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Primary ciliary dyskinesia (PCD)
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Recurring cystitis
Hi everyone, i hope you ladies are having a good day. I have had recurring cystitis For the last 2 years. As soon as I have finished my course of antibiotics, after 1-2 days later my cystitis comes back and then I'm put back on the antibiotics. I don't understand why I keep getting it. I am careful with
Hi everyone, i hope you ladies are having a good day. I have had recurring cystitis For the last 2 years. As soon as I have finished my course of antibiotics, after 1-2 days later my cystitis comes back and then I'm put back on the antibiotics. I don't understand why I keep getting it. I am careful with
Sweetyassi
in
Endometriosis UK
10 years ago
amantadine
anyone got any experience of taking amantadine good or bad,i.v just been prescribed them by consultant and since i started taking them a week ago i,v been getting heartburn.
anyone got any experience of taking amantadine good or bad,i.v just been prescribed them by consultant and since i started taking them a week ago i,v been getting heartburn.
alanrob
in
Cure Parkinson's
10 years ago
I'm very perplexed ?
I've had PD for 5+ yrs? recently went on a cruise didn't have PD meds everything went smooth long story short haven't resumed sinemet carbidopa or Azilect the only difference bedsides feeling better is my gait although I walk 18 holes of golf in 3.5 hrs 2-3 times a week , take tai chi yoga and Pilates
I've had PD for 5+ yrs? recently went on a cruise didn't have PD meds everything went smooth long story short haven't resumed sinemet carbidopa or Azilect the only difference bedsides feeling better is my gait although I walk 18 holes of golf in 3.5 hrs 2-3 times a week , take tai chi yoga and Pilates
Pappy214
in
Cure Parkinson's
10 years ago
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Hi , has anyone experienced dyskinesia's while on stalevo or levodopa in general ?:)been on levadopa for a year now .
I'm almost sure I am having these daily in my foot and is making my symptoms worse then they should do ! Not sure if stalevo is really working for me but been told not too stop them because of neuroleptic malignant syndrome .can you have dyskinesia after a year on l dopa . thanks folks:)
I'm almost sure I am having these daily in my foot and is making my symptoms worse then they should do ! Not sure if stalevo is really working for me but been told not too stop them because of neuroleptic malignant syndrome .can you have dyskinesia after a year on l dopa . thanks folks:)
CheekyChops1973
in
PSP Association
10 years ago
i have pd and currently take 2 mg of xanax ,40 mg celexa, 4 norco 6 25mg carbidopa 6 25/100 sinemet 2 zyrtek-d my ? is are these compatible
Pappy214
in
Cure Parkinson's
10 years ago
Has anyone had problems with obsessive behaviors b/c of Parkinson's meds? Will counseling help at all?
My husband has a serious problem with porn and I can't live with it any more. Is there any hope with counseling or is it impossible to stop the behavior without eliminating the medication all together. I plan to go to counseling, but really need to know if there is hope.
My husband has a serious problem with porn and I can't live with it any more. Is there any hope with counseling or is it impossible to stop the behavior without eliminating the medication all together. I plan to go to counseling, but really need to know if there is hope.
sandiegogirl
in
Cure Parkinson's
10 years ago
My PD effects my right side with stiffness, tremors and toe curling. This seems to effect my driving but am also noticing reaction time
issues to traffic situations. Do others have this? Currently on azilect and mirapex only. Mirapex is 3x a day. How long can one expect to drive without having to give up license? Is there a different drug that may help with driving?
issues to traffic situations. Do others have this? Currently on azilect and mirapex only. Mirapex is 3x a day. How long can one expect to drive without having to give up license? Is there a different drug that may help with driving?
Park4me
in
Cure Parkinson's
10 years ago
I have been advised to go for a 'retrograde urethrogram' examination for urine retention in the bladder. Pls. advise, if anybody knows.
Is it very painful? It is not done at any diagnostic centres. Is it really necessary, which are the hospitals at Borivali in Mumbai doing this? Kind advise please. Why urine retention in elderly people?
Is it very painful? It is not done at any diagnostic centres. Is it really necessary, which are the hospitals at Borivali in Mumbai doing this? Kind advise please. Why urine retention in elderly people?
somkar
in
Diabetes India
10 years ago
How dangerous is sedation or general anesthetic?
My guy is set to have a procedure that it usually done under anesthesia, but can be done, with some discomfort of course, with local anesthetic only. I have heard many stories of psp patients - and others - who suffer irreversible loss of intellectual functioning after anesthesia, but am I overreacting
My guy is set to have a procedure that it usually done under anesthesia, but can be done, with some discomfort of course, with local anesthetic only. I have heard many stories of psp patients - and others - who suffer irreversible loss of intellectual functioning after anesthesia, but am I overreacting
easterncedar
in
PSP Association
10 years ago
Has anyone taken waterfall D mannose for cystitis
Hi has anyone on the forum taken waterfall D Mannose and if so how did they find it. I've just ordered some in powdered form to see if it will kill off this cystitis thanks
Hi has anyone on the forum taken waterfall D Mannose and if so how did they find it. I've just ordered some in powdered form to see if it will kill off this cystitis thanks
Mauds
in
Thyroid UK
10 years ago
Has anyone suffered hair loss whilst on madopar and amantadine
I take 250 mgs madopar 4 times a day and amantadine tablets twice a day. Also I take 4 adcal ( calcium tablets) a day for bone strength. I did take alendronic tablet once a week but stopped taking it 2 months ago as I thought that was causing my hair loss. As I'm still losing hair has anyone else had
I take 250 mgs madopar 4 times a day and amantadine tablets twice a day. Also I take 4 adcal ( calcium tablets) a day for bone strength. I did take alendronic tablet once a week but stopped taking it 2 months ago as I thought that was causing my hair loss. As I'm still losing hair has anyone else had
camper
in
Cure Parkinson's
10 years ago
Co emzyme Q10 , Lithium, alpha lipoic acid, L carnitine
anyone has been taking these and noted some improvements?
anyone has been taking these and noted some improvements?
clairev
in
PSP Association
10 years ago
Anyone having problems with Madopar? Or more specifically Levodopa in particular?
