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Shingles vaccine
My wife was refused the shingles vaccine by her GP as she wasn't old enough (not over 70) we asked for it a year after she had shingles which she really suffered from and still has a bit of discomfort from. Has any MPN patients been refused because of their age?
My wife was refused the shingles vaccine by her GP as she wasn't old enough (not over 70) we asked for it a year after she had shingles which she really suffered from and still has a bit of discomfort from. Has any MPN patients been refused because of their age?
jointpain
in
MPN Voice
1 year ago
Tapering much harder the second time around.
Been on pred since Nov 2015 for PMR. Few issues with flares and reached 4.25mg in 2021 when to ER for hypoxemia/ asthma exacerbationafter flu shot 2 weeks before. Got loaded up on steroids in hospital for 4 days and sent home with Rx 40, 30, 20 mgm decreasing weekly. I have now secondary adrenal insufficiency
Been on pred since Nov 2015 for PMR. Few issues with flares and reached 4.25mg in 2021 when to ER for hypoxemia/ asthma exacerbationafter flu shot 2 weeks before. Got loaded up on steroids in hospital for 4 days and sent home with Rx 40, 30, 20 mgm decreasing weekly. I have now secondary adrenal insufficiency
Karenjaninaz
in
PMRGCAuk
1 year ago
My Condition and OP - Update.
Hello all. Was having a lie-in this morning - The phone rang and it was the urology waiting list people. I was informed my op to see if the BCG treatment had worked or not, is scheduled for the 8th of October. I doubt very much the BCG will have worked - I think my urology/oncology nurse thinks
Hello all. Was having a lie-in this morning - The phone rang and it was the urology waiting list people. I was informed my op to see if the BCG treatment had worked or not, is scheduled for the 8th of October. I doubt very much the BCG will have worked - I think my urology/oncology nurse thinks
Ern007
in
Lung Conditions Community Forum
7 months ago
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Is it safe to have another Covid vaccination?
A month after having my 4th Covid vaccination & a flu jab in September ‘22 I was diagnosed with PMR - coincidence probably? Anyway, I’ve received my invite for a 5th Covid jab ‘as my immune system is compromised’. As this would be my first vaccination since being diagnosed I would be interested to
A month after having my 4th Covid vaccination & a flu jab in September ‘22 I was diagnosed with PMR - coincidence probably? Anyway, I’ve received my invite for a 5th Covid jab ‘as my immune system is compromised’. As this would be my first vaccination since being diagnosed I would be interested to
Sherlock57
in
PMRGCAuk
1 year ago
Update on Nuclear Scan and where I am at now.
First: thank you all for the kind support I have received since - Much appreciated. To the Nuclear Scan ordered by my GP for suspect spread from bladder cancer to the bones. I got a call from my GP surgery today telling me Dr wanted to let me know, NO bone cancer found. Thant's one worry gone.
First: thank you all for the kind support I have received since - Much appreciated. To the Nuclear Scan ordered by my GP for suspect spread from bladder cancer to the bones. I got a call from my GP surgery today telling me Dr wanted to let me know, NO bone cancer found. Thant's one worry gone.
