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Help understanding my BMB results
Just an update, I have received my post clinic letter from my consultant and the results of the genetic tests are now in. CALR mutated 9 no deletion- neither type 1 nor type 2 ( probably best described as type 2 like) Post ET MF on bone marrow - CALR, IDH2, TET2 mutation s and no copy number abnormalities
Just an update, I have received my post clinic letter from my consultant and the results of the genetic tests are now in. CALR mutated 9 no deletion- neither type 1 nor type 2 ( probably best described as type 2 like) Post ET MF on bone marrow - CALR, IDH2, TET2 mutation s and no copy number abnormalities
UKZA
in
MPN Voice
1 year ago
Genetic counseling & testing
Just completed six rounds of docetaxel+carboplatin last week and will be seeing my doctor at Mayo on March 30 for further scans to gauge progress and evaluate next steps. Meanwhile, my oncologist at MN Oncology has recommended that I do genetic counseling and further genetic and tumor testing. I am 43%
Just completed six rounds of docetaxel+carboplatin last week and will be seeing my doctor at Mayo on March 30 for further scans to gauge progress and evaluate next steps. Meanwhile, my oncologist at MN Oncology has recommended that I do genetic counseling and further genetic and tumor testing. I am 43%
Skifanatic
in
Advanced Prostate Cancer
1 year ago
pain killers
it was interesting what bananas5 wrote about the thc element in Cannabis. There is an approved Cannabis provider based in Birmingham. before proceeding they insist on making contact with your own Dr. My wife will not go down this path.-however when my aches and pains Get much worse-I will certainly
it was interesting what bananas5 wrote about the thc element in Cannabis. There is an approved Cannabis provider based in Birmingham. before proceeding they insist on making contact with your own Dr. My wife will not go down this path.-however when my aches and pains Get much worse-I will certainly
Vivtom
in
Fibromyalgia Action UK
1 year ago
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Peritoneal cancer with no visible disease
Hi everyone. I’m new here and am looking for information to help a close relative. She’s been given a diagnosis of primary peritoneal cancer. She presented with a pleural effusion and the cytology showed malignant cells consistent with an ovarian, tubal or peritoneal primary. However, there was nothing
Hi everyone. I’m new here and am looking for information to help a close relative. She’s been given a diagnosis of primary peritoneal cancer. She presented with a pleural effusion and the cytology showed malignant cells consistent with an ovarian, tubal or peritoneal primary. However, there was nothing
sunnyside3
in
My Ovacome
1 year ago
New Oncologist recommending Pylarify PET scan. Good idea or not?
My PSA has been undetectable for 2 and 1/2 years. My Oncologist abruptly left Florida Cancer Specialists. The new Oncologist is suggesting a Pylarify PET scan for PSMA. My last Axumin scan in 2020 showed PC in multiple lower abdominal and bilateral pelvic lymph nodes and prostate. Is this scan a good
My PSA has been undetectable for 2 and 1/2 years. My Oncologist abruptly left Florida Cancer Specialists. The new Oncologist is suggesting a Pylarify PET scan for PSMA. My last Axumin scan in 2020 showed PC in multiple lower abdominal and bilateral pelvic lymph nodes and prostate. Is this scan a good
ReMarcAble
in
Advanced Prostate Cancer
1 year ago
Taxotere and fingerprints.
