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Experiences with
Paroxysmal atrial fibrillation
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Excessive urination
Does anyone here suffer with excessive urination when having an afib episode,? I am very symptomatic and although I take sotalol and apixaban I still get some afib episodes (usuly 1 every 4 months). When this happens I am urinating every 10 mins or so and then when I come out of afib I can sleep most
Does anyone here suffer with excessive urination when having an afib episode,? I am very symptomatic and although I take sotalol and apixaban I still get some afib episodes (usuly 1 every 4 months). When this happens I am urinating every 10 mins or so and then when I come out of afib I can sleep most
Karendeena
in
AF Association
2 years ago
Abiraterone vs Docetaxel
In the CHAARTED trial, metastatic burden was divided into low burden (4 lesions). CHAARTED’s criteria seems to have become the standard for evaluating how metastatic burden affects choices of treatment and outcome. I bring up the metastatic burden, because I could not find a clinical trial where ADT
In the CHAARTED trial, metastatic burden was divided into low burden (4 lesions). CHAARTED’s criteria seems to have become the standard for evaluating how metastatic burden affects choices of treatment and outcome. I bring up the metastatic burden, because I could not find a clinical trial where ADT
TMcgee
in
Advanced Prostate Cancer
1 year ago
Thyroid or AFib Symptom
I’ve been reading Greygoose advice to another member re discomfort in the neck possibly being Thyroid related. I have had discomfort - not pain as such - in the hollow in the front of my neck just above the clavicle. It feels like I’ve swallowed a golf ball! No swelling. I am in continuous AFib and
I’ve been reading Greygoose advice to another member re discomfort in the neck possibly being Thyroid related. I have had discomfort - not pain as such - in the hollow in the front of my neck just above the clavicle. It feels like I’ve swallowed a golf ball! No swelling. I am in continuous AFib and
Loafinabout
in
Thyroid UK
2 years ago
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RGA 314 gene therapy
my doctor asked me to participate in phase 3 RGA 314 gene therapy for macular degeneration. I received the reading material to decide if I want to enter the clinical trials. When I read the possible ricks of the procedure, this statement worried me “once RGA 314 is given to you, there may not be a way
my doctor asked me to participate in phase 3 RGA 314 gene therapy for macular degeneration. I received the reading material to decide if I want to enter the clinical trials. When I read the possible ricks of the procedure, this statement worried me “once RGA 314 is given to you, there may not be a way
Slattery
in
Macular Society
1 year ago
Targeting Glutamine Metabolism
New paper below [1a]. Full text: [1b]. First, a few notes. "Studies have indicated the importance of glutamine in certain tumors. For example, the inhibition of glutamine metabolism was reported to prevent growth of several tumors such as breast, liver, kidney and T-cell lymphoblastic leukemia." Wiki
New paper below [1a]. Full text: [1b]. First, a few notes. "Studies have indicated the importance of glutamine in certain tumors. For example, the inhibition of glutamine metabolism was reported to prevent growth of several tumors such as breast, liver, kidney and T-cell lymphoblastic leukemia." Wiki
pjoshea13
in
Fight Prostate Cancer
1 year ago
Ecg results
I had an ecg this morning and it said that my systolic reading was 88mmhg and my diastolic was 50mmhg. The nurse said that my blood pressure was a bit low 88/50mmhg. I don't know what will happen whether or not I will be put on medication or not. I am really worried. I just hope when I see the doctor
I had an ecg this morning and it said that my systolic reading was 88mmhg and my diastolic was 50mmhg. The nurse said that my blood pressure was a bit low 88/50mmhg. I don't know what will happen whether or not I will be put on medication or not. I am really worried. I just hope when I see the doctor
fibrogirl41
in
Fibromyalgia Action UK
2 years ago
Skipped Beats
Well--I have written on this forum before and appreciate all the feedback about my heart palpitations, anxiety, skipped beats, etc. I have had them since I was 9 on and off and now I am 70. Went to the cardiologist in June and said I was "exceptionally fit". EKG, ECHO, Halter all good. I know exactly