Ern007
in
Lung Conditions Community Forum
8 months ago
Covid free
When I arrived in the UK one week ago my daughter had been testing positive for Covid for 5 days. She had no symptoms and was very frustrated. Testing regularly she finally tested negative today. 🥳 I have tested negative the entire time. Last year my partner had his knee replaced and got Covid. I was
When I arrived in the UK one week ago my daughter had been testing positive for Covid for 5 days. She had no symptoms and was very frustrated. Testing regularly she finally tested negative today. 🥳 I have tested negative the entire time. Last year my partner had his knee replaced and got Covid. I was
Robsmom
in
My MSAA Community
1 year ago
Shingles vaccine
My husband has been called in for a shingles vaccination. Am i correct that he should ask for a non live vaccine as the love vaccine poses a risk to me as I am immune suppressed? I seem to remember hearing this somewhere. Still struggling to get answer fro my nurse advice line. Thanks
My husband has been called in for a shingles vaccination. Am i correct that he should ask for a non live vaccine as the love vaccine poses a risk to me as I am immune suppressed? I seem to remember hearing this somewhere. Still struggling to get answer fro my nurse advice line. Thanks
Gilliancheche
in
NRAS
1 year ago
Methotrexate and Shingrix Vaccine
Could someone please advise whether I should stop my Methotrexate injection before I receive the shingles vaccine, my Pred reduction seems to be going well and I am worried I will have a flare without the Methotrexate. Have finally got down to 7mg for the first time in 12 years.🤞🤞
Could someone please advise whether I should stop my Methotrexate injection before I receive the shingles vaccine, my Pred reduction seems to be going well and I am worried I will have a flare without the Methotrexate. Have finally got down to 7mg for the first time in 12 years.🤞🤞
Hollybee21
in
PMRGCAuk
1 year ago
A Kinda Update.
As things stand I have finished my BCG treatment which it seems has failed. I visited my GP and she asked how I was - gave me a script for to wet my mouth and some Folic Acid. I mentioned so pain I have in ribs - not very bad but there,. She prodded my ribs and yes there was some (not bad pain).
As things stand I have finished my BCG treatment which it seems has failed. I visited my GP and she asked how I was - gave me a script for to wet my mouth and some Folic Acid. I mentioned so pain I have in ribs - not very bad but there,. She prodded my ribs and yes there was some (not bad pain).
Ern007
in
Lung Conditions Community Forum
8 months ago
Booster jab?
Hi I am concerned that my PMR began after my last booster/flu jab. My Doc also says she has heard of other cases relating to this. So as I qualify for the next round of jabs I am seriously considering not having it. I would appreciate any comments.
Hi I am concerned that my PMR began after my last booster/flu jab. My Doc also says she has heard of other cases relating to this. So as I qualify for the next round of jabs I am seriously considering not having it. I would appreciate any comments.
JAC1947
in
PMRGCAuk
1 year ago
BCG Finished - CT SCAN - UPDATE.
First the good news - My CT scan result I was told in clinic today shows the 6mm growth has not moved - Further scan in 6 months. So one thing for now off my mind.. So I had my last BCG of the course today, glad in a way but hope I may get back on it despite the warts with it. So in six weeks
First the good news - My CT scan result I was told in clinic today shows the 6mm growth has not moved - Further scan in 6 months. So one thing for now off my mind.. So I had my last BCG of the course today, glad in a way but hope I may get back on it despite the warts with it. So in six weeks
Ern007
in
Lung Conditions Community Forum
9 months ago
Cancer Deaths Plummet... but not Prostate
Cancer Deaths Plummet Deaths from all types of cancer in the US fell by an estimated 33% since 1991, saving a cumulative 3.8 million lives, according to a report released yesterday by the American Cancer Society. Progress was attributed to improvements in cancer treatment, early detection, and significant
Cancer Deaths Plummet Deaths from all types of cancer in the US fell by an estimated 33% since 1991, saving a cumulative 3.8 million lives, according to a report released yesterday by the American Cancer Society. Progress was attributed to improvements in cancer treatment, early detection, and significant
Scout4answers
in
Advanced Prostate Cancer
1 year ago
A update on treatment/ and more.
I went for number two of a short three BCG course for my BC. The liquid BCG is inserted into bladder from a huge syringe into a catheter. A student nurse was present and my Urology Nurse a=said to het I had Muscle Invasive Bladder Cancer. news to me, I said and don't know why - I will now
I went for number two of a short three BCG course for my BC. The liquid BCG is inserted into bladder from a huge syringe into a catheter. A student nurse was present and my Urology Nurse a=said to het I had Muscle Invasive Bladder Cancer. news to me, I said and don't know why - I will now
Ern007
in
Lung Conditions Community Forum
9 months ago
An Update - In Part.
