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Great conversation from all!
I am so appreciative of everyones comments! Positive comments always help during difficult times! I started HD three times a week after putting off dialysis for months until my eGFR finally hit 8 and creatinine hit 6.56. I weighed the pros and cons of HD vs PD and thought at this time HD would be
I am so appreciative of everyones comments! Positive comments always help during difficult times! I started HD three times a week after putting off dialysis for months until my eGFR finally hit 8 and creatinine hit 6.56. I weighed the pros and cons of HD vs PD and thought at this time HD would be
MPK0706
in
Kidney Dialysis
5 years ago
1st Step
Today I will have surgery for the development of my blood vessels to start the dialysis process. The impurities in my body are starting to build up. I have several gout locations. A foot is swollen this morning and my face is puffy. I know all of these are signs that it is time to take this step. My
Today I will have surgery for the development of my blood vessels to start the dialysis process. The impurities in my body are starting to build up. I have several gout locations. A foot is swollen this morning and my face is puffy. I know all of these are signs that it is time to take this step. My
Scrap3
in
Kidney Dialysis
5 years ago
ESRD § RLS § severe nerve Damage. Inherited § nerve damage
I can remember my first anxiety attack when I was 16. I was in my early 20’s when my friend and boyfriend brought me home and put me to bed. They later said they could hear me thrashing around in bed like I was running with my feet under the covers. I had rls attacks over the years. Years later my father
I can remember my first anxiety attack when I was 16. I was in my early 20’s when my friend and boyfriend brought me home and put me to bed. They later said they could hear me thrashing around in bed like I was running with my feet under the covers. I had rls attacks over the years. Years later my father
ESRDRLS
in
Restless Legs Syndrome
5 years ago
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DOINME@40
I was on dialysis for 10yrs, I just put my name on the list 2016 in June. I received 8 phone calls, with opportunities for a new kidney, by the time I get to the hospital they were either no good or, I didn't get it if I was the back up. My last phone call Sept 5th 2016 was the one. 2 yrs an running
I was on dialysis for 10yrs, I just put my name on the list 2016 in June. I received 8 phone calls, with opportunities for a new kidney, by the time I get to the hospital they were either no good or, I didn't get it if I was the back up. My last phone call Sept 5th 2016 was the one. 2 yrs an running
PotatoeBacon
in
Kidney Transplant
5 years ago
I got a kidney!!
Hi All, I joined this community almost a year ago and told my story. Now I’m writing to say I received a kidney on Nov. 21st. I’m 8 weeks out post transplant. I’m happy to have a new kidney. It was the best Thanksgiving & Christmas gift ever! I’ve had some complications, medication issues, and even
Hi All, I joined this community almost a year ago and told my story. Now I’m writing to say I received a kidney on Nov. 21st. I’m 8 weeks out post transplant. I’m happy to have a new kidney. It was the best Thanksgiving & Christmas gift ever! I’ve had some complications, medication issues, and even
Curvychic_76
in
Kidney Transplant
5 years ago
8 months strong😛
Hi my name is Dave I was on dialysis for seven years and I finally got to call for a transplant eight months ago on May 23, 2018 why sisters birthday I had the transplant May 24 since the transplant there’s been a few meds changes but besides that everything has gone well it’s overwhelming and also
Hi my name is Dave I was on dialysis for seven years and I finally got to call for a transplant eight months ago on May 23, 2018 why sisters birthday I had the transplant May 24 since the transplant there’s been a few meds changes but besides that everything has gone well it’s overwhelming and also
Gotthecall_123
in
Kidney Transplant
5 years ago
Waiting for a transplant
I have been on PD for 1 year. I do my dialysis every night for 10 1/2 hrs. I'm on the transplant list through Mayo Clinic in Jacksonville, Fl. It would be great to find a living donor. My family members are not a match although my daughter in law has been going for tests to try and become a paired donor
I have been on PD for 1 year. I do my dialysis every night for 10 1/2 hrs. I'm on the transplant list through Mayo Clinic in Jacksonville, Fl. It would be great to find a living donor. My family members are not a match although my daughter in law has been going for tests to try and become a paired donor
guido46
in
Kidney Transplant
5 years ago
Stage 4
Hi all I am scared. I have recently been diagnosed with stage 4 kidney disease, my dr seems overly keen to get me on dialysis. Im not so keen to rush into this life changing decision as i need to process my diagnoses. I have come across various articles where baking soda has been suggested to slow down
Hi all I am scared. I have recently been diagnosed with stage 4 kidney disease, my dr seems overly keen to get me on dialysis. Im not so keen to rush into this life changing decision as i need to process my diagnoses. I have come across various articles where baking soda has been suggested to slow down
Kacy22
in
Early CKD Support
5 years ago
Roadblock
I’m on waiting list for transplant but right now I’m doing PD dialysis. That is going well. As routine as it is to do it 5 days out of 7 and at night while sleeping is so good. But a transplant would be wonders! So I am going through the evaluation process right now and my sister has volunteered and
I’m on waiting list for transplant but right now I’m doing PD dialysis. That is going well. As routine as it is to do it 5 days out of 7 and at night while sleeping is so good. But a transplant would be wonders! So I am going through the evaluation process right now and my sister has volunteered and
gilgar76
in
Kidney Transplant
5 years ago
Feeling depressed and down , can’t sleep. Is there anyone that I can talk to?? I need prayer . Please pray for me.😰
Back in 2018 June, I was diagnosed with Lupus (chronic autoimmune disease) that affected my both kidney to inflamed. Thank God that I didn’t get to be on dialysis. After that I suffered from fluid in lung, i was having difficulty breathing and back chest pain and thought that I was gonna die . I was
Back in 2018 June, I was diagnosed with Lupus (chronic autoimmune disease) that affected my both kidney to inflamed. Thank God that I didn’t get to be on dialysis. After that I suffered from fluid in lung, i was having difficulty breathing and back chest pain and thought that I was gonna die . I was
ehh22
in
Anxiety and Depression Support
5 years ago
Post Transplant Side Effects
I'm 28 years old and will start my first dialysis session tomorrow and going to transplant evaluation next week. After a lot of reading in NKF and some papers, I realize dialysis is much safer and have less serious side effects compared to transplant though I know it's inconvenient. I'd like to know
I'm 28 years old and will start my first dialysis session tomorrow and going to transplant evaluation next week. After a lot of reading in NKF and some papers, I realize dialysis is much safer and have less serious side effects compared to transplant though I know it's inconvenient. I'd like to know
Colin_CX
in
Kidney Disease
5 years ago
I have been on dialysis for past 4 months. Why am I getting too much giddiness and leg tingling?
