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Reaction when first diagnosed with APCa
When I heard I had APCa I was not happy of course, but also not surprised too much since it runs heavy in my family. It took a while to realize it was the first day of the rest of my life, And if I didn't make some changes it could be a short one. I went mostly vegetarian, committed to daily exercise
When I heard I had APCa I was not happy of course, but also not surprised too much since it runs heavy in my family. It took a while to realize it was the first day of the rest of my life, And if I didn't make some changes it could be a short one. I went mostly vegetarian, committed to daily exercise
Derf4223
in
Advanced Prostate Cancer
11 months ago
Acoustic Neuroma - MRI Report After 1.5y of Surgery
Hi All. My wife(28y) was diagnosed with 1.3cm large Acoustic Neuroma and it's surgically removed in 2022 March. after surgery she is having deafness in right side and weakness of facial movement on right side. but those are manageable and now she is working as usual. only few symptoms are noticed
Hi All. My wife(28y) was diagnosed with 1.3cm large Acoustic Neuroma and it's surgically removed in 2022 March. after surgery she is having deafness in right side and weakness of facial movement on right side. but those are manageable and now she is working as usual. only few symptoms are noticed
siva_s
in
Acoustic Neuroma Support
11 months ago
Orserdu
After almost 6 years of being stable on Ibrance and letrozole I now have some very small progression into both my hips. My initial metastatic disease was in my lungs. I also tested positive for a mutation that frequently happens. That being said I am eligible to take the brand new drug Orserdu/elacestrant
After almost 6 years of being stable on Ibrance and letrozole I now have some very small progression into both my hips. My initial metastatic disease was in my lungs. I also tested positive for a mutation that frequently happens. That being said I am eligible to take the brand new drug Orserdu/elacestrant
HopeinNJ
in
SHARE Metastatic Breast Cancer
11 months ago
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Newly Diagnosed and shocked
50 yrs old. Just got diagnosed with prostate cancer. Gleason 9. Spread to pelvic and vertebrae Took first casadex pill today. Will do injection (turpa I think) within 2 weeks Pretty down as you can imagine because of words like incurable!! Just saying Hi and will start checking out the site and
50 yrs old. Just got diagnosed with prostate cancer. Gleason 9. Spread to pelvic and vertebrae Took first casadex pill today. Will do injection (turpa I think) within 2 weeks Pretty down as you can imagine because of words like incurable!! Just saying Hi and will start checking out the site and
Yzinger
in
Advanced Prostate Cancer
11 months ago
PSMA PET 2 weeks after EBRT
So my MO scheduled a PSMA PET 2 weeks after the end of my EBRT. I didn't argue and did it. Im seeing her tomorrow and will ask why. Maybe she forgot I did radiation?? Ill ask for another in 3 months. Meanwhile, the report shows the lymph node is now mild uptake SUV 2.5 MAX. It was intensely radiotracer
So my MO scheduled a PSMA PET 2 weeks after the end of my EBRT. I didn't argue and did it. Im seeing her tomorrow and will ask why. Maybe she forgot I did radiation?? Ill ask for another in 3 months. Meanwhile, the report shows the lymph node is now mild uptake SUV 2.5 MAX. It was intensely radiotracer
Hidden
in
Advanced Prostate Cancer
11 months ago
caught prostate cancer?
I have heard Dr. Schloz of you tube fame and one of our colleagues refer to PCA as “being caught”? Did we catch prostate cancer from a virus? I have a family history my father, his brother, my grandfather. But by far mine is the most aggressive? On my mothers side brca is present but she has had
I have heard Dr. Schloz of you tube fame and one of our colleagues refer to PCA as “being caught”? Did we catch prostate cancer from a virus? I have a family history my father, his brother, my grandfather. But by far mine is the most aggressive? On my mothers side brca is present but she has had
Nowhereman9
in
Advanced Prostate Cancer
11 months ago
IBrance Vacation?