As you all know I have Bladder Cancer among my long standing ailments. The cancer is aggressive but not spread yet as far as I know.. It is Cancer in site - None muscle invasive but the cancer can become invasive. I have been on BCG Treatment - The last was a 6 week course direct into my bladder
As you all know I have Bladder Cancer among my long standing ailments. The cancer is aggressive but not spread yet as far as I know.. It is Cancer in site - None muscle invasive but the cancer can become invasive. I have been on BCG Treatment - The last was a 6 week course direct into my bladder
Ern007
in
Lung Conditions Community Forum
9 months ago
Vaccines
Hello everyone.Diagnosed with bronchiectasis. Is it really good to have my pneumoccocal and flu vaccines? How really important it is with bronchiectasis? And how sure it is effective? Thank you. May I have an advice to those who have taken the vaccines already?
Hello everyone.Diagnosed with bronchiectasis. Is it really good to have my pneumoccocal and flu vaccines? How really important it is with bronchiectasis? And how sure it is effective? Thank you. May I have an advice to those who have taken the vaccines already?
iamgg
in
Bronchiectasis Support
1 year ago
Not sure what has happened
Well since I was diagnosed when I was 24 have pcos I was shuved on this pill and that pill.Never had periods with out drugs. So I got married then we wanted a child. So my husband can not have children he has xxxy in his jeans means no swimmers. So I took the bullet aloow am scared of all hospitals
Well since I was diagnosed when I was 24 have pcos I was shuved on this pill and that pill.Never had periods with out drugs. So I got married then we wanted a child. So my husband can not have children he has xxxy in his jeans means no swimmers. So I took the bullet aloow am scared of all hospitals
Alannahd
in
PCOS UK (Verity)
1 year ago
POST-HERPETIC NEURALGIA
Hi, first time on here and hopefully might find some advice, if not it might prompt some to ensure they get the appropriate shingles vaccine. I was diagnosed with CLL in 2014 with my first round treatment in 2017. This went reasonably well and I then went 4 years before it was decided that I would need
Hi, first time on here and hopefully might find some advice, if not it might prompt some to ensure they get the appropriate shingles vaccine. I was diagnosed with CLL in 2014 with my first round treatment in 2017. This went reasonably well and I then went 4 years before it was decided that I would need
OWLS26
in
CLL Support
1 year ago
Cellulitis
Hi Everyone ..I am still a newbie when it comes to CLL was only diagnosed 2 years ago . whilst very conscious of one’s weakened immune system i was worried about catching a virus so was vaccinated up to the hilt , 6 covid jabs 2 pneumonia , flu jab etc it never ever crossed my mind that from a small
Hi Everyone ..I am still a newbie when it comes to CLL was only diagnosed 2 years ago . whilst very conscious of one’s weakened immune system i was worried about catching a virus so was vaccinated up to the hilt , 6 covid jabs 2 pneumonia , flu jab etc it never ever crossed my mind that from a small
Theruff1
in
CLL Support
1 year ago
Just another pain
Since Christmas I've had a pain all around the top of my leg close to my pelvis. It's left me struggling to walk even worse than before. I don't go out because of my mobility and becoming breathless. But this has also stopped me going for investigations into a constant UTI. I told them there was no way
Since Christmas I've had a pain all around the top of my leg close to my pelvis. It's left me struggling to walk even worse than before. I don't go out because of my mobility and becoming breathless. But this has also stopped me going for investigations into a constant UTI. I told them there was no way
Wildething
in
NRAS
1 year ago
My results and treatment plan after my Cystoscopy OP.
I got a telephone call early morning last week after my Cystoscopy and biopsies. Although earlier this year they said I could not have BCG again - Oncology nurse told me I was having a shorter course of BCG ever week for three weeks, Should really have been spaced, but mo matter. After a month or
I got a telephone call early morning last week after my Cystoscopy and biopsies. Although earlier this year they said I could not have BCG again - Oncology nurse told me I was having a shorter course of BCG ever week for three weeks, Should really have been spaced, but mo matter. After a month or
Ern007
in
Lung Conditions Community Forum
10 months ago
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