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Pelizaeus–Merzbacher-like disease
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Is Parkinson’s Disease a Prion Disease? Alpha synuclein and prion-like behavior.
Prion diseases are a type of infectious disease transmitted by a self-replicating protein, the prion protein (PrP), and as yet are still not fully understood at the molecular level. Cellular and molecular evidence of prion-like propagation in neurodegenerative diseases, the clinical relevance of their
Prion diseases are a type of infectious disease transmitted by a self-replicating protein, the prion protein (PrP), and as yet are still not fully understood at the molecular level. Cellular and molecular evidence of prion-like propagation in neurodegenerative diseases, the clinical relevance of their
House2
in
Cure Parkinson's
6 months ago
A questionnaire for those with ANCA associated vasculitis and renal involvement in the UK
For those with ANCA associated vasculitis and renal involvement in the UK Clinicians are worried about overtreating patients and adding side effects of long term use of immunosuppressants to the ilness burden. Here's a very short questionnaire aims to find out if patients would consider participating
For those with ANCA associated vasculitis and renal involvement in the UK Clinicians are worried about overtreating patients and adding side effects of long term use of immunosuppressants to the ilness burden. Here's a very short questionnaire aims to find out if patients would consider participating
zoe69
Vasculitis UK
in
Vasculitis UK
2 months ago
Shock diagnosis
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Fannyphasbees
in
Atrial Fibrillation Support
2 months ago
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Diagnosed last Friday AF
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Fannyphasbees
in
Anticoagulation Support
2 months ago
Time for you all to take another bow.
I have been working with someone for three years who is suffering and may be suffering from B12 deficiency. I do not give advice and certainly not medical advice. I have been sharing my experiences and information that I have. That is hard as the person is smart enough but does not have great reading
I have been working with someone for three years who is suffering and may be suffering from B12 deficiency. I do not give advice and certainly not medical advice. I have been sharing my experiences and information that I have. That is hard as the person is smart enough but does not have great reading
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
My Kardia has arrived.
Good morning - if you are in a similar time zone!My Kardia arrived yesterday morning so of course I took many readings to try it out. I also tried it on my husband to see if it was working properly and it appears to be fine. My own readings however are all over the shop, so I wondered if other people
Good morning - if you are in a similar time zone!My Kardia arrived yesterday morning so of course I took many readings to try it out. I also tried it on my husband to see if it was working properly and it appears to be fine. My own readings however are all over the shop, so I wondered if other people
Ilovedogs12
in
Atrial Fibrillation Support
2 months ago
Using AI to understand what is the best treatment for each patient
https://www.urologytimes.com/view/study-applies-ai-tool-to-stampede-data-in-prostate-cancer "We already know that there are various variables that get reported as part of routine histology reporting, which have a degree of prognostic impact, particularly in the early stage of the disease. But these
https://www.urologytimes.com/view/study-applies-ai-tool-to-stampede-data-in-prostate-cancer "We already know that there are various variables that get reported as part of routine histology reporting, which have a degree of prognostic impact, particularly in the early stage of the disease. But these
Maxone73
in
Advanced Prostate Cancer
6 months ago
Not Cirrhosis
So many of you have watched my journey of the misdiagnosis of my wonderful wife. In the end, we now know a combination of Antibiotics destroyed her kidneys. Due to thinking she had cirrhosis, they had dosage values wrong...etc..etc. She had high billis, which was due to a medication reaction, and
So many of you have watched my journey of the misdiagnosis of my wonderful wife. In the end, we now know a combination of Antibiotics destroyed her kidneys. Due to thinking she had cirrhosis, they had dosage values wrong...etc..etc. She had high billis, which was due to a medication reaction, and
Wolivere
in
British Liver Trust
6 months ago
Very High blood pressure
I had a heartbeat issue last week ( felt a heavy thumping and slight difficulty getting my breath). Saw gp. She said heart sounded fine but has booked me in for bloods and ecg. However my blood pressure was high , so I’m now monitoring t home. I started yesterday evening. All my readings have been
I had a heartbeat issue last week ( felt a heavy thumping and slight difficulty getting my breath). Saw gp. She said heart sounded fine but has booked me in for bloods and ecg. However my blood pressure was high , so I’m now monitoring t home. I started yesterday evening. All my readings have been
Freshairfiend
in
PMRGCAuk
2 months ago
relief from arthritis while taking apaxiban
reccomendations to relieve arthritis in lower back and hips - I’m taking apaxiban and have been advised against ibuprofen - many thanks Michael John
reccomendations to relieve arthritis in lower back and hips - I’m taking apaxiban and have been advised against ibuprofen - many thanks Michael John
Spinbiker
in
Arthritis Action
3 months ago
Nose sores
Good morning, Can anyone tell me what you do for nose sores. I've had one at the inside tip for weeks. They come and go but when they come they last for weeks. They've been coming more frequently too. I'm at a loss of how to heal this. I was diagnosed with Lupus SLE, Sjogren's and MCTD. Is it
Good morning, Can anyone tell me what you do for nose sores. I've had one at the inside tip for weeks. They come and go but when they come they last for weeks. They've been coming more frequently too. I'm at a loss of how to heal this. I was diagnosed with Lupus SLE, Sjogren's and MCTD. Is it
Tessie62
in
NRAS
3 months ago
Can Anyone Please Advise On B12 Related Tests To Have If Normal B12 Testing is in range.
