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Gleason 9 prostate cancer
Hello - my husband has aggressive gleason 9 prostate cancer. He had a prostatectomy in August 2015 but his psa remained high, suggesting it had already left the prostate. He then had IMRT to his pelvic area and was started on Zoladex adt (3monthly injections). He became castrate resistant so abiraterone
Hello - my husband has aggressive gleason 9 prostate cancer. He had a prostatectomy in August 2015 but his psa remained high, suggesting it had already left the prostate. He then had IMRT to his pelvic area and was started on Zoladex adt (3monthly injections). He became castrate resistant so abiraterone
69HumptyDumpty
in
Prostate Cancer Network
2 months ago
Advanced Prostate Cancer to bone and liver
My Dad was diagnosed with Prostate Cancer back in 2011. Here is his history (sorry if this is too much information). PROBLEM LIST Prostate cancer, status post prostatectomy, Gleason 4 + 5 = 9, March 2011. Pathology: ypT3b pN1 cM0, stage IV with positive obturator node. Adjuvant Lupron for 2 years
My Dad was diagnosed with Prostate Cancer back in 2011. Here is his history (sorry if this is too much information). PROBLEM LIST Prostate cancer, status post prostatectomy, Gleason 4 + 5 = 9, March 2011. Pathology: ypT3b pN1 cM0, stage IV with positive obturator node. Adjuvant Lupron for 2 years
swelnetz
in
Advanced Prostate Cancer
2 months ago
UC San Fran
So we are tossing around the idea of moving to Nevada from California due to high cost of living. I contacted UCSF and told them we can be in California for Zoom calls and of course treatment. But could Jim get his Lupron and bloodwork out of state. We were told you have to be a permanent California
So we are tossing around the idea of moving to Nevada from California due to high cost of living. I contacted UCSF and told them we can be in California for Zoom calls and of course treatment. But could Jim get his Lupron and bloodwork out of state. We were told you have to be a permanent California
JWPMP
in
Advanced Prostate Cancer
2 months ago
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Trust in Healthcare - View Sessions Now!
Links now open Opening remarks by Dr. Elster and Darryl Mitteldorf, LCSW https://youtu.be/zFRCXKByqH0 https://youtu.be/atjTsMIkV2Q Dr. Callen Baker discusses the importance of creating inclusive healthcare environments for LGBTQ+ patients. https://youtu.be/6k0JNFofwUs Tom shares his personal journey
Links now open Opening remarks by Dr. Elster and Darryl Mitteldorf, LCSW https://youtu.be/zFRCXKByqH0 https://youtu.be/atjTsMIkV2Q Dr. Callen Baker discusses the importance of creating inclusive healthcare environments for LGBTQ+ patients. https://youtu.be/6k0JNFofwUs Tom shares his personal journey
Darryl
Partner
in
Prostate Cancer Network
2 months ago
PSA still undetectable and testosterone doubles to 1.6
Just an update as I yesterday was blood test day. I’m continuing with the Apalutamide monotherapy, still enjoying working full time and just back from an Italian lake holiday. So no movement on my PSA but interesting to see testosterone creeping up ( 11 months since my last Zoledex injection so 8
Just an update as I yesterday was blood test day. I’m continuing with the Apalutamide monotherapy, still enjoying working full time and just back from an Italian lake holiday. So no movement on my PSA but interesting to see testosterone creeping up ( 11 months since my last Zoledex injection so 8
Brysonal
in
Fight Prostate Cancer
2 months ago
Docetaxel
Anyone willing to share experiences with Docetaxel? Good, Bad, and Ugly. Any recommendations or advice to help with side effects etc. My husband is in year 7… He has been on the traditional SOC with ADT… Lupron, Firmagon, Nubequa, and lastly Zytiga. All have ceased working. His PSA has risen to
Anyone willing to share experiences with Docetaxel? Good, Bad, and Ugly. Any recommendations or advice to help with side effects etc. My husband is in year 7… He has been on the traditional SOC with ADT… Lupron, Firmagon, Nubequa, and lastly Zytiga. All have ceased working. His PSA has risen to
JolleySprings
in
Advanced Prostate Cancer
2 months ago
Rising PSA
I turned 87 just 3 days' ago. My QOL is still good: no pain, and a lot of physical activity. Fatigue is mostly annoying, but I generally can work through it. The issue is my concern with a slowly rising PSA. Today's blood test showed a PSA of 1.5. How concerned should I be, and are there steps to
