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Next step after completed Oligometastatic prostate cancer treatment..
In 2022 I completed six weeks of RT to three periaortic metastatic lymph notes and two lesions on ribs and started Lupron and Erleada in April 2022 till now. Because numerus SEs including progressing spine arthritis I'd like to stop HT and watch my PSA. For now PSA <0.02. Any advise greatly appreciated
In 2022 I completed six weeks of RT to three periaortic metastatic lymph notes and two lesions on ribs and started Lupron and Erleada in April 2022 till now. Because numerus SEs including progressing spine arthritis I'd like to stop HT and watch my PSA. For now PSA <0.02. Any advise greatly appreciated
Maxi54
in
Advanced Prostate Cancer
4 months ago
Assessing liver function and interpreting liver blood tests
From NHS England's Specialist Pharmacy Service: [i]
Assessing liver function and interpreting liver blood tests
[/i] [i]Published 1 May 2024[/i] [i]Topics: Liver disorders · Training and Development[/i] [i][/i] [i]We explain how to assess liver function including the purpose of liver blood
From NHS England's Specialist Pharmacy Service: [i]
Assessing liver function and interpreting liver blood tests
[/i] [i]Published 1 May 2024[/i] [i]Topics: Liver disorders · Training and Development[/i] [i][/i] [i]We explain how to assess liver function including the purpose of liver blood
helvella
Thyroid UK
in
Thyroid UK
4 months ago
Welcome to more of our new members
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
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Trying to make sense of things
Can anyone explain why some people have Gleason 8 PC, high PSA and have metastatic disease, yet some with Gleason 9 and 10 have low-ish PSA (as far as PC goes) and no obvious metastatic disease (confirmed by PSMA)? I am trying to understand this damn disease and sometimes there doesn’t seem to be any
Can anyone explain why some people have Gleason 8 PC, high PSA and have metastatic disease, yet some with Gleason 9 and 10 have low-ish PSA (as far as PC goes) and no obvious metastatic disease (confirmed by PSMA)? I am trying to understand this damn disease and sometimes there doesn’t seem to be any
EvFC
in
Advanced Prostate Cancer
4 months ago
Olaparib time to lower PSA
Hello all, Anyone know how long it take for Olaparib ro lower PSA? All I can find is that it takes 90 days to start working. Thanks
Hello all, Anyone know how long it take for Olaparib ro lower PSA? All I can find is that it takes 90 days to start working. Thanks
Seebs9
in
Advanced Prostate Cancer
4 months ago
Rigidity Dominant Parkinson's Disease (Rigid PD)
Dear All, After 9 years of Parkinson's Disease diagnosis, and 4 years of HU, and trying supplements of every 'improvement' story, I think I have it all wrong. I have Rigid PD, no tremors. Cogwheel rigidity and extreme speech impairment. Now after 9 years I have some trembling in the knees if unmedicated
Dear All, After 9 years of Parkinson's Disease diagnosis, and 4 years of HU, and trying supplements of every 'improvement' story, I think I have it all wrong. I have Rigid PD, no tremors. Cogwheel rigidity and extreme speech impairment. Now after 9 years I have some trembling in the knees if unmedicated
JayPwP
in
Cure Parkinson's
4 months ago
Has anyone with Hashimoto or any other autoimmune condition tried low dose naltrexone ( NDL) to regulate autoimmune response?
I have multiple autoimmune diseases, such as Hashimoto, autoimmune gastritis and Reynolds. The list is growing. I am already on clean diet and manage my stress as much as I can and need to try something more than that. I have read the LDN research and keen to try. I understand it isn't a panacea
I have multiple autoimmune diseases, such as Hashimoto, autoimmune gastritis and Reynolds. The list is growing. I am already on clean diet and manage my stress as much as I can and need to try something more than that. I have read the LDN research and keen to try. I understand it isn't a panacea
sasha_nico
in
Thyroid UK
7 months ago
nail problems
Does anyone have problems with the nails on their hands? The sides of three of my nails are rough and breaking away from finger. I do have Raynauds and Scleroderma as well as Rheumatoid Arthritis lucky me! Sheena C
Does anyone have problems with the nails on their hands? The sides of three of my nails are rough and breaking away from finger. I do have Raynauds and Scleroderma as well as Rheumatoid Arthritis lucky me! Sheena C
SheenaC
in
Scleroderma & Raynaud's UK (SRUK)
7 months ago
Is pluvicto helping?