Can Anyone Please Advise On B12 related tests to have If Normal B12 Testing is in range. My daughter is having numerous issues including IBS which she had for nearly 20 years and the last 18 months undiagnosed urology issues, mostly infections that often come back as no issues and has been on numerous
Can Anyone Please Advise On B12 related tests to have If Normal B12 Testing is in range. My daughter is having numerous issues including IBS which she had for nearly 20 years and the last 18 months undiagnosed urology issues, mostly infections that often come back as no issues and has been on numerous
thyreoidea
in
Pernicious Anaemia Society
3 months ago
March is Blood Clot Awareness Month #BCAM
Atrial fibrillation (AF) is the most common arrhythmia (heart rhythm disorder) that can affect 1 in 3 of us. Are you aware of the symptoms, the risks (AF-related strokes caused by a blood clot) and what treatment options are available? Register today to access ‘on demand’ education and information
Atrial fibrillation (AF) is the most common arrhythmia (heart rhythm disorder) that can affect 1 in 3 of us. Are you aware of the symptoms, the risks (AF-related strokes caused by a blood clot) and what treatment options are available? Register today to access ‘on demand’ education and information
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
2 months ago
March is Blood Clot Awareness Month #BCAM
Atrial fibrillation (AF) is the most common arrhythmia (heart rhythm disorder) that can affect 1 in 3 of us. Are you aware of the symptoms, the risks (AF-related strokes caused by a blood clot) and what treatment options are available? Register today to access ‘on demand’ education and information
Atrial fibrillation (AF) is the most common arrhythmia (heart rhythm disorder) that can affect 1 in 3 of us. Are you aware of the symptoms, the risks (AF-related strokes caused by a blood clot) and what treatment options are available? Register today to access ‘on demand’ education and information
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
2 months ago
The arrhythmia nurse wants me to reduce my bisoprolol dose after my cardioversion - fear of early relapse.
I had a 2nd successful cardioversion 5 days ago, and the arrhythmia nurse told me to reduce my dose of bisoprolol immediately from 7.5mg to 5mg as my heart rate was around 50bpm. However, unless I maintain NSR for 6 weeks after the cardioversion, they won't offer another one, so I'm reluctant to reduce
I had a 2nd successful cardioversion 5 days ago, and the arrhythmia nurse told me to reduce my dose of bisoprolol immediately from 7.5mg to 5mg as my heart rate was around 50bpm. However, unless I maintain NSR for 6 weeks after the cardioversion, they won't offer another one, so I'm reluctant to reduce
Belle11
in
Atrial Fibrillation Support
2 months ago
Can Someone be in the normal TSH range but still be suffering from Hypothyroidism
My daughter has been suffering multiple symptoms, reoccurring urology issues, aches and pains, IBS to name but a few. Her GP’s have only ever tested for TSH which has always been in the middle of the range. As I have autoimmune hypothyroidism as well as an autoimmune blood disorder should they be
My daughter has been suffering multiple symptoms, reoccurring urology issues, aches and pains, IBS to name but a few. Her GP’s have only ever tested for TSH which has always been in the middle of the range. As I have autoimmune hypothyroidism as well as an autoimmune blood disorder should they be
thyreoidea
in
Thyroid UK
3 months ago
Coma or Vegetative state
Hi - My brother has been in an induced coma following a stroke for 3 weeks. Every time they try to wake him they say he gets “agitated”. Also, today his case manager told me he is able to open his eyes, but when they did the light in the eyes test, there was no reflex. What does that mean? Is he officially
Hi - My brother has been in an induced coma following a stroke for 3 weeks. Every time they try to wake him they say he gets “agitated”. Also, today his case manager told me he is able to open his eyes, but when they did the light in the eyes test, there was no reflex. What does that mean? Is he officially
mamo23
in
ICUsteps
6 months ago
Private Health care for second opinion
Has anyone used private health care for a second opinion? I’m 7 weeks post Fibroscan and still nothing in writing. I had a call from a hepatologist last week. He hadn’t seen the scan either but said based on my memory of it I have Cirrhosis. I want someone to give me a proper diagnosis. Bupa have agreed
Has anyone used private health care for a second opinion? I’m 7 weeks post Fibroscan and still nothing in writing. I had a call from a hepatologist last week. He hadn’t seen the scan either but said based on my memory of it I have Cirrhosis. I want someone to give me a proper diagnosis. Bupa have agreed
Pinkglitter93
in
British Liver Trust
7 months ago
ESMO 2023: PSMAfore Phase 3 Trial of [177Lu]Lu-PSMA-617 in Taxane-Naive Patients with Metastatic Castration Resistant Prostate Cancer
Apologies if this was already posted: https://www.urotoday.com/conference-highlights/esmo-2023/esmo-2023-prostate-cancer/147587-esmo-2023-psmafore-phase-3-trial-of-177lu-lu-psma-617-in-taxane-naive-patients-with-mcrpc.html
Apologies if this was already posted: https://www.urotoday.com/conference-highlights/esmo-2023/esmo-2023-prostate-cancer/147587-esmo-2023-psmafore-phase-3-trial-of-177lu-lu-psma-617-in-taxane-naive-patients-with-mcrpc.html
swwags
in
Advanced Prostate Cancer
7 months ago
PSA Follow up
Had an appointment with my urologist today. PSA is still 0.00. Obviously I’m thrilled. He said that since I’m 3 years out from RT and 4 years from RP, he’s comfortable with seeing me annually because my PSA has been stable at 0.00 for three years. I told him I thought I’d feel better waiting until
Had an appointment with my urologist today. PSA is still 0.00. Obviously I’m thrilled. He said that since I’m 3 years out from RT and 4 years from RP, he’s comfortable with seeing me annually because my PSA has been stable at 0.00 for three years. I told him I thought I’d feel better waiting until
Jmr11820
in
Advanced Prostate Cancer
7 months ago
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