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PSA Follow up
Had an appointment with my urologist today. PSA is still 0.00. Obviously I’m thrilled. He said that since I’m 3 years out from RT and 4 years from RP, he’s comfortable with seeing me annually because my PSA has been stable at 0.00 for three years. I told him I thought I’d feel better waiting until
Had an appointment with my urologist today. PSA is still 0.00. Obviously I’m thrilled. He said that since I’m 3 years out from RT and 4 years from RP, he’s comfortable with seeing me annually because my PSA has been stable at 0.00 for three years. I told him I thought I’d feel better waiting until
Jmr11820
in
Advanced Prostate Cancer
8 months ago
Erectile dysfunction
Hi My first post, I think it is pretty obvious that many of us, me included, associate our self worth, status with our 'masculinity'. This may or may not be a good thing, but many, most men in fact consider themselves to be profoundly binary. They represent the '1' to a feminine '0'. When a man fails
Hi My first post, I think it is pretty obvious that many of us, me included, associate our self worth, status with our 'masculinity'. This may or may not be a good thing, but many, most men in fact consider themselves to be profoundly binary. They represent the '1' to a feminine '0'. When a man fails
Iro1
in
Sensitive Issues for Men
6 months ago
Post SBRT Day 9 - 15
Continuing my reporting on my experience after 5 SBRT treatments with focal boost, Barrigel spacer, urethral steering to try and avoid GU side effects. I am 68, in good shape, one 4+3, one 3+3, Decipher .84, PSA 7.8, PSMA PET confined to prostate, 6 months Orgovyx. Flomax started with treatment and
Continuing my reporting on my experience after 5 SBRT treatments with focal boost, Barrigel spacer, urethral steering to try and avoid GU side effects. I am 68, in good shape, one 4+3, one 3+3, Decipher .84, PSA 7.8, PSMA PET confined to prostate, 6 months Orgovyx. Flomax started with treatment and
ToolBeltZia
in
Prostate Cancer Network
6 months ago
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Letting Go
If it is one thing that I have after almost 18 years of playing this game, it is a story or perhaps many stories. So Many chapters. What I am about to say may seem easy from the perspective of undetectable PSA and clear scans these past 10 years. I assure you that at the time there was nothing easy about
If it is one thing that I have after almost 18 years of playing this game, it is a story or perhaps many stories. So Many chapters. What I am about to say may seem easy from the perspective of undetectable PSA and clear scans these past 10 years. I assure you that at the time there was nothing easy about
Todd1963
in
Advanced Prostate Cancer
6 months ago
declining psa #7
Gm ladies n gents, I’m here to give my results as promised post Rp, rad, and 7 mo of adt. Solely using ivermectin, cbd oil, turmeric, zinc and now testosterone boosters ashwagandha, cordyceps extract and diindolylmethane(dim) which is an estrogen blocker. Psa has dropped to 1.29 down from 1.34 last
Gm ladies n gents, I’m here to give my results as promised post Rp, rad, and 7 mo of adt. Solely using ivermectin, cbd oil, turmeric, zinc and now testosterone boosters ashwagandha, cordyceps extract and diindolylmethane(dim) which is an estrogen blocker. Psa has dropped to 1.29 down from 1.34 last
Nfler
in
Advanced Prostate Cancer
8 months ago
Annual Scans
Hubby is having his annual scans today. Doc ordered CT and bone scan as in the past to compare "apples to apples".At what point should a pet scan be done? Which tracer? His PSA has been in the undetectable range and he is feeling fine besides the regular side effects to the meds.
Hubby is having his annual scans today. Doc ordered CT and bone scan as in the past to compare "apples to apples".At what point should a pet scan be done? Which tracer? His PSA has been in the undetectable range and he is feeling fine besides the regular side effects to the meds.
inthefight
in
Advanced Prostate Cancer
8 months ago
Discontinue all antioxidant supplements on early signs of biochemical recurrence?
The latest literature appears to indicate a PSA as low as 0.03, regardless of the multi-result dynamics is a reliable very early confirmation of biochemical recurrence. Maybe it's arguable some rare cases may "slip through" and stabilize without further treatment but data from the latest studies is
The latest literature appears to indicate a PSA as low as 0.03, regardless of the multi-result dynamics is a reliable very early confirmation of biochemical recurrence. Maybe it's arguable some rare cases may "slip through" and stabilize without further treatment but data from the latest studies is
jazj
in
Advanced Prostate Cancer
6 months ago
First Post Biopsy Consult
I'm grateful to have found this network. I've spent many hours over reading your posts and replies, and learning from you all. Thank you. I'm 59 years old. Both my father and brother were diagnosed with PCa in their late 50s. I did a genome test for my family some years ago and learned I carry the
I'm grateful to have found this network. I've spent many hours over reading your posts and replies, and learning from you all. Thank you. I'm 59 years old. Both my father and brother were diagnosed with PCa in their late 50s. I did a genome test for my family some years ago and learned I carry the
Mpls
in
Prostate Cancer Network
8 months ago
degarelix v/s eligard "lupron"
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
yardsailor
in
Advanced Prostate Cancer
9 months ago
Confusing CT scan results
My PSA has been rising slowly after prostate removal two years ago. Was at zero months after and slowly rising at .02,.03. .05, .06. .09 and then .13. My doctor ordered CT and bone scans. Bone scan came back clear and then CT scan showed a few things in bones and a nonspecific mass outside the liver
My PSA has been rising slowly after prostate removal two years ago. Was at zero months after and slowly rising at .02,.03. .05, .06. .09 and then .13. My doctor ordered CT and bone scans. Bone scan came back clear and then CT scan showed a few things in bones and a nonspecific mass outside the liver
Jens99
in
Advanced Prostate Cancer
6 months ago
Sufficient Investigation?
