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So lucky
I want to begin by saying YOU ARE ALL AMAZING. I am in awe of your strength, your courage and your compassion. To be so generous and show such empathy when you are going through bad times brings tears to my eyes. It may sound weird but I am honoured to have touched the edges of your community. And that's
I want to begin by saying YOU ARE ALL AMAZING. I am in awe of your strength, your courage and your compassion. To be so generous and show such empathy when you are going through bad times brings tears to my eyes. It may sound weird but I am honoured to have touched the edges of your community. And that's
Donut_in_my_hand
in
My Ovacome
8 years ago
Hysterectomy and ovary removal
Hi all I am a newbie, having a vertical incision hysterectomy due to very large fibroid crushing my kidneys and gallbladder removed 26/10/16. Have to make a decision whether to remove or keep ovaries. Have a passed history of cysts on ovaries and had previous fibroid removed 2011. Want them removed
Hi all I am a newbie, having a vertical incision hysterectomy due to very large fibroid crushing my kidneys and gallbladder removed 26/10/16. Have to make a decision whether to remove or keep ovaries. Have a passed history of cysts on ovaries and had previous fibroid removed 2011. Want them removed
Gremlin16
in
Healthy Happy Woman
8 years ago
I'm new here - Advice appreciated about hysterectomy vs. ovary removal and NHS vs. private care
I have been suffering from severe endometriosis for many years, but in November 2015, I began having severe pain due to an endometrioma on my left ovary and fallopian tube. I had a laparoscopy in February when the endometrioma was drained and adhesions removed. Three to four weeks after surgery the pain
I have been suffering from severe endometriosis for many years, but in November 2015, I began having severe pain due to an endometrioma on my left ovary and fallopian tube. I had a laparoscopy in February when the endometrioma was drained and adhesions removed. Three to four weeks after surgery the pain
stacynicole
in
Endometriosis UK
8 years ago
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Just had first bowel prep ready for my 3rd op tomorrow Diagnosed in march 15 endo on uterosacral ligaments and ureter and behind uterus??? And adenomyosis Hysterectomy in july15 for adenomyosis Now oophorectomy and hunting down missed endo, thankfully with a bsge specialist centre thus time, Please
Just had first bowel prep ready for my 3rd op tomorrow Diagnosed in march 15 endo on uterosacral ligaments and ureter and behind uterus??? And adenomyosis Hysterectomy in july15 for adenomyosis Now oophorectomy and hunting down missed endo, thankfully with a bsge specialist centre thus time, Please
Tboag
in
Endometriosis UK
8 years ago
Laparoskopijom bilateral salpingo oopherectomy recovery tips please
Hi I am new here I just wanted to see if anybody has few helpful hints. I had cyst on both ovaries it was very painful so the Dr recommended a removal of both ovaries and one Fallopian tube. The other one was removed 30 years ago due to tubal pregnancy. I had the surgery on Friday ,was released the same
Hi I am new here I just wanted to see if anybody has few helpful hints. I had cyst on both ovaries it was very painful so the Dr recommended a removal of both ovaries and one Fallopian tube. The other one was removed 30 years ago due to tubal pregnancy. I had the surgery on Friday ,was released the same
Juliannak
in
My Ovacome
8 years ago
Having a good day
Not feeling to bad today True what some of you ladies have said about having good days and bad Rested alot yesterday and i think that has helped. Just cant seem to help myself when it comes to getting involved with the cooking etc learnt not to lift anything heavy up tho. Stomach still feels very much
Not feeling to bad today True what some of you ladies have said about having good days and bad Rested alot yesterday and i think that has helped. Just cant seem to help myself when it comes to getting involved with the cooking etc learnt not to lift anything heavy up tho. Stomach still feels very much
Broderskim39
in
Healthy Happy Woman
8 years ago
Bloating after surgery
Hi I had a total abdominal hysterectomy, oophorectomy and omentectomy 4 weeks ago and have now started getting a bloated stomach again together with firmness and discomfort above and to the left of my belly button. Has anyone else also experienced this. Should I be concerned. Thanks Carole
Hi I had a total abdominal hysterectomy, oophorectomy and omentectomy 4 weeks ago and have now started getting a bloated stomach again together with firmness and discomfort above and to the left of my belly button. Has anyone else also experienced this. Should I be concerned. Thanks Carole
Carole666
in
My Ovacome
8 years ago
Please advise: can I still have endometriosis after hysterectomy + oophorectomy 28 years ago?
