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INVOLVEMENT OPPORTUNITY: Have you been diagnosed with hepatitis C and interested in sharing your story? (England)
Have you been diagnosed with hepatitis C and would you be interested in sharing your story with the national press to promote an NHS campaign? The NHS has launched a new service for people to test at home for hepatitis C. To help make more people aware, we are looking for individuals in England who
Have you been diagnosed with hepatitis C and would you be interested in sharing your story with the national press to promote an NHS campaign? The NHS has launched a new service for people to test at home for hepatitis C. To help make more people aware, we are looking for individuals in England who
BritishLiverTrust1
Partner
in
British Liver Trust
7 months ago
Covid Vax and age
I’m in the US and have lupus and many other disqualifying illnesses 😊. I just read a thread in which folks thought their PMR began with Covid jabs. After 3 Moderna, and 3 bouts of Covid I don’t think I want to get vaccinated again. But then there’s flirt. I have 2 grandchildren ages 5 and 4 with long
I’m in the US and have lupus and many other disqualifying illnesses 😊. I just read a thread in which folks thought their PMR began with Covid jabs. After 3 Moderna, and 3 bouts of Covid I don’t think I want to get vaccinated again. But then there’s flirt. I have 2 grandchildren ages 5 and 4 with long
MrsMarigold
in
PMRGCAuk
5 months ago
Protection from Coronaviruses That Haven’t Yet Emerged
To paraphrase Ozzy Osbourne, pandemics can spring up without warning. Although 101 years separated the most recent, truly global pandemics - the H1N1 virus killing tens of millions of people from 1918 to 1920 and SARS-COV2 killing an estimated 14.8 million people in 2020-21 alone https://www.ncbi.nlm.nih.gov
To paraphrase Ozzy Osbourne, pandemics can spring up without warning. Although 101 years separated the most recent, truly global pandemics - the H1N1 virus killing tens of millions of people from 1918 to 1920 and SARS-COV2 killing an estimated 14.8 million people in 2020-21 alone https://www.ncbi.nlm.nih.gov
bennevisplace
in
CLL Support
5 months ago
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ITP SUPPORT - KEEPING IT LOCAL
This is the recording of the England and Wales ITP Support Group Meeting that took place on Thursday 1st August 2024 with Dr. Will Lester, plus Mervyn Morgan ITPSA CEO and members of the ITPSA Board. Among the items discussed were the outputs of the I-WISh Survey regarding fatigue, you can download
This is the recording of the England and Wales ITP Support Group Meeting that took place on Thursday 1st August 2024 with Dr. Will Lester, plus Mervyn Morgan ITPSA CEO and members of the ITPSA Board. Among the items discussed were the outputs of the I-WISh Survey regarding fatigue, you can download
Anthonyh7
in
ITP Support Association
2 months ago
shingles jab anyone?
