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Newly diagnosed Gleason 9
Hi all, I recently had my prostate taken out and got upgraded to Gleason 9, T3b, seminal vessel and extra prosthetic extension with positive margins but no lymph nodes. I am 56, very fit, and will get my first post operative PSA in September. My pre-op was 9.5. I know a lot of people on this forum
Hi all, I recently had my prostate taken out and got upgraded to Gleason 9, T3b, seminal vessel and extra prosthetic extension with positive margins but no lymph nodes. I am 56, very fit, and will get my first post operative PSA in September. My pre-op was 9.5. I know a lot of people on this forum
OppositePlatypus9910
in
Advanced Prostate Cancer
18 days ago
2nd Opinion downgraded 4+3 60%4’s to 3+4 30% 4’s from MD Anderson. Thoughts?
PSA 18.987 MRI: 32ml 4.5x3.6x3.7 9mm lesion, prostatitis of peripheral gland, BPH of Central Gland. Seminal Vesicles unremarkable; Neurovascular Bundle unremarkable; Lymph Nodes No Pathologically enlarged lymph nodes; Bones No agressive osseous lesions; Prostate Margin Preserved. A. Right Posterior
PSA 18.987 MRI: 32ml 4.5x3.6x3.7 9mm lesion, prostatitis of peripheral gland, BPH of Central Gland. Seminal Vesicles unremarkable; Neurovascular Bundle unremarkable; Lymph Nodes No Pathologically enlarged lymph nodes; Bones No agressive osseous lesions; Prostate Margin Preserved. A. Right Posterior
bl2307
in
Prostate Cancer Network
18 days ago
Hacksaw
Lupron and apalutamide have kept my T and PSA under control for several years. Late last year my PSA began to rise and I changed from RO (11 years in her care) to an MO. He told us that standard of care was Docetaxel, so even though I had no real symptoms for all this time we agreed. Unfortunately, we
Lupron and apalutamide have kept my T and PSA under control for several years. Late last year my PSA began to rise and I changed from RO (11 years in her care) to an MO. He told us that standard of care was Docetaxel, so even though I had no real symptoms for all this time we agreed. Unfortunately, we
59Apache
in
Advanced Prostate Cancer
19 days ago
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Should I take Nubeqa continuously when going to a PSMA Pylarify PET scan or take an intermittent break for a few weeks beforehand?
Should I take Nubeqa continuously when going to a PSMA Pylarify PET scan or break from the Nubeqa for a few weeks beforehand?When getting a PSMA PET scan, I often here advice about temporarily pausing use of whatever drugs that are effectively keeping the PSA scores down at nadir or below .1. The purpose
Should I take Nubeqa continuously when going to a PSMA Pylarify PET scan or break from the Nubeqa for a few weeks beforehand?When getting a PSMA PET scan, I often here advice about temporarily pausing use of whatever drugs that are effectively keeping the PSA scores down at nadir or below .1. The purpose
GeorgeGlass
in
Advanced Prostate Cancer
19 days ago
Success with alternative protocol
Started Aug 2023 with clioquinol +zinc, weekly Vitamin A infusions. Added Ivermectine in Sept My naturopath measures "Nagalase" count instead of PSA. 1.55....... 10/25/23. 1.37......1/10/24. 1.12......4/2/24 Nagalase count is in the normal range- less than 1....... 8/2/24 I'll have
Started Aug 2023 with clioquinol +zinc, weekly Vitamin A infusions. Added Ivermectine in Sept My naturopath measures "Nagalase" count instead of PSA. 1.55....... 10/25/23. 1.37......1/10/24. 1.12......4/2/24 Nagalase count is in the normal range- less than 1....... 8/2/24 I'll have
agnut
in
Fight Prostate Cancer
20 days ago
Chemo reduction in PSA
My husband: After 7 years of treatments, we are now to chemo: Docetaxel. After 2nd infusion PSA went from 47 to 32. Is this a Good, normal, average, AWESOME 🙏🏻 response? He has the CDK12 mutation. 😩 Thanks for any comments!
My husband: After 7 years of treatments, we are now to chemo: Docetaxel. After 2nd infusion PSA went from 47 to 32. Is this a Good, normal, average, AWESOME 🙏🏻 response? He has the CDK12 mutation. 😩 Thanks for any comments!
