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Experiences with
Primary ciliary dyskinesia (PCD)
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Requip
A new neurologist wants me to take re quip with the sinemet and then reduce the sinemet. I am taking 25/100 4x of sinemet at present. Has anyone done this with success? The sinemet gives me swallowing problems and dyskinesia. Also anyone take LDN with requip? I am also having major problems with off
A new neurologist wants me to take re quip with the sinemet and then reduce the sinemet. I am taking 25/100 4x of sinemet at present. Has anyone done this with success? The sinemet gives me swallowing problems and dyskinesia. Also anyone take LDN with requip? I am also having major problems with off
michaela13
in
Cure Parkinson's
10 years ago
may you all have a Merry Christmas and a Happy New Year
Dx two years ago and at that time was not upset. In the first weeks that followed, as I researched, I cried. In the following weeks and months I adjusted my diet, first with coconut oil then modified ketogenic. Recently I stopped the keto diet but now more conscious of carbs and sugar. I reduced CO to
Dx two years ago and at that time was not upset. In the first weeks that followed, as I researched, I cried. In the following weeks and months I adjusted my diet, first with coconut oil then modified ketogenic. Recently I stopped the keto diet but now more conscious of carbs and sugar. I reduced CO to
Hidden
in
Cure Parkinson's
10 years ago
Lupus and interstitial cystitis-crumbs it is painful
For many years, I have suffered from what were thought to be recurrent uti's but my recent bout ( 6 in 5 months) have all come back negative for infection I cannot describe how painful it can be at times, it really comes on quickly and feels like my insides are going to explode..... Other times, it
For many years, I have suffered from what were thought to be recurrent uti's but my recent bout ( 6 in 5 months) have all come back negative for infection I cannot describe how painful it can be at times, it really comes on quickly and feels like my insides are going to explode..... Other times, it
Chablis
in
LUPUS UK
9 years ago
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Stalevo
I currently take Stalevo 125 5 times per day trying to avoid protein-rich meals as much as possible. I just worry about the other stuff alongside the levodopa - the 25mg cardopa and 200mg entacapone in every single tablet. I've experimented with Stalevo 100, 150 and 200 but when I tried 4 x 150 recently
I currently take Stalevo 125 5 times per day trying to avoid protein-rich meals as much as possible. I just worry about the other stuff alongside the levodopa - the 25mg cardopa and 200mg entacapone in every single tablet. I've experimented with Stalevo 100, 150 and 200 but when I tried 4 x 150 recently
John3419
in
Cure Parkinson's
10 years ago
Coconut Oil Recipes
I think it might be fun to gather everyone's ideas for making coconut oil an attractive part of the diet into one post. My hope is that this is a Recipe Post and not a place for strutting your stuff, , or debating about Angels on the head of a pin. Lighten Up; Have Fun! 0. Butter Substitute. At the
I think it might be fun to gather everyone's ideas for making coconut oil an attractive part of the diet into one post. My hope is that this is a Recipe Post and not a place for strutting your stuff, , or debating about Angels on the head of a pin. Lighten Up; Have Fun! 0. Butter Substitute. At the
fwes
in
Cure Parkinson's
10 years ago
Pain pain pain!!!!
Hi girls, Just need to talk to someone who knows what I'm going through and the pain... I am 2 weeks after surgery for a total hysterectomy and bowel resection I have to go back to the hospital next week to have my stents removed four of them. The thing is that I have an infection feel
Hi girls, Just need to talk to someone who knows what I'm going through and the pain... I am 2 weeks after surgery for a total hysterectomy and bowel resection I have to go back to the hospital next week to have my stents removed four of them. The thing is that I have an infection feel
Hidden
in
Endometriosis UK
10 years ago
Suddenly I have pain
Could any one please tell me if they have experienced sudden onset of severe lower back pain, was dx 12 years ago never had pain lots of other probs but no pain that changed 6weeks ago is it related to any meds ? I take Madapar,Comtan Amantadine and Azilect (which has proved very successful ) or is it
Could any one please tell me if they have experienced sudden onset of severe lower back pain, was dx 12 years ago never had pain lots of other probs but no pain that changed 6weeks ago is it related to any meds ? I take Madapar,Comtan Amantadine and Azilect (which has proved very successful ) or is it
Sunnysky
in
Cure Parkinson's
10 years ago
What I don't get is...
