My dear father is ill: Hello to... - Advanced Prostate...

Advanced Prostate Cancer

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My dear father is ill

Sleepingbeauty47 profile image
19 Replies

Hello to everyone!

I am concerned daughter of 76 years old father, looking for help.

He was diagnosed with prostate adenocarcinoma, grade group 3, Gleason 4+3=7 in August this year. His PSA was 528, a month later 859. Multiple bone metastases (scull, shoulder, spone, pelvis…) found on bone scintygraphy.

25.9. 2023. started Reseligo 10.8 mg (every 3 months) and 16.10. 2023. Erleada 240mg daily was added. His PSA yesterday was 6.7.

He is otherwise healthy and fit man, still working but now very concerned an depressed.

Any advice, opinion and consolation is much appreciated.

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Sleepingbeauty47 profile image
Sleepingbeauty47
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19 Replies
Boywonder56 profile image
Boywonder56

Take a breath.you found a grate place....were all rowing the same boat.Sound like hes responding well to treatment....ive been on erleada/ lupron for 6 yrs. The guys who are the braintrust will chime in....i apologise for j.o.h.n. b4 hand..hes a struggling comedian...bw

Sleepingbeauty47 profile image
Sleepingbeauty47 in reply toBoywonder56

Thank you, great to hear you are doing well!

Kaliber profile image
Kaliber in reply toBoywonder56

Yayahahahaya. J-o-h-n is a “ special “ treasure.

😂😂😂

Tall_Allen profile image
Tall_Allen

He should also be getting docetaxel right away (if he waits, it will not help). This is called "triplet therapy." You can read more about it here:

prostatecancer.news/2021/05...

Sleepingbeauty47 profile image
Sleepingbeauty47 in reply toTall_Allen

Thank you, I have to see if the oncologist will agree.

Sleepingbeauty47 profile image
Sleepingbeauty47 in reply toSleepingbeauty47

Docetaxel not available for him where we live.

MoonRocket profile image
MoonRocket in reply toSleepingbeauty47

Where do you live? It's possible a fellow resident is a HU male care member and can provide help.

Sleepingbeauty47 profile image
Sleepingbeauty47 in reply toMoonRocket

EU

MoonRocket profile image
MoonRocket in reply toSleepingbeauty47

That doesn't help much since each country in the EU determines which treatments are covered...which country?

Sleepingbeauty47 profile image
Sleepingbeauty47 in reply toMoonRocket

Croatia

dadsdrdawn profile image
dadsdrdawn

I was here for my father as well, and he is lucky to have you. Thankfully, he is responding to treatment.

My "advice" is always the same. ESPECIALLY since he is relatively healthy otherwise.

Keep him focused on things to look forward to, and to not continually talk about his cancer.

My father never complained, and together we searched out conventional and non-conventional methods to help him live longer BUT with vitality.

That was through activity, travel, art, music and family time. He had prostate cancer for 17 years, and passed this August at 88, peacefully.

I urge you to check out Dr. Geo Espinosa. A mens health advocate, urologist and AMAZING man that helped my father LIVE with happiness, and not focus on being a "patient" at all times.

drgeo.com/

I will pray for you both, as I do for all of us here.

Sending you blessings and healing prayers,

Dawn

Sleepingbeauty47 profile image
Sleepingbeauty47 in reply todadsdrdawn

Thank you for really beautiful words. It really means a lot to me. Very encouraging to hear your father lived that long. Many thanks!

Nfler profile image
Nfler in reply toSleepingbeauty47

I’ve listened to Dr Geo as well, little quirky but straight forward n very informed, he had Dr Rana McKay one of our oncologists here at ucsd on his pod cast. They covered a lot of great info n collaborated well on the controversial subjects. Dr Scholz is pretty good as well. Good luck as your father is fortunate to have you as an advocate n most importantly keep an open mind on all different treatments including the alternative ones…😊😇

Sleepingbeauty47 profile image
Sleepingbeauty47 in reply toNfler

Thank you, Nfler👍🏻

kieferm5 profile image
kieferm5

I also came to this site for my father and it helped me quite a bit just to read about the similar experiences people had.

It sounds like your father has almost the exact same diagnosis as mine and my father lived a long, great and full life the entire time from when he was diagnosed up until the very end. Many great years that I am happy to have been able to have!

The entire process really opened my eyes to just how quickly things are advancing in the world of cancer medication. There are very amazing medications and treatments available right now and I think if he had been diagnosed even a bit later than he had been, he probably would have had exponentially more time.

My advice is just to stay on top of the research yourself so that you have a good idea of what's going on and be sure to move quickly if anything changes from any of his medical results. I've found that every doctor we dealt with had very different opinions on things and, even though you have to have some trust in your doctors, I've found it helps to at least have some working knowledge of what they're talking about.

It's a very scary process to go through for everyone involved, there's no doubt about it. I'm sure it will help immensely for your father just to be there for him and to treasure your time together! But there is quite a lot of hope out there in the current world of cancer treatment. My father was very healthy and capable for a long time!

Praying for you!

Sleepingbeauty47 profile image
Sleepingbeauty47 in reply tokieferm5

Really nice words, you made my eyes tear up. This is very tough period for me. I hope my father will live many more years too, although sometimes I feel so helpless…

Thank you!

Rocketman1960 profile image
Rocketman1960

Remember a good attitude can only help and the one thing you have complete control of. In your search for answers start with a positive mental attitude to the dilemma. Breath, stay in the moment. Turn your fears over to a higher power.

Sleepingbeauty47 profile image
Sleepingbeauty47 in reply toRocketman1960

Good point…

Sleepingbeauty47 profile image
Sleepingbeauty47

Hello dear friends!

I’d like to share latest information about my dad’s PC, in case anybody is interested. It is now one year since his dg., it’s been a very hard time for our family.

He is feeling great, still working, but he can’t stop thinking about his illness…

His PSA from last week is 0.48, T 0.77.

His therapy is the same, Reseligo plus Erleada.

I wish you all the best, all the happines, peace and all the health in the world. Hope to be here with you for many, many years. You mean a lot to me, glad that I found you.

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