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ADT Holiday?
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
RunnerBiker
in
Advanced Prostate Cancer
6 months ago
Chemotherapy- to do or not at 82 years ?
( I made this post earlier but am doing it again in the hope that more men in their 80’s could share their experiences if they took chemotherapy. ) I am 82 and was diagnosed last month with PCa metastatic to a few bones. Gleason 9. PSA 21 at diagnosis. Have been put on orgovyx and been told soon
( I made this post earlier but am doing it again in the hope that more men in their 80’s could share their experiences if they took chemotherapy. ) I am 82 and was diagnosed last month with PCa metastatic to a few bones. Gleason 9. PSA 21 at diagnosis. Have been put on orgovyx and been told soon
Simpson80
in
Advanced Prostate Cancer
4 hours ago
PSMA PET 7/17/2024 vs. Axumin PET 1/3/2024
I had my first ever PSMA PET run this morning, 7/17/2024. Here is the report, followed immediately by the report from my most recent Axumin PET run 1/3/2024. Please give me your valuable feedback. Thank you! Report from PSMA PET run 7/17/2024: PROCEDURE(S): PET/CT TUMOR (PSMA) INDICATIONS: Malignant
I had my first ever PSMA PET run this morning, 7/17/2024. Here is the report, followed immediately by the report from my most recent Axumin PET run 1/3/2024. Please give me your valuable feedback. Thank you! Report from PSMA PET run 7/17/2024: PROCEDURE(S): PET/CT TUMOR (PSMA) INDICATIONS: Malignant
dhccpa
in
Advanced Prostate Cancer
13 hours ago
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Just and update
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come off Orgovyx after 12 months plus SBRT to a single PLN node identified in a March 2023 scan. My oncologist favored six more months, well, pretty sure
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come off Orgovyx after 12 months plus SBRT to a single PLN node identified in a March 2023 scan. My oncologist favored six more months, well, pretty sure
Hawk56
in
Advanced Prostate Cancer
18 hours ago
Erectile dysfunction meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
SherryKahn
in
Advanced Prostate Cancer
2 days ago
My MSK Precise / SBRT Journey -- 2.5 Years Post-Treatment
I completed SBRT treatment for Gleason 7 (3+4) PCa at MSKCC in NYC in November 2021. My PSA was 8.7 right before the treatment. My doctor: Dr. Michael Zelefsky. Since that time: -- My PSA as of May 2024 is 1.32. -- I've had no real urinary issues since treatment except for some bouts of urgency especially
I completed SBRT treatment for Gleason 7 (3+4) PCa at MSKCC in NYC in November 2021. My PSA was 8.7 right before the treatment. My doctor: Dr. Michael Zelefsky. Since that time: -- My PSA as of May 2024 is 1.32. -- I've had no real urinary issues since treatment except for some bouts of urgency especially
Hope4Happiness
in
Prostate Cancer Network
3 days ago
Prostate Cancer PSA is detectible again
I am a 57-year-old male. My prostate cancer was diagnosed in 2019, and I had a radical prostatectomy at Vanderbilt. In early 2023, my PSA went up to 0.12. I underwent a PET scan, which returned negative. However, an MRI revealed a small area at the prostatectomy suture site. On October 27, 2023, I completed
I am a 57-year-old male. My prostate cancer was diagnosed in 2019, and I had a radical prostatectomy at Vanderbilt. In early 2023, my PSA went up to 0.12. I underwent a PET scan, which returned negative. However, an MRI revealed a small area at the prostatectomy suture site. On October 27, 2023, I completed
DLetterman
in
Prostate Cancer Network
4 days ago
What treatment next as PSA increasing on Daroludamide & Lupron
My PSA is increasing after a year on Daroludamide and Lupron.
Questions:
1) can the Daroludamide be increased?
2) what is the next treatment after this to reduce PSA?
Sincere thanks.
My PSA is increasing after a year on Daroludamide and Lupron.
Questions:
1) can the Daroludamide be increased?
2) what is the next treatment after this to reduce PSA?