At the initial stage of dialysis I am okay but after a month of dialysis I am getting giddiness and leg tingling. I am imbalance now. Can't walk without someone else support. Please advise what should I do. Regards.
At the initial stage of dialysis I am okay but after a month of dialysis I am getting giddiness and leg tingling. I am imbalance now. Can't walk without someone else support. Please advise what should I do. Regards.
Kateinamei
in
Kidney Dialysis
5 years ago
Fistula problems
Second week of using fistula. A tech infiltrated it, could not use for two weeks. Tried to use it again and did not work. Was told may have to use heparin prior to run. I know is not a drug to fool around with. Any side effects to using with dialysis? My blood was very colored and clotted in tubing.
Second week of using fistula. A tech infiltrated it, could not use for two weeks. Tried to use it again and did not work. Was told may have to use heparin prior to run. I know is not a drug to fool around with. Any side effects to using with dialysis? My blood was very colored and clotted in tubing.
rascal01
in
Kidney Disease
5 years ago
Dialysis on every 4th day
My sister (Age-23) suffering from CKD since December'17. In the beginning when her creatnine level is 8 that time we were not very much aware about her condition and thinking that Homeopathy or Ayurvedic medicine can treat the disease and got the Cretanine level down but it's not happened and creatnine
My sister (Age-23) suffering from CKD since December'17. In the beginning when her creatnine level is 8 that time we were not very much aware about her condition and thinking that Homeopathy or Ayurvedic medicine can treat the disease and got the Cretanine level down but it's not happened and creatnine
prathamupadhyay
in
Kidney Dialysis
5 years ago
Protein in urine
Looking for kidney health advise. Praying that this protein in my urine is not a sign of dialysis’s. These dialysis centers are everywhere in my neighborhood.
Looking for kidney health advise. Praying that this protein in my urine is not a sign of dialysis’s. These dialysis centers are everywhere in my neighborhood.
Myblackisbeautiful
in
Kidney Dialysis
6 years ago
Patients with Rare Disorder Good Pastures
I am interested in communicating with kidney dialysis patients that have the rare disorder Good Pastures, an autoimmune disease. Please contact me. Thank you, Aunt1Helper
I am interested in communicating with kidney dialysis patients that have the rare disorder Good Pastures, an autoimmune disease. Please contact me. Thank you, Aunt1Helper
Aunt1Helper
in
Kidney Dialysis
6 years ago
GFR of 5 To start dialysis or not
Just got my labs, Potassium 5.7, BUN 90, Creatinine 10.3.GFR 5. Last week I had surgery to put a PD catheter in place for use if needed. Post surgery I was constipated from the pain meds and had difficulty urinating, due to the Foley catheter. Other than getting tired easy from physical exertion
Just got my labs, Potassium 5.7, BUN 90, Creatinine 10.3.GFR 5. Last week I had surgery to put a PD catheter in place for use if needed. Post surgery I was constipated from the pain meds and had difficulty urinating, due to the Foley catheter. Other than getting tired easy from physical exertion
fleo
in
Kidney Disease
6 years ago
Renal tariff changes
dialysis
HRG nameBest practice tariff (£) (per day)Best practice tariff (£) (per day)Best practice tariff (£) (per day) Continuous Ambulatory
Peritoneal
Dialysis
19 years and over454361 Automated
Peritoneal
Dialysis
19 years and over515067 Assisted Automated
Peritoneal
Dialysis
19
dialysis
HRG nameBest practice tariff (£) (per day)Best practice tariff (£) (per day)Best practice tariff (£) (per day) Continuous Ambulatory
Peritoneal
Dialysis
19 years and over454361 Automated
Peritoneal
Dialysis
19 years and over515067 Assisted Automated
Peritoneal
Dialysis
19
Philipjm
in
Kidney Disease
6 years ago
Taking some time.
Hey all, I feel really connected to this community- it's given me an outlet for information and invaluable support throughout my time on dialysis, and now post transplant. There are some things that I'm just now realizing that I was told at the hospital, such as drains are horrible and always leak, the
Hey all, I feel really connected to this community- it's given me an outlet for information and invaluable support throughout my time on dialysis, and now post transplant. There are some things that I'm just now realizing that I was told at the hospital, such as drains are horrible and always leak, the
Ladybug_05
in
Kidney Disease
6 years ago
CKD Stage 4 EGFR 18
Hi Everyone, I just got my lab results and now my EGFR is down to 18. I will only see my nephrologist in April and unfortunately he is not really helpful in answering my questions. I was wondering if someone out there could shed some light to me. Basically I don’t have any living donor so I would like
Hi Everyone, I just got my lab results and now my EGFR is down to 18. I will only see my nephrologist in April and unfortunately he is not really helpful in answering my questions. I was wondering if someone out there could shed some light to me. Basically I don’t have any living donor so I would like
Lu89
in
Early CKD Support
6 years ago
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