Search
Search
About
Log in
Join
Experiences with
Proton Therapy
Posts
Communities
17,826 public posts
Filter results
Accuracy doubtful due to fusion hardware?
L5/S1 hardware new since last dexa scan. The tech did ask for an opinion from a co-worker as she felt the imaging was being distorted due to the hardware, but was told it would not impact the readings. take hrt, d3/k2 and am active! Any thoughts?
L5/S1 hardware new since last dexa scan. The tech did ask for an opinion from a co-worker as she felt the imaging was being distorted due to the hardware, but was told it would not impact the readings. take hrt, d3/k2 and am active! Any thoughts?
Jeaniem130
in
Bone Health and Osteoporosis UK
3 months ago
QoL Recent hike in Japan .. Mount Fuji
Been enjoying a hike near our vacation condo .. get out and move… I’m almost 3 months out after last ADT .. 5 months radiation a subtle feel of testosterone may be returning. Did 9 months ADT so still feeling the effects.. but have to say for every day I wake up at 6am tired and not feeling well.. I
Been enjoying a hike near our vacation condo .. get out and move… I’m almost 3 months out after last ADT .. 5 months radiation a subtle feel of testosterone may be returning. Did 9 months ADT so still feeling the effects.. but have to say for every day I wake up at 6am tired and not feeling well.. I
Yokohama2023
in
Advanced Prostate Cancer
3 months ago
New Consultant-Different Plan
Long story short- long battle to get diagnosis although received in 2019 and Hashimoto’s confirmed. After several attempts to stabilise on mono therapy I was lucky enough after several years of strife and illness to be allocated an endo who listened to me, took cortisol levels (low) addisons test (
Long story short- long battle to get diagnosis although received in 2019 and Hashimoto’s confirmed. After several attempts to stabilise on mono therapy I was lucky enough after several years of strife and illness to be allocated an endo who listened to me, took cortisol levels (low) addisons test (
Lassithi
in
Thyroid UK
7 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
any similar stories extensive metastatic prostate cancer
hello! I’ve been on here for a few weeks reading everyone’s posts, which have been helpful. My dad recently found out he has extensive Mets throughout his skeleton, although we have been battling this disease for almost 5 years now, things have taken a turn. He has been on ADT since January, and tolerating
hello! I’ve been on here for a few weeks reading everyone’s posts, which have been helpful. My dad recently found out he has extensive Mets throughout his skeleton, although we have been battling this disease for almost 5 years now, things have taken a turn. He has been on ADT since January, and tolerating
Concerneddaughter123
in
Advanced Prostate Cancer
3 months ago
Hair Loss on Yuflyma
Hi everyone I have been on Yuflyma for 6 weeks and have noticed an increasing amount of hair loss. I am also on Folic acid seven days a week as I was previously on Methotrexate , but stopped the methotrexate a few weeks ago. I had been on Methotrxate since May of last year, both tablets and then metoject
Hi everyone I have been on Yuflyma for 6 weeks and have noticed an increasing amount of hair loss. I am also on Folic acid seven days a week as I was previously on Methotrexate , but stopped the methotrexate a few weeks ago. I had been on Methotrxate since May of last year, both tablets and then metoject
MDWinter23
in
NRAS
3 months ago
So the odds we all read about... are they true?
When my husband (age 52) was diagnosed with metastatic prostate cancer two and a half years ago, he was told the outlook was "grim." Everything we read told us once it moves to the bone (his has) then you're looking at months, not years, of life left. He had TEMPUS done, which was basically the oncologist
When my husband (age 52) was diagnosed with metastatic prostate cancer two and a half years ago, he was told the outlook was "grim." Everything we read told us once it moves to the bone (his has) then you're looking at months, not years, of life left. He had TEMPUS done, which was basically the oncologist
Anatalya
in
Advanced Prostate Cancer
3 months ago
PSA Nadir 6 Months After Primary RT Correlates With Prostate Cancer Outcomes — Or does it?, MedPage Today May 22, 2024
[i]This article from MedPage Today is reproduced in full along with the link to the full access editorial comment is also provided. However, it has numerous hyperlinks to the the research cited within. The link to the MedPage article provides those links. [/i] [i]* * *[/i]
PSA Nadir 6 Months After
[i]This article from MedPage Today is reproduced in full along with the link to the full access editorial comment is also provided. However, it has numerous hyperlinks to the the research cited within. The link to the MedPage article provides those links. [/i] [i]* * *[/i]
PSA Nadir 6 Months After
cujoe
in
Fight Prostate Cancer
3 months ago
Prostate biopsy from rib ?
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
Tinkudi
in
Advanced Prostate Cancer
3 months ago
Request for Input
Before I leave this wonderful group I'd like to pick your individual/collective brains. Since it's too late to help my husband, I'm looking for info that I can pass on to my son and 6 grandsons so they might better understand this awful cancer should they ever get it. I'm also providing a bit more info
Before I leave this wonderful group I'd like to pick your individual/collective brains. Since it's too late to help my husband, I'm looking for info that I can pass on to my son and 6 grandsons so they might better understand this awful cancer should they ever get it. I'm also providing a bit more info
Shamrock46
in
Advanced Prostate Cancer
3 months ago
Advice on Blood results please?
Hi, I'm not diagnosed with any thyroid problems but have had numerous blood tests over the last 4 years because of severe menopause symptoms that have not responded to HRT. Would you be able to have a look and see what you think please? I have also included some of the vitamins tested.