The meds that are supposed to help have the opposite effect! When I try any of these meds -- sinemet, amantidine, even neurontin -- the tremor, which is in my right arm/hand, spreads to my right leg, head and voice and speeds up too. I feel like I've gone from the "wash" cycle to the "spin" cycle! Have
The meds that are supposed to help have the opposite effect! When I try any of these meds -- sinemet, amantidine, even neurontin -- the tremor, which is in my right arm/hand, spreads to my right leg, head and voice and speeds up too. I feel like I've gone from the "wash" cycle to the "spin" cycle! Have
Beckey
in
Cure Parkinson's
10 years ago
amantadine
Hi all, Hope you are all hanging in there you wonderful people x My OH has been doing fine, well more than fine for the past 18months. He has been on Stavelo, and Azilect and Neuro patches but the Neuro wants to add amantadine. The reason is because he has started to throw out his arms mainly his right
Hi all, Hope you are all hanging in there you wonderful people x My OH has been doing fine, well more than fine for the past 18months. He has been on Stavelo, and Azilect and Neuro patches but the Neuro wants to add amantadine. The reason is because he has started to throw out his arms mainly his right
allofatremor
in
Cure Parkinson's
10 years ago
Bladder pain and endo?? One thing after another!! Help!!
Hey there, my name is Natalie and I have suffered with endo for about the past 6 years if not longer! I have a severely aggressive form(docs words not mine!) of endo! This year I had another laparoscopy to cut away big amounts of endo after a 2 year break, pain free!!! Since that laparoscopy everything
Hey there, my name is Natalie and I have suffered with endo for about the past 6 years if not longer! I have a severely aggressive form(docs words not mine!) of endo! This year I had another laparoscopy to cut away big amounts of endo after a 2 year break, pain free!!! Since that laparoscopy everything
Natalie732
in
Endometriosis UK
10 years ago
Azilect
Azilect I recommend you all try it within the first two days I had an amazing improvement in my symptoms "on"all day no "off" times at all tremor settled down cancelled my DBS surgery felt so good still having great results after using Azilect for 3 months little bit of Dyskenesia but manageable hope
Azilect I recommend you all try it within the first two days I had an amazing improvement in my symptoms "on"all day no "off" times at all tremor settled down cancelled my DBS surgery felt so good still having great results after using Azilect for 3 months little bit of Dyskenesia but manageable hope
Sunnysky
in
Cure Parkinson's
10 years ago
Urinary retention on gabapentin
Its only quite mild but its annoying as I've spent half the day going to the loo wanting to pee and it seems to take a lot of concentration to do it and then I can't always so when I get back in sitting room or whereever I feel mildly incomfortable and can't stop thinking about going to the loo again
Its only quite mild but its annoying as I've spent half the day going to the loo wanting to pee and it seems to take a lot of concentration to do it and then I can't always so when I get back in sitting room or whereever I feel mildly incomfortable and can't stop thinking about going to the loo again
Frankiebeee
in
Fibromyalgia Action UK
10 years ago
UTI miracle help
I had UTI constantly for years... My urologist suggested i take D-Mannose. I buy it from amazon, its a herbal miracle!!! I havent had another UTI or antibiotics for 2 yrs! Please read up on it! Im no doctor but it worked for me! Xx
I had UTI constantly for years... My urologist suggested i take D-Mannose. I buy it from amazon, its a herbal miracle!!! I havent had another UTI or antibiotics for 2 yrs! Please read up on it! Im no doctor but it worked for me! Xx
Hidden
in
LUPUS UK
10 years ago
Azilect and Sinemet
I tried to take selegeline with sinemet 25/100 4xday. I quit after a week because the dyskinesia was so bad. My neuro did not discuss with me how or when to reduce the sinemet. I would like to try it again. I felt better motor skills. The sinemet lasted much longer. Does anyone have experience with this
I tried to take selegeline with sinemet 25/100 4xday. I quit after a week because the dyskinesia was so bad. My neuro did not discuss with me how or when to reduce the sinemet. I would like to try it again. I felt better motor skills. The sinemet lasted much longer. Does anyone have experience with this
michaela13
in
Cure Parkinson's
10 years ago
UTI for 2 weeks
Any tips on making it a little more bearable till I get to the drs tomorrow. Was on Anti biotics which got rid of it for all of a day then it flared right back up again. When I spoke to the dr he thought that it was possibly just inflammation of my bladder caused by other things that are going on,
Any tips on making it a little more bearable till I get to the drs tomorrow. Was on Anti biotics which got rid of it for all of a day then it flared right back up again. When I spoke to the dr he thought that it was possibly just inflammation of my bladder caused by other things that are going on,
bex89
in
Endometriosis UK
10 years ago
Is endo causing my cystitis?