I’ve been on IBrance 100 and Anastrozole for three years and my scans so far have shown stable disease. I’ve tried to stay active with golf and walking. We took a trip to Texas and it was go go go for a week, one can say I have nothing to complain about…however, my tumor markers have been rising for
I’ve been on IBrance 100 and Anastrozole for three years and my scans so far have shown stable disease. I’ve tried to stay active with golf and walking. We took a trip to Texas and it was go go go for a week, one can say I have nothing to complain about…however, my tumor markers have been rising for
Dragonfly2
in
SHARE Metastatic Breast Cancer
11 months ago
Results from trans rectal bipsy
I had spent a week in the hospital from the sepsis from the transrectal biopsy. Back home with a midline for an afternoon IV for the next week. Strike one against my Dr. who poo-pooed the transperineal. The results were that there was cancer but still within the prostate capsule - stage 2. The doc.
I had spent a week in the hospital from the sepsis from the transrectal biopsy. Back home with a midline for an afternoon IV for the next week. Strike one against my Dr. who poo-pooed the transperineal. The results were that there was cancer but still within the prostate capsule - stage 2. The doc.
Eadgbe
in
Prostate Cancer Network
11 months ago
Various Issues last three years.
2020 dark blood in stool 3 times followed by 6 mths occasional yellow, pale, mucus and stomach upsets. Seemed to clear but stool colour lighter now. I'm 77 so I hope the NHS does not see me as a done case! Three weeks ago strong left lower pain down to leg then light blood in stools and continues.
2020 dark blood in stool 3 times followed by 6 mths occasional yellow, pale, mucus and stomach upsets. Seemed to clear but stool colour lighter now. I'm 77 so I hope the NHS does not see me as a done case! Three weeks ago strong left lower pain down to leg then light blood in stools and continues.
omits
in
Colon Cancer Connected
11 months ago
Men’s health week
‼️ Whilst melanoma is less common in people with dark or black skin types, it is unfortunately often associated with greater morbidity and mortality. This is because there is a general misconception that people with darker skin tones are immune to skin cancer and because the early signs and symptoms
‼️ Whilst melanoma is less common in people with dark or black skin types, it is unfortunately often associated with greater morbidity and mortality. This is because there is a general misconception that people with darker skin tones are immune to skin cancer and because the early signs and symptoms
SkcinHQ
Partner
in
Skin Cancer UK
1 year ago
recurrence or not? (Liver & stomach wall)
Hi folks just home after a liver biopsy after a CT scan following raised CA125 of 21 (mine usually sits @ 6-7 & never went higher than 80s) raised CEA @ 57 (apparently normal is 5 or under?). Originally in 2016 I was diagnosed with stage 1C endometroid and mucinous OC - Ned since then. I had naively
Hi folks just home after a liver biopsy after a CT scan following raised CA125 of 21 (mine usually sits @ 6-7 & never went higher than 80s) raised CEA @ 57 (apparently normal is 5 or under?). Originally in 2016 I was diagnosed with stage 1C endometroid and mucinous OC - Ned since then. I had naively
Alibee2
in
My Ovacome
11 months ago
I passed my tests I think..
I am on armour thyroid.. Are these optional numbers or should I be asking for a slight dose increase? My thyroid ultrasound came back good =) thankyou
I am on armour thyroid.. Are these optional numbers or should I be asking for a slight dose increase? My thyroid ultrasound came back good =) thankyou
tresa56
in
Thyroid UK
11 months ago
CEA Fluctuations
My husband has just completed his 3rd cycle of Carboplatin and Etoposide for prostate cancer liver mets. Before the first cycle his CEA was 38 (should be <5) This number is being used as baseline. After 1st cycle it was 30.3 but after his 2nd cycle it rose to 32.7. Is it normal for CEA to fluctuate
My husband has just completed his 3rd cycle of Carboplatin and Etoposide for prostate cancer liver mets. Before the first cycle his CEA was 38 (should be <5) This number is being used as baseline. After 1st cycle it was 30.3 but after his 2nd cycle it rose to 32.7. Is it normal for CEA to fluctuate
Believeit
in
Advanced Prostate Cancer
11 months ago
Has anyone tried Berberine (supplement) for Afib?
