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Pmr and pain - where do you get pain?
Hi, I have recently been diagnosed with pmr after covid. I'm wondering if it is pmr or if it's 'just' long covid (which in itself is pretty awful) so ... If you have pmr and if you have pmr and long covid/M.E would you mind sharing where it hurts you and any tips on how to balance exercise and rest
Hi, I have recently been diagnosed with pmr after covid. I'm wondering if it is pmr or if it's 'just' long covid (which in itself is pretty awful) so ... If you have pmr and if you have pmr and long covid/M.E would you mind sharing where it hurts you and any tips on how to balance exercise and rest
Claremarie83
in
PMRGCAuk
9 hours ago
Advice on tapering please
Hello wise people, can you help with advice on tapering please? I am just about down to 4mg of prednisolone, following the slow taper plan. I was doing fine but now - taking four 4mg doses on more consecutive days - I find all the old aches and pains in shoulders and hips returning first thing in the
Hello wise people, can you help with advice on tapering please? I am just about down to 4mg of prednisolone, following the slow taper plan. I was doing fine but now - taking four 4mg doses on more consecutive days - I find all the old aches and pains in shoulders and hips returning first thing in the
Hedgehogfriend
in
PMRGCAuk
17 hours ago
Update.
Spoke with Dr Sidra my haematologist yesterday. My red cells are still being destroyed more rapidly than they are replenishing. He has reduced my Imber from 329mg daily to 280 mg. I am now reducing my Prednisolone dosage on a taper every 2 weeks. Still having issues with feeling very hot and quite fatigued
Spoke with Dr Sidra my haematologist yesterday. My red cells are still being destroyed more rapidly than they are replenishing. He has reduced my Imber from 329mg daily to 280 mg. I am now reducing my Prednisolone dosage on a taper every 2 weeks. Still having issues with feeling very hot and quite fatigued
Jacksc06
in
CLL Support
18 hours ago
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update I guess
update I stopped Alendronic Acid when had heartburn and after discussion with Consultant stopped taking a couple of months ago. Good Dexa scan . I have reduced Prednisolone down to 8mg soon to be 7mg. I have been very slowly reducing Omeprazole from 20 mg daily to 10 mg every other day . Fingers crossed
update I stopped Alendronic Acid when had heartburn and after discussion with Consultant stopped taking a couple of months ago. Good Dexa scan . I have reduced Prednisolone down to 8mg soon to be 7mg. I have been very slowly reducing Omeprazole from 20 mg daily to 10 mg every other day . Fingers crossed
Havanahula
in
PMRGCAuk
1 day ago
To split dose or not to split
I was diagnosed with PMR in June this year and put on 15mg Prednisolone. Last week this was reduced to 12.5. On both doses, I was experiencing pain by the evening and this week decided to take the little 2.5 tablet at mid-day to try and prolong the pain-free period until bed-time. I now wonder whether
I was diagnosed with PMR in June this year and put on 15mg Prednisolone. Last week this was reduced to 12.5. On both doses, I was experiencing pain by the evening and this week decided to take the little 2.5 tablet at mid-day to try and prolong the pain-free period until bed-time. I now wonder whether
Notimeforpain
in
PMRGCAuk
1 day ago
Review after 2 years
I had my PMR review this week. I advised the consultant that I was reducing my prednisolone to 3mg despite feeling pain and discomfort. She then recommended Methotrexate as an alternative and fortnightly reviews. Does anyone have any history of taking this medication and whether it’s worth changing my
I had my PMR review this week. I advised the consultant that I was reducing my prednisolone to 3mg despite feeling pain and discomfort. She then recommended Methotrexate as an alternative and fortnightly reviews. Does anyone have any history of taking this medication and whether it’s worth changing my
De-Lay
in
PMRGCAuk
2 days ago
Anyone on Azathioprine for PMR
Recently my consultant has suggested that I reduce my steroids and start on this drug at the same time. I am currently on 6mgs of Prednisolone and my pain, which is mostly in my hands and wrists is manageable. For 5years I did not have to take anything at all and I really would rather just taper off
