Barry

[littlemount]

Hi fellow warriors, diagnosed with advanced prostate cancer 15 months ago have been on adt 6 month injections plus xtandi both have stoped working had radio therapy on my back last month for leg pain, now have numb chin pain have refused radio thetapy on head and chemo therapy, my gleeson score is 8 my psa 350, i have read that numb chin syndrome indicates the beginning of the end, any comments please. Thanks.

[APK3]

Just curious why you refuse chemo?

[littlemount in reply to APK3]

Seen it before on other people its not for me

[APK3 in reply to littlemount]

Fair enough...

[arete1105]

I have been through both radiation and chemo. Your Gleason is not that bad. But I would take a look at Ivermectin, Phenbendazole. There is an excellent book out called Miracles from the Vault. Researched by an MD, Dr. Searles I believe. Their chapter on cancer is excellent with natural remedies he found from all over the world. Used it is less than $10 shipped. I am using several from that book including the above. Hope this helps.

[Tinkudi in reply to arete1105]

What are you using from that

[Roxysdad]

Barry..first of all how old are you and where are you located?…I’m no fan of chemo also but when I went metastatic PC I did 9 rounds of Jevtana (chemo) and had no hair loss and no nausea….1 hr in the chair every 3 weeks…I realize everyone is different but it was a piece of cake for me and at the time I was 81….So you might wanna look into Jevtana…As far as other problems ( including your head) look into Proton Beam Therapy….I have “hot spots” on my bones they treat with Proton Therapy…My latest scans show a small “spot” at the base of my skull…,Going to have it zapped in a couple of weeks..,.I’m in So Ca so Proton Beam Therapy is available…Good luck my friend.

[Mikes21 in reply to Roxysdad]

Where in So cal? I’m in San Diego and may need a new MO? Is your oncologist really good and I may be interested in proton when needed. Thx

[Roxysdad in reply to Mikes21]

I’m at ucsd…outstanding PC oncologists….drs Rena McKay and Tyler Stuart (Tyler’s my guy).,.,Ca Protons is about a mile (north ) off of Miramar Rd…Head oncologist there is Dr Carl Rossi…Good guy….Ca Protons is a first class operation…had many treatments there….absolutely no pain or side effects…They’ve been putting out my “fires “ for years.,,,,

[Roxysdad in reply to Roxysdad]

Forgot…..I live in OB

[Mikes21 in reply to Roxysdad]

Thanks for the info. I’ll see if I can get a consult with him

[Professorgary]

if you are sure you are not going proceed with conventional treatment you might want to check Joe Tippens protocol. You can find his followers and read some testimonies on FB “my cancer story rocks.” God bless.

[dmt1121]

You might try messaging tall Allen directly to see if he can offer any guidance. Goodluck.

[LakeT]

Like you I had experience with other people on Chemo. It seemed considerably easier to cope with thank I had imagined, but still tough.

[Mgtd in reply to LakeT]

Over the last week or so I have noticed postings on not wanting to do chemo because of other people’s experience or simply word of mouth.

As I read those postings one thought keeps coming to my mind. Are we comparing apples to apples. By that the chemo for prostate cancer is milder and has less side effects then say other forms of chemotherapy.

So I guess I am wondering why this anti chemo attitude?