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Peritoneal cancer
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RT results look good
After a bout of sepsis from a directed biopsy, 5 weeks of RT and 3 months of Eligard, my tests show undetectable PSA. I'm still dealing with side effects (interrupted sleep, urinary and bowel differences) but happy to report it looks like, for the time being, that my stage 2/3 PC may have been beaten
After a bout of sepsis from a directed biopsy, 5 weeks of RT and 3 months of Eligard, my tests show undetectable PSA. I'm still dealing with side effects (interrupted sleep, urinary and bowel differences) but happy to report it looks like, for the time being, that my stage 2/3 PC may have been beaten
Eadgbe
in
Fight Prostate Cancer
7 months ago
ET and colon cancer!
Hi Some days ago this video popped in my youtube about link between ET and colon or lung cancer. It said something like around 16% of ET patiens could develop lung or colon cancer. Anyone got some info or insight about this thing. I am diagnosed for 1 year wit JAK2 ET. Platelets are steady in the range
Hi Some days ago this video popped in my youtube about link between ET and colon or lung cancer. It said something like around 16% of ET patiens could develop lung or colon cancer. Anyone got some info or insight about this thing. I am diagnosed for 1 year wit JAK2 ET. Platelets are steady in the range
Myers75
in
MPN Voice
7 months ago
Diep Flap Procedure Question
Hi, I'm a breast cancer survivor and I had a double mastectomy. It is planned that I'm going to have the Diep flap procedure and I was wondering if anyone could advise me on how weight gain and loss affect the body after this procedure? Thanks
Hi, I'm a breast cancer survivor and I had a double mastectomy. It is planned that I'm going to have the Diep flap procedure and I was wondering if anyone could advise me on how weight gain and loss affect the body after this procedure? Thanks
Kerryellen
in
SHARE Breast Cancer Support
7 months ago
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Experiences with securing ss and private disability
Hello, Silent observor here, wife to Ed: Diagnosed with stage IV, Gleason 8, November 2020, with mets to nearby lymph nodes and lungs (of all places). Successfully treated so far with orchiectomy, Zytiga and prednisone with minimum SE. Age 60, living in PNW of US. Ed is considering an application
Hello, Silent observor here, wife to Ed: Diagnosed with stage IV, Gleason 8, November 2020, with mets to nearby lymph nodes and lungs (of all places). Successfully treated so far with orchiectomy, Zytiga and prednisone with minimum SE. Age 60, living in PNW of US. Ed is considering an application
MIkamom
in
Advanced Prostate Cancer
4 months ago
PSA 6 months after RT
Here is a review of a presentationby Dr. Ravi at ASCO 2023, regarding measuring the PSA at 6 months post radiation treatment, for all risk groups. He found that the 6-month post-RT PSA was highly prognostic of 5- and 10-year rates of metastasis free survival (MFS), Overall Survival (OS), and prostate
Here is a review of a presentationby Dr. Ravi at ASCO 2023, regarding measuring the PSA at 6 months post radiation treatment, for all risk groups. He found that the 6-month post-RT PSA was highly prognostic of 5- and 10-year rates of metastasis free survival (MFS), Overall Survival (OS), and prostate
janebob99
in
Prostate Cancer Network
7 months ago
Mistery therapy: Gastrin-releasing peptide receptors s target for PCa
I will have to dig deeper to find the 4 clinical trials mentioned, but here is the text "Each tumor has its own distinctive molecular identity. Treatment, therefore, should be tailored to this unique cancer phenotype. Theragnostics uses the same compound for targeted imaging and treatment, radiolabeled
I will have to dig deeper to find the 4 clinical trials mentioned, but here is the text "Each tumor has its own distinctive molecular identity. Treatment, therefore, should be tailored to this unique cancer phenotype. Theragnostics uses the same compound for targeted imaging and treatment, radiolabeled
Maxone73
in
Advanced Prostate Cancer
4 months ago
LIQUID BIOPSY: Hello friends, what do you know about Liquid biopsy of circulating tumor ctDNA? Is it usefull with 6.2 PSA ?
Hello friends, what do you know about Liquid biopsy of circulating tumor ctDNA? Is it usefull with 6.2 PSA ? Depending on the results do we get access to some novel drugs like olapariv or nivolumab, etc, that might help us ? đź« thanks, Manilo.
