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Geneticist consult
Today, I had an appointment with a geneticist at Cedar- Sinai and she has slapped the label of Hypermobility Spectrum Disorder on me. The reason being that I fit the criteria of HEDS except that I have autoimmune issues. She has agreed that there are people with autoimmune and heds, but doesn’t think
Today, I had an appointment with a geneticist at Cedar- Sinai and she has slapped the label of Hypermobility Spectrum Disorder on me. The reason being that I fit the criteria of HEDS except that I have autoimmune issues. She has agreed that there are people with autoimmune and heds, but doesn’t think
JennaShi
in
LUPUS UK
3 years ago
Could this have been aFlare?
Hi People. Quick question pls. Originally diagnosed Sept 2018 . I remember my early pain days , and my frequent questions to you “experts”…I recall being berated for trying to do too much too soon , and then learning so much more about my condition, from others , and heeding their advice. I recently
Hi People. Quick question pls. Originally diagnosed Sept 2018 . I remember my early pain days , and my frequent questions to you “experts”…I recall being berated for trying to do too much too soon , and then learning so much more about my condition, from others , and heeding their advice. I recently
Stifffingers
in
PMRGCAuk
3 years ago
Yet another tentative restart
Here I am again, not on the bridge but I've restarted c25k again a year after breaking my ankle. My physio has given me the go-ahead to get on with it and has finally signed me off 🥳 So far I have run week one, repeated it, and just started repeating it again. Next week I might venture onto week two
Here I am again, not on the bridge but I've restarted c25k again a year after breaking my ankle. My physio has given me the go-ahead to get on with it and has finally signed me off 🥳 So far I have run week one, repeated it, and just started repeating it again. Next week I might venture onto week two
grumpyoldgirl
in
Bridge to 10K
3 years ago
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My experience at Georgetown University Hospital
I just got out of Georgetown University Hospital where I went to adjust my Parkinsons Medication. During the 12 days I was there I experienced a wide range of abuse, neglect, and psychological torture including: I was not given food in ER after 7 hours of waiting (finally policeman gave me food). The
I just got out of Georgetown University Hospital where I went to adjust my Parkinsons Medication. During the 12 days I was there I experienced a wide range of abuse, neglect, and psychological torture including: I was not given food in ER after 7 hours of waiting (finally policeman gave me food). The
pmmargo
in
Cure Parkinson's
3 years ago
Hip Replacement
Hi.... I’m new to this forum, but familiar with HU for a condition my husband has. I’ve found it a great resource. I have OA in my right hip and was to have a hip replacement in approx 4-6 months (in Ontario), but due to COVID, all surgeries are now delayed. Some days are ok, but most are quite uncomfortable
Hi.... I’m new to this forum, but familiar with HU for a condition my husband has. I’ve found it a great resource. I have OA in my right hip and was to have a hip replacement in approx 4-6 months (in Ontario), but due to COVID, all surgeries are now delayed. Some days are ok, but most are quite uncomfortable
Loves2walk
in
Arthritis Action
3 years ago
Is it possible to regain movement in hand if you can’t feel anything in it?
Just wondering if it is possible to regain movement in a hand if you can’t feel anything in it? I go to a brain injury group and one of the women who goes had a stroke 6 years ago. She’s had physio for 6 month after it but now is left in the care of her husband who does everything for her, she is able
Just wondering if it is possible to regain movement in a hand if you can’t feel anything in it? I go to a brain injury group and one of the women who goes had a stroke 6 years ago. She’s had physio for 6 month after it but now is left in the care of her husband who does everything for her, she is able
keeley24
in
Headway
3 years ago
Mind games
I was surprised at myself this week. After managing to run my first half marathon just over a week ago I lost confidence and mojo. It sort of came from no where but also somewhere 🥴. Yes I had an extraordinarily painful back at the end of the run and it took 24 hours of rest and strong pain killers
I was surprised at myself this week. After managing to run my first half marathon just over a week ago I lost confidence and mojo. It sort of came from no where but also somewhere 🥴. Yes I had an extraordinarily painful back at the end of the run and it took 24 hours of rest and strong pain killers
Knittingrunner
Half Marathon
in
Fun Beyond 10K & Race Support
3 years ago
Exercise and Lupus?
