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How do you know if you are suffering from long Covid or from worsening asthma?
I have suffered from asthma and breathing difficulties for a number of years however in the past two years it has got progressively worse. A few years back I was wakening up 'dead' not being able to breath and literally that bad that my wife took a video of one of my episodes and when I showed it to
I have suffered from asthma and breathing difficulties for a number of years however in the past two years it has got progressively worse. A few years back I was wakening up 'dead' not being able to breath and literally that bad that my wife took a video of one of my episodes and when I showed it to
Turfcare
in
Lung Conditions Community Forum
3 years ago
Wait & Watch - What does it entail?
I’m relatively new to the CLL community. My diagnosis was incidental while following up with blood tests post COVID infection. I’m currently on W&W with a Rai score of 0. This community has been a great support and I’ve learnt a lot here. It has given me hope & reassurance. I’m still confused about
I’m relatively new to the CLL community. My diagnosis was incidental while following up with blood tests post COVID infection. I’m currently on W&W with a Rai score of 0. This community has been a great support and I’ve learnt a lot here. It has given me hope & reassurance. I’m still confused about
nuji
in
CLL Support
3 years ago
Consultation with Haematologist Today
Just had my yearly telephone consultation with my haematologist. My bloods are stable over the past year. Yippee! He's made an appointment for August 2022. He did make some startling claims however: 1. You can get a live shingles vaccine if you are not having treatment. 2. Your reaction to covid vaccination
Just had my yearly telephone consultation with my haematologist. My bloods are stable over the past year. Yippee! He's made an appointment for August 2022. He did make some startling claims however: 1. You can get a live shingles vaccine if you are not having treatment. 2. Your reaction to covid vaccination
shornoff
in
CLL Support
3 years ago
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Is this 1984?
In addition to 11 mg of steroids I am also now having to take 1 1/2 gms of Metformin and 4 insulin injections per day. I am only socialising outside with friends who are doubly vaccinated and I have not been to a restaurant yet. I have no current plans to visit a cinema or theatre yet and the club I
In addition to 11 mg of steroids I am also now having to take 1 1/2 gms of Metformin and 4 insulin injections per day. I am only socialising outside with friends who are doubly vaccinated and I have not been to a restaurant yet. I have no current plans to visit a cinema or theatre yet and the club I
butterflyfarm
in
PMRGCAuk
3 years ago
Pneumonia Vaccination
I have been on biologics for the past 11year(at present abatacept infusions every 4 weeks) & I have had pneumonia vaccination every 5years. I had a reminder from my gp practice that a boaster was due. Made an appointment but nurse wouldn’t give it to me as wasn’t sure about authorisation. She rang a
I have been on biologics for the past 11year(at present abatacept infusions every 4 weeks) & I have had pneumonia vaccination every 5years. I had a reminder from my gp practice that a boaster was due. Made an appointment but nurse wouldn’t give it to me as wasn’t sure about authorisation. She rang a
Jacqbox
in
NRAS
3 years ago
Covid Vaccine with Vanishing Twin?
I am due to have my first Covid vaccine today and am having a last minute panic due to the fact that I have a demised twin. I lost Twin B at 8 weeks and, at our 16 week scan, it was still there. I am 18 weeks now and have been told that the demised twin will be reabsorbed by both my body and our remaining
I am due to have my first Covid vaccine today and am having a last minute panic due to the fact that I have a demised twin. I lost Twin B at 8 weeks and, at our 16 week scan, it was still there. I am 18 weeks now and have been told that the demised twin will be reabsorbed by both my body and our remaining
anz07
in
Fertility Network UK
3 years ago
Any issues with Covid vaccination and AF
I’m having a phizer Covid vaccine on Monday (I know it’s late but Japan is way behind) and wondered if any fibbers had issue with it. The regular flu vaccine sometimes makes me skip a few beats but was wondering if the vaccine for covid has triggered anyone?
I’m having a phizer Covid vaccine on Monday (I know it’s late but Japan is way behind) and wondered if any fibbers had issue with it. The regular flu vaccine sometimes makes me skip a few beats but was wondering if the vaccine for covid has triggered anyone?
Japaholic
in
Atrial Fibrillation Support
3 years ago
Shingles vaccine
People in the uk, don't shoot me. Instead, lobby the nhs to cover the Shingrix vaccine which is over 90% effective, and much more effective in older people than Zostavax. Also because it is not a live vaccine it is more appropriate for people on immune suppressing medication. If in the US you can
People in the uk, don't shoot me. Instead, lobby the nhs to cover the Shingrix vaccine which is over 90% effective, and much more effective in older people than Zostavax. Also because it is not a live vaccine it is more appropriate for people on immune suppressing medication. If in the US you can
HeronNS
in
PMRGCAuk
3 years ago
Public health expert: We must learn to live with Covid
Instead of despairing, we need a road map of life with viruses. ‘We will always be dealing with pandemics, and we cannot keep stopping the world.’ By Abigail Klein Leichman JULY 26, 2021, We Israelis thought we had Covid-19 beat. We thought we had herd immunity thanks to the world’s most successful
Instead of despairing, we need a road map of life with viruses. ‘We will always be dealing with pandemics, and we cannot keep stopping the world.’ By Abigail Klein Leichman JULY 26, 2021, We Israelis thought we had Covid-19 beat. We thought we had herd immunity thanks to the world’s most successful
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Just joined
Hi, I am about to start treatment with acalabrutinib for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer. I
Hi, I am about to start treatment with acalabrutinib for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer. I
Mtk1
in
CLL Support
3 years ago
Tetanus Injestion
I am on watch and wait since 2017. I was advised by my consultant to get the flu vaccine every year. Last December I got the Vaccine and for 3 weeks after I was very sick. All my joints and muscles were stiff and painful. When I told my doctor I was told that the effects of the vaccine would leave my
I am on watch and wait since 2017. I was advised by my consultant to get the flu vaccine every year. Last December I got the Vaccine and for 3 weeks after I was very sick. All my joints and muscles were stiff and painful. When I told my doctor I was told that the effects of the vaccine would leave my
EPPL
in
CLL Ireland
3 years ago
Shingles vaccineM
Many thanks to all who answered my queries about having the shingles vaccine. I had the jab last week with absolutely. NO side effects not even a sore arm !! I know we all different and react differently but hope that my experience helps . Many thanks for all your help and support
Many thanks to all who answered my queries about having the shingles vaccine. I had the jab last week with absolutely. NO side effects not even a sore arm !! I know we all different and react differently but hope that my experience helps . Many thanks for all your help and support
CAROL-R
in
Hughes Syndrome APS Forum
3 years ago
Covid Vaccine. Second or third trimester?