Sincere thanks.
mklc
in
Advanced Prostate Cancer
4 days ago
Appointment with Provenge doctor
Finally found a local doctor to talk with about Provenge. Appointment is early Monday morning. For anyone familiar with Provenge, can you suggest questions for me to ask? My PSA has been rising after six years on Lupron only. 1.92 in June, all-time lows .5 3/2021.
Finally found a local doctor to talk with about Provenge. Appointment is early Monday morning. For anyone familiar with Provenge, can you suggest questions for me to ask? My PSA has been rising after six years on Lupron only. 1.92 in June, all-time lows .5 3/2021.
dhccpa
in
Advanced Prostate Cancer
5 days ago
Patient Stress and Anxiety Test
Ive been off of Abiraterone over 2 months now due to Afib. Was on it 21 months Only on Lupron starting 3rd year. Did full pelvic radiation. I treated myself to a Us PSA test, and Im at <0.02. MO agreed to let me stay off Abi, and retest in 3 months, Fingers crossed.
Ive been off of Abiraterone over 2 months now due to Afib. Was on it 21 months Only on Lupron starting 3rd year. Did full pelvic radiation. I treated myself to a Us PSA test, and Im at <0.02. MO agreed to let me stay off Abi, and retest in 3 months, Fingers crossed.
Still_in_shock
in
Advanced Prostate Cancer
6 days ago
Introduction and asking for help interpreting latest scan results and thoughts on future treatment plan please.
Long time reader but first time posting.. I have just received my latest PSMA PET-CT scan results and would like some help interpreting the results and gain your thoughts about situation and treatment plan. My overall history: After slowly rising PSA scores to a relatively low peak of 6.1 at 59 years
Long time reader but first time posting.. I have just received my latest PSMA PET-CT scan results and would like some help interpreting the results and gain your thoughts about situation and treatment plan. My overall history: After slowly rising PSA scores to a relatively low peak of 6.1 at 59 years
APCFighter
in
Advanced Prostate Cancer
7 days ago
Treatment awaited
Hi all I just completed my history incorrectly as a post. I have not posted before as I have been a silent member without any worrying ongoing elevations in PSA for about four years. I have keenly observed the posts of members and learned a good deal from them. This post is the follow up on my history
Hi all I just completed my history incorrectly as a post. I have not posted before as I have been a silent member without any worrying ongoing elevations in PSA for about four years. I have keenly observed the posts of members and learned a good deal from them. This post is the follow up on my history
Sisyphus
in
Advanced Prostate Cancer
9 days ago
My History to date
Diagnosed 09/2019 PSA 12.8 T2C Grade Group 5 - (4+5) Cores right posterior @15mm length, cores right mid and left posterior Grade Group 4 MRI showing Pi-Rads 5 lesion right side successfully targeted N0 Pet PSMA showing avidity right side of prostate and two avid lymph nodes common iliac and external
Diagnosed 09/2019 PSA 12.8 T2C Grade Group 5 - (4+5) Cores right posterior @15mm length, cores right mid and left posterior Grade Group 4 MRI showing Pi-Rads 5 lesion right side successfully targeted N0 Pet PSMA showing avidity right side of prostate and two avid lymph nodes common iliac and external
Sisyphus
in
Advanced Prostate Cancer
9 days ago
North not South
Psa at dx 139. Orgovyx and Nubeqa dropped it to 62.93 Started Docetaxil #1 Psa 23.91 #2 Psa 11.41 #3 Psa 7.15 #4 Psa 4.15 #5 Psa 2.38 #6 Psa 1.66 MO wanted to continue to 8. I agreed . There was a 6 week delay before #7. I took a Psa test right before 7 and it had dropped to 0.841 pleasantly
Psa at dx 139. Orgovyx and Nubeqa dropped it to 62.93 Started Docetaxil #1 Psa 23.91 #2 Psa 11.41 #3 Psa 7.15 #4 Psa 4.15 #5 Psa 2.38 #6 Psa 1.66 MO wanted to continue to 8. I agreed . There was a 6 week delay before #7. I took a Psa test right before 7 and it had dropped to 0.841 pleasantly
APK3
in
Advanced Prostate Cancer
9 days ago
Cancer Metabolic Disease and Focal Therapy advances are viable.
