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A very happy (and long-overdue) update
Eventually he went on to receive what I can only describe as a transformational
Plasma
Exchange
treatment back in ITU, and he’s made steady progress ever since.
Eventually he went on to receive what I can only describe as a transformational
Plasma
Exchange
treatment back in ITU, and he’s made steady progress ever since.
every_cloud
in
Encephalitis International
3 years ago
Plasmapheresis treatments
Just received my 5th treatment. Doc saying not seeing the results they expected. Anyone else have this Tx and can give me idea, how many, when you saw results? Will be discussing options with docs Monday after they discuss…IVIG or another IV tx starts with an R (sorry, brain 🧠🙄). New here, trying
Just received my 5th treatment. Doc saying not seeing the results they expected. Anyone else have this Tx and can give me idea, how many, when you saw results? Will be discussing options with docs Monday after they discuss…IVIG or another IV tx starts with an R (sorry, brain 🧠🙄). New here, trying
Byourownadvocate
in
Hughes Syndrome APS Forum
3 years ago
Acute kidney injury , worried!!
He is on dialysis and
plasma
exchange
. Doctors are saying the kidney injury is reversible but will take time. Anyone can throw some light on what to expect as I'm extremely worried for my brother.
He is on dialysis and
plasma
exchange
. Doctors are saying the kidney injury is reversible but will take time. Anyone can throw some light on what to expect as I'm extremely worried for my brother.
Akam
in
Kidney Dialysis
3 years ago
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Any other parents of very young children here? Searching for hope.
Hello everyone, I’m new to the board and wanted to introduce myself. I’m the mother of a 5 year old boy on the long road of recovery from antibody-negative autoimmune encephalitis. A quick summary of our case history: this summer my husband and I started noticing our son’s increasingly odd behavior
Hello everyone, I’m new to the board and wanted to introduce myself. I’m the mother of a 5 year old boy on the long road of recovery from antibody-negative autoimmune encephalitis. A quick summary of our case history: this summer my husband and I started noticing our son’s increasingly odd behavior
Harper1
in
Encephalitis International
3 years ago
LIVING LIFE AFTER LIFE SUPPORT ...MYASTHENIA GRAVIS GRAVIS CRISIS
I am so grateful and blessed to still live ,life , to have a heartbeat , respiration without assistance ,brainwave activity ,swallowing ,talking , walking ,and having the awesome ability to have heartfelt emotions again . I'm recovering from a MYASTHENIA GRAVIS CRISIS .Respiratory Failure ,accompanied
I am so grateful and blessed to still live ,life , to have a heartbeat , respiration without assistance ,brainwave activity ,swallowing ,talking , walking ,and having the awesome ability to have heartfelt emotions again . I'm recovering from a MYASTHENIA GRAVIS CRISIS .Respiratory Failure ,accompanied
faithhope421
in
Myasthenia Gravis Association
4 years ago
LIVING AFTER LIFE SUPPORT ...MYASTHENIA GRAVIS CRISIS
Hello to everyone , I truly missed you .I am so grateful and blessed to still have life .and to live .To have a heartbeat , respiration without assistance , brainwave activity ,to swallow ,to walk ,to talk ,to have the awesome ability to express heartfelt emotions again .If anyone know what it is like
Hello to everyone , I truly missed you .I am so grateful and blessed to still have life .and to live .To have a heartbeat , respiration without assistance , brainwave activity ,to swallow ,to walk ,to talk ,to have the awesome ability to express heartfelt emotions again .If anyone know what it is like
faithhope421
in
Brain health
4 years ago
Top 10 Series: Antiphospholipid Syndrome and Skin Problems
Successful
plasma
exchange
combined with rituximab therapy in aggressive APS- related cutaneous necrosis. Clinical Rheumatology. 2013;32 Suppl1:S79-82. Defelice T, Lu P, Loyd A, Patel R, Franks AG Jr. Livedo racemosa, secondary to drug-induced systemic lupus erythematosus.
