Renal tariff changes

[Philipjm]

Hi all those who dialyse at home, this is quite worrying

The new renal tariff for 2019 - 2020 has just been published and NHS England is proposing to reduce the funds that are paid to hospitals for home hemodialysis treatment. A reduction in the tariff may result in the change in clinical behaviour, leading to reduced patient choice, and hospital/satellite haemodialysis being the default for treatment. This will undermine the NICE and NHS England policy objectives to increase home therapies.

It is important that NHS England and NHS Improvement receive feedback from both patients and clinicians related to their proposal to reduce the HHD tariff. In fact, they encourage comments to be submitted via email: [e-mail].

Please feel free to submit any comments you may have to the above email address. October 29 is the closing date.

Nice Guidelines

nice.org.uk/guidance/ng107/...

Proposed Renal Tariff.

HRG nameBest practice tariff (£) 2014/15Best practice tariff (£) 1st April 2017Best practice tariff (£) Proposed Change 1st April 2019

(per session)(per session)(per session)

Hospital Haemodialysis/Filtration with Access via Haemodialysis Catheter 19 years and over119115114

Hospital Haemodialysis/Filtration with Access via Arteriovenous Fistula or Graft 19 years and over150145144

Hospital Haemodialysis/Filtration with Access via Haemodialysis Catheter with Blood Borne Virus 19 years and over143137136

Hospital Haemodialysis/Filtration with Access via Arteriovenous Fistula or Graft with Blood Borne Virus 19 years and over178173172

(per session)(per session)(per session)

Satellite Haemodialysis/Filtration with Access via Haemodialysis Catheter 19 years and over119115114

Satellite Haemodialysis/Filtration with Access via Arteriovenous Fistula or Graft 19 years and over150145144

Satellite Haemodialysis/Filtration with Access via Haemodialysis Catheter with Blood Borne Virus 19 years and over143137136

Satellite Haemodialysis/Filtration with Access via Arteriovenous Fistula or Graft with Blood Borne Virus 19 years and over178173172

(per week)(per week)(per week)

Home Haemodialysis/Filtration with Access via Haemodialysis Catheter 19 years and over449434431

Home Haemodialysis/Filtration with Access via Arteriovenous Fistula or Graft 19 years and over449434431

Peritoneal dialysis

HRG nameBest practice tariff (£)

(per day)Best practice tariff (£)

(per day)Best practice tariff (£)

(per day)

Continuous Ambulatory Peritoneal Dialysis 19 years and over454361

Automated Peritoneal Dialysis 19 years and over515067

Assisted Automated Peritoneal Dialysis 19 years and over848180

[Charlene_Coxhead]

It's terrible and things are set to get worse. It already appears that home HD and PD is a post code lottery. I was told yesterday that I would need to purchase a reclining chair, softener, medical trolley. They also said they were not sure if I would get help with water and electricity cost. Also not all local councils give you a reduction in council tax.

This new tariff is just going to make things worse. People won't be able to have that choice of home treatment causing more pressure on renal units. It's a scary business....our health is going to be put affected by this. We don't need this added stress onto of an already stressful disease.

[Philipjm in reply to Charlene_Coxhead]

Hi Charlene,

you are correct in saying it is somewhat a post code lottery.

I count myself very fortunate being at the renal unit I am in.

I do get some help with my electricity costs, did not ask for it, just came as part of my wonderful renal unit, this may change of course.

If anyone is over 64 you can apply for disability allowance, two levels, one around £50 + per week and one around £90 per week, this is not means tested.

Your local age uk group will help with the application which like all government forms seems to be designed to discourage you from applying!!

We all need to write tour MP's to raise the issue of funding cuts to our dialysis treatments.

Philip

[Charlene_Coxhead in reply to Philipjm]

I'm only 38years old so don't fall into getting help. It's hard as I've always been a hard worker and up until recently was working hard in my job, but my renal doctor suggested a break as need to concentrate on my health. I have to say I don't think I would have got to 4.5% renal function had I have been working. Not working has given me more time dialysis free but of course that leads to money concerns.

I will write to my local MP about these changes as it's a poor move and ill thought out.

I hope you continue to get your support from your unit