Focal ablation laser can be successful,for early stage PCa. 10-21 . GLEASON 3-4 , 5% PSA , 4.7. After treatment. No major erection issues long term, no need for tadalafil. PSA steadily declined. Recent MRI clear 3-24. and my ejaculate ducts were saved as well. PSA 0.4. So so far so good. Get an 2nd
Focal ablation laser can be successful,for early stage PCa. 10-21 . GLEASON 3-4 , 5% PSA , 4.7. After treatment. No major erection issues long term, no need for tadalafil. PSA steadily declined. Recent MRI clear 3-24. and my ejaculate ducts were saved as well. PSA 0.4. So so far so good. Get an 2nd
Mlsliver78
in
Prostate Cancer Network
11 days ago
Treatment update-is SBRT missing the lesions ?
PET scan 8/21 following PSA 54.5 showed numerous bone lesions. Zytiga, prednisone, Eligard knocked PSA to <.064 until 1/23 PET showed new small lesion in left hip. Radiation 35 Gray 5/5 completed 3/15/23 with PSA drop then bounce from 0.24 to 5.9 triggered another PET on 9/6/23 which showed a new metastasis
PET scan 8/21 following PSA 54.5 showed numerous bone lesions. Zytiga, prednisone, Eligard knocked PSA to <.064 until 1/23 PET showed new small lesion in left hip. Radiation 35 Gray 5/5 completed 3/15/23 with PSA drop then bounce from 0.24 to 5.9 triggered another PET on 9/6/23 which showed a new metastasis
alperk
in
Advanced Prostate Cancer
12 days ago
six years ago today!
It is early in the morning and I felt that I needed to tell somebody this info. It needs to be people that can really understand….. that’s where the people in this community come in, since you understand what we go through! Six years ago today I was diagnosed with stage 4, 4 plus 3 w over 25 metastases
It is early in the morning and I felt that I needed to tell somebody this info. It needs to be people that can really understand….. that’s where the people in this community come in, since you understand what we go through! Six years ago today I was diagnosed with stage 4, 4 plus 3 w over 25 metastases
Fitzbruce1
in
Advanced Prostate Cancer
12 days ago
Radiation Treatment Decision
Tall Allen or anyone else with helpful information, please advise. I am deciding between two large cancer centers for radiation treatment. My background: PSA was 45 in 2/24, now .04. Lupron/Xtandi taken since 2/24. Gleason score = 9 (4 +5). 75 years old. Cancer Center I - Radiation to prostate
Tall Allen or anyone else with helpful information, please advise. I am deciding between two large cancer centers for radiation treatment. My background: PSA was 45 in 2/24, now .04. Lupron/Xtandi taken since 2/24. Gleason score = 9 (4 +5). 75 years old. Cancer Center I - Radiation to prostate
buffman
in
Advanced Prostate Cancer
13 days ago
My Husband's update after Pluvicto.
Hi everyone, Happy 4th of July🙏🏻 👏🇺🇲Well here is the update. After my husband finished the Pluvicto treatment the psa never went down to 0 the lowest it got was .13 from 10.88 First 3 months without treatment, his psa began to rise. Right now his PSA it's at 4.69😢 He had a PSMA scan, that didn't
Hi everyone, Happy 4th of July🙏🏻 👏🇺🇲Well here is the update. After my husband finished the Pluvicto treatment the psa never went down to 0 the lowest it got was .13 from 10.88 First 3 months without treatment, his psa began to rise. Right now his PSA it's at 4.69😢 He had a PSMA scan, that didn't
Chiquis
in
Advanced Prostate Cancer
13 days ago
adding to 10 Concerns
Still evaluating my 10 concerns (POST is here: https://healthunlocked.com/prostate-cancer-community/posts/150936522/recent-diagnosis-questions-concerns-please-respond-to-any-that-you-can) with second opinion evaluation at the end of the month. I wanted to add this personal data below. I am giving myself
Still evaluating my 10 concerns (POST is here: https://healthunlocked.com/prostate-cancer-community/posts/150936522/recent-diagnosis-questions-concerns-please-respond-to-any-that-you-can) with second opinion evaluation at the end of the month. I wanted to add this personal data below. I am giving myself
G6AS
in
Prostate Cancer Network
17 days ago
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