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Best Arthur description I’ve read!
Found this on the South Wales Police Facebook page, of all places. Describes our illness so well… #HumansOfSWP | 💬 "I suffer with rheumatoid arthritis (RA), which is an autoimmune and inflammatory disease. In basic terms it means my immune system attacks healthy cells in my body by mistake, causing
Found this on the South Wales Police Facebook page, of all places. Describes our illness so well… #HumansOfSWP | 💬 "I suffer with rheumatoid arthritis (RA), which is an autoimmune and inflammatory disease. In basic terms it means my immune system attacks healthy cells in my body by mistake, causing
Llanberisman
in
NRAS
1 year ago
First time Ruxolitinib and what to make note of, from Vietnam - a case of interest/study
I am writing on behalf of my mother who was diagnosed with PV back in 2002. The symptoms started with her in 2001 but it took over 1 year for my mother to get to the right hospital, a specialized Hematologic hospital of the Ho Chi Minh City and she was put on HU since then, until recently, as a BMB showed
I am writing on behalf of my mother who was diagnosed with PV back in 2002. The symptoms started with her in 2001 but it took over 1 year for my mother to get to the right hospital, a specialized Hematologic hospital of the Ho Chi Minh City and she was put on HU since then, until recently, as a BMB showed
Cranston3x
in
MPN Voice
1 year ago
the never ending hurdles
When we did our 2nd icsi cycle we were told there was a 2% chance of total fertilisation failure, well, we were the 2% and none of our eggs fertilised. Now when pgta testing following our 3rd cycle we were told there was a 2% chance our embryos wouldn’t survive the thaw…and guess what, our top graded
When we did our 2nd icsi cycle we were told there was a 2% chance of total fertilisation failure, well, we were the 2% and none of our eggs fertilised. Now when pgta testing following our 3rd cycle we were told there was a 2% chance our embryos wouldn’t survive the thaw…and guess what, our top graded
Hidden
in
Fertility Network UK
8 months ago
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Management of Cough Variant Asthma
Hello all, My youngest (almost 8 yo) has Cough Variant Asthma (CVA) and is on Seretide 50 (2 puffs morning + night) and Montelukaust (1 tab) at night. His coughing goes CRAZY when he gets a cold or other upper respiratory infection but he's totally fine outside that (i.e. no wheezing, cough and laboured
Hello all, My youngest (almost 8 yo) has Cough Variant Asthma (CVA) and is on Seretide 50 (2 puffs morning + night) and Montelukaust (1 tab) at night. His coughing goes CRAZY when he gets a cold or other upper respiratory infection but he's totally fine outside that (i.e. no wheezing, cough and laboured
Ollie1976
in
Asthma Community Forum
11 months ago
Not impressed
Decided to go through my medical notes such as they are, and blood tests again now I'm more sensible again. All hospital consultations are missed off and consequently diagnoses. Oh, and there is a gp consultation noted that never took place. Basically my notes appear to be a mess. What really
Decided to go through my medical notes such as they are, and blood tests again now I'm more sensible again. All hospital consultations are missed off and consequently diagnoses. Oh, and there is a gp consultation noted that never took place. Basically my notes appear to be a mess. What really
Wheat
in
Pernicious Anaemia Society
10 months ago
myocarditis
I have long covid and for months I’ve suffered debilitating symptoms of arhythmia and breathlessness and exhaustion on exercise Finally after an MRI scan of heart I have been told I have myocarditis. Does anyone have experience of this being caused by covid? I don’t know how it can be treated but am
I have long covid and for months I’ve suffered debilitating symptoms of arhythmia and breathlessness and exhaustion on exercise Finally after an MRI scan of heart I have been told I have myocarditis. Does anyone have experience of this being caused by covid? I don’t know how it can be treated but am
Midnight2022
in
British Heart Foundation
1 year ago
Ibrance and Anastrozole for Endometrial Cancer - Is anybody else on this regimen?