I turned 87 just 3 days' ago. My QOL is still good: no pain, and a lot of physical activity. Fatigue is mostly annoying, but I generally can work through it. The issue is my concern with a slowly rising PSA. Today's blood test showed a PSA of 1.5. How concerned should I be, and are there steps to
Poollover
in
Advanced Prostate Cancer
2 months ago
Trust in Healthcare session links for Wednesday June 26
Links now open Opening remarks by Dr. Elster and Darryl Mitteldorf, LCSW https://youtu.be/zFRCXKByqH0 https://youtu.be/atjTsMIkV2Q Dr. Callen Baker discusses the importance of creating inclusive healthcare environments for LGBTQ+ patients. https://youtu.be/6k0JNFofwUs Tom shares his personal journey
Links now open Opening remarks by Dr. Elster and Darryl Mitteldorf, LCSW https://youtu.be/zFRCXKByqH0 https://youtu.be/atjTsMIkV2Q Dr. Callen Baker discusses the importance of creating inclusive healthcare environments for LGBTQ+ patients. https://youtu.be/6k0JNFofwUs Tom shares his personal journey
Darryl
Partner
in
Advanced Prostate Cancer
2 months ago
Is PSMA PET Scan worth it when PSA<0.2
My MO recommends taking PET CT F18 -DCFPYL in case I want to go intermittent after two years of Lupron and Erleada. My PSA is still less than 0.2. I had one PSMA in March 2022 when PSA was rising to 1.03. Scan show 3 preaortic lymph nodes and two spot on ribs. Then 6 weeks RT and ADT (Lupron, Erleada
My MO recommends taking PET CT F18 -DCFPYL in case I want to go intermittent after two years of Lupron and Erleada. My PSA is still less than 0.2. I had one PSMA in March 2022 when PSA was rising to 1.03. Scan show 3 preaortic lymph nodes and two spot on ribs. Then 6 weeks RT and ADT (Lupron, Erleada
Maxi54
in
Advanced Prostate Cancer
2 months ago
Bisoporol instead of Tildiem
Hoping for some advice. My wife has HCM and has had an ablation a few years ago. Her Afib seemed to calm down but recently it has increased dramatically. The ablation was carried out in London and appointments were not too difficult to obtain. We now live in Gloucestershire and it seems that getting
Hoping for some advice. My wife has HCM and has had an ablation a few years ago. Her Afib seemed to calm down but recently it has increased dramatically. The ablation was carried out in London and appointments were not too difficult to obtain. We now live in Gloucestershire and it seems that getting
sharpedge
in
Atrial Fibrillation Support
2 months ago
High ALT, AST number in blood work
Hii all , Today my father got his latest blood report . PSA down to 2.96 from 7.95 (initially diagnosed at 79.5). PSA is gradually going down which i think may be a good sign . But in todays report ALT came at 102.8U/l and AST at 67.8 U/l . In last report 2 months back it was 27.3 and 23.8 respectively
Hii all , Today my father got his latest blood report . PSA down to 2.96 from 7.95 (initially diagnosed at 79.5). PSA is gradually going down which i think may be a good sign . But in todays report ALT came at 102.8U/l and AST at 67.8 U/l . In last report 2 months back it was 27.3 and 23.8 respectively
jeetu_g27
in
Advanced Prostate Cancer
2 months ago
Slowly rising PSA
Hello, now 1 year of Eligard and 8 months on Erleada. The 3 months shot of Eligard is what I hate most. It burns like hell when injected.So far the usual side effects like hotflashes, humor changes which might make my wife kill me one day (better than to die from PC), fatique which I ignore. Did 25 years
Hello, now 1 year of Eligard and 8 months on Erleada. The 3 months shot of Eligard is what I hate most. It burns like hell when injected.So far the usual side effects like hotflashes, humor changes which might make my wife kill me one day (better than to die from PC), fatique which I ignore. Did 25 years
Tbo1950
in
Advanced Prostate Cancer
2 months ago
Lymph Node Irradiation for a Potential Cure
I have read that some men have been cured from earlier posts that I have read. Currently I have been on abiraterone and Lupron for 21 months. I only had one docetaxel, before catching pneumonia, so chemo was halted by my oncologist, stating the chemo would kill me before the cancer. The one chemo
I have read that some men have been cured from earlier posts that I have read. Currently I have been on abiraterone and Lupron for 21 months. I only had one docetaxel, before catching pneumonia, so chemo was halted by my oncologist, stating the chemo would kill me before the cancer. The one chemo
TuffNuttoCrack
in
Advanced Prostate Cancer
2 months ago
MY WARRIOR FACE IS BEAMING!!!
