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Is there a link between hemangiomas and Hughes Syndrome.
Hi, I have many autoimmune diseases as well as triple positive APs. Spinal scans have shown five hemangiomas on my spine. Another appeared on my trunk when I were in my teens and was surgically removed. Many smaller one's over the years have appeared on my scalp, face, chest and trunk. Does anyone
Hi, I have many autoimmune diseases as well as triple positive APs. Spinal scans have shown five hemangiomas on my spine. Another appeared on my trunk when I were in my teens and was surgically removed. Many smaller one's over the years have appeared on my scalp, face, chest and trunk. Does anyone
Jillymo
in
Hughes Syndrome APS Forum
19 days ago
Apomorphine
Has anyone here, particularly with drug resistant tremor, been put on apomorphine? It sounds like a nightmare; a drug that has no relation to morphine, that's meant for dogs, makes you incredibly nauseous and sick, needs to be administered via a pump or injection and would be given during off periods
Has anyone here, particularly with drug resistant tremor, been put on apomorphine? It sounds like a nightmare; a drug that has no relation to morphine, that's meant for dogs, makes you incredibly nauseous and sick, needs to be administered via a pump or injection and would be given during off periods
mach262
in
Cure Parkinson's
10 months ago
Ex NAFLD club
HiI want to form a club of ex NAFLD sufferers. You would have to achieved a clear diagnosis, 'no fibrosis' no fat infiltration. Of course we would have a club tie and big ourselves up why not? But we would also unashamedly promote the healthy diet and exercise that can conquer this dreadful insiduous
HiI want to form a club of ex NAFLD sufferers. You would have to achieved a clear diagnosis, 'no fibrosis' no fat infiltration. Of course we would have a club tie and big ourselves up why not? But we would also unashamedly promote the healthy diet and exercise that can conquer this dreadful insiduous
Iro1
in
British Liver Trust
19 days ago
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Physical symptoms and untreated ascites concerns
My husband was diagnosed with alcoholic cirrhosis in September of last year. In 2022 he had an endoscopy that revealed portal hypertension gastropathy. He has lost a lot of weight in his neck, chest and arms and looks terrible gaunt, but in the last six months his stomach has ballooned with what I
My husband was diagnosed with alcoholic cirrhosis in September of last year. In 2022 he had an endoscopy that revealed portal hypertension gastropathy. He has lost a lot of weight in his neck, chest and arms and looks terrible gaunt, but in the last six months his stomach has ballooned with what I
cindyluhu
in
British Liver Trust
19 days ago
Should I undergo Triplet therapy?
Was diagnosed with stage-4 prostrate cancer with metastasis to lymph nodes and bones in April 2024. PSA was 400 when diagnosed and it shot up to 700 in a month. Started with Lupron and Nubeqa. PSA has come down to 8 in 2 months. Next PSA test (after 3rd month) is tomorrow. My Oncologist wants to
Was diagnosed with stage-4 prostrate cancer with metastasis to lymph nodes and bones in April 2024. PSA was 400 when diagnosed and it shot up to 700 in a month. Started with Lupron and Nubeqa. PSA has come down to 8 in 2 months. Next PSA test (after 3rd month) is tomorrow. My Oncologist wants to
Samrecan
in
Advanced Prostate Cancer
19 days ago
Diagnosed with stage 4 prostate cancer June 23. Chemotherapy 6 sessions and now on Nubequ. PSA was 147, now 2.4
Diagnosed with stage 4 prostate cancer June 23. Chemotherapy 6 sessions and now on Nubequ. PSA was 147, now 2.4
Diagnosed with stage 4 prostate cancer June 23. Chemotherapy 6 sessions and now on Nubequ. PSA was 147, now 2.4
PaddyD77
in
Advanced Prostate Cancer
20 days ago
adrenal insufficiency and reduced renal function
hi, I am now on 3.5mg of prednisolone and suffering with some symptoms of adrenals struggling. I am experiencing fatigue and some tummy symptoms, occasional diarrhoea and quite often nausea. I have regular blood tests (eGFR) for kidney function and my last one showed my kidney function to have dropped
hi, I am now on 3.5mg of prednisolone and suffering with some symptoms of adrenals struggling. I am experiencing fatigue and some tummy symptoms, occasional diarrhoea and quite often nausea. I have regular blood tests (eGFR) for kidney function and my last one showed my kidney function to have dropped
Koalajane
in
PMRGCAuk
20 days ago
Coronary Artery Bypass Grafting for a MIDCAB,
I’m waiting for a coronary Artery bypass grafting for a midcab . Has anybody had one. I would like to know anybody’s experiences . I have a total blockage of my Lad and consultant was unable to stent this.