I started pluvicto on Jan 24, 2024. I’m on zoladex quarterly as well. I currently feel good compared to when i began pluvicto. My labwork are all normal, no abnormalities. My last scans show reduced mets in lymph nodes but still in bones and no progression. Would you say things are looking good with
I started pluvicto on Jan 24, 2024. I’m on zoladex quarterly as well. I currently feel good compared to when i began pluvicto. My labwork are all normal, no abnormalities. My last scans show reduced mets in lymph nodes but still in bones and no progression. Would you say things are looking good with
setho
in
Advanced Prostate Cancer
4 months ago
My PCa history
After rising PSA from 6.92 in March 2012 to 9.98 in April 2013 Uro performed Prostate Biopsy in April 2013. 12 samples were taken: worst sample 4+3 (30% involvement) and four samples 3+4 (5% involvement). Scheduled for robotic prostatectomy, but before it Uro gave me four shots of Fermagon. Uro
After rising PSA from 6.92 in March 2012 to 9.98 in April 2013 Uro performed Prostate Biopsy in April 2013. 12 samples were taken: worst sample 4+3 (30% involvement) and four samples 3+4 (5% involvement). Scheduled for robotic prostatectomy, but before it Uro gave me four shots of Fermagon. Uro
Maxi54
in
Advanced Prostate Cancer
4 months ago
Kidney gfr
So last time my mam was told her kidneys were at 6% and yesterday while we were at a&e she's been told her kidneys are at 30% is this normal my mam has been on dialysis for 10 months.
So last time my mam was told her kidneys were at 6% and yesterday while we were at a&e she's been told her kidneys are at 30% is this normal my mam has been on dialysis for 10 months.
Jk2023
in
Kidney Dialysis
4 months ago
AUA 2024: mCRPC: Key Updates in Radioligand Therapy, PSMA Sensitive Disease
(UroToday.com) The 2024 American Urological Association (AUA) Annual Meeting held in San Antonio, TX was host to the International Prostate Forum. Dr. Jeremie Calais presented key updates in radioligand therapy for patients with PSMA-sensitive disease. The field of prostate cancer theranostics has
(UroToday.com) The 2024 American Urological Association (AUA) Annual Meeting held in San Antonio, TX was host to the International Prostate Forum. Dr. Jeremie Calais presented key updates in radioligand therapy for patients with PSMA-sensitive disease. The field of prostate cancer theranostics has
God_Loves_Me
in
Advanced Prostate Cancer
4 months ago
Info re another Auto Immune malady. Parkinson's
This info from the Michael J. Fox institute might be of interest to other followers of this site. The topic is dealing with the pain associated with Parkinson's disease (PD). Perhaps there is some advice relevant to PMR- from which I have suffered for more than a decade. In my circle of long standing
This info from the Michael J. Fox institute might be of interest to other followers of this site. The topic is dealing with the pain associated with Parkinson's disease (PD). Perhaps there is some advice relevant to PMR- from which I have suffered for more than a decade. In my circle of long standing
Canuk
in
PMRGCAuk
4 months ago
What is a Healthy, low sugar shake or supplement to gain weight with prostate cancer spread to lymph nodes?