Well--I have written on this forum before and appreciate all the feedback about my heart palpitations, anxiety, skipped beats, etc. I have had them since I was 9 on and off and now I am 70. Went to the cardiologist in June and said I was "exceptionally fit". EKG, ECHO, Halter all good. I know exactly
babejoemickey
in
Anxiety Support
2 years ago
ecg and low blood pressure
I have had a ecg this morning and it was fine but it says that my systolic reading was 88mmhg and my diastolic was 50mmhg. The nurse said that my blood pressure was a little low but it has never been low until today. I am not sure why. anyway, I hope that there is nothing bad wrong with me. I hope you
I have had a ecg this morning and it was fine but it says that my systolic reading was 88mmhg and my diastolic was 50mmhg. The nurse said that my blood pressure was a little low but it has never been low until today. I am not sure why. anyway, I hope that there is nothing bad wrong with me. I hope you
fibrogirl41
in
Fibromyalgia Action UK
2 years ago
Ambroxol: Experimental treatment for PD
Does anyone know anything about the clinical trials going on in the UK with Ambroxol as a treatment for PD (a repurposed cough medicine)? The preliminary results look good. I understand that results have been released but I can't find It. Please reply if you have info. Thanks
Does anyone know anything about the clinical trials going on in the UK with Ambroxol as a treatment for PD (a repurposed cough medicine)? The preliminary results look good. I understand that results have been released but I can't find It. Please reply if you have info. Thanks
Badmouth
in
Cure Parkinson's
1 year ago
New Clinical Trial for Non-diabetic CKD
Researchers are looking for a better way to treat people who have nondiabetic chronic kidney disease (non-diabetic CKD). The trial treatment, finerenone, is being developed to help people who have chronic kidney disease (CKD). It works by blocking a certain hormone called aldosterone that causes injury
Researchers are looking for a better way to treat people who have nondiabetic chronic kidney disease (non-diabetic CKD). The trial treatment, finerenone, is being developed to help people who have chronic kidney disease (CKD). It works by blocking a certain hormone called aldosterone that causes injury
Bassetmommer
NKF Ambassador
in
Kidney Disease
1 year ago
A study record is now available on the Clinical Trials website for the big (N=330) Ambroxol Phase 3 trial (NCT05778617)
Recruitment Status: Not yet recruiting Estimated Study Start Date: September 2023 Estimated Study Completion Date: September 2028 Each participant will be taking ambroxol [or placebo] for two years, and it is estimated that it will take two years to recruit 330 PwPs. Ambroxol to Slow Progression
Recruitment Status: Not yet recruiting Estimated Study Start Date: September 2023 Estimated Study Completion Date: September 2028 Each participant will be taking ambroxol [or placebo] for two years, and it is estimated that it will take two years to recruit 330 PwPs. Ambroxol to Slow Progression
jeffreyn
in
Cure Parkinson's
1 year ago
Ectopics/Possible Afib
Hi, hoping for some advice please. Was on PIP Bisoprolol 1.25mg for SVT and ectopics until cancer diagnosis in 2019, when I started taking Bisoprolol 1.25mg daily on doctor's insistence, upped to 2.5mg a year ago. Also on Amlodopine 5mg for BP. This has worked a treat and I completed surgery, chemo,
Hi, hoping for some advice please. Was on PIP Bisoprolol 1.25mg for SVT and ectopics until cancer diagnosis in 2019, when I started taking Bisoprolol 1.25mg daily on doctor's insistence, upped to 2.5mg a year ago. Also on Amlodopine 5mg for BP. This has worked a treat and I completed surgery, chemo,
Auntielala
in
AF Association
2 years ago
Using modified virus to awaken your immune system to attack tumor
This is a promising future therapy for many cancers. The reason that we (I am) should be open to join clinical trial when possible: https://youtu.be/FEA6BQARqE8
This is a promising future therapy for many cancers. The reason that we (I am) should be open to join clinical trial when possible: https://youtu.be/FEA6BQARqE8
Cmdrdata
in
Advanced Prostate Cancer
1 year ago
Running out of med and other intervention options?
