My name is Lydia and I am from Greece, but living in Germany for the past 3,5 years. I was diagnosed with a serous borderline tumour and non invasive implants in early 2014. I was 28 years old at the time. CA 125 was 550 u/l and the doctor really scared me before the surgery by saying she was almost sure it was cancer. I had a surgery (laparotomy) then and the tumour was removed and subsequently had a second surgery (also laparotomy, this time the length of my abdomen vertically) where they removed one ovary, the omentum, the appendix and parts of the peritoneum. The idea was to keep one ovary and the uterus because I was still young.
About a year later there was a new cyst with solid characteristics and since the doctors in Germany wanted to do a big laparotomy again and I heard that in Greece it was possible to have it laparoscopically removed I went to a greek hospital and doctor to have the surgery. About three weeks before the surgery I got an incisional hernia on the upper part of my scar. During the surgery two cysts with borderline tumours were removed and the hernia was repaired. The greek gynecological surgeon insisted that it was not necessary to have the ovary and the uterus removed.
A year later of course a new cyst with a tumour appeared. This time I searched more and found a doctor in Germany who did the operation with the DaVinci laparoscopically, he removed the tumour along with some other growths that had enveloped one of my ureters and after clearing out adhesions that were mostly because of the first surgeries he removed the ovary and the uterus on which non invasive implants had grown. At that point they inserted stents in the ureters to keep them open, which were removed 5 weeks after I left the hospital. These stents caused me considerable pain and discomfort.
I am now 30 years old, 2 months after the last surgery using an estradiol gel for hormone replacement and I have been feeling terrible. I have been talking to a psychologist-oncologist but I don't feel better, in fact I feel worse. I feel unmotivated, helpless, hopeless and that most things are pointless. I have tried to get an appointment with a psychiatrist or behavioural psychologist, but in my area they have no time for new patients and their waiting lists are 6 months to a year. Every time I make an effort to find help and I get these answers it just drains any willpower and energy I had and I feel even worse. I talked with a GP about it and he gave me some antidepressants, but I have not completed a week yet since I started taking them. I don't have any specific questions to make, at this point I just don't know what to do. I know the medicine needs about two weeks to have an effect, but I am afraid it won't work. I am generally pessimistic about everything though, which is something I was not before and it really blocks me from doing things.
Thanks for reading my long post. Any suggestion would be welcome.