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Peroxisome biogenesis disorders
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Ichthyosis
I found some odd looking skin and discovered it was likely ichthyosis which apparently can develop in CLL patents. Anyone had any experience with this condition? Any suggestions or cautions?
I found some odd looking skin and discovered it was likely ichthyosis which apparently can develop in CLL patents. Anyone had any experience with this condition? Any suggestions or cautions?
Rando21
in
CLL Support
1 year ago
Doctors now talking Buprenorphine
https://www.medscape.com/viewarticle/994959?ecd=wnl_infocu1_broad_broad_persoexpansion-both_20230916_etid5859143&uac=370159DG&impID=5859143 I so hope this link works regarding Dr Beckers use of Buprenorphine for chronic pain. Remember when you are trying to get Bup or medical CBD or THC the word is
https://www.medscape.com/viewarticle/994959?ecd=wnl_infocu1_broad_broad_persoexpansion-both_20230916_etid5859143&uac=370159DG&impID=5859143 I so hope this link works regarding Dr Beckers use of Buprenorphine for chronic pain. Remember when you are trying to get Bup or medical CBD or THC the word is
Shumbah
in
Restless Legs Syndrome
11 months ago
Results please
Im taking teva levothyroxine 75mcg and t3, 5mcg at morning with levo then 10mcg afternoon.My symptoms have greatly improved with the addition of t3, but having increasing problems with low stomach acid. Any advice will be most welcome 🌸🌸🌸🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 75mcg and t3, 5mcg at morning with levo then 10mcg afternoon.My symptoms have greatly improved with the addition of t3, but having increasing problems with low stomach acid. Any advice will be most welcome 🌸🌸🌸🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
1 year ago
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Anxiety way out of control.
Hey there, my anxiety is non stop making my body shake, even if it's small amount I always feel everyday my body shaking. My panic randomly keep happening, usually I need a Trigger like something I'm scared about at the moment but now when I'm calm and listening to music or watching TV, a random out
Hey there, my anxiety is non stop making my body shake, even if it's small amount I always feel everyday my body shaking. My panic randomly keep happening, usually I need a Trigger like something I'm scared about at the moment but now when I'm calm and listening to music or watching TV, a random out
Shield_Of_Faith
in
Anxiety and Depression Support
11 months ago
Gemtesa for hyperactive bladder control
Hi, Gemtesa is beta-adrenergic receptor medication, is not anticholinergic ditropan like Oxytrol. IS anyone has good experiences with Gemtesa (which is a new drug). to control the frequency and urgency with aggravating the RLS? Thanks for your replay.
Hi, Gemtesa is beta-adrenergic receptor medication, is not anticholinergic ditropan like Oxytrol. IS anyone has good experiences with Gemtesa (which is a new drug). to control the frequency and urgency with aggravating the RLS? Thanks for your replay.
halperinchen
in
Restless Legs Syndrome
1 year ago
heat or baclofen?
Bad day today. 85 f at noon. Was pulling electronet fence down by the river. Felt a little drained and mild dizzy. Dropped fencing and made it back to the shade of the tractor to sit on ground and stretch. I called my son inlaw and talked for 30 minutes or so. Ended call and put phone in pocket
Bad day today. 85 f at noon. Was pulling electronet fence down by the river. Felt a little drained and mild dizzy. Dropped fencing and made it back to the shade of the tractor to sit on ground and stretch. I called my son inlaw and talked for 30 minutes or so. Ended call and put phone in pocket
irhunter
in
My MSAA Community
1 year ago
newbie uc proctitis
I officially was dx’d with uc proctitis in fall of 2022 after serious bleeding for 8 days and explosive bms. Went into remission for a few wonderful months n as my gastro weaned me back off mesalmine suppositories, my proctitis flared again. Does anyone here have it, and what do u do for rectal pain.
I officially was dx’d with uc proctitis in fall of 2022 after serious bleeding for 8 days and explosive bms. Went into remission for a few wonderful months n as my gastro weaned me back off mesalmine suppositories, my proctitis flared again. Does anyone here have it, and what do u do for rectal pain.