I’m waiting for a coronary Artery bypass grafting for a midcab . Has anybody had one. I would like to know anybody’s experiences . I have a total blockage of my Lad and consultant was unable to stent this.
Lemon31
in
British Heart Foundation
7 months ago
GU Cast: 2024 Prostate Cancer Olympics
An interview with 2 PCa MO's -- excellent for learning how they think and treatment tools as of July 2024. I highly recommend viewing it. https://www.youtube.com/watch?v=6NqT9z1c8aw&t=2332s
An interview with 2 PCa MO's -- excellent for learning how they think and treatment tools as of July 2024. I highly recommend viewing it. https://www.youtube.com/watch?v=6NqT9z1c8aw&t=2332s
Derf4223
in
Advanced Prostate Cancer
21 days ago
PSMA scans-any update?
Saw this link this morning. Any update on this research or trials? Kinda describes my situation: after surgery and radiation PSA climbing. PSMA showed metastatic lymph nodes. Rather than watch and wait, they were radiated. PSA now seems to have dropped. Thanks. https://youtu.be/usXbPe_1YYc?si=cZB8L4YZ7y0w7qSJ
Saw this link this morning. Any update on this research or trials? Kinda describes my situation: after surgery and radiation PSA climbing. PSMA showed metastatic lymph nodes. Rather than watch and wait, they were radiated. PSA now seems to have dropped. Thanks. https://youtu.be/usXbPe_1YYc?si=cZB8L4YZ7y0w7qSJ
Geno2853
in
Advanced Prostate Cancer
21 days ago
Liver symptoms appeared after treatment
Hi, guys, Its been 3 years since I last wrote. I had some liver issues back then which which disappeared some time at the end of 2021 .During that time I had made 6 fibroscans in different medical facilities, I had 2 biopsies, gastroscopy...blood tests and so on. It show nothing but Hepatitis C with
Hi, guys, Its been 3 years since I last wrote. I had some liver issues back then which which disappeared some time at the end of 2021 .During that time I had made 6 fibroscans in different medical facilities, I had 2 biopsies, gastroscopy...blood tests and so on. It show nothing but Hepatitis C with
Motik
in
British Liver Trust
21 days ago
Kidney function and hypothyroidism?
My hypothyroidism was finally acknowledged six weeks ago. I've been on 50mcg daily. I've just had the first blood test since starting treatment. My fT4 has 'risen' from 8.8% to 9.3%. My TSH has dropped below 1 (0.7) for the first time according to blood tests going back to 2007. I'm a bit disappointed
My hypothyroidism was finally acknowledged six weeks ago. I've been on 50mcg daily. I've just had the first blood test since starting treatment. My fT4 has 'risen' from 8.8% to 9.3%. My TSH has dropped below 1 (0.7) for the first time according to blood tests going back to 2007. I'm a bit disappointed
Agitator23
in
Thyroid UK
21 days ago
Barry
Hi fellow warriors, diagnosed with advanced prostate cancer 15 months ago have been on adt 6 month injections plus xtandi both have stoped working had radio therapy on my back last month for leg pain, now have numb chin pain have refused radio thetapy on head and chemo therapy, my gleeson score is 8
Hi fellow warriors, diagnosed with advanced prostate cancer 15 months ago have been on adt 6 month injections plus xtandi both have stoped working had radio therapy on my back last month for leg pain, now have numb chin pain have refused radio thetapy on head and chemo therapy, my gleeson score is 8
littlemount
in
Advanced Prostate Cancer
21 days ago
Budesonide
Hi, I'm currently being investigated for Crohn's. I've had bowel issues for over 20 years and always been told it's IBS. Anyway three years ago, I had my gallbladder removed and my symptoms went in to overload mode. My calprotectin levels were in the hundreds. Since then I've had three colonoscopies
Hi, I'm currently being investigated for Crohn's. I've had bowel issues for over 20 years and always been told it's IBS. Anyway three years ago, I had my gallbladder removed and my symptoms went in to overload mode. My calprotectin levels were in the hundreds. Since then I've had three colonoscopies
Sunita77
in
Crohn's and Colitis Support
22 days ago
ADT reduced Zytiga and PCa variants
Been on Zytiga over a year, taken with Xgeva and Lupron. During the two pill test period of Zytiga, no food - 2hrs and + 1hr, my T and PSA became undetectable. Convinced the powers to continue with 2 pills to possibly reduce side effects and prolong effectiveness. T and PSA undetectable after a year
Been on Zytiga over a year, taken with Xgeva and Lupron. During the two pill test period of Zytiga, no food - 2hrs and + 1hr, my T and PSA became undetectable. Convinced the powers to continue with 2 pills to possibly reduce side effects and prolong effectiveness. T and PSA undetectable after a year
Wgly
in
Advanced Prostate Cancer
23 days ago
Lupus AND lyme disease?