Here's a chemo side-effect I'd not heard mentioned here... After three rounds of taxotere to date my fingerprints aren't completely gone, but even with retraining my TouchID Mac and phone won't respond to them. To my eye they look smooth, but a close up photo reveals there's still a pattern. The skin
Here's a chemo side-effect I'd not heard mentioned here... After three rounds of taxotere to date my fingerprints aren't completely gone, but even with retraining my TouchID Mac and phone won't respond to them. To my eye they look smooth, but a close up photo reveals there's still a pattern. The skin
Gl448
in
Advanced Prostate Cancer
1 year ago
Ending Avastin
I had my final (18th) Avastin on Monday. The overwhelming feeling is relief; relief to have finished and to be here to have finished. I am also hoping to have a period of freedom from medical treatment for the first time in 2 years, and hopefully all the joint and muscle aches will subside a bit. It's
I had my final (18th) Avastin on Monday. The overwhelming feeling is relief; relief to have finished and to be here to have finished. I am also hoping to have a period of freedom from medical treatment for the first time in 2 years, and hopefully all the joint and muscle aches will subside a bit. It's
Morini
in
My Ovacome
1 year ago
So Yet Another Follow Up - Starting I think 2020 - Bizzar,
Well those who know me will know not long ago I had scan including PET Scan for suspected Lung Cancer or TB. In the end was put down to new scarring. Many of you will know in 2020 I got Bladder Cancer symptoms - I was diagnosed with Bladder Cancer in site a year later and was treated with a TURBT to
Well those who know me will know not long ago I had scan including PET Scan for suspected Lung Cancer or TB. In the end was put down to new scarring. Many of you will know in 2020 I got Bladder Cancer symptoms - I was diagnosed with Bladder Cancer in site a year later and was treated with a TURBT to
Ern007
in
Lung Conditions Community Forum
1 year ago
Cost of plevicto and rising PSA
Who had gotten plevicto and did the insurance cover the treatments, how rough was the side effects. Currently on jvanta but PSA went from 25, 35,31 ant yesterday to 50.1 which is higher that when I started last year with the treatments. The last scan in December of last year showed only the Mets on the
Who had gotten plevicto and did the insurance cover the treatments, how rough was the side effects. Currently on jvanta but PSA went from 25, 35,31 ant yesterday to 50.1 which is higher that when I started last year with the treatments. The last scan in December of last year showed only the Mets on the
Muffin2019
in
Advanced Prostate Cancer
1 year ago
CA27-29 numbers and Covid
Has anyone experienced their CA 27-29 numbers going up due to their having Covid or another of the nasty viruses going around these days? I’ve been sick the past two months. Home test was negative for Covid but we seem to have some viruses that are every bit as bad and my tumor markers crept up to 49
Has anyone experienced their CA 27-29 numbers going up due to their having Covid or another of the nasty viruses going around these days? I’ve been sick the past two months. Home test was negative for Covid but we seem to have some viruses that are every bit as bad and my tumor markers crept up to 49
Ilovehorses
in
SHARE Metastatic Breast Cancer
1 year ago
Letrozole
Hi everyone, I just wondered about the side effects of Letrozole. I had 7mm bc removed via lumpectomy, due to have radiotherapy soon, no chemo required. I am really struggling with the possible side effects of this drug. I know we are all individuals but just wondered if side effects are as hideous as
Hi everyone, I just wondered about the side effects of Letrozole. I had 7mm bc removed via lumpectomy, due to have radiotherapy soon, no chemo required. I am really struggling with the possible side effects of this drug. I know we are all individuals but just wondered if side effects are as hideous as
Discolove
in
SHARE Metastatic Breast Cancer
1 year ago
A copied response to SLIMPICKINS
Hey SLIM I apoligise for my delayed response, a lot going on...not really, I'm tired (sleeping) most of the time and it just seems that I'm busy lol. Oil, THC oil, I tried the CBD oil but i have to drink alot for 4 minutes of pain relief, and that just takes the edge off. It's been 8 months into my
Hey SLIM I apoligise for my delayed response, a lot going on...not really, I'm tired (sleeping) most of the time and it just seems that I'm busy lol. Oil, THC oil, I tried the CBD oil but i have to drink alot for 4 minutes of pain relief, and that just takes the edge off. It's been 8 months into my
lookout4
in
Advanced Prostate Cancer
1 year ago
PV and Sore legs
At the moment lm on no meds except warfrin and indepamide. My consultant stopped Peg Interferon l must say it was a releif. Side effects are still a problem in particular restless legs. Soreness through the day and in particular at night so lm not getting to much sleep. My Gp prescribed nitrazepam and
At the moment lm on no meds except warfrin and indepamide. My consultant stopped Peg Interferon l must say it was a releif. Side effects are still a problem in particular restless legs. Soreness through the day and in particular at night so lm not getting to much sleep. My Gp prescribed nitrazepam and
