-wasting and weight issues that comes with both oldER age and loss of T. This article from LEF is a very comprehensive overview of both Cachexia and Sarcopenia
As most men with PCa are oldER and may be on some form of testosterone-blocking treatment, like ADT, odds are they are also struggling with the muscle-wasting and weight issues that comes with both oldER age and loss of T. This article from LEF is a very comprehensive overview of both Cachexia and Sarcopenia
cujoe
in
Fight Prostate Cancer
10 months ago
Hypofractionated SBRT for Prostate,local and distant nodes
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
pj1121
in
Advanced Prostate Cancer
7 months ago
eosinophilic esophagitis
I had an endoscopy done and results showed I have eosinophilic esophagitis. I was told my anti acid/gerd medication I was on Protonix was not helping me so was prescribed Omeprazole. Has anyone had this and what did you do to get better? Also, did you find what foods caused it to happen?
I had an endoscopy done and results showed I have eosinophilic esophagitis. I was told my anti acid/gerd medication I was on Protonix was not helping me so was prescribed Omeprazole. Has anyone had this and what did you do to get better? Also, did you find what foods caused it to happen?
MDipp
in
IBS Network
1 year ago
Need some guidance
2 years ago my daughter who is 6 now was diagnosed of ADHD and started with 10 mg of vyvanse but rapidly pass to 20 mg and ended up taking 40mg, one pill in the morning and at noon. And also take 1 mg of guanfacine Er to help her sleep at night which some time works or we need to give her melatonin.
2 years ago my daughter who is 6 now was diagnosed of ADHD and started with 10 mg of vyvanse but rapidly pass to 20 mg and ended up taking 40mg, one pill in the morning and at noon. And also take 1 mg of guanfacine Er to help her sleep at night which some time works or we need to give her melatonin.
Purple008
in
CHADD's ADHD Parents Together
11 months ago
Trying to get to retirement before HT
Hi All, I'm currently 65 years old. My PSA level before the biopsy was 8.1, and my Gleason Score was 4+4. Fortunately, there are no signs of metastases. Although my treatment hasn't started yet, it's likely that I'll begin radiation therapy in early December. I'm currently overseas and won't return
Hi All, I'm currently 65 years old. My PSA level before the biopsy was 8.1, and my Gleason Score was 4+4. Fortunately, there are no signs of metastases. Although my treatment hasn't started yet, it's likely that I'll begin radiation therapy in early December. I'm currently overseas and won't return
CJ1958
in
Prostate Cancer Network
7 months ago
ADT for how long..
Hi, folks. I underwent whole pelvic irradiation 6 months ago - prostatectomy (2019), PT3A, and lodge irradiation (2020), just after gallium PSMA picked two small illiac nodes with PSMA around 2,5, both. My doctor had said I would be given 6 months of ADT back then, but now he just tripled the journey
Hi, folks. I underwent whole pelvic irradiation 6 months ago - prostatectomy (2019), PT3A, and lodge irradiation (2020), just after gallium PSMA picked two small illiac nodes with PSMA around 2,5, both. My doctor had said I would be given 6 months of ADT back then, but now he just tripled the journey
Justt
in
Advanced Prostate Cancer
7 months ago
degarelix v/s eligard "lupron"
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
yardsailor
in
Advanced Prostate Cancer
7 months ago
HRT and waiting for scans
Earlier this year in March, I saw my GP to ask about HRT, so blood works were done and anomalies found so went for an ultrasound and found to have Fatty liver and hepatic hemangioma. I'm now waiting for a fibroscsn in December and I'm worried and scared. To help myself I've stopped alcohol completely
Earlier this year in March, I saw my GP to ask about HRT, so blood works were done and anomalies found so went for an ultrasound and found to have Fatty liver and hepatic hemangioma. I'm now waiting for a fibroscsn in December and I'm worried and scared. To help myself I've stopped alcohol completely
Hidden
in
British Liver Trust
7 months ago
Asking for best guess info
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
Shamrock46
in
Advanced Prostate Cancer
7 months ago
Brother's numbers since ADT plus Orchiectomey since diagnosed in February
Hi folks. I've been reading daily posts here since February when my brother was diagnosed with metastatic PC in February after a reading of 367.8 PSA. Thanks for all the good information! Cancer is in his skull, ribs, lymth nodes, and spine. He had one ADT injection right away and opted for an Orchiectomey
Hi folks. I've been reading daily posts here since February when my brother was diagnosed with metastatic PC in February after a reading of 367.8 PSA. Thanks for all the good information! Cancer is in his skull, ribs, lymth nodes, and spine. He had one ADT injection right away and opted for an Orchiectomey
Sparlingo
in
Advanced Prostate Cancer
7 months ago
ipp and salvage radiation
Rp on july of 22 for gleason 3+4 with psa of 16. PT3b, pN1 with negative margins and 2 of 11 lymph nodes involved. I took a nomogram online and came out 75% likely for recurrence. My first psa post op was .02, then .03, .04, .04, .05 in late august- so I've crossed line #1. Which is a bummer but not
Rp on july of 22 for gleason 3+4 with psa of 16. PT3b, pN1 with negative margins and 2 of 11 lymph nodes involved. I took a nomogram online and came out 75% likely for recurrence. My first psa post op was .02, then .03, .04, .04, .05 in late august- so I've crossed line #1. Which is a bummer but not
Katamiran
in
Prostate Cancer Network
7 months ago
Oestradial HRT & the thyroid, Lenzetto blood tests
I just wondered if low oestradial affects the thyroid? I have been on HRT since March and my level is still only 197 pmol/L. I use 3 sprays of Lenzetto. I wondered if it could be affecting my thyroid function? I don’t have menopause symptoms, I had bottom of range testosterone, but this is now in range
I just wondered if low oestradial affects the thyroid? I have been on HRT since March and my level is still only 197 pmol/L. I use 3 sprays of Lenzetto. I wondered if it could be affecting my thyroid function? I don’t have menopause symptoms, I had bottom of range testosterone, but this is now in range
CornishChick
in
Thyroid UK
7 months ago
confused about supplements and certain foods
greetings I’m trying to get some clarity on what I can eat and take as supplements. My PSA is currently undetectable but clearly with ADT I’m trying to build or keep as much muscle as possible. I take creatine would like to add bcaa/lucene and glutamine. Any issues here? Also I tend to consume a
greetings I’m trying to get some clarity on what I can eat and take as supplements. My PSA is currently undetectable but clearly with ADT I’m trying to build or keep as much muscle as possible. I take creatine would like to add bcaa/lucene and glutamine. Any issues here? Also I tend to consume a
SierraSix
in
Advanced Prostate Cancer
7 months ago
help - very bad rectocele 4.8 cm
hi please I have a very bad rectocele 4.8cm and excessive perennial descent I was told by surgeon not to operate as won’t be successful 47 - and I have bad constipation amd issues with thyroid But everyday is a nightmare Getting to a point I don’t want to eat as then I need to poop down to 47
hi please I have a very bad rectocele 4.8cm and excessive perennial descent I was told by surgeon not to operate as won’t be successful 47 - and I have bad constipation amd issues with thyroid But everyday is a nightmare Getting to a point I don’t want to eat as then I need to poop down to 47
Chouchou1234
in
Pelvic Pain Support Network
7 months ago
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