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Pernicious Anaemia Society

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Pernicious anaemia

Hedgehogs15 profile image
4 Replies

Good morning from England everyone. First of all thank you to everyone who has taken time to reply to me in the past.

My update is I was diagnosed with PA after a big stomach operation 40 years ago. I was told they cut through my vagus nerve which resulted in me having pernicious anaemia. I was given B12 after feeling very poorly for 18 months and started to feel better. 5 years ago I had a routine blood test two days after my B12 injections. This young doctor told me I no longer needed B12 injections even though I told him I had PA. I’ve been trying to get them back ever since. I feel dreadful now. Stomach problems. Crying. Fatigue. Sore tongue. Cuts at side of my mouth and my legs feeling strange. I’m having a telephone call with a new GP this afternoon so wish me luck. Take care everyone and thank you again.

Admin note: edited to correct typo

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Hedgehogs15
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4 Replies
Nackapan profile image
Nackapan

I hope you geg back your b12 injections.

Gernod profile image
Gernod

The ignorance among the medical profession about b12 deficiency and pa is astounding. I am so sorry you have to go through this.

Gambit62 profile image
Gambit62Administrator

Hedgehogs15 there is an option to edit a post under the More button - I've edited your original post to correct daughter to doctor and have deleted the post that mentioned this.

Hope you get the injections back

Hedgehogs15 profile image
Hedgehogs15 in reply to Gambit62

Thank you so much that’s very kind. Thank you for looking after us too

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