My neurologist has taken me off Madopar because the Levodopa that it contains is causing me extreme problems with impulsive behaviour. The problem is now my tremor has started to get worse again in the last week since stopped the Madopar and I am due a review in 3 months once the Madopar has left my
My neurologist has taken me off Madopar because the Levodopa that it contains is causing me extreme problems with impulsive behaviour. The problem is now my tremor has started to get worse again in the last week since stopped the Madopar and I am due a review in 3 months once the Madopar has left my
2Chrissie4
in
Cure Parkinson's
10 years ago
Has Coconut Oil helped relieve some of your Parkinson's symptoms? Straw Poll.
I am amazed at the continuing activity on the 10-month old post "Coconut Oil has improved my life" https://healthunlocked.com/parkinsonsmovement/posts/1170627/coconut-oil-has-improved-my-life/responses/130728627?ref=email_individual Out of curiosity, I would like for this post to act as a straw poll
I am amazed at the continuing activity on the 10-month old post "Coconut Oil has improved my life" https://healthunlocked.com/parkinsonsmovement/posts/1170627/coconut-oil-has-improved-my-life/responses/130728627?ref=email_individual Out of curiosity, I would like for this post to act as a straw poll
fwes
in
Cure Parkinson's
10 years ago
Comtan / entacapone cost
Comtan (generic:entacapone) really works for me in extending my on-times for carbidopa-levadopa to the point where I am almost symptom free some days. However, I have been paying $300-$400 for it per month because my insurance, and I've been told, most insurance didn't cover it. Well, IT DOES NOW and
Comtan (generic:entacapone) really works for me in extending my on-times for carbidopa-levadopa to the point where I am almost symptom free some days. However, I have been paying $300-$400 for it per month because my insurance, and I've been told, most insurance didn't cover it. Well, IT DOES NOW and
MichaelOM
in
Cure Parkinson's
10 years ago
I had a ultrasound this morning to check gall bladder, kidneys, urinary tract and pelvic area. The doc has rung a few hours later
For permission to book an urgent MRI. He said something about the blood vessel to the liver. Do any of you have any info as I am now very worried.
For permission to book an urgent MRI. He said something about the blood vessel to the liver. Do any of you have any info as I am now very worried.
flossy1
in
Fibromyalgia Action UK
10 years ago
Endometriosis and Interstitial cystitis
Does any one suffer with both endo and Interstitial cystitis. After my long journey with endo I've recently found out I also have interstitial cystitis. I'm only 23 newly married but really finding things tough at the moment. I feel extremely run down and spending more and more time in bed. Has anyone
Does any one suffer with both endo and Interstitial cystitis. After my long journey with endo I've recently found out I also have interstitial cystitis. I'm only 23 newly married but really finding things tough at the moment. I feel extremely run down and spending more and more time in bed. Has anyone
OliviaRose
in
Endometriosis UK
10 years ago
Do I have IC? ( interstitial cystitis ) or Endo on my bladder.
Hello I was wondering if I had IC. So here's what has been happening to me. A few months ago when I was diagnosed with Endo. I always had to use the bathroom like 15 times a day, because every time my bladder gets full (I drink A LOT of water) I would feel this dull aching pain deep inside of me. But
Hello I was wondering if I had IC. So here's what has been happening to me. A few months ago when I was diagnosed with Endo. I always had to use the bathroom like 15 times a day, because every time my bladder gets full (I drink A LOT of water) I would feel this dull aching pain deep inside of me. But
Hidden
in
Endometriosis UK
10 years ago
Endo and UTI's - Is there a connection?
Hi, I was just wondering if anyone else has issues with constantly reoccurring UTI's and or if it is or has been connected to endo? I'm awaiting official diagnosis via laparoscopy after over 10 years of pain and an awful lot of pushing for answers! I'm actually really surprised that a lot of Ladies
Hi, I was just wondering if anyone else has issues with constantly reoccurring UTI's and or if it is or has been connected to endo? I'm awaiting official diagnosis via laparoscopy after over 10 years of pain and an awful lot of pushing for answers! I'm actually really surprised that a lot of Ladies
Sarve
in
Endometriosis UK
10 years ago
Last month I had a lap to remove endo in bladder and ovaries and this month I still got blood in urine while on period. Has it come back?
I started having blood in urine while on my period some months ago, when the endo symptoms started becoming worse. Last month I had a lap and two endometriomas <3cm were removed, as well as some endo in my bladder. Now I got my period, but there is still blood in my urine. Does this mean that the endo
I started having blood in urine while on my period some months ago, when the endo symptoms started becoming worse. Last month I had a lap and two endometriomas <3cm were removed, as well as some endo in my bladder. Now I got my period, but there is still blood in my urine. Does this mean that the endo
margen
in
Endometriosis UK
10 years ago
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