Lupus AND lyme disease?: Any lupus warriors here... - LUPUS UK

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Lupus AND lyme disease?

ShannonB profile image
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Any lupus warriors here who have had Lyme disease and if so can you share your experience? I have sle and am on methotrexate, hydroxycloriquine and prednisolone— I went on a backpacking trip 4 weeks ago and ended up with a bite that developed into a bullseye rash. Before I knew what it was I started getting joint pain and muscle issues that were atypical for my lupus— namely left tennis elbow and calf muscle pain. I also felt like my lupus was flaring. As soon as I saw the rash I got to the gp and the hospital diagnosed lyme. So I’m being treated within the six week window.

I’m on day 2 of the antibiotics and today I feel really rough— like a bad bad Lupus flare.

I just wonder how long things carry on and whether my lupus will exacerbate the issues. Anyone been through this?

Thank you.

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ShannonB
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MrsMarigold profile image
MrsMarigold

Yes Shannon I have twice. I came through it fine and was grateful for the antibiotics. They worked very well. I. Did get retested at a later date to make sure it was gone. I don’t recall feeling too crappy. The antibiotics worked. Best, MM

ShannonB profile image
ShannonB in reply toMrsMarigold

Good to hear. I’m struggling with joint and muscle pain on the same side as the rash. I’m hoping this goes away soon.

MrsMarigold profile image
MrsMarigold in reply toShannonB

Don’t fret. Antibiotic will take care of it.

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