Recently my consultant has suggested that I reduce my steroids and start on this drug at the same time. I am currently on 6mgs of Prednisolone and my pain, which is mostly in my hands and wrists is manageable. For 5years I did not have to take anything at all and I really would rather just taper off
reefswimmer
in
PMRGCAuk
2 days ago
CRP levels raised
I was diagnosed with PMR in April 23 , starting on 15 mg Prednisolone reducing to 8mg. Then started with terrible headaches in the morning on waking & a watery right eye . Bumped up to 20mg immediately which stopped the headaches . Now reduced down 1/2 mg every 2 weeks or so as I feel able , now down
I was diagnosed with PMR in April 23 , starting on 15 mg Prednisolone reducing to 8mg. Then started with terrible headaches in the morning on waking & a watery right eye . Bumped up to 20mg immediately which stopped the headaches . Now reduced down 1/2 mg every 2 weeks or so as I feel able , now down
Agapanthous
in
PMRGCAuk
2 days ago
prednisolone
hi I am currently taking 10 mg per day due soon to taper to 9mg. For some reason I have run out of 5mg and only have supplies of 1mg. I have a prescription on order for 5mg but can take a day or so. Does anyone know if there is a down side/side effect if for a couple of days I take 10 x 1mg? Thanks
hi I am currently taking 10 mg per day due soon to taper to 9mg. For some reason I have run out of 5mg and only have supplies of 1mg. I have a prescription on order for 5mg but can take a day or so. Does anyone know if there is a down side/side effect if for a couple of days I take 10 x 1mg? Thanks
Jakey67
in
PMRGCAuk
5 days ago
The steroid with zytiga can be a deal
My Dads new oncologist switched his steroid from prednisolone to dexamethasone - she was distressed at first appointment to see he was on zytiga and prednisolone. She said research pretty clear that dexamethasone is better. On today's PSA results she is clearly correct. We thought that he had become
My Dads new oncologist switched his steroid from prednisolone to dexamethasone - she was distressed at first appointment to see he was on zytiga and prednisolone. She said research pretty clear that dexamethasone is better. On today's PSA results she is clearly correct. We thought that he had become
TomsD1
in
Advanced Prostate Cancer
5 days ago
DXA scan results
After having Polymyalgia for over 11 years and happy to stay around on 5mg Prednisolone a day. My Doctor concerned, asked for a DXA scan. I was told your results would be sent this afternoon, that's two weeks ago, giving them time to advise me, on asking when I might hear I'm told not for a couple of
After having Polymyalgia for over 11 years and happy to stay around on 5mg Prednisolone a day. My Doctor concerned, asked for a DXA scan. I was told your results would be sent this afternoon, that's two weeks ago, giving them time to advise me, on asking when I might hear I'm told not for a couple of
DavidMF
in
PMRGCAuk
5 days ago
Methylprednisolone and prednisolone
I know you cannot take methylprednisolone and prednisolone simultaneously but can one transfer from methylprednisolone to prednisolone without any adverse effects , bearing in mind that 4mg methylprednisolone is stronger so is equal to 5mg prednisolone .? 🤔
I know you cannot take methylprednisolone and prednisolone simultaneously but can one transfer from methylprednisolone to prednisolone without any adverse effects , bearing in mind that 4mg methylprednisolone is stronger so is equal to 5mg prednisolone .? 🤔
Lasagne777
in
PMRGCAuk
6 days ago
Private Blood Test
Hi not sure if anyone is aware but I applied online and received a kit for Thyroid blood tests, on reading instructions before use it stated do not use if taking corticosteroids/prednisolone so had to return and received a refund, this was not mentioned anywhere on the website (I have been back on to
Hi not sure if anyone is aware but I applied online and received a kit for Thyroid blood tests, on reading instructions before use it stated do not use if taking corticosteroids/prednisolone so had to return and received a refund, this was not mentioned anywhere on the website (I have been back on to
Blodders2
in
PMRGCAuk
7 days ago
Blood Test
I have been on prednisolone for PMR since June 24 2024, I am due to have blood tests on 29 August 2024 what tests should I be aware of that need to be taken, I am also having Thyroid bloods TSH and Free t4 tested as readings were out of range on last test.