Hello, I live in the U.S. I am on Ibrance and Anastrozole for ER+ PR+ HER2- endometrial cancer for over 5 ½ years. I was originally diagnosed in 2015 and had two recurrences. Now I am in remission. In the U.S., I am not meeting people (on online forums or in real life) that are on the same regimen
Hello, I live in the U.S. I am on Ibrance and Anastrozole for ER+ PR+ HER2- endometrial cancer for over 5 ½ years. I was originally diagnosed in 2015 and had two recurrences. Now I am in remission. In the U.S., I am not meeting people (on online forums or in real life) that are on the same regimen
Merma
in
Gynae Cancer Support
1 year ago
lung hyperinflation,
Having severe shortness of breath month now, chest xray shows moderate lung hyperinflation. Can this be caused by anxiety?
Having severe shortness of breath month now, chest xray shows moderate lung hyperinflation. Can this be caused by anxiety?
msthingy123
in
Lung Conditions Community Forum
1 year ago
endo and extreme dizziness
does anyone have extreme dizziness constantly? Almost like feeling a bit drunk? I’ve spoken to one other girl with it. I also feel super sick like I’m getting my the flu all the time but then never actually get the flu. Just very very unwell lately. Any answers would help,
does anyone have extreme dizziness constantly? Almost like feeling a bit drunk? I’ve spoken to one other girl with it. I also feel super sick like I’m getting my the flu all the time but then never actually get the flu. Just very very unwell lately. Any answers would help,
Irish_Endo
in
Endometriosis UK
11 months ago
Spinal Stenosis with nerve root impingement and foot drop Surgery or no surgery?
Hi, I'm 52, I have been battling what I thought was a Normal Siacaitic nerve pain for over a year now. Had steroid injections and medrol dos paks until I woke up one day and couldn't walk at all bc the pain was so severe and my left foot I couldn't move.i. I thought I was maybe becoming paralyzed..
Hi, I'm 52, I have been battling what I thought was a Normal Siacaitic nerve pain for over a year now. Had steroid injections and medrol dos paks until I woke up one day and couldn't walk at all bc the pain was so severe and my left foot I couldn't move.i. I thought I was maybe becoming paralyzed..
Blueberryboo
in
Pain Concern
1 year ago
Covid Recovery - Exhausted
Hi, I tested positive for Covid on July 15. Symptoms were mild at first, felt more like allergies. On July 15 I lost my sense of taste and smell, then the tightest in my chest and exhaustion hit. I took Paxlovid and have had a round of antibiotics and steroids to get rid of this virus, but it’s
Hi, I tested positive for Covid on July 15. Symptoms were mild at first, felt more like allergies. On July 15 I lost my sense of taste and smell, then the tightest in my chest and exhaustion hit. I took Paxlovid and have had a round of antibiotics and steroids to get rid of this virus, but it’s
Utballa
in
AF Association
1 year ago
does half a mg make so much difference
about three weeks ago I started to feel the familiar aches associated with pmr. Prior to this I had dropped from 3.5 to 3. I contacted my rheumatologist department and had a blood test which showed cpr <5 cor but I had symptoms. I’ve arranged a further blood test next week and was advised to stay with
about three weeks ago I started to feel the familiar aches associated with pmr. Prior to this I had dropped from 3.5 to 3. I contacted my rheumatologist department and had a blood test which showed cpr <5 cor but I had symptoms. I’ve arranged a further blood test next week and was advised to stay with
Rosina1871
in
PMRGCAuk
1 year ago
Technical help!
Hello! I'm wanting to post my Regenerus Cortisol results. Could any tech savvy person tell me the easiet/quickest way, using Edge, Word, etc. to black out my personal details on the PDF which Regenerus send with the graph of your results etc. and then get it into a format which can be uploaded in
Hello! I'm wanting to post my Regenerus Cortisol results. Could any tech savvy person tell me the easiet/quickest way, using Edge, Word, etc. to black out my personal details on the PDF which Regenerus send with the graph of your results etc. and then get it into a format which can be uploaded in
Sneedle
in
Thyroid UK
1 year ago
Need mental help or support about sharing the ivf procedure with parents and in laws
I'm Indian 36+ ttc since 2016 and moved to UK in 2019. 2 iui + 1ivf icsi FET failure. My parents torture me to the core to share all the details of my process and everytime I tell them they have no rights to ask and I'm not obliged to tell, they start up their drama of being silent. Already my childhood
I'm Indian 36+ ttc since 2016 and moved to UK in 2019. 2 iui + 1ivf icsi FET failure. My parents torture me to the core to share all the details of my process and everytime I tell them they have no rights to ask and I'm not obliged to tell, they start up their drama of being silent. Already my childhood
positivityonly
in
Fertility Network UK
8 months ago
What preparation for my first FET and I have Lupus?