🌹 just like to say thank you for all the loving messages I received yesterday 🤓🌹🤓The reason I'm so so scared is I had colon cancer 5 years ago and I was at death's door however🙏 I KICKED ITS BUTT!!🤨😖😎. That's why any type of new cancer scares me so bad 😔😓😔 SO HIGH HOPES AND HERE'S
🌹 just like to say thank you for all the loving messages I received yesterday 🤓🌹🤓The reason I'm so so scared is I had colon cancer 5 years ago and I was at death's door however🙏 I KICKED ITS BUTT!!🤨😖😎. That's why any type of new cancer scares me so bad 😔😓😔 SO HIGH HOPES AND HERE'S
Tawnie123
in
NRAS
2 months ago
hair loss
I was wondering what others experience has been with hair loss during docetaxel. I completed my 10th round on May 2. After my first five treatments, I didn’t really lose any hair, and then the last five it got thinner, but I still had a decent amount. Now, over a month since my last treatment I seem
I was wondering what others experience has been with hair loss during docetaxel. I completed my 10th round on May 2. After my first five treatments, I didn’t really lose any hair, and then the last five it got thinner, but I still had a decent amount. Now, over a month since my last treatment I seem
Oct18
in
Advanced Prostate Cancer
2 months ago
Five years later
Good day to all fellow warriors, I used to post as Arnie1970, but that account stopped working. After the initial scare of a stage 4 cancer diagnosis, a lot has happened. Four grand children were born( two boys, two girls). I stopped working, and we traveled a lot. Even though I stopped writing.
Good day to all fellow warriors, I used to post as Arnie1970, but that account stopped working. After the initial scare of a stage 4 cancer diagnosis, a lot has happened. Four grand children were born( two boys, two girls). I stopped working, and we traveled a lot. Even though I stopped writing.
ArnieAfrica
in
Advanced Prostate Cancer
2 months ago
Looking for vitamin C infusions in Perth, Western Australia without glutathione?
Dear all Vitamin C infusions were tremendously helpful for my Dad in 2017 when he was diagnosed with metastatic prostate cancer and underwent a prostatectomy, chemotherapy and radiotherapy. Now trying to find them again. Those I have found include glutathione which I think is not good with cancer.
Dear all Vitamin C infusions were tremendously helpful for my Dad in 2017 when he was diagnosed with metastatic prostate cancer and underwent a prostatectomy, chemotherapy and radiotherapy. Now trying to find them again. Those I have found include glutathione which I think is not good with cancer.
TomsD1
in
Advanced Prostate Cancer
2 months ago
After Lupron I have been having seizures
Hi, In December 2023 I decided to finally undergo treatment for my prostate cancer, Gleason scale 6, with a high PSA of 63 (or 48 on another test) I had had this cancer for eight years WITHOUT it spreading. But doctors kept warning (I would almost say harassing) me, so... I underwent one shot of lupron
Hi, In December 2023 I decided to finally undergo treatment for my prostate cancer, Gleason scale 6, with a high PSA of 63 (or 48 on another test) I had had this cancer for eight years WITHOUT it spreading. But doctors kept warning (I would almost say harassing) me, so... I underwent one shot of lupron
darrylw
in
Advanced Prostate Cancer
2 months ago
How do I update my bio?
My bio on Health Unlocked website needs updating. How do I do that? I can't seem to update my bio from 2023. I'm interested in adding PSAs and testosterone quarterly blood tests from 2023 and 2024. My good new is that my PSA has been 0.01 "nearly undetectable" for more than a year. My MO said don't
My bio on Health Unlocked website needs updating. How do I do that? I can't seem to update my bio from 2023. I'm interested in adding PSAs and testosterone quarterly blood tests from 2023 and 2024. My good new is that my PSA has been 0.01 "nearly undetectable" for more than a year. My MO said don't
happycamperguy
in
Advanced Prostate Cancer
2 months ago
T never recovered after ADT and 44 EBRT sessions.
I had gleason 7 /3+4. Completed ADT and EBRT (44 sessions) November of 2020. Undetectable psa up until 6 months ago. Then went to 0.1. I had been taking Androgel ( 2 pumps daily) my MO declared that I was " out of remission" and I then stopped the TRT. Since then, I've had two psa tests at 3 month intervals
I had gleason 7 /3+4. Completed ADT and EBRT (44 sessions) November of 2020. Undetectable psa up until 6 months ago. Then went to 0.1. I had been taking Androgel ( 2 pumps daily) my MO declared that I was " out of remission" and I then stopped the TRT. Since then, I've had two psa tests at 3 month intervals
Chasu
in
Advanced Prostate Cancer
2 months ago
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