I'm 74. I'm still taking HRT as unable to withdraw without black depression - could this be "feeding" adhesions? 34 years ago after a laparoscopy I was diagnosed with endometriosis after presenting with interstitial cystitis, gut, general pelvic + back pain (which sometimes reached my neck and head
I'm 74. I'm still taking HRT as unable to withdraw without black depression - could this be "feeding" adhesions? 34 years ago after a laparoscopy I was diagnosed with endometriosis after presenting with interstitial cystitis, gut, general pelvic + back pain (which sometimes reached my neck and head
Zinfandel
in
Endometriosis UK
8 years ago
Vision constantly changing
Hi...thought I would ask and see if anyone has had this happen to them while on Pred. Haven't written in a while ..so briefly, I have GCA and next week will be 2 yrs on Pred. Some may remember me..started at 60mg with 1 flareup along the way. I am happy to say today I started 4 1/2 mg. It's been a
Hi...thought I would ask and see if anyone has had this happen to them while on Pred. Haven't written in a while ..so briefly, I have GCA and next week will be 2 yrs on Pred. Some may remember me..started at 60mg with 1 flareup along the way. I am happy to say today I started 4 1/2 mg. It's been a
bert403
in
PMRGCAuk
8 years ago
New to all this
I was diagnosed a few wees ago, a complete shock as I was having a hysterectomy and ovary removal as a precaution, as I had some abnormal cells in my womb. During the op they found tumours all over the place. Have since had debulking and staging surgery, which leaves one inoperable tumour attached
I was diagnosed a few wees ago, a complete shock as I was having a hysterectomy and ovary removal as a precaution, as I had some abnormal cells in my womb. During the op they found tumours all over the place. Have since had debulking and staging surgery, which leaves one inoperable tumour attached
Rachael47
in
My Ovacome
8 years ago
First visit.. Introducing me!
I'm a 60 year old school teacher ... In the last decade I have survived a massive subarachnoid brain haemorrhage , two knee replacements, two carpel tunnel decompressions, two elbow arthroscopies, two shoulder decompressions and a cholecystectomy. A year ago, after a virus, I was diagnosed with bilateral
I'm a 60 year old school teacher ... In the last decade I have survived a massive subarachnoid brain haemorrhage , two knee replacements, two carpel tunnel decompressions, two elbow arthroscopies, two shoulder decompressions and a cholecystectomy. A year ago, after a virus, I was diagnosed with bilateral
Jillypops2
in
Different Strokes
8 years ago
Psychological imbalance after oophorectomy and hysterectomy
Hello everyone, My name is Lydia and I am from Greece, but living in Germany for the past 3,5 years. I was diagnosed with a serous borderline tumour and non invasive implants in early 2014. I was 28 years old at the time. CA 125 was 550 u/l and the doctor really scared me before the surgery by saying
Hello everyone, My name is Lydia and I am from Greece, but living in Germany for the past 3,5 years. I was diagnosed with a serous borderline tumour and non invasive implants in early 2014. I was 28 years old at the time. CA 125 was 550 u/l and the doctor really scared me before the surgery by saying
Pvnrt
in
My Ovacome
8 years ago
Long time healing??
Hi ladies just wondering if anyone else has a bloated tender stomach so long after surgery? After taxol/carbo/ avastin had surgery laparotomy, total hysterectomy, bilateral salpingo oophorectomy, omentectomy, excision of right side liver and sub diaphragmatic lesion, with repair of pleura, excision of
Hi ladies just wondering if anyone else has a bloated tender stomach so long after surgery? After taxol/carbo/ avastin had surgery laparotomy, total hysterectomy, bilateral salpingo oophorectomy, omentectomy, excision of right side liver and sub diaphragmatic lesion, with repair of pleura, excision of
Mjb49
in
My Ovacome
8 years ago
Lymphedema Pain
Hi all! I have Lymphedema in both legs for two years as a result of Lymph node removal having had cancer! I seem to have the swelling down due to wearing compressions tights every day however, Almost every night I am kept awake with uncomfortable legs sometimes pain! My nurse advised I see the Dr as
Hi all! I have Lymphedema in both legs for two years as a result of Lymph node removal having had cancer! I seem to have the swelling down due to wearing compressions tights every day however, Almost every night I am kept awake with uncomfortable legs sometimes pain! My nurse advised I see the Dr as
Perce74
in
LSN
8 years ago
BrCA Positive and New to This...