Hi everyone, I’m 21 years old and i’ve been diagnosed with lupus and APS for two years now, it’s been a really rough journey and this past year i’ve been feeling super down and depressed, and really feel defeated by it all. I really want to take some control of my life, and focus on things like exercise
Hi everyone, I’m 21 years old and i’ve been diagnosed with lupus and APS for two years now, it’s been a really rough journey and this past year i’ve been feeling super down and depressed, and really feel defeated by it all. I really want to take some control of my life, and focus on things like exercise
lupeylady
in
LUPUS UK
3 years ago
Do I have Fibro?
Hi, I have been suffering with pain now for months. I am getting tired as not sleeping well. My arms especially feel like the muscles are pulled when I haven't hardly done anything. Last year I ran half a marathon and now I struggle with a mile. I keep walking and 'getting on' because I have to!
Hi, I have been suffering with pain now for months. I am getting tired as not sleeping well. My arms especially feel like the muscles are pulled when I haven't hardly done anything. Last year I ran half a marathon and now I struggle with a mile. I keep walking and 'getting on' because I have to!
JLouL
in
Fibromyalgia Action UK
3 years ago
Advice return to work
It will be 2 years post abi for me in September But due to return to work in September I have been on a years career break. I was previously a district nurse which I know already that will be something I am not able to do anymore unable to drive due to hemianopea, lost the use of my left side, have
It will be 2 years post abi for me in September But due to return to work in September I have been on a years career break. I was previously a district nurse which I know already that will be something I am not able to do anymore unable to drive due to hemianopea, lost the use of my left side, have
Charlie90
in
Headway
3 years ago
IBS
Hi I have had ibs for few years now all started after I had chemotherapy have seen doctor was given loperamide did fod map which was of no help now after I eat food it jus goes through me seen physio who did tests said muscle is very weak so referred back to hospital really starting to get me down thanks
Hi I have had ibs for few years now all started after I had chemotherapy have seen doctor was given loperamide did fod map which was of no help now after I eat food it jus goes through me seen physio who did tests said muscle is very weak so referred back to hospital really starting to get me down thanks
Hunte
in
IBS Network
3 years ago
Waiting for a diagnosis
I have also had
physiotherapy
for FND. I'm pretty sure that I don't have that. I have never fainted nor had a siezure. I am seeing a neurologist on Weds and hopefully I will get a diagnosis. I'm almost at my wit's end. Sorry for the moaning but thanks for reading.
I have also had
physiotherapy
for FND. I'm pretty sure that I don't have that. I have never fainted nor had a siezure. I am seeing a neurologist on Weds and hopefully I will get a diagnosis. I'm almost at my wit's end. Sorry for the moaning but thanks for reading.
Helenhooter
in
Multiple System Atrophy Trust
3 years ago
Hello there! Would appreciate input..Hello there! Would appreciate input..