Successful
plasma
exchange
combined with rituximab therapy in aggressive APS- related cutaneous necrosis. Clinical Rheumatology. 2013;32 Suppl1:S79-82. Defelice T, Lu P, Loyd A, Patel R, Franks AG Jr. Livedo racemosa, secondary to drug-induced systemic lupus erythematosus.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Why is my Allosure number 2.4 but creatinine 1.4 and biopsy shows no rejection?
Hi. I am one year out, 99% HLAs. It's been a rodeo ride this last year because of my antibodies. This last year I have had 4 Allosure tests and underwent plasmapheresis and Rituxan treatments. The last Allosure shows 2.4 which is a pretty high rejection number. My creatinine has been consistent
Hi. I am one year out, 99% HLAs. It's been a rodeo ride this last year because of my antibodies. This last year I have had 4 Allosure tests and underwent plasmapheresis and Rituxan treatments. The last Allosure shows 2.4 which is a pretty high rejection number. My creatinine has been consistent
Norken
in
Kidney Transplant
4 years ago
Nuerobehcet's
I have just begun
Plasma
Exchange
therapy for temporal cerebral perfusion problems caused by Neuro Behcet's . I would really value any advice or shared experience you might be willing to share with me . I wish all of you luck and courage on this disease rollercoaster journey .
I have just begun
Plasma
Exchange
therapy for temporal cerebral perfusion problems caused by Neuro Behcet's . I would really value any advice or shared experience you might be willing to share with me . I wish all of you luck and courage on this disease rollercoaster journey .
manitou
in
Behçet's UK
4 years ago
LIVER TRANSPLANT FOR SEVERE ITCHING
HELLO 👋 My University of MI doctor is referring me to see drs at transplant department next month to discuss liver transplant. He stated that my liver is good no chirosis and no scarring. My issue is psoriasis that I have from liver duct bile damage due to PBC. NOTHING tried worked for me including
HELLO 👋 My University of MI doctor is referring me to see drs at transplant department next month to discuss liver transplant. He stated that my liver is good no chirosis and no scarring. My issue is psoriasis that I have from liver duct bile damage due to PBC. NOTHING tried worked for me including
genj65
in
PBC Foundation
4 years ago
Struggling with depression
Hi, I was reccomended this site by a social worker. I'm hoping maybe to find support on here. I'm a 21 year old female, and I've struggled with anxiety pretty much my entire life. About a year ago I was diagnosed with postpartum depression. Soon after, I started getting sick, and on December 3rd, 2019
Hi, I was reccomended this site by a social worker. I'm hoping maybe to find support on here. I'm a 21 year old female, and I've struggled with anxiety pretty much my entire life. About a year ago I was diagnosed with postpartum depression. Soon after, I started getting sick, and on December 3rd, 2019
Kat_21
in
Anxiety and Depression Support
4 years ago
Vestibular problems
Hi everyone! Been a long time since I’ve posted. Interesting day today. Saw neuro ophthalmologist today. I have all types of nystagmus. Says it’s probably peripheral vestibular malfunction and maybe something wrong with my ear canals/bones. Wants brain MRI and possible CT angio since I have a small brain
Hi everyone! Been a long time since I’ve posted. Interesting day today. Saw neuro ophthalmologist today. I have all types of nystagmus. Says it’s probably peripheral vestibular malfunction and maybe something wrong with my ear canals/bones. Wants brain MRI and possible CT angio since I have a small brain
Jmiller623
in
LUPUS UK
4 years ago
Diluting blood plasma rejuvenates tissue, reverses aging in mice
https://medicalxpress.com/news/2020-06-diluting-blood-plasma-rejuvenates-tissue.html "In 2005, University of California, Berkeley, researchers made the surprising discovery that making conjoined twins out of young and old mice—such that they share blood and organs—can rejuvenate tissues and reverse
https://medicalxpress.com/news/2020-06-diluting-blood-plasma-rejuvenates-tissue.html "In 2005, University of California, Berkeley, researchers made the surprising discovery that making conjoined twins out of young and old mice—such that they share blood and organs—can rejuvenate tissues and reverse
Rhyothemis
in
Cure Parkinson's
4 years ago
Your help is needed
We are looking for people from the UK who have ANCA Vasculitis and have personal experience of
plasma
exchange
and/or dialysis. This is to help an international research study led by researchers in Canada.