Hi there. I've recently been diagnosed with the BrCA gene (for those who are unsure, Angeline Jolie had this. In a nutshell, I will most likely have cancer in my lifetime occurring in my breasts/ovaries, and so measures such as mastectomy and oophorectomy are very common). IVF has been recommended to
Hi there. I've recently been diagnosed with the BrCA gene (for those who are unsure, Angeline Jolie had this. In a nutshell, I will most likely have cancer in my lifetime occurring in my breasts/ovaries, and so measures such as mastectomy and oophorectomy are very common). IVF has been recommended to
graciemaigrace
in
Fertility Network UK
8 years ago
Newbie
I have fought with gp for 3 years about my thyroid , it's so hard to get someone to listen - first they had me down for menopause( I was 37 at this point) along the way I have been diagnosed coeliac and due to brca 2 mutation now had a oopherectomy. I was beginning to question if my symptoms were due
I have fought with gp for 3 years about my thyroid , it's so hard to get someone to listen - first they had me down for menopause( I was 37 at this point) along the way I have been diagnosed coeliac and due to brca 2 mutation now had a oopherectomy. I was beginning to question if my symptoms were due
Carri477
in
Thyroid UK
8 years ago
Had endoscopy but no diagnosis
I had my endoscopy today but they found nothing. No reflux, inflammation or anything. It really annoys me how they put it down to 'anxiety'. I do not even have anxiety. Surely I cannot be dreaming of my symptoms. It usually happens when I eat. I was nauseated and sick all day yesterday. I have this burning
I had my endoscopy today but they found nothing. No reflux, inflammation or anything. It really annoys me how they put it down to 'anxiety'. I do not even have anxiety. Surely I cannot be dreaming of my symptoms. It usually happens when I eat. I was nauseated and sick all day yesterday. I have this burning
Jahida
in
British Liver Trust
8 years ago
Newbie, ?Hashimotos, what should I ask GP for?
Hi everyone, I am new to this and have learnt a lot from reading posts but need some specific help please. I am 48 yo, female and post surgical menopause for endometrial cancer last year (also chemo & radiotherapy). No HRT allowed. Began getting fatigue in Mar, hot flushes increased again, previous slow
Hi everyone, I am new to this and have learnt a lot from reading posts but need some specific help please. I am 48 yo, female and post surgical menopause for endometrial cancer last year (also chemo & radiotherapy). No HRT allowed. Began getting fatigue in Mar, hot flushes increased again, previous slow
startagaingirl
in
Thyroid UK
8 years ago
Ive currently just had my 5th ...
Ive currently just had my 5th decapeptyl injection which I get every 12weeks . I'm spotting but the pain in my right side is excruciating, Has anyone else every had this and can they give me any advise ? I've been told by my consultant I have slight endo , but that was back in 2009 which was only discovered
Ive currently just had my 5th decapeptyl injection which I get every 12weeks . I'm spotting but the pain in my right side is excruciating, Has anyone else every had this and can they give me any advise ? I've been told by my consultant I have slight endo , but that was back in 2009 which was only discovered
Lyndsay35
in
Endometriosis UK
8 years ago
Do haematologists know much about APS? Am poss being referred to one pre cholecystectomy. Tested pos for APS Abs, but test needs repeating.
Hi, I am on a NHS waiting list for gallbladder surgery as I have a large gallstone that's causing me pain. (I am in the UK.) At a recent consultation at my local hospital I advised my surgeon's colleague that I have recently tested positive for Beta-2 glycoprotein 1 antibodies, both IgG, IgM and am waiting
Hi, I am on a NHS waiting list for gallbladder surgery as I have a large gallstone that's causing me pain. (I am in the UK.) At a recent consultation at my local hospital I advised my surgeon's colleague that I have recently tested positive for Beta-2 glycoprotein 1 antibodies, both IgG, IgM and am waiting
Spicer21
in
Hughes Syndrome APS Forum
8 years ago
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