Hello ladies, I have been diagnosed with Lupus in Feb 2020 and I haven’t been well since I had the Pfizer booster injection Dec 2021 which caused tightness in my chest, feeling lightheaded and palpitations. 5 months later being triple vaccinated and I had Covid last year and it has triggered some
Hello ladies, I have been diagnosed with Lupus in Feb 2020 and I haven’t been well since I had the Pfizer booster injection Dec 2021 which caused tightness in my chest, feeling lightheaded and palpitations. 5 months later being triple vaccinated and I had Covid last year and it has triggered some
Sunflowers_2020
in
Fertility, Miscarriage & IVF Support
1 year ago
Filgotinib with Colds Sore throat
Hello Can I ask I anyone on filgotinib, if you get cold (which feels like it's a head cold all stuffed up) and sore throat, do you stop filgotinib till its better or keep taking it? I know I have to stop if needing antibiotics but wasn't sure for a cold. Your experiences would be very welcome Thank
Hello Can I ask I anyone on filgotinib, if you get cold (which feels like it's a head cold all stuffed up) and sore throat, do you stop filgotinib till its better or keep taking it? I know I have to stop if needing antibiotics but wasn't sure for a cold. Your experiences would be very welcome Thank
EarthRock
in
NRAS
11 months ago
flu jab with adjuvent
My lovely gurus. I am so very worried. This morning I had my flu jab and I stupidly forgot to ask for the under 65 jab without the adjuvent. I have always made sure that I had the safe one before. I am really frightened that I will have a huge flare having had the over 65 jab. Has anyone had it
My lovely gurus. I am so very worried. This morning I had my flu jab and I stupidly forgot to ask for the under 65 jab without the adjuvent. I have always made sure that I had the safe one before. I am really frightened that I will have a huge flare having had the over 65 jab. Has anyone had it
Smokygirl
in
PMRGCAuk
11 months ago
Flu jab & AF
Good morning everyone, I am due to get my flu jab this morning, but I woke in the early hours with AF episode, still in it now. Due to take my regular meds at 9am. Flu clinic closes at 1pm. Any thoughts on my getting the jab while still in AF as most likely, going by previous episodes I probably
Good morning everyone, I am due to get my flu jab this morning, but I woke in the early hours with AF episode, still in it now. Due to take my regular meds at 9am. Flu clinic closes at 1pm. Any thoughts on my getting the jab while still in AF as most likely, going by previous episodes I probably
sugaredalmonds
in
Atrial Fibrillation Support
11 months ago
Covid-19 Vaccination?
This may provoke a tirade from people who feel very strongly one way or another, but I felt it was worth flagging up - please try to be polite! There has been previous discussion on here about whether to go for further booster vaccinations against Covid-19 now it is no longer ‘NEWS’ . Currently [i]most
This may provoke a tirade from people who feel very strongly one way or another, but I felt it was worth flagging up - please try to be polite! There has been previous discussion on here about whether to go for further booster vaccinations against Covid-19 now it is no longer ‘NEWS’ . Currently [i]most
oldtimer2
in
NRAS
1 year ago
Be Careful
Morning everyone, hope you are all well. I have pernicious anaemia and through the years have managed with self injections, resting, eating as well as I could (within reason), watching my weight and exercising as well as I can. In general I thought I was doing not too badly at all. Albeit tingling,
Morning everyone, hope you are all well. I have pernicious anaemia and through the years have managed with self injections, resting, eating as well as I could (within reason), watching my weight and exercising as well as I can. In general I thought I was doing not too badly at all. Albeit tingling,
Miss-guineapig
in
Pernicious Anaemia Society
1 year ago
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