Full circle with metastatic prostate ... - Advanced Prostate...

Advanced Prostate Cancer

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Full circle with metastatic prostate cancer

Islandboy2021 profile image
8 Replies

I have gone full circle with my disease. Diagnosed at 52 in 2017 with PSA 100. 6 years later PSA is back to 100 with new spread of mets though out skeleton. I have done all the SOC treatments and changed diet. The cancer has found a way around it all. I have continued working through out but now I have serious issues with my ribs and terrible pain for the first time. I will try chemotherapy again and start radiating the painful spots. I guess I will have to stop working as well. My bones are just too fragile. Crazy disease.

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Islandboy2021 profile image
Islandboy2021
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8 Replies
mrscruffy profile image
mrscruffy

Sorry to hear that. Apply for SSDI now. It usually takes a couple years

Tall_Allen profile image
Tall_Allen

Xofigo can help with the pain too.

Islandboy2021 profile image
Islandboy2021 in reply to Tall_Allen

I am currently doing Xgeva and Radium 223. I am having my last radium shot next week.

Looks like scans and chemo next. Again!

Boxsterdriver profile image
Boxsterdriver

Sorry to hear that your cancer has come back like it has. I can only assume you are following your Urologist and Oncologist directions. My initial PSA was 70.24 with a Gleason Score 8/10 when I was diagnosed. My urologist started me on Lupron and Prolia (Androgen Depravation Therapy) along with 2400mg Calcium Supplements. My oncologist had me on 18 week’s chemotherapy. After which he prescribed Xtandi for me. My PSAs are now 0.00 and my CT Scans are clear. So for me they say I’m in a remission status. That means I still have the cancer and will continue the treatment plan.

On a side note everything my doctors suggested I complied with. My diet has change and I now walk 7 miles every morning that I don’t play golf (I walk that too). They told me to reduce stress. Sadly I lost my spouse of 44 years to COPD and Lung Cancer. I am lucky in that: 1 I have been retired since 2019 at 63 and 2 I have a good support group that checks on me every single day

So I hope this helps and I’ll wish you luck and will say a few prayers for you

monte1111 profile image
monte1111

So sorry for the pain. Does Canada have SSDI? Maybe something even better. I don't know. My doctor looked at me and instantly put me on Depravation Therapy.

skiingfiend profile image
skiingfiend

Depravation: The act of depraving, or making anything bad; the act of corrupting. The state of being depraved or degenerated; degeneracy; depravity. Change for the worse; deterioration; morbid perversion.

Deprivation: the lack or denial of something considered to be a necessity.

I don't think canada has depravation therapy but I'll look into it.😉

one letter makes a big difference here.

Islandboy2021 profile image
Islandboy2021

I am deprived of testosterone. My body is then deprived of the benefits.

Continued treatment with ADT has been covered.

Sarahpros profile image
Sarahpros

Hello ,My father had undergone the same phase...out of sheer experience would advice you not to go through chemo again...it would further aggravate your agony...

You can try Lutitium 77 therapy.....or the chemo pills....they prescribe after doing blood biopsy...depending on your genetic make up

Take care and God speed

..

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