Hello friends, what do you know about Liquid biopsy of circulating tumor ctDNA? Is it usefull with 6.2 PSA ? Depending on the results do we get access to some novel drugs like olapariv or nivolumab, etc, that might help us ? đź« thanks, Manilo.
Manilo
in
Advanced Prostate Cancer
7 months ago
Blood test distinguishes neuroendocrine subtype of advanced prostate cancer
https://www.sciencedaily.com/releases/2024/01/240110120221.htm
https://www.sciencedaily.com/releases/2024/01/240110120221.htm
zeitgeistxx
in
Advanced Prostate Cancer
7 months ago
Update on my father
Dad was diagnosed in 2016 stage 4, bones and lymphnodes. We dont have a gleason score because his diagnoses was found through a hip xray after a fall and they biopsied his hip. He has had lupron, xgeva, bicalutamide and now he is on Xtandi. Dads last bone scan psa were July 8th. His bone scan showed
Dad was diagnosed in 2016 stage 4, bones and lymphnodes. We dont have a gleason score because his diagnoses was found through a hip xray after a fall and they biopsied his hip. He has had lupron, xgeva, bicalutamide and now he is on Xtandi. Dads last bone scan psa were July 8th. His bone scan showed
Radtech40
in
Advanced Prostate Cancer
7 months ago
Testosterone was nearly back to normal, then dropped
I had a year of Lupron and Enzalutamide in 2022. Testosterone slowly came back to a high of about 240 in June and Sept 2023. Normal for me is around 350 - 375. Now this week T is down to 156. Is this sort of fluctuation normal? I had 6 months of ADT in connection with radiation for recurrent PCa
I had a year of Lupron and Enzalutamide in 2022. Testosterone slowly came back to a high of about 240 in June and Sept 2023. Normal for me is around 350 - 375. Now this week T is down to 156. Is this sort of fluctuation normal? I had 6 months of ADT in connection with radiation for recurrent PCa
Teddy28
in
Advanced Prostate Cancer
7 months ago
Lupron Injection denied by Medicare Advantage PPO plan
My husband will need Lupron injections monthly x4. Two before starting radiation, and 2 during radiation treatment. The insurance, Medicare Advantage PPO, denied it. Anyone successfully appealed the denial? Any suggestions from the group? I checked and Medicare part D covers Lupron for the treatment
My husband will need Lupron injections monthly x4. Two before starting radiation, and 2 during radiation treatment. The insurance, Medicare Advantage PPO, denied it. Anyone successfully appealed the denial? Any suggestions from the group? I checked and Medicare part D covers Lupron for the treatment
Inquisitive_one
in
Advanced Prostate Cancer
7 months ago
Chemotherapy holiday
Good morning to all! I was diagnosed stage 4 mbc, er+, pr+, her2 low to+, 2 years ago. I also found out last summer I have the PIK3 mutation...not much luck with treatments. So far matastases have remained in bones. Was on Kinjinti, Femara, Faslodex for a few months, then Femara was withdrawn..kep the
Good morning to all! I was diagnosed stage 4 mbc, er+, pr+, her2 low to+, 2 years ago. I also found out last summer I have the PIK3 mutation...not much luck with treatments. So far matastases have remained in bones. Was on Kinjinti, Femara, Faslodex for a few months, then Femara was withdrawn..kep the
Tuckermom
in
SHARE Metastatic Breast Cancer
4 months ago
Trametinib
Hi , I have low grade serous ovarian cancer. I had debulking surgery in Jan 2020. I have been taking letrozole since then . The disease is present in pare aortic and other lymph nodes but growing slowly . Recent scan found progression into spleen and increase of growth speed . I'm just about to
Hi , I have low grade serous ovarian cancer. I had debulking surgery in Jan 2020. I have been taking letrozole since then . The disease is present in pare aortic and other lymph nodes but growing slowly . Recent scan found progression into spleen and increase of growth speed . I'm just about to
joanbaez
in
My Ovacome
7 months ago
Question about tumors
Hello everyone & Happy New Year!! I haven’t posted before, but I’m on here a lot reading posts to educate myself on treatments. My Mom was diagnosed Feb 2023 de novo stage 4 breast cancer to bones only. She had 2 1/2 rounds of Ibrance from April 23- June 23 (stopped Ibrance in July 23 due to shortness
Hello everyone & Happy New Year!! I haven’t posted before, but I’m on here a lot reading posts to educate myself on treatments. My Mom was diagnosed Feb 2023 de novo stage 4 breast cancer to bones only. She had 2 1/2 rounds of Ibrance from April 23- June 23 (stopped Ibrance in July 23 due to shortness
MBC2023
in
SHARE Metastatic Breast Cancer
7 months ago
FDA approval Alecensa (alectinib) following surgery for people with early stage ALK positive NSCLC
On April 18, 2024, the U.S. Food and Drug Administration (FDA) approved Alecensa (alectinib) following surgical resection for people living with early-stage ALK-positive non-small cell lung cancer (NSCLC). The approval is based on results from the ALINA study (NCT03456076). Participants with stage
On April 18, 2024, the U.S. Food and Drug Administration (FDA) approved Alecensa (alectinib) following surgical resection for people living with early-stage ALK-positive non-small cell lung cancer (NSCLC). The approval is based on results from the ALINA study (NCT03456076). Participants with stage
Miranda_GO2
Partner
in
Lung Cancer Support
4 months ago
Hospice
Sharing that my daughter and I are meeting with hospice for in home hospice care this afternoon. I was going to wait for one more CT scan and oncologist visit, but this past weekend I spent the whole weekend in bed and had so much weakness and breathing problems that I can't put it off any longer.
