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Pelizaeus–Merzbacher-like disease
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Do the NHS test for active b12 aswell a total b12?
I wonder because my sister was diagnosed with pernicious anemia years ago but now they say her b12 levels are really high normal.
I wonder because my sister was diagnosed with pernicious anemia years ago but now they say her b12 levels are really high normal.
Cesca-K
in
Pernicious Anaemia Society
1 month ago
A Happy Anniversary
Dear AFA forum family. Isn't life wonderful? I joined the AFA forum some four years ago and had it not been for chance encounters, who knows where I would be today. It started with an AFA post titled "Tim' Story". At the time of his post (several years ago) Tim was 55 and his story mirrored my own
Dear AFA forum family. Isn't life wonderful? I joined the AFA forum some four years ago and had it not been for chance encounters, who knows where I would be today. It started with an AFA post titled "Tim' Story". At the time of his post (several years ago) Tim was 55 and his story mirrored my own
saulger
in
AF Association
6 months ago
PSA rise from initial Pluvicto treatment
I am curious if most of you that have been through Pluvicto experienced a PSA rise initially? I just finished my first injection, and did see a bit of a jump in PSA level. I had a similar experience in the SPLASH trial last year. After the first Lu177 injection, my PSA shot up quite a lot. This got
I am curious if most of you that have been through Pluvicto experienced a PSA rise initially? I just finished my first injection, and did see a bit of a jump in PSA level. I had a similar experience in the SPLASH trial last year. After the first Lu177 injection, my PSA shot up quite a lot. This got
joeguy
in
Advanced Prostate Cancer
6 months ago
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Covid Injections for April 2024
Hi Everyone. Has anybody received a letter yet about their April Covid jab? You follow the NHS App and it brings up an out of date link telling you about Autumn 2023 jabs. It then tells you further down that the page will be updated in 2026. I just looked on my personal NHS account and nowhere can
Hi Everyone. Has anybody received a letter yet about their April Covid jab? You follow the NHS App and it brings up an out of date link telling you about Autumn 2023 jabs. It then tells you further down that the page will be updated in 2026. I just looked on my personal NHS account and nowhere can
Blackwitch
in
NRAS
1 month ago
Weakness
Hello,I've had rheumatoid arthritis 28 years been on different drugs over years ,I have been methotrexate 25mg weekly for years folic acid I've been on rituximab every 6 months first course then 2 weeks later 2nd course for 4 year ,I'm starting to feel very weak I'm normally won't let it beat me ,I feel
Hello,I've had rheumatoid arthritis 28 years been on different drugs over years ,I have been methotrexate 25mg weekly for years folic acid I've been on rituximab every 6 months first course then 2 weeks later 2nd course for 4 year ,I'm starting to feel very weak I'm normally won't let it beat me ,I feel
Justlucy
in
NRAS
1 month ago
Rheumy Nurse?
I am puzzled. This site has many references to apparent support teams. I am delighted if that is general. For myself the only contact with the NHS I have is my GP. It is alleged that there is a very overdue appointment with a consultant. Maybe I shall be able to elicit information about some kind
I am puzzled. This site has many references to apparent support teams. I am delighted if that is general. For myself the only contact with the NHS I have is my GP. It is alleged that there is a very overdue appointment with a consultant. Maybe I shall be able to elicit information about some kind
Colaba
in
NRAS
1 month ago
HRT Raises Rheumatoid Arthritis Risk …
I found this article last week about HRT and rheumatoid arthritis risk in my online magazine …. I know a lot of US use HRT and thought this article might be of interest. I don’t have the actual magazine its online subscription… sorry. This link might actually get you to this article! https://www.wddty.com
I found this article last week about HRT and rheumatoid arthritis risk in my online magazine …. I know a lot of US use HRT and thought this article might be of interest. I don’t have the actual magazine its online subscription… sorry. This link might actually get you to this article! https://www.wddty.com
Batty1
in
Thyroid UK
1 month ago
thyroid results
Could someone please help me understand my blood results which I had done by Medichecks (home testing kit) I have had underactive thyroid for the past 25years The doctors are always changing the brands I take I hadn’t had my thyroid levels tested for nearly 5 years with my GP, it’s as if they’d
Could someone please help me understand my blood results which I had done by Medichecks (home testing kit) I have had underactive thyroid for the past 25years The doctors are always changing the brands I take I hadn’t had my thyroid levels tested for nearly 5 years with my GP, it’s as if they’d
Horsemadlindy21
in
Thyroid UK
1 month ago
What were your first symptoms?