Any lupus warriors here who have had Lyme disease and if so can you share your experience? I have sle and am on methotrexate, hydroxycloriquine and prednisolone— I went on a backpacking trip 4 weeks ago and ended up with a bite that developed into a bullseye rash. Before I knew what it was I started
Any lupus warriors here who have had Lyme disease and if so can you share your experience? I have sle and am on methotrexate, hydroxycloriquine and prednisolone— I went on a backpacking trip 4 weeks ago and ended up with a bite that developed into a bullseye rash. Before I knew what it was I started
ShannonB
in
LUPUS UK
23 days ago
GCA and aneurysms
I had a chest CT scan and read the results on MyChart. They found a 4.6 aneurysmal dilation in my ascending aorta. I sent a message to my doctor yesterday regarding this and I have heard nothing! I’m quite anxious and surprised to not have heard anything back yet. I guess I’m just wondering if my
I had a chest CT scan and read the results on MyChart. They found a 4.6 aneurysmal dilation in my ascending aorta. I sent a message to my doctor yesterday regarding this and I have heard nothing! I’m quite anxious and surprised to not have heard anything back yet. I guess I’m just wondering if my
luv2read
in
PMRGCAuk
23 days ago
stabbing pain inProstate
Good morning to all I have been on Erleada and Degarelix for 15 months without much side effects ( except for hot flashes and tiredness) My PSA last month was 0.13 and my Test was 1.0 Gleason 4+3 Metastatic with diffused bone metastases. For the last few days I feel some stabbing pain in my prostate
Good morning to all I have been on Erleada and Degarelix for 15 months without much side effects ( except for hot flashes and tiredness) My PSA last month was 0.13 and my Test was 1.0 Gleason 4+3 Metastatic with diffused bone metastases. For the last few days I feel some stabbing pain in my prostate
Raminagrobis
in
Advanced Prostate Cancer
23 days ago
To PET or not to PET
I have been on nubeqa and orgovyx for over six months now. Blood draw this week shows my PSA level at <.10 beginning 30 days of starting those two drugs. My MO suggested I have a regular PET scan. No need for a PSMA scan because my PSA is basically undetectable. I am having trouble rationalizing the
I have been on nubeqa and orgovyx for over six months now. Blood draw this week shows my PSA level at <.10 beginning 30 days of starting those two drugs. My MO suggested I have a regular PET scan. No need for a PSMA scan because my PSA is basically undetectable. I am having trouble rationalizing the
Jvaughan0
in
Advanced Prostate Cancer
23 days ago
PSA 1.175 Down from 21, 6 weeks ago. Is this good ?
After 6 weeks only on orgovyx my PSA has dropped to 1.175 from 21 and testosterone to 25 from 400. Are these numbers ok ? I read many here say their testosterone numbers are much lower - in single digits. Hence I am wondering if I should switch to Firmagon and see if they drop more. Do testosterone
After 6 weeks only on orgovyx my PSA has dropped to 1.175 from 21 and testosterone to 25 from 400. Are these numbers ok ? I read many here say their testosterone numbers are much lower - in single digits. Hence I am wondering if I should switch to Firmagon and see if they drop more. Do testosterone
Simpson80
in
Advanced Prostate Cancer
23 days ago
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