Husband has advanced prostate cancer mets to neck, chest, back, pelvis, femur. PSA is doubling rapidly. Currently on Zytiga, Lupron, Steroid, and Lyparza. 😞 Diagnosed in 2020 with tumor base of tongue (doctors said it was not related to PC) and aggressive prostate cancer at same time. Today, four years
Husband has advanced prostate cancer mets to neck, chest, back, pelvis, femur. PSA is doubling rapidly. Currently on Zytiga, Lupron, Steroid, and Lyparza. 😞 Diagnosed in 2020 with tumor base of tongue (doctors said it was not related to PC) and aggressive prostate cancer at same time. Today, four years
Bamagrad
in
Advanced Prostate Cancer
4 months ago
Recommendations for Endos in/near Berkshire
Just wondered if anyone has any recommendations for endos in or around Berkshire if they could pm me. I have seen one recently who has said he doesn't think I've ever had a thyroid problem as I was borderline when diagnosed but still have many symptoms. My TSH is very low but I am on a combination
Just wondered if anyone has any recommendations for endos in or around Berkshire if they could pm me. I have seen one recently who has said he doesn't think I've ever had a thyroid problem as I was borderline when diagnosed but still have many symptoms. My TSH is very low but I am on a combination
JRosemaryW
in
Thyroid UK
7 months ago
Hashimoto's & Multiple Sclerosis (apologies for two posts in very quick succession!)
Hello - first off, sorry for making two posts in quick succession asking for help! As I mentioned in my first question about an Endo Department, there has been a 'twist' in my Hashi's (I actually have Ord's: autoimmune thyroid disease with no goitre) story... Over the course of several blood tests,
Hello - first off, sorry for making two posts in quick succession asking for help! As I mentioned in my first question about an Endo Department, there has been a 'twist' in my Hashi's (I actually have Ord's: autoimmune thyroid disease with no goitre) story... Over the course of several blood tests,
ERIC107
in
Thyroid UK
7 months ago
Hep B and mild sign of fatty liver.
I have been on entecavir for 3 years now for long term hap b. And my last ultrasound at febuary I also have mild signs of fatty liver. I'm worried and like get some advice here my ultrasound I have no signs of liver chirrosis. Thank Pauline
I have been on entecavir for 3 years now for long term hap b. And my last ultrasound at febuary I also have mild signs of fatty liver. I'm worried and like get some advice here my ultrasound I have no signs of liver chirrosis. Thank Pauline
Paulini
in
British Liver Trust
4 months ago
Methotrexate
Been on methotrexate 15mg for 16 wks have psoriatic arthritis, rheumatoid arthritis helps my nails n skin but my joint feel worse now was out on another 5 mg from last Monday fell dreadfully n breathless n more pain n my feet and feel my blood vessels all tight n pulling any body else have this
Been on methotrexate 15mg for 16 wks have psoriatic arthritis, rheumatoid arthritis helps my nails n skin but my joint feel worse now was out on another 5 mg from last Monday fell dreadfully n breathless n more pain n my feet and feel my blood vessels all tight n pulling any body else have this
Teddie111
in
NRAS
7 months ago
Update B12 appointment . help needed
Thank you all for your advice . Had an appointment yesterday and despite feeling exhausted dizzy and having some pins and needles in my hand. (NHS website says 2_3months with malabsorption issues.) . I was told they cannot go against local NHS guidance and got to wait for 12 weeks for my B12 jab. I
Thank you all for your advice . Had an appointment yesterday and despite feeling exhausted dizzy and having some pins and needles in my hand. (NHS website says 2_3months with malabsorption issues.) . I was told they cannot go against local NHS guidance and got to wait for 12 weeks for my B12 jab. I
Welshtoffee
in
Pernicious Anaemia Society
7 months ago
Anemia on Abiraterone + Prednisone + Lupron
Since November 2023 I have been taking Abiraterone + Prednosone for castrate resistant metastatic prostate cancer. In November my PSA was 0.8. In the first three months it went down to 0.26. Yesterday, my PSA was 0.16. But my hemoglobin and hematocrit became low at 11.6 and 36% respectively.
Since November 2023 I have been taking Abiraterone + Prednosone for castrate resistant metastatic prostate cancer. In November my PSA was 0.8. In the first three months it went down to 0.26. Yesterday, my PSA was 0.16. But my hemoglobin and hematocrit became low at 11.6 and 36% respectively.
dac500
in
Advanced Prostate Cancer
4 months ago
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