We are looking for people from the UK who have ANCA Vasculitis and have personal experience of
plasma
exchange
and/or dialysis. This is to help an international research study led by researchers in Canada.
John_Mills
Vasculitis UK
in
Vasculitis UK
4 years ago
Headache und Stiffness a sign of relapse?
My 18 years old sun was diagnosed with autoimmune encephalitis from unknown antibody in October 2018. He was getting better very slowly since then after steroids, plasmapheresis and rituximab every six month. He developed a very strong headache two weeks ago, almost after getting up in the mornings,
My 18 years old sun was diagnosed with autoimmune encephalitis from unknown antibody in October 2018. He was getting better very slowly since then after steroids, plasmapheresis and rituximab every six month. He developed a very strong headache two weeks ago, almost after getting up in the mornings,
Marty1234
in
Encephalitis International
4 years ago
Hughes Syndrome - December 2019
The current debate is whether adding in
plasma
exchange
, or intravenous immunoglobulin is the better option.
The current debate is whether adding in
plasma
exchange
, or intravenous immunoglobulin is the better option.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Plasmapheresis not helping
Hello all just following up on here as I'm in tears not only due this being the day my sister transitioned in 2104 just 3 months after my mommy but I'm miserable from this itching and I mean terrible itching especially at night my feet, legs, hands, eyes and even head! I can't believe that none if the
Hello all just following up on here as I'm in tears not only due this being the day my sister transitioned in 2104 just 3 months after my mommy but I'm miserable from this itching and I mean terrible itching especially at night my feet, legs, hands, eyes and even head! I can't believe that none if the
genj65
in
PBC Foundation
5 years ago
Transplant 26/10/19
Sorry this post has taken so long......A very special belated birthday gift for my precious donor. My birthday was on 15/10/ and I could not have wished for a better more precious gift, one I intend to treasure and look after for the donor for the rest of my days. Hi all, as the title says, sorry for
Sorry this post has taken so long......A very special belated birthday gift for my precious donor. My birthday was on 15/10/ and I could not have wished for a better more precious gift, one I intend to treasure and look after for the donor for the rest of my days. Hi all, as the title says, sorry for
Bbsmom
in
British Liver Trust
5 years ago
People of HealthUnlocked | Meet Keith
I then spent 2 weeks in the unit and the decision was made to give me a
plasma
exchange
which basically meant I spent every day on a machine for 5-6 hours having about 53 litres of plasma exchanged; coupled with a couple of blood transfusions.
I then spent 2 weeks in the unit and the decision was made to give me a
plasma
exchange
which basically meant I spent every day on a machine for 5-6 hours having about 53 litres of plasma exchanged; coupled with a couple of blood transfusions.
MarketingHU
in
HealthUnlocked Blog
5 years ago
Plasmapheresis for itching
I AM NERVOUS HAVING PLASMAPHERESIS THIS FRODAY AT NOON 😬 HAS ANYONE ELSE HAD THIS PROCEDURE DONE. I AM BEING REFERRED BY MY UNIVERSITY OF MICHIGAN HEPATOLGIST DUE TO MY SEVERE ITCHING FROM PBC AS THEYVE TRIED PRESCRIBING SEVERAL MEDICATIONS, CREAMS ETC.. NOTHING WORK SO CROSSINGS MY FINGERS AS I HAVE
I AM NERVOUS HAVING PLASMAPHERESIS THIS FRODAY AT NOON 😬 HAS ANYONE ELSE HAD THIS PROCEDURE DONE. I AM BEING REFERRED BY MY UNIVERSITY OF MICHIGAN HEPATOLGIST DUE TO MY SEVERE ITCHING FROM PBC AS THEYVE TRIED PRESCRIBING SEVERAL MEDICATIONS, CREAMS ETC.. NOTHING WORK SO CROSSINGS MY FINGERS AS I HAVE
genj65
in
PBC Foundation
5 years ago
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