Hi, I'm not diagnosed with any thyroid problems but have had numerous blood tests over the last 4 years because of severe menopause symptoms that have not responded to HRT. Would you be able to have a look and see what you think please? I have also included some of the vitamins tested.
jca123
in
Thyroid UK
3 months ago
Meningioma advice
Hi all, I started getting constant headaches about three years ago. After being ignored by my doctors, I paid for a private neurologist, and he did an MRI, told me nothing was found and suggested it was menopause. I've had three years of headaches, dizziness, vision issues and utter fatigue and losing
Hi all, I started getting constant headaches about three years ago. After being ignored by my doctors, I paid for a private neurologist, and he did an MRI, told me nothing was found and suggested it was menopause. I've had three years of headaches, dizziness, vision issues and utter fatigue and losing
Calannmc
in
Meningioma Support
3 months ago
Does urinary frequency/urgency diminish after cessation of ADT?
I’m on the last month of a one year course of Orgovyx/Nubeqa for 4+3, 4.7PSA (now .006), Decipher .88. Brachyboost with pelvic SBRT 8/23 at UCLA My bladder volume at baseline was 500-600 ml (even hit 700 once). But over the months it has steadily decreased to currently 200-300ml. 350 if I really torture
I’m on the last month of a one year course of Orgovyx/Nubeqa for 4+3, 4.7PSA (now .006), Decipher .88. Brachyboost with pelvic SBRT 8/23 at UCLA My bladder volume at baseline was 500-600 ml (even hit 700 once). But over the months it has steadily decreased to currently 200-300ml. 350 if I really torture
SongofFred
in
Prostate Cancer Network
3 months ago
Blood Results- advice please
Hi had blood test as recommended early in day & no levo for 24 hours, no biotin for a week etc. I am wanting an increase in dose by 25mcg which will take me to 75mcg- for weight recommended dose is 100mcg! Still symptomatic! Also now on ppi plus change of Bp meds, an anti flam & Hrt! Gp reluctant
Hi had blood test as recommended early in day & no levo for 24 hours, no biotin for a week etc. I am wanting an increase in dose by 25mcg which will take me to 75mcg- for weight recommended dose is 100mcg! Still symptomatic! Also now on ppi plus change of Bp meds, an anti flam & Hrt! Gp reluctant
Robinface
in
Thyroid UK
3 months ago
High risk Decipher score, what now?
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Surfer33
in
Prostate Cancer Network
3 months ago
ADT effectiveness duration for 80 plus age ?
For how long have those over 80 years with mets to bones , been able to keep their psa low with just ADT treatment ?
For how long have those over 80 years with mets to bones , been able to keep their psa low with just ADT treatment ?
Tinkudi
in
Advanced Prostate Cancer
3 months ago
Has anyone heard of trial DB-1311-O-1001?
Hi all, I’m wondering whether anybody has heard of the above trial? My Dad had been put forward for this and was advised yesterday he got through onto the trial but the paperwork says “first trial on humans”. They aren’t sure of the side effects and we are all feeling a bit apprehensive… My Dad has
Hi all, I’m wondering whether anybody has heard of the above trial? My Dad had been put forward for this and was advised yesterday he got through onto the trial but the paperwork says “first trial on humans”. They aren’t sure of the side effects and we are all feeling a bit apprehensive… My Dad has
Stefciaa
in
Advanced Prostate Cancer
3 months ago
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
cujoe
in
CLL Support
9 months ago
HRT and fatigue
I'm quite interested to see if this resonates with anyone else .Was diagnosed with RA 2018, and been on methotrexate and Hydroxychloroquine ever since. Once the dose settled it's controlled the RA swelling. But the fatigue has been awful and constant. I assumed a result of the RA and side effects of
I'm quite interested to see if this resonates with anyone else .Was diagnosed with RA 2018, and been on methotrexate and Hydroxychloroquine ever since. Once the dose settled it's controlled the RA swelling. But the fatigue has been awful and constant. I assumed a result of the RA and side effects of
Spaniellady
in
NRAS
3 months ago
Death from other-than PCa is not a "success"
A tongue-in-cheek stated goal by many here with PCa (including myself for the past 17 years since dianosis) has been to live to die of "anything other" than prostate cancer. Of course that does not bear up to close scrutiny. Many alternative causes of death, including the "big 4" of Cardiovascular Disease
A tongue-in-cheek stated goal by many here with PCa (including myself for the past 17 years since dianosis) has been to live to die of "anything other" than prostate cancer. Of course that does not bear up to close scrutiny. Many alternative causes of death, including the "big 4" of Cardiovascular Disease
MateoBeach
in
Fight Prostate Cancer
3 months ago
MCAS and LEVOTHYROXINE Nightmare
MCAS AND MEDS MCAS strikes again I can't take tablet or liquid levothyroxine as I've had the worst histamine flare even at 25mcg. Been in bed 4 days now crashing headache, body pains, inflammation, dizziness, fatigue all from 1 tiny dose of 25mcg liquid levothyroxine. What can I do ? I desperately
MCAS AND MEDS MCAS strikes again I can't take tablet or liquid levothyroxine as I've had the worst histamine flare even at 25mcg. Been in bed 4 days now crashing headache, body pains, inflammation, dizziness, fatigue all from 1 tiny dose of 25mcg liquid levothyroxine. What can I do ? I desperately
CGH123
in
Thyroid UK
3 months ago
1
...
35
36
37
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
4584 results
Thyroid UK
2932 results
Endometriosis UK
1882 results
View top 10 communities
Sort by
Most Relevant
Newest