Hi everyone! Been a long time since I’ve posted. Interesting day today. Saw neuro ophthalmologist today. I have all types of nystagmus. Says it’s probably peripheral vestibular malfunction and maybe something wrong with my ear canals/bones. Wants brain MRI and possible CT angio since I have a small brain artery aneurysm.
As bad as all the above sounds, he is going to push for me to start another therapy. IVIG, Rituxan, MTX or plasmapheresis. I was so elated that someone actually took my neuro symptoms seriously and recorded actual neuro problems in my chart. Cranial nerve neuritis finally seen and documented. Been fighting for this for over a year now!
To those still struggling to find your champion super doctor, keep on keeping on. You’ll find one in time. They are rare. ❤️