In researching what supplements will help my 93 yr old mom's heart (afib has returned after two ablations that kept her afib-free for 14 months), I found a study on Berberine. She's currently on Tykosin and would stay on Tykosin, but that eventually becomes ineffective (sometimes as soon as 6 to 12
In researching what supplements will help my 93 yr old mom's heart (afib has returned after two ablations that kept her afib-free for 14 months), I found a study on Berberine. She's currently on Tykosin and would stay on Tykosin, but that eventually becomes ineffective (sometimes as soon as 6 to 12
GooseEggs
in
AF Association
11 months ago
Uric Acid [UA] & PCa Mortality
I once had a gouty foot. It was self-induced - I was having a brief but intense craving for high-purine foods, particularly anchovies. (Perhaps PCa was driving the craving - lol.) At some point I looked at the PCa / Uric Acid [UA] literature (more than I expected), but it was mixed & failed to impress
I once had a gouty foot. It was self-induced - I was having a brief but intense craving for high-purine foods, particularly anchovies. (Perhaps PCa was driving the craving - lol.) At some point I looked at the PCa / Uric Acid [UA] literature (more than I expected), but it was mixed & failed to impress
pca2004
in
Fight Prostate Cancer
11 months ago
New technique modifies T-Cells to cure cancer
From a publicly available site Scientists have stumbled upon an extraordinary 'living drug' in the bloodwork of a late-stage cancer survivor. A year after receiving "the biggest development in cancer therapy" in over 50 years, this patient's body was still protected by a fleet of souped-up killer
From a publicly available site Scientists have stumbled upon an extraordinary 'living drug' in the bloodwork of a late-stage cancer survivor. A year after receiving "the biggest development in cancer therapy" in over 50 years, this patient's body was still protected by a fleet of souped-up killer
Derf4223
in
Advanced Prostate Cancer
11 months ago
Update on breast pain with PMR
Thought I would let you know how I got on at the breast clinic, after having so many kind messages on my previous thread. It was a harrowing couple of hours at the hospital this morning, but the good news is that all is well. The mammogram that was done 2 weeks ago showed an area of concern, which
Thought I would let you know how I got on at the breast clinic, after having so many kind messages on my previous thread. It was a harrowing couple of hours at the hospital this morning, but the good news is that all is well. The mammogram that was done 2 weeks ago showed an area of concern, which
Gimme
in
PMRGCAuk
11 months ago
Xeloda and Afinitor in lieu of Piqray
Hi everybody-had a horrible go with Piqray and the oncologist has taken me off but given me no alternative or solution. In seeking out a second opinion I’ve been told to inquire about Xeloda and Afinitor. Just curious if anyone has experience with these as they don’t specifically target the PIK3CA gene
Hi everybody-had a horrible go with Piqray and the oncologist has taken me off but given me no alternative or solution. In seeking out a second opinion I’ve been told to inquire about Xeloda and Afinitor. Just curious if anyone has experience with these as they don’t specifically target the PIK3CA gene
Saltandlight
in
SHARE Metastatic Breast Cancer
11 months ago
Groin pain
I had intense radiation therapy 6 months ago and all seems to be going well; however, a dull pain (sometimes pretty intense) has developed in my right groin. I can’t think of any way that I might have injured this area, and I’m wondering if there is any correlation with my treatment.
I had intense radiation therapy 6 months ago and all seems to be going well; however, a dull pain (sometimes pretty intense) has developed in my right groin. I can’t think of any way that I might have injured this area, and I’m wondering if there is any correlation with my treatment.
Paint_by_Numbers
in
Prostate Cancer Network
11 months ago
Treatment of Paediatric Brain Cancer with T3?
Report of an interesting study where T3 (liothyronine) was used to treat mice with medulloblastoma. The treatment reprogrammed the cells so they became normal rather than cancerous. The study is described here https://www.foxchase.org/news/2023-04-17-study-finds-thyroid-drug-normalizes-tumor-cells-in-pediatric-brain-cancer
Report of an interesting study where T3 (liothyronine) was used to treat mice with medulloblastoma. The treatment reprogrammed the cells so they became normal rather than cancerous. The study is described here https://www.foxchase.org/news/2023-04-17-study-finds-thyroid-drug-normalizes-tumor-cells-in-pediatric-brain-cancer
jimh111
in
Thyroid UK
11 months ago
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