Sharing that my daughter and I are meeting with hospice for in home hospice care this afternoon. I was going to wait for one more CT scan and oncologist visit, but this past weekend I spent the whole weekend in bed and had so much weakness and breathing problems that I can't put it off any longer.
NPmary
in
SHARE Metastatic Breast Cancer
4 months ago
Stopping Tagrisso
Hi, I was diagnosed in May 2021 with lung cancer, adenocarcinoma, EFGR, I was very breathless, couldn’t eat and fatigued at the beginning. When I had results of lung biopsy, I was told I was suitable to be treated with Tagrisso, a target treatment, daily tablet, this was July 2021. I had few side
Hi, I was diagnosed in May 2021 with lung cancer, adenocarcinoma, EFGR, I was very breathless, couldn’t eat and fatigued at the beginning. When I had results of lung biopsy, I was told I was suitable to be treated with Tagrisso, a target treatment, daily tablet, this was July 2021. I had few side
Goldmoon
in
The Roy Castle Lung Cancer Foundation
7 months ago
BONE DENSITY TEST IS BAD
I am 68 with low volume metastatic to hip bones. Nothing elsewhere, at this time. Had PSA of 125 last April, and oncologist put me on Relogolix and Darolutemide. That along with going to plant based diet and adding weights and HITT exercise 3-4x per week, has brought me down to < .006. that’s the
I am 68 with low volume metastatic to hip bones. Nothing elsewhere, at this time. Had PSA of 125 last April, and oncologist put me on Relogolix and Darolutemide. That along with going to plant based diet and adding weights and HITT exercise 3-4x per week, has brought me down to < .006. that’s the
JL1955
in
Advanced Prostate Cancer
7 months ago
Holding very low stable usPSA - 0.03X range for six years; no ADT, no chemo.
Eight years ago this month had RP after considerable investigation - nadir 0.050. Eleven months later had salvage RT; done at 0.10. Then after a year of pondering ADT and chemo, when my usPSA was back up to 0.10, I went to Europe for Ferrotran nano-MRI combined with Ga68 PSMA. The nanoMRI lite up
Eight years ago this month had RP after considerable investigation - nadir 0.050. Eleven months later had salvage RT; done at 0.10. Then after a year of pondering ADT and chemo, when my usPSA was back up to 0.10, I went to Europe for Ferrotran nano-MRI combined with Ga68 PSMA. The nanoMRI lite up
NanoMRI
in
Advanced Prostate Cancer
7 months ago
Full circle with this disease
Diagnosed 2017 PSA 105 started ADT, 6 rounds Docetaxel and radiation PSA drops to undetectable. Castrate resistant 2022 started Abiraterone and prednisone this failed after 3 months. Start Xgeva and Xofigo 2023. PSA back at 105 November 2023. Start 10 rounds of Docetaxel and PSA starts dropping again
Diagnosed 2017 PSA 105 started ADT, 6 rounds Docetaxel and radiation PSA drops to undetectable. Castrate resistant 2022 started Abiraterone and prednisone this failed after 3 months. Start Xgeva and Xofigo 2023. PSA back at 105 November 2023. Start 10 rounds of Docetaxel and PSA starts dropping again
Islandboy2021
in
Advanced Prostate Cancer
7 months ago
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