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Pernicious anaemia
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Steroid injection
Hi everyone. I had a steroid injection this morning in my little finger. It's been locking alot lately and causing pain in my lower arm. I'm told it's because of skin thickening in my hand. Only diagnosed in July. Has anyone else had this experience?
Hi everyone. I had a steroid injection this morning in my little finger. It's been locking alot lately and causing pain in my lower arm. I'm told it's because of skin thickening in my hand. Only diagnosed in July. Has anyone else had this experience?
Pink07
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
A thousand thank yous
I won’t bore t=you with all my details again except to say after being diagnosed with
pernicious
anaemia
forty years ago after a big stomach operation, 5 years ago a young doctor decided I didn’t need B12 anymore.
I won’t bore t=you with all my details again except to say after being diagnosed with
pernicious
anaemia
forty years ago after a big stomach operation, 5 years ago a young doctor decided I didn’t need B12 anymore.
Hedgehogs15
in
Pernicious Anaemia Society
3 years ago
Nerves are just raw
Guess it's the
Pernicious
Anaemia
. I am experiencing some numbness in my face again along with extreme sensitivity in my legs to the point I can't even stand anything to touch them. I have not slept well in a couple weeks because I wake up with mild panic.
Guess it's the
Pernicious
Anaemia
. I am experiencing some numbness in my face again along with extreme sensitivity in my legs to the point I can't even stand anything to touch them. I have not slept well in a couple weeks because I wake up with mild panic.
Hidden
in
Pernicious Anaemia Society
3 years ago
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Feeling deflated.
I was wondering if anyone else with
pernicious
anaemia
struggles to loose weight? I joined a gym beginning of the year, but struggled as even just doing a 20 minute workout really wiped me out later that day and sometimes for a day or two later.
I was wondering if anyone else with
pernicious
anaemia
struggles to loose weight? I joined a gym beginning of the year, but struggled as even just doing a 20 minute workout really wiped me out later that day and sometimes for a day or two later.
Lj1115
in
Pernicious Anaemia Society
3 years ago
Test result help
I've had intrinsic factor levels checked and the results were 1.0 U/MI what dies this mean....my b12 was 814 and haematocrit lower than usual, I've been getting reoccurring anemia for 2 years now and having a lot of symptoms of b12 deficiency despite having a higher level. But intrinsic factor has me
I've had intrinsic factor levels checked and the results were 1.0 U/MI what dies this mean....my b12 was 814 and haematocrit lower than usual, I've been getting reoccurring anemia for 2 years now and having a lot of symptoms of b12 deficiency despite having a higher level. But intrinsic factor has me
Jaye75
in
Pernicious Anaemia Society
3 years ago
MHRA launches public consultation on future of medical device regulation
Although not specific to
Pernicious
Anaemia
, I'm quite sure many use devices such as autoinjectors specifically in their management of PA.
Although not specific to
Pernicious
Anaemia
, I'm quite sure many use devices such as autoinjectors specifically in their management of PA.
helvella
in
Pernicious Anaemia Society
3 years ago
Pernicious anaemia
I can’t believe it after 5 years of trying this new doctor has just rang to inform me he is to reinstate my B12 injections starting this Friday. I can’t thank you all enough for your kindness and support. Keep safe and well everyone. [E[i]
dited by Admin: details removed to protect personal identity
I can’t believe it after 5 years of trying this new doctor has just rang to inform me he is to reinstate my B12 injections starting this Friday. I can’t thank you all enough for your kindness and support. Keep safe and well everyone. [E[i]
dited by Admin: details removed to protect personal identity
Hedgehogs15
in
Pernicious Anaemia Society
3 years ago
Pernicious anaemia
I was told they cut through my vagus nerve which resulted in me having
pernicious
anaemia
. I was given B12 after feeling very poorly for 18 months and started to feel better. 5 years ago I had a routine blood test two days after my B12 injections.
I was told they cut through my vagus nerve which resulted in me having
pernicious
anaemia
. I was given B12 after feeling very poorly for 18 months and started to feel better. 5 years ago I had a routine blood test two days after my B12 injections.
Hedgehogs15
in
Pernicious Anaemia Society
3 years ago
Treatment
Recently diagnosed. My GP doctor suggested injection of 1000mcg once a month. But I’ve read it should be more like daily or at least weekly. He plans to use cyanocobalamin, but I’ve read that methylcobalamin is the better. What is the consensus for dosage and either methyl or cyano?
Recently diagnosed. My GP doctor suggested injection of 1000mcg once a month. But I’ve read it should be more like daily or at least weekly. He plans to use cyanocobalamin, but I’ve read that methylcobalamin is the better. What is the consensus for dosage and either methyl or cyano?
PA1920
in
Pernicious Anaemia Society
3 years ago
Did anyone had long lasting effects from an EMG/NCS?
Mine was absolutely awfull. Electrical shocks felt like I was getting electrocuted. I’m on the small side 52 kg ( 114 pounds) and 1m59 (5,2 feet) and my guess is that the doctor used too high of a voltage. The doctor had problems with the machine and was very frustrated and in a bad mood. He kept zapping
Mine was absolutely awfull. Electrical shocks felt like I was getting electrocuted. I’m on the small side 52 kg ( 114 pounds) and 1m59 (5,2 feet) and my guess is that the doctor used too high of a voltage. The doctor had problems with the machine and was very frustrated and in a bad mood. He kept zapping
Tess2222
in
Pernicious Anaemia Society
3 years ago
A few symptoms that just won’t give!!
