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Still struggling...how can it be getting worse?
It has only been a month since I'd been diagnosed with CLL. I shouldn't be feeling this crappy this fast? My GP admitted that I've most likely had this cancer for much longer than we known since this year (the testing and eventual hospitalization in late April to early May) was the first time I'd gone
It has only been a month since I'd been diagnosed with CLL. I shouldn't be feeling this crappy this fast? My GP admitted that I've most likely had this cancer for much longer than we known since this year (the testing and eventual hospitalization in late April to early May) was the first time I'd gone
MamaToFive1971
in
CLL Support
2 months ago
Do you have the symptoms of Dry Eye Syndrome? Is your doctor helping you manage it?
This set of links popped up today and I thought it was worth posting about. Many of us DO have dry eyes and it is clear from these articles that it isn't taken seriously enough by either doctors or patients. Treatment is crucial to prevent longterm damage to the cornea and improve quality of life - and
This set of links popped up today and I thought it was worth posting about. Many of us DO have dry eyes and it is clear from these articles that it isn't taken seriously enough by either doctors or patients. Treatment is crucial to prevent longterm damage to the cornea and improve quality of life - and
PMRpro
Ambassador
in
PMRGCAuk
2 months ago
Planet Fitness Whole Body Enhancement machine
I've recently read about Total Body Enhancement at Planet Fitness. It's a 12 minute routine with red light therapy and a vibration plate. Supposed to help with osteoporosis. Wondering if anyone has used this machine?
I've recently read about Total Body Enhancement at Planet Fitness. It's a 12 minute routine with red light therapy and a vibration plate. Supposed to help with osteoporosis. Wondering if anyone has used this machine?
wasenior
in
Osteoporosis Support
2 months ago
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Don't wake the monsters - risks of therapy and meditation
At a recent group therapy session, the experienced therapist responded to me as if I was completely unhinged by suggesting that doing therapy had risks. Most therapists, like most people, need to sell their services to support themselves. I have strongly mixed feelings about Eminem and Rhianna, but I
At a recent group therapy session, the experienced therapist responded to me as if I was completely unhinged by suggesting that doing therapy had risks. Most therapists, like most people, need to sell their services to support themselves. I have strongly mixed feelings about Eminem and Rhianna, but I
Sunrisetabby
in
Anxiety and Depression Support
2 months ago
a new platform for ADC development….no sorry, it’s DAC this time! not PCa related but hopefully soon
”Orum has granted Vertex rights to conduct research using its TPD² approach to developing degrader-antibody conjugates (DACs), next-generation versions of antibody-drug conjugates (ADCs) which use antibodies to precisely deliver small molecule targeted protein degrader payloads to cancer cells and other
”Orum has granted Vertex rights to conduct research using its TPD² approach to developing degrader-antibody conjugates (DACs), next-generation versions of antibody-drug conjugates (ADCs) which use antibodies to precisely deliver small molecule targeted protein degrader payloads to cancer cells and other
Maxone73
in
Advanced Prostate Cancer
3 months ago
What is gene therapy and can it help people with Parkinson’s?
https://www.apdaparkinson.org/article/gene-therapy-for-parkinsons-disease-3/
https://www.apdaparkinson.org/article/gene-therapy-for-parkinsons-disease-3/
Farooqji
in
Cure Parkinson's
3 months ago
looking for guidance?dad’s Biopsy diagnosis Gleason 4+4
Proton
ration
therapy
? Thank you again
Proton
ration
therapy
? Thank you again
Cafu6
in
Advanced Prostate Cancer
8 months ago
Biological Therapy - too soon?