Hidden
in
MPN Voice
1 year ago
Prostate cancer patients are better off with radiotherapy then surgery - new research
https://www.express.co.uk/life-style/health/1735518/prostate-cancer-treatment-side-effects "In the surgery group, 47 percent needed to use urinary continence pads two years post surgery. Meanwhile, only 4.5 percent of the radiotherapy group required the use of urinary continence pads" The radiotherapy
https://www.express.co.uk/life-style/health/1735518/prostate-cancer-treatment-side-effects "In the surgery group, 47 percent needed to use urinary continence pads two years post surgery. Meanwhile, only 4.5 percent of the radiotherapy group required the use of urinary continence pads" The radiotherapy
George71
in
Fight Prostate Cancer
1 year ago
Clinical Trials for Mushrooms
I have been taking mushroom supplements for years based on my own research (with my oncologist's knowledge) and I think it has helped me continue to remain hormone sensitive, though I really can't know. [u]Study published by International Journal of Cancer:[/u] https://www.ncbi.nlm.nih.gov/pmc/articles
I have been taking mushroom supplements for years based on my own research (with my oncologist's knowledge) and I think it has helped me continue to remain hormone sensitive, though I really can't know. [u]Study published by International Journal of Cancer:[/u] https://www.ncbi.nlm.nih.gov/pmc/articles
dmt1121
in
Advanced Prostate Cancer
1 year ago
Prolaris Test Helps ID Higher-risk Patients Who May Safely Skip ADT when receiving radiation for PCa
"Prolaris is a genetic test that predicts the aggressiveness of prostate cancer — can accurately identify which men with intermediate- or high-risk disease will benefit from adding androgen deprivation therapy (ADT) to standard radiation therapy, a study shows. This Myriad Genetics’ test was found to
"Prolaris is a genetic test that predicts the aggressiveness of prostate cancer — can accurately identify which men with intermediate- or high-risk disease will benefit from adding androgen deprivation therapy (ADT) to standard radiation therapy, a study shows. This Myriad Genetics’ test was found to
George71
in
Fight Prostate Cancer
1 year ago
Even in winter months UVA rays are very much present!
Even in the winter months UVA rays are very much present and we should take care to protect our skin from cumulative damage. If you’re spending extended periods of time outdoors, apply sunscreen with UVA protection before you head out.1 in 5 of us will develop some form of skin cancer in our lifetime
Even in the winter months UVA rays are very much present and we should take care to protect our skin from cumulative damage. If you’re spending extended periods of time outdoors, apply sunscreen with UVA protection before you head out.1 in 5 of us will develop some form of skin cancer in our lifetime
SkcinHQ
Partner
in
Skin Cancer UK
1 year ago
String-y Mucous problems anyone?
Hello everyone Five years ago I had a trans-hiatal oesophagectomy following an endoscopy which revealed high-grade dysplasia cells. (I was being monitored after chemo/radiotherapy for SCC in my oesophagus in 2015) I elected for surgery rather than take the very real risk that the cells would become
Hello everyone Five years ago I had a trans-hiatal oesophagectomy following an endoscopy which revealed high-grade dysplasia cells. (I was being monitored after chemo/radiotherapy for SCC in my oesophagus in 2015) I elected for surgery rather than take the very real risk that the cells would become
Joanna22
in
Oesophageal & Gastric Cancer
1 year ago
CLL / Skin Cancer - getting it checked in the UK
Just saw another post about the risks of exposure to the sun. We spend a lot of our summer sailing around the Brittany coast of France, which is beautiful and also sunny, so being in the sun is unavoidable to a degree. I am not a sun bather but always use factor 50, wide brimmed hat etc and always seek
Just saw another post about the risks of exposure to the sun. We spend a lot of our summer sailing around the Brittany coast of France, which is beautiful and also sunny, so being in the sun is unavoidable to a degree. I am not a sun bather but always use factor 50, wide brimmed hat etc and always seek
FairweatherSailor
in
CLL Support
1 year ago
Lancet: Adding Avadart to Active Surveillance significantly statistically improved outcomes. 18% had cancer disappear on follow up ct scans.
"18% of the patients on Avadart on active surveillance the cancer "disappeared". No other drug but Avadart / finasteride can make that claim -- certainly not ADT ... which mutates the cancer to crpc. Avadart has no significant side effects. https://www.youtube.com/watch?v=0g0m8ATOLaM
"18% of the patients on Avadart on active surveillance the cancer "disappeared". No other drug but Avadart / finasteride can make that claim -- certainly not ADT ... which mutates the cancer to crpc. Avadart has no significant side effects. https://www.youtube.com/watch?v=0g0m8ATOLaM
George71
in
Fight Prostate Cancer
1 year ago
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