Hi all :) I hope you are all doing well! Here in the US we are gearing up to celebrate Thanksgiving. I just want you all to know how thankful I am for this community and the endless amount of information it provides. You have all had an impact on my life and for that I am thankful. I have been injecting
Hi all :) I hope you are all doing well! Here in the US we are gearing up to celebrate Thanksgiving. I just want you all to know how thankful I am for this community and the endless amount of information it provides. You have all had an impact on my life and for that I am thankful. I have been injecting
Ctadds1
in
Pernicious Anaemia Society
3 years ago
High ferritin levels
Good evening one and all - and in advance I want to wish you all a happy new year, one that is healthier for us all. My serum ferritin level has gone up even further and I just wondered if the PMR/Pred etc has anything to do with it? I should add that I do have an abnormal inherited gene (a carrier
Good evening one and all - and in advance I want to wish you all a happy new year, one that is healthier for us all. My serum ferritin level has gone up even further and I just wondered if the PMR/Pred etc has anything to do with it? I should add that I do have an abnormal inherited gene (a carrier
Doraflora
in
PMRGCAuk
2 years ago
Bone marrow test
I have been anemic and have had two iron infusions. In s few days, I will be having a bone marrow extraction. I'm a bit nervous about it. What can this test reveal?
I have been anemic and have had two iron infusions. In s few days, I will be having a bone marrow extraction. I'm a bit nervous about it. What can this test reveal?
Hidden
in
Restless Legs Syndrome
3 years ago
B12 Injections: do they cure Pernicious Anemia?
Hi, I have just been diagnosed with PA, related to vitamin B12 deficiency. My GP has prescribed a course of vitamin B12 injections (12 over the next month followed by a quarterly booster). I would be interested in hearing from you if you have had the course. Did it cure your Pernicious Anemia?
Hi, I have just been diagnosed with PA, related to vitamin B12 deficiency. My GP has prescribed a course of vitamin B12 injections (12 over the next month followed by a quarterly booster). I would be interested in hearing from you if you have had the course. Did it cure your Pernicious Anemia?
Twinsgrandad
in
Pernicious Anaemia Society
3 years ago
Low iron first time in years despite supps
Hello, I just had an iron panel done as it turned out my iron is 4% of range.... 55 (50-170)! Ferritin better at 30% range, but still not great. I used to take Floradix and my iron was over midrange on it, then took 60 mg Actiferol (ferric pyrophosphate) in powder from the pharmacy for couple of months
Hello, I just had an iron panel done as it turned out my iron is 4% of range.... 55 (50-170)! Ferritin better at 30% range, but still not great. I used to take Floradix and my iron was over midrange on it, then took 60 mg Actiferol (ferric pyrophosphate) in powder from the pharmacy for couple of months
Incoguto
in
Thyroid UK
2 years ago
Iron Infusion
I am having my first Iron Infusion on 15 November. Recent Ferritin blood tests revealed my level was 50. I asked my GP about having an Iron Infusion and she was happy to organise this for me. This will be done at my local Hospital (I live in a country town) by a Doctor. I have been feeling very tired
I am having my first Iron Infusion on 15 November. Recent Ferritin blood tests revealed my level was 50. I asked my GP about having an Iron Infusion and she was happy to organise this for me. This will be done at my local Hospital (I live in a country town) by a Doctor. I have been feeling very tired
Jules1953
in
Restless Legs Syndrome
3 years ago
Can I take iron? Carry SCT
I carry the sickle Cell trait. My TIBC is 331, iron 31. My Mom also Carrie’s sCT and is 72 and been told she can’t take iron and she’s 72. Her hematologist told her after certain age, if you have SCT you can’t t aske iron. He has her on folic acid and multivitamin. He’s left. turning 50 this month
I carry the sickle Cell trait. My TIBC is 331, iron 31. My Mom also Carrie’s sCT and is 72 and been told she can’t take iron and she’s 72. Her hematologist told her after certain age, if you have SCT you can’t t aske iron. He has her on folic acid and multivitamin. He’s left. turning 50 this month
Secretargirl007
in
Sickle Cell Society
3 years ago
Update 5.9
The journey with Pegasys continues to go well. I continue to have no side effects at 45mcg/week. All CMP numbers look good. No sign of any issues with kidneys or liver. The CBC numbers look really good RBC = 6.0 - WNL HGB = 13.3 - WNL HCT = 42.1 - WNL - at goal and dropping a bit every 4 weeks.
The journey with Pegasys continues to go well. I continue to have no side effects at 45mcg/week. All CMP numbers look good. No sign of any issues with kidneys or liver. The CBC numbers look really good RBC = 6.0 - WNL HGB = 13.3 - WNL HCT = 42.1 - WNL - at goal and dropping a bit every 4 weeks.
hunter5582
in
MPN Voice
3 years ago
Anyone used Vitex (Agnus castus/chasteberry) and did it help or aggravate RLS?
Having heavy n prolonged periods so was researching solutions. Came across Vitex (to balance out hormones) but no idea if it's safe for RLS because when I googled Vitex RLS I read something about it affecting dopamine receptors? Has anyone used this for their periods or any other issue, or can advise
Having heavy n prolonged periods so was researching solutions. Came across Vitex (to balance out hormones) but no idea if it's safe for RLS because when I googled Vitex RLS I read something about it affecting dopamine receptors? Has anyone used this for their periods or any other issue, or can advise
ejaji
in
Restless Legs Syndrome
3 years ago
False reading?
It’s the second time she’s been deficient, my sister has
pernicious
anaemia
so she was checked for intrinsic factor but it was negative. I’m reluctant to take her off them as she is so poorly with other medical issues. Shall I supplement her myself?
It’s the second time she’s been deficient, my sister has
pernicious
anaemia
so she was checked for intrinsic factor but it was negative. I’m reluctant to take her off them as she is so poorly with other medical issues. Shall I supplement her myself?
Runner169
in
Pernicious Anaemia Society
3 years ago
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