Long history of being in AF for 12 hrs +. Several ablations including PVI .4/5.CardioVersions. Warfarins initially,current on Edoxaban and changing to Epixaban. Switched from Digoxin to Amioderone several weeks before CV last week as Cardiology advised by Eleccardiophysiology., Reduced Bisoprolol
Long history of being in AF for 12 hrs +. Several ablations including PVI .4/5.CardioVersions. Warfarins initially,current on Edoxaban and changing to Epixaban. Switched from Digoxin to Amioderone several weeks before CV last week as Cardiology advised by Eleccardiophysiology., Reduced Bisoprolol
BasG
in
Atrial Fibrillation Support
2 years ago
chemotherapy
I had 3 round of taxol developed neuropathy and discontinued treatment but completed the 6 rounds of carboplatin. Neither treatments helped my cancer. Did Keytruda infusion with Lenvima pills not working. No approved therapists left, except for a clinical trial if I qualify and am accepted? Good luck
I had 3 round of taxol developed neuropathy and discontinued treatment but completed the 6 rounds of carboplatin. Neither treatments helped my cancer. Did Keytruda infusion with Lenvima pills not working. No approved therapists left, except for a clinical trial if I qualify and am accepted? Good luck
blondiec
in
British Heart Foundation
1 year ago
Possibly Failing Calquence - what’s next?
Turning to this very informative group for answers while waiting for my follow up visit after recent pet scan. Long story short hopefully… diagnosed in 2008 with cll, Started treatment in 2011 after biopsy of mass in nasopharynx turned out to be CLL related. Had 6 cycles of B& R, then maintenance Rituxan
Turning to this very informative group for answers while waiting for my follow up visit after recent pet scan. Long story short hopefully… diagnosed in 2008 with cll, Started treatment in 2011 after biopsy of mass in nasopharynx turned out to be CLL related. Had 6 cycles of B& R, then maintenance Rituxan
ReneeSusan
in
CLL Support
1 year ago
Clinical trial discussion with Black and African American men in the USA
A pharmaceutical company wants to discuss clinical trials with Black and African American men in the USA. If interested, please email me at darryl@malecare.org Here's what's on offer: Each advisory board would be conducted a single, 2-hour virtual meeting (early May 2023 timing – exact date/time TBD
A pharmaceutical company wants to discuss clinical trials with Black and African American men in the USA. If interested, please email me at darryl@malecare.org Here's what's on offer: Each advisory board would be conducted a single, 2-hour virtual meeting (early May 2023 timing – exact date/time TBD
Darryl
Partner
in
Advanced Prostate Cancer
1 year ago
Paroxysmal AF getting worse
I was diagnosed with PAF last spring and put on bisoprolol plus a blood thinner. The dosage of bisoprolol has since crept up to the maximum 10mg per day as the PAF has become more frequent and longer lasting. I have been struggling to get my GP to get me an appt with cardiology for a meds review and/
I was diagnosed with PAF last spring and put on bisoprolol plus a blood thinner. The dosage of bisoprolol has since crept up to the maximum 10mg per day as the PAF has become more frequent and longer lasting. I have been struggling to get my GP to get me an appt with cardiology for a meds review and/
LAPHM
in
AF Association
2 years ago
Buntanetap Clinical Trial
Is anyone participating at this trial, or knows someone that is. What's the lastest news. Are any results already published?
Is anyone participating at this trial, or knows someone that is. What's the lastest news. Are any results already published?
Veravrida
in
Cure Parkinson's
1 year ago
Gains seen in Parkinson’s with Symbyx’s red light therapy helmet
Studies show positive results. Symbyx Biome’s red/infrared light therapy helmet, improves motor function in Parkinson’s disease, according to data from a small clinical trial. https://parkinsonsnewstoday.com/news/gains-seen-parkinsons-with-symbyxs-red-light-therapy-helmet/
Studies show positive results. Symbyx Biome’s red/infrared light therapy helmet, improves motor function in Parkinson’s disease, according to data from a small clinical trial. https://parkinsonsnewstoday.com/news/gains-seen-parkinsons-with-symbyxs-red-light-therapy-helmet/
Baron1
in
Cure Parkinson's
1 year ago
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