I have been on prednisolone for PMR since June 24 2024, I am due to have blood tests on 29 August 2024 what tests should I be aware of that need to be taken, I am also having Thyroid bloods TSH and Free t4 tested as readings were out of range on last test.
Blodders2
in
PMRGCAuk
9 days ago
On 45mg Prednisolone. Doc just told me to miss a day.
I'm so frightened. I have got totally confused. Confusion started when I got diagnosed with GCA and put on Prednisolone 50 mg, along with Apixaban, Lanzoprazole, coleocalciferol, something that's vit D complex plus calcium (forgotton the name), simavastin and Bisoprolol. Then I had afall, got taken
I'm so frightened. I have got totally confused. Confusion started when I got diagnosed with GCA and put on Prednisolone 50 mg, along with Apixaban, Lanzoprazole, coleocalciferol, something that's vit D complex plus calcium (forgotton the name), simavastin and Bisoprolol. Then I had afall, got taken
Blondgrassblowing
in
PMRGCAuk
9 days ago
steroid reduction setback
i was diagnosed with PMR beginning of June and started on 15mg Prednisolone which immediately brought about huge improvement to the point where after a couple of weeks I had no pain. After 4 weeks, and with inflammatory markers down from 70s to normal, GP reduced dose to 14 mg. I found no deterioration
i was diagnosed with PMR beginning of June and started on 15mg Prednisolone which immediately brought about huge improvement to the point where after a couple of weeks I had no pain. After 4 weeks, and with inflammatory markers down from 70s to normal, GP reduced dose to 14 mg. I found no deterioration
Crosswordsolver
in
PMRGCAuk
9 days ago
IBS-C - have had this for life and is playing up again now
I remember being taken to hospital at a pre-school age because I had a 'blockage.' After that my mother gave me castor oil, enos, sennapods, that Ex-Lax chocolate that would not fool a 4 year old, prunes. You name it I had it and I can never remember having a bowel movement normally. I could go for
I remember being taken to hospital at a pre-school age because I had a 'blockage.' After that my mother gave me castor oil, enos, sennapods, that Ex-Lax chocolate that would not fool a 4 year old, prunes. You name it I had it and I can never remember having a bowel movement normally. I could go for
Miserere
in
IBS Network
11 days ago
Hydrocortisone Tablets
Hello everyone, hope all good & well with you all.. I have been on Hydrocortisone tablets for adrenal insufficiency for about 1 year now, I had been on prednisolone for many years quite a high dose & when I developed adrenal insufficiency I was put on a much lower dose of Hydrocortisone 10 mg morning
Hello everyone, hope all good & well with you all.. I have been on Hydrocortisone tablets for adrenal insufficiency for about 1 year now, I had been on prednisolone for many years quite a high dose & when I developed adrenal insufficiency I was put on a much lower dose of Hydrocortisone 10 mg morning
primrose123
in
Lung Conditions Community Forum
13 days ago
Good diet so no need for Adcal?
I asked my GP (again!)about taking Adcal and explained that a lot of people on this forum were automatically prescribed it when put on steroids. GP asked about my diet and said I was getting plenty of calcium in my diet. He said calcium and Vitamin D levels were good on my last blood test and the DEXA
I asked my GP (again!)about taking Adcal and explained that a lot of people on this forum were automatically prescribed it when put on steroids. GP asked about my diet and said I was getting plenty of calcium in my diet. He said calcium and Vitamin D levels were good on my last blood test and the DEXA
Mfaepink1973
in
PMRGCAuk
13 days ago
adrenals struggling and diarrhoea
hi, I am down to 3.5mg of prednisolone and struggling with some stomach issues and fatigue. last night I had awful stomach cramps, nausea and diarrhoea that lasted all night and into today and felt quite weak. I am wondering what people take to help with this. Thank you for any help
hi, I am down to 3.5mg of prednisolone and struggling with some stomach issues and fatigue. last night I had awful stomach cramps, nausea and diarrhoea that lasted all night and into today and felt quite weak. I am wondering what people take to help with this. Thank you for any help
Koalajane
in
PMRGCAuk
13 days ago
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