Sdone
in
Crohn's and Colitis Support
1 year ago
ADAA Blog: Harm OCD vs. Being Dangerous
Are you suffering from harm OCD? Harm inducing types of thoughts, images and urges are typically referred to as Harm OCD and they can cause significant distress and anxiety in sufferers. Read ADAA member Marion Plessner Rodrigue, LMHC's blog explaining the difference between #harmocd and being dangerous
Are you suffering from harm OCD? Harm inducing types of thoughts, images and urges are typically referred to as Harm OCD and they can cause significant distress and anxiety in sufferers. Read ADAA member Marion Plessner Rodrigue, LMHC's blog explaining the difference between #harmocd and being dangerous
ADAATeamRachel
Partner
in
Anxiety and Depression Support
1 year ago
I Need to see a Psychiatrist
I am suffering from severe anxiety. My family doctor put me on effexor last month. I feel awful and can't stand this feeling anymore. I looked up the timeline to see a Psych in Ontario Canada and it's a 4 month average. Should I try to see a psychologist even though I can't afford it? I am desparate
I am suffering from severe anxiety. My family doctor put me on effexor last month. I feel awful and can't stand this feeling anymore. I looked up the timeline to see a Psych in Ontario Canada and it's a 4 month average. Should I try to see a psychologist even though I can't afford it? I am desparate
Lolaz
in
Anxiety and Depression Support
11 months ago
awful start to the day
my day started off with 2 of the buses that I needed to get not showing up. This made me late for a meeting with the benefits people. Here in the uk it’s not good as they can sanction for non attendance and deduct money. I finally got a different bus which was going to get me to my appointment 30 minutes
my day started off with 2 of the buses that I needed to get not showing up. This made me late for a meeting with the benefits people. Here in the uk it’s not good as they can sanction for non attendance and deduct money. I finally got a different bus which was going to get me to my appointment 30 minutes
IncognitoC
in
Anxiety and Depression Support
11 months ago
Weight Gain, Duloxetine & Fibromyalgia
Morning my fellow warriors,I have fibromyalgia and because i was struggling with on going pain my GP changed my mental health meds from sertraline to duloxetine. Since being on duloxetine I have gained approx. 2 st and it is making me miserable. Does anyone have any experinece with coming off Duloxetine
Morning my fellow warriors,I have fibromyalgia and because i was struggling with on going pain my GP changed my mental health meds from sertraline to duloxetine. Since being on duloxetine I have gained approx. 2 st and it is making me miserable. Does anyone have any experinece with coming off Duloxetine
nellie_deany
in
Fibromyalgia Action UK
1 year ago
Bovine thyroid supplement
Hi , Has anyone heard of or used Grass fed beef thyroid supplements for thyroid support . I was checking out thyroid support supplements and came across this by a company called Ancestral supplements. Can anybody please recommend a thyroid support supplement that can help . Thankyou.
Hi , Has anyone heard of or used Grass fed beef thyroid supplements for thyroid support . I was checking out thyroid support supplements and came across this by a company called Ancestral supplements. Can anybody please recommend a thyroid support supplement that can help . Thankyou.
moljanie
in
Thyroid UK
1 year ago
Buprenorphine SL vs transdermal
Hi. Can anyone weigh in on their experience or knowledge of the advantages or disadvantages of the different formulations of buprenorphine? I understand there is a risk of severe tooth decay with the sublingual formulation but is that only in the drug-addicted population? Has anyone had personal experience
Hi. Can anyone weigh in on their experience or knowledge of the advantages or disadvantages of the different formulations of buprenorphine? I understand there is a risk of severe tooth decay with the sublingual formulation but is that only in the drug-addicted population? Has anyone had personal experience
Doctorplacebo
in
Restless Legs Syndrome
11 months ago
Panic attacks are real, they sap the life right out of me.
