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Terrys nails
hi there, I’m just wondering if anyone with PBC has experience with Terrys nails? I have it on 5 of my finger nails (2 on one hand and 3 on another). My liver bloods are normal just now except for GGT (112) and my last fibroscan was 5.7 with CAP score of 233. Both AMA and ANA positive but my hepatoligist
hi there, I’m just wondering if anyone with PBC has experience with Terrys nails? I have it on 5 of my finger nails (2 on one hand and 3 on another). My liver bloods are normal just now except for GGT (112) and my last fibroscan was 5.7 with CAP score of 233. Both AMA and ANA positive but my hepatoligist
FarahS
in
PBC Foundation
6 months ago
Not like a research from Johns Hopkins, but let's consider it
"Florida Atlantic University's Schmidt College of Medicine and collaborators are the first to demonstrate in vivo the chemo-preventive properties of alpha-santalol against prostate cancer development using a transgenic mouse model." https://www.news-medical.net/news/20240213/Study-demonstrates-chemo-preventive-properties-of-alpha-santalol-against-prostate-cancer-development.aspx
"Florida Atlantic University's Schmidt College of Medicine and collaborators are the first to demonstrate in vivo the chemo-preventive properties of alpha-santalol against prostate cancer development using a transgenic mouse model." https://www.news-medical.net/news/20240213/Study-demonstrates-chemo-preventive-properties-of-alpha-santalol-against-prostate-cancer-development.aspx
Maxone73
in
Fight Prostate Cancer
6 months ago
Third Perianal Abscess Drainage
I just had my third Perianal Abscess drained in an operation. I was diagnosed with Crohn's last year. I have fistula's that haven't closed so they put a Seton in during this operation. I'm wondering what suggestions people might have for diet and how to avoid getting another abscess. It's incredibly
I just had my third Perianal Abscess drained in an operation. I was diagnosed with Crohn's last year. I have fistula's that haven't closed so they put a Seton in during this operation. I'm wondering what suggestions people might have for diet and how to avoid getting another abscess. It's incredibly
MrNewfie17
in
Crohn's and Colitis Support
6 months ago
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Another Update
Well following previous posts and still no results from Holter monitoring had letter from Cardiologist to say that due to misunderstanding I should be taking 100mcg of Losartan divided into two 50 in morning and 50 at night. I have only been taking 50 once a day as that’s what it looked like on the
Well following previous posts and still no results from Holter monitoring had letter from Cardiologist to say that due to misunderstanding I should be taking 100mcg of Losartan divided into two 50 in morning and 50 at night. I have only been taking 50 once a day as that’s what it looked like on the
JMF1
in
Atrial Fibrillation Support
2 months ago
default heart rate when in Afib?
Hi guys Long story short:third ablation failed in May. In between ablations (last 2 years) my afib has been permanent. Ive tried multiple drug combos but the only thing that makes my heart beat normally is an ablation. After latest failed I had a week’s reset after a public hospital cardioversion.
Hi guys Long story short:third ablation failed in May. In between ablations (last 2 years) my afib has been permanent. Ive tried multiple drug combos but the only thing that makes my heart beat normally is an ablation. After latest failed I had a week’s reset after a public hospital cardioversion.
swimminglove
in
Atrial Fibrillation Support
2 months ago
Newbie to this community and wondering about B12 deficiency
Hello, for the past 4 years I've had symptoms of CFS, plus low FT4 and on occasions, low TSH. I've also had my cortisol tested by saliva and short synacthen test, both showed low levels but the adrenals work when stimulated so it's not Addisons. I've tried levothyroxine, T3 and thyroid glandulars and
Hello, for the past 4 years I've had symptoms of CFS, plus low FT4 and on occasions, low TSH. I've also had my cortisol tested by saliva and short synacthen test, both showed low levels but the adrenals work when stimulated so it's not Addisons. I've tried levothyroxine, T3 and thyroid glandulars and
Jamima
in
Pernicious Anaemia Society
6 months ago
What category of Intermediate Risk Am I?
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
Nordman
in
Advanced Prostate Cancer
6 months ago
loop recorder
I am being asked by an EP/ cardiologist to have them implant a loop recorder to monitor my heart for an extended period of time. This recorder will be recording continuous EKG readings that is transmitted to the treating cardiologist . It is expected that this will allow for better diagnosis and treatment
I am being asked by an EP/ cardiologist to have them implant a loop recorder to monitor my heart for an extended period of time. This recorder will be recording continuous EKG readings that is transmitted to the treating cardiologist . It is expected that this will allow for better diagnosis and treatment
execz1
in
Atrial Fibrillation Support
2 months ago
Save a life with an AED
Arrhythmia Alliance supports and recognises the vital role an
AED
can play in saving lives For further details please follow the link below
What can I do about sudden cardiac arrest?
https://api.heartrhythmalliance.org/files/download/49bda8fa574082fedd9ee93e473182ea
Arrhythmia Alliance supports and recognises the vital role an
AED
can play in saving lives For further details please follow the link below
What can I do about sudden cardiac arrest?
https://api.heartrhythmalliance.org/files/download/49bda8fa574082fedd9ee93e473182ea
SamAdmin
Administrator
in
Sudden Cardiac Arrest & Heart Attack
2 months ago
Save a life with an AED
Arrhythmia Alliance supports and recognises the vital role an
AED
can play in saving lives For further details please follow the link below
What can I do about sudden cardiac arrest?
