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Need Help for a 19 year old girl
I have a friend who lives in Poland she is 19 years old at this moment she is constantly in and out of hospital. the doctors have given up on treating her. The confirmed illness is autoimmune Systemic Vasculitis. We are trying to find a doctor here in uk who maybe could have a look at her case and see
I have a friend who lives in Poland she is 19 years old at this moment she is constantly in and out of hospital. the doctors have given up on treating her. The confirmed illness is autoimmune Systemic Vasculitis. We are trying to find a doctor here in uk who maybe could have a look at her case and see
kate_halas
in
Vasculitis UK
11 years ago
Has anyone tried the plasma exchange treatment, with steriods for 6 months followed with rheumatoid medication. designer 16
designer16
in
Hughes Syndrome APS Forum
11 years ago
Dr . S . Gibson ,Renal Consultant , Retiring .
I was hospitalised for a month and had all the usual treatment( Steroids ,cyclophosphamide,
plasma
exchange
transfusion ) and follow up. Throughout all this time this consultant doctor was fantastic , always upbeat and encouraging but totally honest. A really good doctor. He is now retiring .
I was hospitalised for a month and had all the usual treatment( Steroids ,cyclophosphamide,
plasma
exchange
transfusion ) and follow up. Throughout all this time this consultant doctor was fantastic , always upbeat and encouraging but totally honest. A really good doctor. He is now retiring .
Maggie20
in
Vasculitis UK
11 years ago
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IVIG and Plasmapheresis
Is there anyone that does IVIG or Plasmapheresis for treatment on a regular basis? if so why are you?
Is there anyone that does IVIG or Plasmapheresis for treatment on a regular basis? if so why are you?
Skyllark
in
Hughes Syndrome APS Forum
12 years ago
Has anyone tried new arthritis drug, ACTEMRAfor APS
Have failed Rituxan, IgG, plaquenil. Am doing plasmapheresis every 6 months Each treatment lasts 5 days. Any suggestions Thx
Have failed Rituxan, IgG, plaquenil. Am doing plasmapheresis every 6 months Each treatment lasts 5 days. Any suggestions Thx
kwalmd
in
Hughes Syndrome APS Forum
12 years ago
Early days - my story so far
One of the things they are looking at (PEXIVAS trial) is the benefits of the alternative
plasma
exchange
treatment with a view to being able to reduce the initial high doses of Pred. In return I am getting very closely monitored treatment by the research team.
One of the things they are looking at (PEXIVAS trial) is the benefits of the alternative
plasma
exchange
treatment with a view to being able to reduce the initial high doses of Pred. In return I am getting very closely monitored treatment by the research team.
Chris-Bromsgrove
in
Vasculitis UK
12 years ago
rituximab and vasculitis.
this next week will be my first dose of rituximab for Anca + vasculitis. several dr's keep mentioning wegeners but still not one will confirm it. I've been diagnosed since july 2010 with Anca + vascultis after 10 months of being told i had arthritis by local Gp, new it wasn't and people say life begins
this next week will be my first dose of rituximab for Anca + vasculitis. several dr's keep mentioning wegeners but still not one will confirm it. I've been diagnosed since july 2010 with Anca + vascultis after 10 months of being told i had arthritis by local Gp, new it wasn't and people say life begins
alan-lee
in
Vasculitis UK
12 years ago
Does anyone has had a plasmapheresis and antiphospholipid syndrome??
I´ve had a miscarriage due to my IgG and IgM high levels. I want to make a second try and my doctor had recommended a plasmapheresis therapy first to clean up my body. Does anyone has done this??
I´ve had a miscarriage due to my IgG and IgM high levels. I want to make a second try and my doctor had recommended a plasmapheresis therapy first to clean up my body. Does anyone has done this??
yazel50
in
Hughes Syndrome APS Forum
12 years ago
Plasmapheresis
Please can I ask if anyone has been given this and what your experiences are. When I was first under investigation following TIA and diagnosed with vasculitis and SLE ( the vasculitis is now under dispute with neuro who says vasculopathy) the rheumy I saw wanted to give me this treatment. I
Please can I ask if anyone has been given this and what your experiences are. When I was first under investigation following TIA and diagnosed with vasculitis and SLE ( the vasculitis is now under dispute with neuro who says vasculopathy) the rheumy I saw wanted to give me this treatment. I
annie330
in
LUPUS UK
12 years ago
Does plasmapheresis aid in the treatment of WG?
My question is, did the
plasma
exchange
effect the WG, or was this coincidence, and it was the drugs finally getting the upper hand?
My question is, did the
plasma
exchange
effect the WG, or was this coincidence, and it was the drugs finally getting the upper hand?
shanat19
in
Vasculitis UK
13 years ago
WG Kidney Damage, will other parts of the body be effected by the WG??
: My 49 year old husband was admitted to hospital with sudden onset Kidney Failure and has been diagnosed with WG, he is having ten treatments of
Plasma
Exchange
,dialysis and so many drugs we can't keep up with them all. It has been a real shock to us, someone cheer me up!
: My 49 year old husband was admitted to hospital with sudden onset Kidney Failure and has been diagnosed with WG, he is having ten treatments of
Plasma
Exchange
,dialysis and so many drugs we can't keep up with them all. It has been a real shock to us, someone cheer me up!
Sharonkaty
in
Vasculitis UK
12 years ago
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