Hi. I was diagnosed 2 years ago with endo at age 26 and had major op last year to remove a 4cm lump from sticking my bowels to my cervix and nodules growing in to my upper vagina. Despite my consultant being hopeful it wouldn't grow back, after stopping zoladex injections pains started to get bad again
Hi. I was diagnosed 2 years ago with endo at age 26 and had major op last year to remove a 4cm lump from sticking my bowels to my cervix and nodules growing in to my upper vagina. Despite my consultant being hopeful it wouldn't grow back, after stopping zoladex injections pains started to get bad again
little_fins
in
Endometriosis UK
10 years ago
Recurring cystitis
Hi everyone, i hope you ladies are having a good day. I have had recurring cystitis For the last 2 years. As soon as I have finished my course of antibiotics, after 1-2 days later my cystitis comes back and then I'm put back on the antibiotics. I don't understand why I keep getting it. I am careful with
Hi everyone, i hope you ladies are having a good day. I have had recurring cystitis For the last 2 years. As soon as I have finished my course of antibiotics, after 1-2 days later my cystitis comes back and then I'm put back on the antibiotics. I don't understand why I keep getting it. I am careful with
Sweetyassi
in
Endometriosis UK
10 years ago
amantadine
anyone got any experience of taking amantadine good or bad,i.v just been prescribed them by consultant and since i started taking them a week ago i,v been getting heartburn.
anyone got any experience of taking amantadine good or bad,i.v just been prescribed them by consultant and since i started taking them a week ago i,v been getting heartburn.
alanrob
in
Cure Parkinson's
10 years ago
I'm very perplexed ?
I've had PD for 5+ yrs? recently went on a cruise didn't have PD meds everything went smooth long story short haven't resumed sinemet carbidopa or Azilect the only difference bedsides feeling better is my gait although I walk 18 holes of golf in 3.5 hrs 2-3 times a week , take tai chi yoga and Pilates
I've had PD for 5+ yrs? recently went on a cruise didn't have PD meds everything went smooth long story short haven't resumed sinemet carbidopa or Azilect the only difference bedsides feeling better is my gait although I walk 18 holes of golf in 3.5 hrs 2-3 times a week , take tai chi yoga and Pilates
Pappy214
in
Cure Parkinson's
10 years ago
Hi , has anyone experienced dyskinesia's while on stalevo or levodopa in general ?:)been on levadopa for a year now .
I'm almost sure I am having these daily in my foot and is making my symptoms worse then they should do ! Not sure if stalevo is really working for me but been told not too stop them because of neuroleptic malignant syndrome .can you have dyskinesia after a year on l dopa . thanks folks:)
I'm almost sure I am having these daily in my foot and is making my symptoms worse then they should do ! Not sure if stalevo is really working for me but been told not too stop them because of neuroleptic malignant syndrome .can you have dyskinesia after a year on l dopa . thanks folks:)
CheekyChops1973
in
PSP Association
10 years ago
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