Hey All I hope everyone is well. This is my first time posting and I’m really hopeful someone will be able to advise me. I was diagnosed with lupus in Feb after just over 2 years of struggling with symptoms. Initially I was put on prednisolone and hydroxychloroquine until my bloods came back. My bloods
Hey All I hope everyone is well. This is my first time posting and I’m really hopeful someone will be able to advise me. I was diagnosed with lupus in Feb after just over 2 years of struggling with symptoms. Initially I was put on prednisolone and hydroxychloroquine until my bloods came back. My bloods
EeBeee
in
LUPUS UK
3 months ago
Colomycin nebulising
I’m wondering if there is anyone on the above drug. I have been on it now for 10 days and will stay on it for 12 weeks. I have been pretty unwell since March with re occurring psuedamonas. I am on oxygen therapy, I also have bronciectasis and past T.B. also chicken pox pneumonia, I am on steroid therapy
I’m wondering if there is anyone on the above drug. I have been on it now for 10 days and will stay on it for 12 weeks. I have been pretty unwell since March with re occurring psuedamonas. I am on oxygen therapy, I also have bronciectasis and past T.B. also chicken pox pneumonia, I am on steroid therapy
breslin
in
Lung Conditions Community Forum
3 months ago
Klotho gene therapy
https://parkinsonsnewstoday.com/news/anew-medical-advance-development-klotho-gene-therapy/?utm_source=PAR&utm_campaign=c732d6332f-Email_ENL_US_PAR&utm_medium=email&utm_term=0_62dd4fb5e3-c732d6332f-74556474 I have been trying to find out what is used to prepare Klotho gene therapy a therapy that supposedly
https://parkinsonsnewstoday.com/news/anew-medical-advance-development-klotho-gene-therapy/?utm_source=PAR&utm_campaign=c732d6332f-Email_ENL_US_PAR&utm_medium=email&utm_term=0_62dd4fb5e3-c732d6332f-74556474 I have been trying to find out what is used to prepare Klotho gene therapy a therapy that supposedly
Boscoejean
in
Cure Parkinson's
3 months ago
Not dying was a good plan, but how to navigate the future is the next challenge
I appreciate that I have achieved remission with my cancer and I was thinking about the fact that my liver, even though I have cirrhosis, managed all of the chemo drugs I've had pretty successfully. In our patient groups we often see people who die quickly when a second problem appears. As a vote
I appreciate that I have achieved remission with my cancer and I was thinking about the fact that my liver, even though I have cirrhosis, managed all of the chemo drugs I've had pretty successfully. In our patient groups we often see people who die quickly when a second problem appears. As a vote
nash2
Partner
in
Living with Fatty Liver and NASH
3 months ago
Median PFS for FCR treated CLL patients with IGHV-M was 14.6 years vs 4.2 years for patients with IGHV-UM. V+O and I+R look to be superior
An update of the long-term follow-up results from the original 300-patient FCR (fludarabine, cyclophosphamide, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline FCR treatment with very-long-term follow-up,
reports ~47% of patients with mutated IGHV
An update of the long-term follow-up results from the original 300-patient FCR (fludarabine, cyclophosphamide, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline FCR treatment with very-long-term follow-up,
reports ~47% of patients with mutated IGHV
AussieNeil
Partner
in
CLL Support
3 months ago
Anybody outside the range part 2.