I wanted to postpone the vaccine until the third trimester. But now, with the change of the mask mandate in the UK, it might have to anticipate it. I am scared though. Did anyone have bad experiences taking the vaccine in the second trimester? (Even the NHS flu vaccine is only received at 28 weeks..)
I wanted to postpone the vaccine until the third trimester. But now, with the change of the mask mandate in the UK, it might have to anticipate it. I am scared though. Did anyone have bad experiences taking the vaccine in the second trimester? (Even the NHS flu vaccine is only received at 28 weeks..)
Rex2021
in
Pregnancy and Parenting Support
3 years ago
I have a dilemma.
Folks, I am asking for suggestions and/or anecdotal accounts of this happening to you and how you handled the situation with getting the Covid vaccine. I apologize for the length, but felt you needed to know the history behind my dilemma. History: • PMR Dx in Jan., 2018. Currently DSNS taper from
Folks, I am asking for suggestions and/or anecdotal accounts of this happening to you and how you handled the situation with getting the Covid vaccine. I apologize for the length, but felt you needed to know the history behind my dilemma. History: • PMR Dx in Jan., 2018. Currently DSNS taper from
libchp65
in
PMRGCAuk
3 years ago
Moderna begins human trial for multi-strain mRNA flu vaccine
US biotech firm Moderna said Wednesday it had dosed its first participants in a human study of an mRNA vaccine that targets multiple strains of influenza. The company intends to recruit 180 adults in the United States for the Phase 1/2 portion of the trial to evaluate the safety and strength of immune
US biotech firm Moderna said Wednesday it had dosed its first participants in a human study of an mRNA vaccine that targets multiple strains of influenza. The company intends to recruit 180 adults in the United States for the Phase 1/2 portion of the trial to evaluate the safety and strength of immune
2greys
in
Lung Conditions Community Forum
3 years ago
Skin barnacles ??
CLL and Bladder cancer , past used Ibrutinib, Acalabrutinib and Gyzava … all worked in controlling CLL … BCG infusions for Bladder cancer working , I think…. I have developed what Dermatologist calls .. skin barnacles … she says it from past sun exposure… Anyone have this problem ?? I suspect it
CLL and Bladder cancer , past used Ibrutinib, Acalabrutinib and Gyzava … all worked in controlling CLL … BCG infusions for Bladder cancer working , I think…. I have developed what Dermatologist calls .. skin barnacles … she says it from past sun exposure… Anyone have this problem ?? I suspect it
fish61
in
CLL Support
3 years ago
Shingles vaccination
Hi I’m on 2.5mg prednisolone for PMR and have just received a text from my G.P telling me I am eligible for a Shingles Vaccine. Can anyone tell me if this is safe to have with Prednisolone. Thanks
Hi I’m on 2.5mg prednisolone for PMR and have just received a text from my G.P telling me I am eligible for a Shingles Vaccine. Can anyone tell me if this is safe to have with Prednisolone. Thanks
Peggy16
in
PMRGCAuk
3 years ago
Shingles Vaccine
I have just been offered the Shingles Vaccine and have concerns about having it as it's alive vaccine as I understand people with APS should avoid live vaccines. Has anyone had this vaccine and was there any side effects .
I have just been offered the Shingles Vaccine and have concerns about having it as it's alive vaccine as I understand people with APS should avoid live vaccines. Has anyone had this vaccine and was there any side effects .
CAROL-R
in
Hughes Syndrome APS Forum
3 years ago
Very Anxious about COVID Vaccine
Hello, everyone. I scheduled my first dose of the COVID vaccine for next Friday. I am very anxious about this because I had an adverse reaction to the flu shot. I had to be allergy tested for the COVID vaccine and I am not allergic to it. That is the good news. I know I need to go into this with a positive
Hello, everyone. I scheduled my first dose of the COVID vaccine for next Friday. I am very anxious about this because I had an adverse reaction to the flu shot. I had to be allergy tested for the COVID vaccine and I am not allergic to it. That is the good news. I know I need to go into this with a positive
Livelydively
in
Anxiety and Depression Support
3 years ago
Ivig therapy and health insurance
Since then, 2 blood tests to prove my cause, subclasses of IGGs, all low and. titer to
Pneumococcal
vaccine
. I received the series 2 yrs ago, all titers low as though I never received the vaccine. I have chronic congestion and sinusitis whuch I live with and don't readily run to the Dr. for.
Since then, 2 blood tests to prove my cause, subclasses of IGGs, all low and. titer to
Pneumococcal
vaccine
. I received the series 2 yrs ago, all titers low as though I never received the vaccine. I have chronic congestion and sinusitis whuch I live with and don't readily run to the Dr. for.
Rachat35
in
CLL Support
4 years ago
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