JolleySprings
in
Advanced Prostate Cancer
20 days ago
Dosage level
Warriors I am repeating some things here that were in other posts, however I do have a new question for the group. Started my journey in Oct of 2023. Diagnosed with prostate cancer via MRI and then Biopsy. Further diagnosis via a PET scan showed PSMA uptake in Pelvic lymph nodes and in Periaortic
Warriors I am repeating some things here that were in other posts, however I do have a new question for the group. Started my journey in Oct of 2023. Diagnosed with prostate cancer via MRI and then Biopsy. Further diagnosis via a PET scan showed PSMA uptake in Pelvic lymph nodes and in Periaortic
85236442968
in
Advanced Prostate Cancer
21 days ago
Unfavorable Intermediate PCa--treatment
Treated at UCSF. Chose radiation plus 4 months ADT (Orgovyx) due to concern of local meta. Dr. Shinohara performed tp biopsy and tp placement of markers. Alexander Gottschalk is my RO. Treatment: commencing 2 months after start of ADT, 2 fractions of Cyberknife to prostate. 25 fractions IMRT
Treated at UCSF. Chose radiation plus 4 months ADT (Orgovyx) due to concern of local meta. Dr. Shinohara performed tp biopsy and tp placement of markers. Alexander Gottschalk is my RO. Treatment: commencing 2 months after start of ADT, 2 fractions of Cyberknife to prostate. 25 fractions IMRT
gualala
in
Prostate Cancer Network
21 days ago
RT with ADT Relogolix (Orgovyx) vs Enzalutamide (Xtandi) Side Effect Differences?
There may not be a lot of people that can offer anecdotal reports on both as monotherapies but the reason I ask is some studies in the last 3 years are showing administration of Xtandi during Radiotherapy has shown outcomes as good as if not better than RT + ADT. https://www.sciencedirect.com/science
There may not be a lot of people that can offer anecdotal reports on both as monotherapies but the reason I ask is some studies in the last 3 years are showing administration of Xtandi during Radiotherapy has shown outcomes as good as if not better than RT + ADT. https://www.sciencedirect.com/science
jazj
in
Advanced Prostate Cancer
6 months ago
Bone metastasis drug looks good: phase 2 trial of PT-112 gave good results
"Further, PT-112 harbors a property known as osteotropism, or the propensity of the drug to reach its highest concentrations in certain areas of the bone, making it a candidate for treatment of patients with cancers that originate in, or metastasize to, the bone." https://www.biospace.com/article/releases
"Further, PT-112 harbors a property known as osteotropism, or the propensity of the drug to reach its highest concentrations in certain areas of the bone, making it a candidate for treatment of patients with cancers that originate in, or metastasize to, the bone." https://www.biospace.com/article/releases
Maxone73
in
Advanced Prostate Cancer
6 months ago
Final lap?
Four years on and grateful for that. Enzalutamide stopped working earlier in the year. PSA doubling. Lesion in spine led to pathological fracture and some pressure on the spinal cord. Radiation to spine and pain relieved. Docetaxel started but discontinued due to severe allergic reaction. Nothing for
Four years on and grateful for that. Enzalutamide stopped working earlier in the year. PSA doubling. Lesion in spine led to pathological fracture and some pressure on the spinal cord. Radiation to spine and pain relieved. Docetaxel started but discontinued due to severe allergic reaction. Nothing for
FortyWinks
in
Advanced Prostate Cancer
23 days ago
Toronto Prostate Cancer Specialist for Dad
My dad (68 years old) is visiting me (For my delivery in the first week of June) from India and he is going to be in Ontario, Canada for the next 3 months. He was diagnosed in Feb 2024 with a PSA of 24 and is completely asymptomatic. He is on hormone therapy with Gleason 8 and distant mets in his bones
My dad (68 years old) is visiting me (For my delivery in the first week of June) from India and he is going to be in Ontario, Canada for the next 3 months. He was diagnosed in Feb 2024 with a PSA of 24 and is completely asymptomatic. He is on hormone therapy with Gleason 8 and distant mets in his bones
Justgettingitright
in
Advanced Prostate Cancer
3 months ago
Started Xtandi and AST spiked!