I had a very bad bout of shingles three years ago. Yesterday my doctors surgery rang to say I qualified for a jab! I tried to ask if it was worthwhile for someone who had already had shingles and was told she was the receptionist! Fair enough but then you can’t speak to a medic anymore Any thoughts
I had a very bad bout of shingles three years ago. Yesterday my doctors surgery rang to say I qualified for a jab! I tried to ask if it was worthwhile for someone who had already had shingles and was told she was the receptionist! Fair enough but then you can’t speak to a medic anymore Any thoughts
Green230461
in
NRAS
4 months ago
Puzzled
I went for a Rheumatology appointment yesterday as I’d had to stop Etanercept for the 2nd time due to tonsillitis, itchy rash sore eyes, blurred vision etc. I saw a nurse practitioner who said I didn’t need a steroid injection and because and I have another appointment with my new Consultant in November
I went for a Rheumatology appointment yesterday as I’d had to stop Etanercept for the 2nd time due to tonsillitis, itchy rash sore eyes, blurred vision etc. I saw a nurse practitioner who said I didn’t need a steroid injection and because and I have another appointment with my new Consultant in November
Blackwitch
in
NRAS
5 months ago
MRI's
Hi all, I will post this elsewhere later but I thought ( just for a start ) many of you AF'ers have other medical conditions beyond AF and many have joint issues. Mine is a left shoulder issue, I have been prescribed rest, prescribed pain killers, have had a steroid injection ......... and there is
Hi all, I will post this elsewhere later but I thought ( just for a start ) many of you AF'ers have other medical conditions beyond AF and many have joint issues. Mine is a left shoulder issue, I have been prescribed rest, prescribed pain killers, have had a steroid injection ......... and there is
BenHall1
in
Atrial Fibrillation Support
5 months ago
Update- Moderna Spikevax
Just to update. Received blood result and all within rang with the exception of Lymphocyte count which 3.1 only slightly over range. CPR 4 g/L, ESR 2. Which rules out PMR flare. So onwards and upwards, definitely downwards with Pred.-so pleased. I am now wondering whether the muscle paralysis I had
Just to update. Received blood result and all within rang with the exception of Lymphocyte count which 3.1 only slightly over range. CPR 4 g/L, ESR 2. Which rules out PMR flare. So onwards and upwards, definitely downwards with Pred.-so pleased. I am now wondering whether the muscle paralysis I had
Pebblegod
in
PMRGCAuk
5 months ago
QUICK TAPER; CRP RISING STEADILY; FLARING
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
Missus835
in
PMRGCAuk
7 months ago
COVID diagnosis
Just been on a 300 mile bike ride and returned with COVID. Don't feel too bad but should I contact consultant. I have had a vaccination about 3 weeks ago.
Just been on a 300 mile bike ride and returned with COVID. Don't feel too bad but should I contact consultant. I have had a vaccination about 3 weeks ago.
Guinness4822
in
CLL Support
5 months ago
Travel Vaccinations
Hi. I have already emailed my Rheumatology Team but thought I would also ask for others experiences. I am considering travelling to countries which recommend vaccinations for things like Polio, Diphtheria, Hep A and B, Cholera, Tetanus etc. Now, I have had some of these in the past but longer than 10
Hi. I have already emailed my Rheumatology Team but thought I would also ask for others experiences. I am considering travelling to countries which recommend vaccinations for things like Polio, Diphtheria, Hep A and B, Cholera, Tetanus etc. Now, I have had some of these in the past but longer than 10
grumpygirl
in
NRAS
7 months ago
COVID, FND, and Cymbalta Ruined My Life
This is a long story, and I apologize in advance for any, bitter angry undertones. I'll skip all of the grief I've had in life and the hard times that I've experienced. I'll try to keep it to the medical issues. It will feel good to tell a part of my story, arguably the hardest I've been through.***Trigger
This is a long story, and I apologize in advance for any, bitter angry undertones. I'll skip all of the grief I've had in life and the hard times that I've experienced. I'll try to keep it to the medical issues. It will feel good to tell a part of my story, arguably the hardest I've been through.***Trigger
LoverOfAllThings
in
Functional Neurological Disorder - FND Hope
5 months ago
Increase in Synthroid Dose Worse Before Feeling Better?