Hello again, the original post from yesterday and some more information and questions underneath. Thanks again for all the help. Part 1 Good afternoon everybody hope this makes sense Is there anybody out there that needs to run outside the ranges in order to feel good? At
Hello again, the original post from yesterday and some more information and questions underneath. Thanks again for all the help. Part 1 Good afternoon everybody hope this makes sense Is there anybody out there that needs to run outside the ranges in order to feel good? At
Jimjamio
in
Thyroid UK
3 months ago
ICU Stay Neuro Challenges
Seeing if anyone has any insight. On May 16th my mom (62 years old) went to her cardiologist with chest pain. She did have afib for the last three year but she had that under control. When she went to her cardiologist on the 16th he sent her to the ER just because he was concerned with chest pains
Seeing if anyone has any insight. On May 16th my mom (62 years old) went to her cardiologist with chest pain. She did have afib for the last three year but she had that under control. When she went to her cardiologist on the 16th he sent her to the ER just because he was concerned with chest pains
Doglover276
in
ICUsteps
3 months ago
Subcutaneous combination therapy improves ‘good on’ time in Parkinson’s
Primary analyses from this phase 3 clinical trial of the investigational, subcutaneous infusion of levodopa/carbidopa (LD/CD) (ND0612) showed that treatment in doses of up to 720 mg/90 mg per day, supplemented with oral levodopa provided almost 2 additional hours per day of “Good On” time without troublesome
Primary analyses from this phase 3 clinical trial of the investigational, subcutaneous infusion of levodopa/carbidopa (LD/CD) (ND0612) showed that treatment in doses of up to 720 mg/90 mg per day, supplemented with oral levodopa provided almost 2 additional hours per day of “Good On” time without troublesome
Farooqji
in
Cure Parkinson's
3 months ago
Med Trials - Tell me Your Experiences
We’re on the med journey that I’m sure so many of you know well. My son is 7.5 ASD/PDA, originally also diagnosed ADHD with lots of anxiety. He struggles big time with emotional regulation, aggression, following routines and demands. He’s extremely verbal and social but has a hard time making and keeping
We’re on the med journey that I’m sure so many of you know well. My son is 7.5 ASD/PDA, originally also diagnosed ADHD with lots of anxiety. He struggles big time with emotional regulation, aggression, following routines and demands. He’s extremely verbal and social but has a hard time making and keeping
STARTwHello
in
CHADD's ADHD Parents Together
3 months ago
PT and Biofeedback
hi everyone…….has anyone gotten substantial improvement from PT and biofeedback? I had CA 20 yrs ago and now having lots of GI problems. My GI specialist would like me to try this to see if I can get some improvements. Otherwise she’d like me to see a colorectal surgeon. I’ve called many places and no
hi everyone…….has anyone gotten substantial improvement from PT and biofeedback? I had CA 20 yrs ago and now having lots of GI problems. My GI specialist would like me to try this to see if I can get some improvements. Otherwise she’d like me to see a colorectal surgeon. I’ve called many places and no
JuneyandGracie
in
Pelvic Radiation Disease Association
3 months ago
My path to combination therapy
I was diagnosed with hypothyroidism about 25 years ago, in my mid-thirties. For almost 20 years, I took only Levothyroxine. I realise now that I was probably depressed for the whole period. Back in 2016, I decided to quit drinking alcohol. I wasn't an alcoholic, but I was drinking every day, and sometimes
I was diagnosed with hypothyroidism about 25 years ago, in my mid-thirties. For almost 20 years, I took only Levothyroxine. I realise now that I was probably depressed for the whole period. Back in 2016, I decided to quit drinking alcohol. I wasn't an alcoholic, but I was drinking every day, and sometimes
Morphiouso
in
Thyroid UK
3 months ago
Inflammatory Arthritis
Hello everyone, I was diagnosed with inflammatory arthritis this past October and the rheumatologist tried to put me on Methotroxate and I kindly declined after seeing all the negative reviews about it. I’m only 31 years old and have to get fluid drained off of my knee at least 1-2 times a year. Has
Hello everyone, I was diagnosed with inflammatory arthritis this past October and the rheumatologist tried to put me on Methotroxate and I kindly declined after seeing all the negative reviews about it. I’m only 31 years old and have to get fluid drained off of my knee at least 1-2 times a year. Has
rms3377
in
NRAS
3 months ago
New to the community
Hi there, I'm Weng , 57, from Singapore. Last year, I was told by my neurologist that I have PD. The news came when I was about to retire. My goal is stay off medication and continue living a normal life. I have made a lot of lifestyle change since that fateful day. Things I do to help myself: brisk
Hi there, I'm Weng , 57, from Singapore. Last year, I was told by my neurologist that I have PD. The news came when I was about to retire. My goal is stay off medication and continue living a normal life. I have made a lot of lifestyle change since that fateful day. Things I do to help myself: brisk
Weng888
in
Cure Parkinson's
3 months ago
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