https://api.heartrhythmalliance.org/files/download/49bda8fa574082fedd9ee93e473182ea
Arrhythmia Alliance supports and recognises the vital role an
AED
can play in saving lives For further details please follow the link below
What can I do about sudden cardiac arrest?
https://api.heartrhythmalliance.org/files/download/49bda8fa574082fedd9ee93e473182ea
SamAdmin
Administrator
in
Heart Rhythm Disorders Support
2 months ago
Hemodialysis question
I did PD from Feb 2023 to July 2023 when it failed and sent me to hospital. In August they put a chest catheter in and I started hemodialysis. After 3 treatments it cleared up the problems I was having on PD. At first I was doing Tues, Thur, and Sat in center for 3 hours and 15 minutes. My kt/V was
I did PD from Feb 2023 to July 2023 when it failed and sent me to hospital. In August they put a chest catheter in and I started hemodialysis. After 3 treatments it cleared up the problems I was having on PD. At first I was doing Tues, Thur, and Sat in center for 3 hours and 15 minutes. My kt/V was
horsie63
in
Kidney Dialysis
6 months ago
Cardioversion and PVCs and PACs
Does a cardioversion help if you have PVCs and PACs or does it only help if you have Afib? I go in and out of Afib but my PVCs and PACs have been non-stop for 3 months. Flecainide did not work. I’m considering a cardioversion as I’m to the point I will try anything to get my heart back into NSR but
Does a cardioversion help if you have PVCs and PACs or does it only help if you have Afib? I go in and out of Afib but my PVCs and PACs have been non-stop for 3 months. Flecainide did not work. I’m considering a cardioversion as I’m to the point I will try anything to get my heart back into NSR but
Debjimmay
in
Atrial Fibrillation Support
2 months ago
angiography
Morning all Haven’t posted in ages been overdoing things have swollen hands but I suppose it could also be the heat. Due to have an angiogram just wondered if any of you warriors have had one and did RA cause any extra problems. Wishing you all a good day xx
Morning all Haven’t posted in ages been overdoing things have swollen hands but I suppose it could also be the heat. Due to have an angiogram just wondered if any of you warriors have had one and did RA cause any extra problems. Wishing you all a good day xx
Daffodil1958
in
NRAS
2 months ago
IS THIS A PATTERN???? Thoughts and helpful ideas to guide a path
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Mrtroxely
in
Advanced Prostate Cancer
6 months ago
to all our newly diagnosed people
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad and so much more. Don’t google - get your info mainly from The PBC Foundation
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad and so much more. Don’t google - get your info mainly from The PBC Foundation
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Any comment on cortisol/aldosterone results please
Hi all, I've just received my results of a private blood test from Inuvi. Could anyone comment as to if they look like a problem I need to attend to or not? Thanks in advance. Aldosterone Serum/Plasma # * 156.0 pmol/L Cortisol (Serum) ** 147.0 133 - 537 nmol/L Cortisol Reference range 6-10am: 133
Hi all, I've just received my results of a private blood test from Inuvi. Could anyone comment as to if they look like a problem I need to attend to or not? Thanks in advance. Aldosterone Serum/Plasma # * 156.0 pmol/L Cortisol (Serum) ** 147.0 133 - 537 nmol/L Cortisol Reference range 6-10am: 133
PotatoFan
in
Thyroid UK
6 months ago
Is there seasonality to testosterone levels?
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
Mascouche
in
Advanced Prostate Cancer
6 months ago
Phosphorous questions
I have been on home hemo now for almost four months. My phosphorous has steadily increased. I never had issues with Phos until dialysis. They have put me on Sevelamer binder, which totally cemented me up, when I took two a day. I mean in pain constipation. I backed off to one a day, when they wanted
I have been on home hemo now for almost four months. My phosphorous has steadily increased. I never had issues with Phos until dialysis. They have put me on Sevelamer binder, which totally cemented me up, when I took two a day. I mean in pain constipation. I backed off to one a day, when they wanted
Bassetmommer
in
Kidney Dialysis
6 months ago
how often for a Fibroscan
Someone recently asked how often she should get a fibroscan or a MRE ( a more sophisticated scan). In Dr. Jones' book he says after getting one usually upon diagnosis for a baseline, most have one repeated every 1-5 years depending on how active or aggressive the disease is. I strongly encourage everyone
Someone recently asked how often she should get a fibroscan or a MRE ( a more sophisticated scan). In Dr. Jones' book he says after getting one usually upon diagnosis for a baseline, most have one repeated every 1-5 years depending on how active or aggressive the disease is. I strongly encourage everyone
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
new INR tester
I have been diagnosed with APS for 25 years after having a stroke at 37 years. My treatment medication treatment regime is warfarin plus baby aspirin. I have my INR completed between 1-3 weeks apart but usually every two weeks due to its variability. I have received a coaguchek INRange point of care
I have been diagnosed with APS for 25 years after having a stroke at 37 years. My treatment medication treatment regime is warfarin plus baby aspirin. I have my INR completed between 1-3 weeks apart but usually every two weeks due to its variability. I have received a coaguchek INRange point of care
Beckysuec
in
Hughes Syndrome APS Forum
2 months ago
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