Over the last couple of months I've been getting pain in my fingers and toes, it happens several times a day but only lasts a minute or two at a time at the moment. I have autoimmune thyroid disease, and suspected autoimmune cause for my early menopause, and I'm acutely aware that autoimmune diseases
Over the last couple of months I've been getting pain in my fingers and toes, it happens several times a day but only lasts a minute or two at a time at the moment. I have autoimmune thyroid disease, and suspected autoimmune cause for my early menopause, and I'm acutely aware that autoimmune diseases
WitchingHour2point0
in
NRAS
1 month ago
New treatment for neurodegenerative diseases may be found in used coffee grounds
New treatment for neurodegenerative diseases may be found in used coffee grounds
: Caffeic-acid based Carbon Quantum Dots have the potential to be transformative in the treatment of neurodegenerative disorders 2023 https://www.caledonianrecord.com/features/health/used-coffee-grounds-may-help-prevent-alzheimer-s-and-parkinson-s-study
New treatment for neurodegenerative diseases may be found in used coffee grounds
: Caffeic-acid based Carbon Quantum Dots have the potential to be transformative in the treatment of neurodegenerative disorders 2023 https://www.caledonianrecord.com/features/health/used-coffee-grounds-may-help-prevent-alzheimer-s-and-parkinson-s-study
Bolt_Upright
in
Cure Parkinson's
6 months ago
drug induced lupus
Hi, My husband has drug induced lupus from inflixmab infusions which he was having for Chrohns disease. He has been in hospital twice from the lupus and they suspected the lupus was causing pericarditis. They also suspect he has psoriatic arthritis. He has been on steroids to control the drug induced
Hi, My husband has drug induced lupus from inflixmab infusions which he was having for Chrohns disease. He has been in hospital twice from the lupus and they suspected the lupus was causing pericarditis. They also suspect he has psoriatic arthritis. He has been on steroids to control the drug induced
Denny39
in
LUPUS UK
1 month ago
Hashis and Graves? Watch and Wait has now caught up.
About 15 months or so, I had an appointment for a thyroid specialist as my thyroid tests pointed towards Graves. I had been hypothyroid for about 17years when my different results meant my gp prescribing less and less levo. When the amount became 12.5mcg, (after an original 150 mcg) I asked to be
About 15 months or so, I had an appointment for a thyroid specialist as my thyroid tests pointed towards Graves. I had been hypothyroid for about 17years when my different results meant my gp prescribing less and less levo. When the amount became 12.5mcg, (after an original 150 mcg) I asked to be
Bluebell999
in
Thyroid UK
6 months ago
Advice
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
elainenorman
in
Lung Conditions Community Forum
1 month ago
Skin ulcers
Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that is growing and won't scab or heal. I am not on steroids at the moment (just plaquenil) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence
Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that is growing and won't scab or heal. I am not on steroids at the moment (just plaquenil) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence
lupus_paradise
in
LUPUS UK
1 month ago
Alcohol home detox
hi everyone my daughter is an alcoholic and has many health issues related to her drinking. She is waiting to do a home detox which is being arranged through turning point. (She doesn’t want to go to a clinic) She was previously given a date for this but was told by the doctor at turning point that
hi everyone my daughter is an alcoholic and has many health issues related to her drinking. She is waiting to do a home detox which is being arranged through turning point. (She doesn’t want to go to a clinic) She was previously given a date for this but was told by the doctor at turning point that
Bellabinx
in
British Liver Trust
6 months ago
Diagnoses
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
catblue1865
in
LUPUS UK
1 month ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
1 month ago
What Treatment - Or No Treatment Advice?
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
Nordman
in
Advanced Prostate Cancer
6 months ago
Rheumatoid arthritis
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Alisa123
in
NRAS
1 month ago
How maternal lupus affects the child
All moms, please fill out this survey. It won't take long and you'll be the part of a research aimed at determining how maternal lupus may be related to the development of allergies in the child.Your help will be very appreciated. Thank you! ☺ https://forms.gle/kRVd79WSpzA6Gf3n9
All moms, please fill out this survey. It won't take long and you'll be the part of a research aimed at determining how maternal lupus may be related to the development of allergies in the child.Your help will be very appreciated. Thank you! ☺ https://forms.gle/kRVd79WSpzA6Gf3n9
gabriele_klim
in
LUPUS UK
1 month ago
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