I'm brand new to this site. Really happy that I stumbled upon it during a search for, "Carpal Tunnel Syndrome relationship to Lupron." Not a lot of into on the subject so far. I was wondering if any of the folks on this site may have encountered this so-called rare side effect? If so, what was done
I'm brand new to this site. Really happy that I stumbled upon it during a search for, "Carpal Tunnel Syndrome relationship to Lupron." Not a lot of into on the subject so far. I was wondering if any of the folks on this site may have encountered this so-called rare side effect? If so, what was done
sorciverde
in
Advanced Prostate Cancer
3 years ago
2nd Graduation
Completed third run of week 9 of couch to 5K on Friday running 3.9 miles. I’m really pleased as I had an enforced lay-off through an ankle injury requiring 12 weeks of physio. I’d graduated first time in December before suffering the ankle injury on Christmas Day. I thought I’d be out of commission
Completed third run of week 9 of couch to 5K on Friday running 3.9 miles. I’m really pleased as I had an enforced lay-off through an ankle injury requiring 12 weeks of physio. I’d graduated first time in December before suffering the ankle injury on Christmas Day. I thought I’d be out of commission
Vragtes
Graduate
in
Couch to 5K
3 years ago
Post 742 Advice to consider 18 Jun 2021
G’day to “YOU” my ms sisters and brothers. Today looks to be another scorcher, 115 Fahrenheit plus, 46 degrees celsius for we modern people. Either way, translate it to bloody hot and a day I am NOT going outside for no matter what. I guess this is what you get for living in a crowded desert city
G’day to “YOU” my ms sisters and brothers. Today looks to be another scorcher, 115 Fahrenheit plus, 46 degrees celsius for we modern people. Either way, translate it to bloody hot and a day I am NOT going outside for no matter what. I guess this is what you get for living in a crowded desert city
RoyceNewton
in
My MSAA Community
3 years ago
C25K completed - second time around!
I graduated in August last year without pain or injury (apart from tripping over tree roots and skinning my knees), but had to take four months off because of back problems. After taking advice from my physio, I decided to start again from scratch in the spring. This time around I have deliberately
I graduated in August last year without pain or injury (apart from tripping over tree roots and skinning my knees), but had to take four months off because of back problems. After taking advice from my physio, I decided to start again from scratch in the spring. This time around I have deliberately
BradC
Graduate
in
Couch to 5K
3 years ago
Cranioplasty date has been set, any advice gratefully received
So my husbands cranioplasty date has come through for the beginning of August. He is 13 months post his aneurysm surgery which resulted in a massive stroke and craniotomy. He has been home 2 months and is pretty much bedbound. He struggles with sitting balance, in fact I think he would just topple
So my husbands cranioplasty date has come through for the beginning of August. He is 13 months post his aneurysm surgery which resulted in a massive stroke and craniotomy. He has been home 2 months and is pretty much bedbound. He struggles with sitting balance, in fact I think he would just topple
pozza40
in
Headway
3 years ago
C25k restart and question about ‘midfoot’
Hello all. I have restarted C25k after getting to week 7 in 2019 and having to stop due to achilles pain. Went to the physio but the pain didn’t go for months. This year I have been brisk walking for an hour 5 times a week since January, and have also lost 2 stone, so feel ready to try again. Am now
Hello all. I have restarted C25k after getting to week 7 in 2019 and having to stop due to achilles pain. Went to the physio but the pain didn’t go for months. This year I have been brisk walking for an hour 5 times a week since January, and have also lost 2 stone, so feel ready to try again. Am now
j-runs
Graduate
in
Couch to 5K
3 years ago
Back after injury
After damaging a ligament on Christmas Day and having physio (thanks York’s NHS
physiotherapy
) since, I had my first run out today. For prudence, although having completed the 9 weeks program, I started at Run 1 week 1. No pain and felt good doing it.
After damaging a ligament on Christmas Day and having physio (thanks York’s NHS
physiotherapy
) since, I had my first run out today. For prudence, although having completed the 9 weeks program, I started at Run 1 week 1. No pain and felt good doing it.
Vragtes
Graduate10
in
Bridge to 10K
3 years ago
Moderna
I got my first Moderna shot a few weeks ago and I haven’t felt the same since. Numbness in legs and arms occasionally, constant tongue numbness and intense head pressure. I immediately didn’t feel right after the shot and ever since that day my symptoms haven’t gone away. I went to the ER a few days
I got my first Moderna shot a few weeks ago and I haven’t felt the same since. Numbness in legs and arms occasionally, constant tongue numbness and intense head pressure. I immediately didn’t feel right after the shot and ever since that day my symptoms haven’t gone away. I went to the ER a few days
Hidden
in
Anxiety Support
3 years ago
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