Hey everyone...don't know if anyone has had this experience. I'm about 12 months into my PCa battle...been on Firmagon for most of it (including now). Started on Zytiga last year but had to stop due to elevated liver enzymes, so I switched to Casodex about two months ago, but PSA numbers started to
Hey everyone...don't know if anyone has had this experience. I'm about 12 months into my PCa battle...been on Firmagon for most of it (including now). Started on Zytiga last year but had to stop due to elevated liver enzymes, so I switched to Casodex about two months ago, but PSA numbers started to
CoastalTex
in
Advanced Prostate Cancer
24 days ago
Am I headed for Radiation
hello all. Wishing the best to everyone. Just a quick question that I think I know the answer to. After RP in June 2023 pathology was Gleason 4~3 with SVI, clear margins, lymph node dissection negative, prostate 30% involved. First PSA test all at quest was an ultra sensitive post prostatectomy test
hello all. Wishing the best to everyone. Just a quick question that I think I know the answer to. After RP in June 2023 pathology was Gleason 4~3 with SVI, clear margins, lymph node dissection negative, prostate 30% involved. First PSA test all at quest was an ultra sensitive post prostatectomy test
Elkguide
in
Advanced Prostate Cancer
24 days ago
Ultra sensitive psa
As my MO basically doesn't want to engage in conversation during my 5 min appointments as he feels it's an insult to his managing my case I was wondering after 7 rounds of docetaxil why he decided to do an Ultra sensitive PSA instead of just a good o PSA. I've not reached an undetectable number as of
As my MO basically doesn't want to engage in conversation during my 5 min appointments as he feels it's an insult to his managing my case I was wondering after 7 rounds of docetaxil why he decided to do an Ultra sensitive PSA instead of just a good o PSA. I've not reached an undetectable number as of
APK3
in
Advanced Prostate Cancer
24 days ago
Happy anniversary?
It was exactly 1 year ago that I got my first elevated PSA test that started my prostate cancer experience (I don’t like to say “Journey”). Details in my comic. (http://burnscomic.com) After that, I had another PSA test (still elevated a month later), a pelvic MRI (showing pi-rads 5 areas), then a
It was exactly 1 year ago that I got my first elevated PSA test that started my prostate cancer experience (I don’t like to say “Journey”). Details in my comic. (http://burnscomic.com) After that, I had another PSA test (still elevated a month later), a pelvic MRI (showing pi-rads 5 areas), then a
Jpburns
in
Advanced Prostate Cancer
25 days ago
Update for alperk
PET Scan showed left hip radiated lesions SUV dropped from 30.2 to 3.5, 20.4 to 2.8, 7.5 to 2.5. Nothing in head, neck, organs. Now the bad news: Multiple new lesions in left hip with increased PET intensity from SUV 2.6 to 33.6 and left lower pelvic lymph node with SUV 16.1. PSA following 4/4/24 radiation
PET Scan showed left hip radiated lesions SUV dropped from 30.2 to 3.5, 20.4 to 2.8, 7.5 to 2.5. Nothing in head, neck, organs. Now the bad news: Multiple new lesions in left hip with increased PET intensity from SUV 2.6 to 33.6 and left lower pelvic lymph node with SUV 16.1. PSA following 4/4/24 radiation
alperk
in
Advanced Prostate Cancer
25 days ago
Similar experiences and outcomes when cancer ‘wakes up’ about a year out from Docetaxel? PSA slow rise, now 1.9
Hey, Looking for hope…aren’t we all? Husband had good results from Docetaxel, obliterating many bone mets and lowering PSA. Had CT/bone scan a couple months ago, showing suspicious areas. Dr. Ordered PSMA PET scans. Went over results with Dr. George today. He took my husband off Nubeqa due to
Hey, Looking for hope…aren’t we all? Husband had good results from Docetaxel, obliterating many bone mets and lowering PSA. Had CT/bone scan a couple months ago, showing suspicious areas. Dr. Ordered PSMA PET scans. Went over results with Dr. George today. He took my husband off Nubeqa due to
Newdiag-NC
in
Advanced Prostate Cancer
25 days ago
Update, small cell
Hi everyone, It's been a while since I posted but check in time to time. I'm not really sure of the purpose of this update is except we don't have a lot of family so I'm hoping writing it down will help. Please be sensitive as I'm struggling. I really can't hear about should of dones. My husband was
Hi everyone, It's been a while since I posted but check in time to time. I'm not really sure of the purpose of this update is except we don't have a lot of family so I'm hoping writing it down will help. Please be sensitive as I'm struggling. I really can't hear about should of dones. My husband was
Fdccs
in
Advanced Prostate Cancer
3 months ago
palliative radiation treatment questions
In my prior (first) post, I shared about my 82 year old father’s condition. Thanks for all the helpful and thoughtful responses from this community. He has gone off Goserelin (ADT) injection and now just on bicalutamide pills. As his testosterone seems to have returned, he’s now having more energy
In my prior (first) post, I shared about my 82 year old father’s condition. Thanks for all the helpful and thoughtful responses from this community. He has gone off Goserelin (ADT) injection and now just on bicalutamide pills. As his testosterone seems to have returned, he’s now having more energy
running_kiwi
in
Advanced Prostate Cancer
26 days ago
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