Hello, I'm a long time hypothyroid patient but the last few years after covid have been a wild ride finding the right dose again. I'm curious if anyone can offer insight as to why the first one to two weeks of a medication dose increase I feel amazing and then I tank horribly after. All the hypo symptoms
Hello, I'm a long time hypothyroid patient but the last few years after covid have been a wild ride finding the right dose again. I'm curious if anyone can offer insight as to why the first one to two weeks of a medication dose increase I feel amazing and then I tank horribly after. All the hypo symptoms
Clarabethk
in
Thyroid UK
5 months ago
is this a flare
I was diagnosed with GCA in Dec 2022, put on 30mg prednisolone, ultra sound delayed by 10 days and had negative result, within a few days of the prednisolone the headaches neck pain and scalp pain all gone, I gradually tapered to 12 and half mg last September, have had many side effects, weight gain,
I was diagnosed with GCA in Dec 2022, put on 30mg prednisolone, ultra sound delayed by 10 days and had negative result, within a few days of the prednisolone the headaches neck pain and scalp pain all gone, I gradually tapered to 12 and half mg last September, have had many side effects, weight gain,
Mumdadlove
in
PMRGCAuk
5 months ago
Hello
Hello again Hi. Ive had to shut down and rejoin the group. HU was playing up. Here is my original post. Hello Everyone,I have just joined this group and look forward to reading your journey's with coping with FND. The symptoms are so varied. Mine are mild but have been getting progressively worse
Hello again Hi. Ive had to shut down and rejoin the group. HU was playing up. Here is my original post. Hello Everyone,I have just joined this group and look forward to reading your journey's with coping with FND. The symptoms are so varied. Mine are mild but have been getting progressively worse
Hidden
in
FND Action
5 months ago
Hello again
Hi. Ive had to shut down and rejoin the group. HU was,playing up. I have such great comments and ideas,already from Lady4 and others, so thank you. Below was, my original post Hello Everyone,I have just joined this group and look forward to reading your journey's with coping with FND. The symptoms are
Hi. Ive had to shut down and rejoin the group. HU was,playing up. I have such great comments and ideas,already from Lady4 and others, so thank you. Below was, my original post Hello Everyone,I have just joined this group and look forward to reading your journey's with coping with FND. The symptoms are
Hidden
in
Functional Neurological Disorder - FND Hope
5 months ago
covid booster (Maderna)
morning all!! I have RA and I’m booked in for my annual covid booster!my concern is that from day one I’ve always had Pfizer vaccine but apparently there not using it this time around and it’s been replaced with Maderna it just makes me feel uneasy as I never had any problems with Pfizer!!have any you
morning all!! I have RA and I’m booked in for my annual covid booster!my concern is that from day one I’ve always had Pfizer vaccine but apparently there not using it this time around and it’s been replaced with Maderna it just makes me feel uneasy as I never had any problems with Pfizer!!have any you
Mybirthday1975
in
NRAS
5 months ago
Pred and vaccines (sorry, yes another damn post on this!)
Some may remember I was on Pred for 4 years with PMR on the slow reduction shift. Well I’m back on prednisolone this time due to lung inflammation due to Covid and Pneumonia. Starting dose was 40mg/day for 7 days, today I’m down to 30mg for the following 7 days, then reducing week on week by 5mg to come
Some may remember I was on Pred for 4 years with PMR on the slow reduction shift. Well I’m back on prednisolone this time due to lung inflammation due to Covid and Pneumonia. Starting dose was 40mg/day for 7 days, today I’m down to 30mg for the following 7 days, then reducing week on week by 5mg to come
Exflex
in
PMRGCAuk
20 hours ago
Flu and covid jabs
I am at a PMRGCA local group meeting and a new lady asked if she should have the flu and covid jabs, separately, as she had pneumonia after her joint covid and jab a year ago. She was subsequently diagnosed with PMR.
I am at a PMRGCA local group meeting and a new lady asked if she should have the flu and covid jabs, separately, as she had pneumonia after her joint covid and jab a year ago. She was subsequently diagnosed with PMR.
Nagswoman
in
PMRGCAuk
2 days ago
Appointment Update
Hello. Following my recent post about my dry eyes, I had my follow-up appointment on Monday nearly 4 months post right trabeculectomy & it did not go well. Had a visual field test and eye scan. No change to my right eye but my left eye continues to lose peripheral vision. The pressure was elevated even
Hello. Following my recent post about my dry eyes, I had my follow-up appointment on Monday nearly 4 months post right trabeculectomy & it did not go well. Had a visual field test and eye scan. No change to my right eye but my left eye continues to lose peripheral vision. The pressure was elevated even
Mitziecat
in
Glaucoma UK
5 months ago
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