Without giving to much away, I am finding life pretty unbearable, and living alone whilst running a business is no picnic. Firstly i have covid, which has been horrendous ,utterly draining. Then i had a tenant leave, leaving the property in disarray, and now having to spend a huge amount on getting
Without giving to much away, I am finding life pretty unbearable, and living alone whilst running a business is no picnic. Firstly i have covid, which has been horrendous ,utterly draining. Then i had a tenant leave, leaving the property in disarray, and now having to spend a huge amount on getting
secrets22
in
Anxiety and Depression Support
11 months ago
My first weigh-in 2 days ago was 276.1 , been with HU. Since 2019, weight then was 328, have 50 to go yet!!
Have had diabetes for 35yrs & in 2019 I learned I had a fatty liver, fibrosis, cirrhosis, and was put on a 30mg of low carb diet, did well till covid hit and falter alittle during that menagerie!! But back at it!! Had a complete life changing experience and made through to the other end and back on
Have had diabetes for 35yrs & in 2019 I learned I had a fatty liver, fibrosis, cirrhosis, and was put on a 30mg of low carb diet, did well till covid hit and falter alittle during that menagerie!! But back at it!! Had a complete life changing experience and made through to the other end and back on
Herman7275
Restart June 2024
in
Weight Loss Support
1 year ago
mirtazapine
hi,just joined this community and was wondering how mirtazapine made you feel when first taking it? I started taking 15mg last Thursday after numerous other meds that did not seem to work for my depression and anxiety,the last three days ive felt awful with chronic dizziness and nausea and an upset stomach
hi,just joined this community and was wondering how mirtazapine made you feel when first taking it? I started taking 15mg last Thursday after numerous other meds that did not seem to work for my depression and anxiety,the last three days ive felt awful with chronic dizziness and nausea and an upset stomach
ILovemydogs2
in
Anxiety and Depression Support
11 months ago
Chorea and PV
Hi - I don't post very often but I thought that this might be worthy of sharing. It is second hand experience as it is my mother who suffers with Polycythaemia vera (PV). She is 86 and is taking Hydroxycarbamide for PV (amongst other medications). Around a couple of years ago my mother started to experience
Hi - I don't post very often but I thought that this might be worthy of sharing. It is second hand experience as it is my mother who suffers with Polycythaemia vera (PV). She is 86 and is taking Hydroxycarbamide for PV (amongst other medications). Around a couple of years ago my mother started to experience
PFR1937
in
MPN Voice
1 year ago
Adhd, bipolar or both?
Hi,I've very recently had a change of diagnosis from ADHD and mood disorder to BPD by a consultant psychiatrist, am awaiting a meds change and would like to learn about other people's experiences with 1. BPD, any type and degree: I want to understand why BPD (with or without ADHD) and not ADHD (with
Hi,I've very recently had a change of diagnosis from ADHD and mood disorder to BPD by a consultant psychiatrist, am awaiting a meds change and would like to learn about other people's experiences with 1. BPD, any type and degree: I want to understand why BPD (with or without ADHD) and not ADHD (with
Hominid711
in
Anxiety and Depression Support
1 year ago
Dipyridamole for RLS
Dipyridamole is a drug used primarily to prevent the formation of blood clots. A study titled "A Randomized, Placebo-Controlled Crossover Study with Dipyridamole for Restless Leg Syndrome" was published in 2021 (https://doi.org/10.1002/mds.28668). The conclusion published by the authors states "Dipyridamole
Dipyridamole is a drug used primarily to prevent the formation of blood clots. A study titled "A Randomized, Placebo-Controlled Crossover Study with Dipyridamole for Restless Leg Syndrome" was published in 2021 (https://doi.org/10.1002/mds.28668). The conclusion published by the authors states "Dipyridamole
robertff3401
in
Restless Legs Syndrome
1 year ago
bystolic vs metropolol
has anyone had wheezing and shortness of breath on metropolol? Pulmonary dr just switched to bystolic?!
has anyone had wheezing and shortness of breath on metropolol? Pulmonary dr just switched to bystolic?!
Jancam1943
in
AF Association
1 year ago
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