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
Nordman
in
Advanced Prostate Cancer
7 months ago
After some Advice
Hi all, I was hoping to get some advice. I have been on AS sonce December 2021 and am due for a PSA and MRI next month. Following this my urologist said that a follow up biopsy may be required. My Question should I also ask for a PMSA, I have read that this type of imagining picks up smaller lesions
Hi all, I was hoping to get some advice. I have been on AS sonce December 2021 and am due for a PSA and MRI next month. Following this my urologist said that a follow up biopsy may be required. My Question should I also ask for a PMSA, I have read that this type of imagining picks up smaller lesions
JVARA
in
Prostate Cancer Network
8 months ago
abiraterone first line use in high risk in U.K. debate after stampede research results
Lots of current comments in U.K. press re the funding for using abiraterone for high risk first line HT. I was Dx with Gleason 9 - T2cN0M0 (10% 5 70% 4 20% 3 in one area plus couple of areas G7 8 months past failed HIFU for G7 (3+4 <10% 4 one site only) PSMA = locally contained No SV evidence. I
Lots of current comments in U.K. press re the funding for using abiraterone for high risk first line HT. I was Dx with Gleason 9 - T2cN0M0 (10% 5 70% 4 20% 3 in one area plus couple of areas G7 8 months past failed HIFU for G7 (3+4 <10% 4 one site only) PSMA = locally contained No SV evidence. I
SimMartin
in
Advanced Prostate Cancer
8 months ago
Getting an appointment with a renown oncologist in Chicago=Mission impossible. Is this normal?
In a comment, not long ago, about getting a second opinion, Tall_Allen suggested/gave out the name of a well known female Oncologist/Researcher in Chicago. I live here and want to give it a try. This past week called to her office and the receptionist took a long time to complete what she called an
In a comment, not long ago, about getting a second opinion, Tall_Allen suggested/gave out the name of a well known female Oncologist/Researcher in Chicago. I live here and want to give it a try. This past week called to her office and the receptionist took a long time to complete what she called an
Blueribbon63
in
Advanced Prostate Cancer
10 months ago
lots of people did this on Friday and Saturday
Dear Friends, Lots of people donated. Please consider donating too. You are acutely aware of the importance and impact of our work. Hundreds of lives have been helped—some even saved—by our prostate cancer online community's resources, suggestions, and emotional support. With this urgency, I'm reaching
Dear Friends, Lots of people donated. Please consider donating too. You are acutely aware of the importance and impact of our work. Hundreds of lives have been helped—some even saved—by our prostate cancer online community's resources, suggestions, and emotional support. With this urgency, I'm reaching
Darryl
Partner
in
Advanced Prostate Cancer
10 months ago
Update on PSA
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Yzinger
in
Advanced Prostate Cancer
9 months ago
PLUVICTO.................
Getting ready for my 5th infusion of Pluvicto. The side effects usually ground me for two to three weeks, and i always say that i am through, and can't stand anymore. When i started, my PSA was 42 + a point. It went down to 22+ a point and as of today it is 10.6. I have been boarding my dog,
Getting ready for my 5th infusion of Pluvicto. The side effects usually ground me for two to three weeks, and i always say that i am through, and can't stand anymore. When i started, my PSA was 42 + a point. It went down to 22+ a point and as of today it is 10.6. I have been boarding my dog,
PianoMan3048
in
Men's Health Forum
6 months ago
What's next?
As I've written before, my husband stopped all treatment and is receiving palliative care. Just got the results of his 3-mo. PSA and it's jumped from 40 to 91. Wondering if there's any way to know if/when symptoms will start appearing due to PCa's further or worsening spread? He experiences some pain
As I've written before, my husband stopped all treatment and is receiving palliative care. Just got the results of his 3-mo. PSA and it's jumped from 40 to 91. Wondering if there's any way to know if/when symptoms will start appearing due to PCa's further or worsening spread? He experiences some pain
Shamrock46
in
Advanced Prostate Cancer
6 months ago
Undetectable!!
Well, that pesky lymph node is now no longer PSMA detectable. After 1 year of Lupron, and Zytiga. So, now Im looking at 2 more years of Lupron (FML), and 1 more year of Zytiga. MO and RO both said to follow STAMPEDE trial. I want to follow SSPORT trial!! Odd thing, my Testosterone yesterday was 4
Well, that pesky lymph node is now no longer PSMA detectable. After 1 year of Lupron, and Zytiga. So, now Im looking at 2 more years of Lupron (FML), and 1 more year of Zytiga. MO and RO both said to follow STAMPEDE trial. I want to follow SSPORT trial!! Odd thing, my Testosterone yesterday was 4
Hidden
in
Advanced Prostate Cancer
8 months ago
Eligard and Muscle pain
I am 26 months into my ADT and generally tolerating well.I was first on firmagon shots monthly then switched to Lupron Depot 3 monthly but on my last visit 2 weeks ago Nurse gave me Eligard injection .My blood tests came out great PSA still undetectable but I am having severe muscle pain last few days
I am 26 months into my ADT and generally tolerating well.I was first on firmagon shots monthly then switched to Lupron Depot 3 monthly but on my last visit 2 weeks ago Nurse gave me Eligard injection .My blood tests came out great PSA still undetectable but I am having severe muscle pain last few days
mynacho
in
Advanced Prostate Cancer
8 months ago
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