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Lymphoproliferative disorder diagnosis following PET scan
My husband had his transplant in 2017. He has been ill for some time and had a PET scan 10 days ago. He has been diagnosed with Lymphoproliferative disorder. Does anyone know anything about this?
My husband had his transplant in 2017. He has been ill for some time and had a PET scan 10 days ago. He has been diagnosed with Lymphoproliferative disorder. Does anyone know anything about this?
Kimlescam
in
British Liver Trust
19 days ago
Diuretics
I have pretty severe edema in feet and occasionally legs.Is there a diuretic that does not trigger rls? I have tried Bumex and Metolazone. Had very bad rls soon after taking each one. I am on low dose Ropinirole -.9mg . It didn't even calm it. Appreciate any input.
I have pretty severe edema in feet and occasionally legs.Is there a diuretic that does not trigger rls? I have tried Bumex and Metolazone. Had very bad rls soon after taking each one. I am on low dose Ropinirole -.9mg . It didn't even calm it. Appreciate any input.
rmbroadh
in
Restless Legs Syndrome
3 months ago
Watching House
I am off on a long weekend (tomorrow I go back to work), and watching House on Netflix. Funny how they focus on positive ANA for lupus on this. Of course it is never lupus, but the irony is, when you don’t tests positive on ANA - it can’t be lupus. BUT, if people test positive for ANA, you are told
I am off on a long weekend (tomorrow I go back to work), and watching House on Netflix. Funny how they focus on positive ANA for lupus on this. Of course it is never lupus, but the irony is, when you don’t tests positive on ANA - it can’t be lupus. BUT, if people test positive for ANA, you are told
Willow7733
in
LUPUS UK
6 months ago
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Questions regarding dialysis and also transplant
Hi Everyone, Hope everyone is ok with all the crazy weather that has taken place all over. I recently started hemodialysis in the last week. Once again I have had to learn everything from you all or reading online/or in books which is not overly helpful at times. The dialysis center folks think my nephrologist
Hi Everyone, Hope everyone is ok with all the crazy weather that has taken place all over. I recently started hemodialysis in the last week. Once again I have had to learn everything from you all or reading online/or in books which is not overly helpful at times. The dialysis center folks think my nephrologist
Missingthesun
in
Kidney Dialysis
3 months ago
Medichecks results
Hello all, I have just received the above thyroid test results and would appreciate some advice. I am feeling a bit underactive and wondered if I should increase my levothyroxine slightly? Thanks in advance
Hello all, I have just received the above thyroid test results and would appreciate some advice. I am feeling a bit underactive and wondered if I should increase my levothyroxine slightly? Thanks in advance
Pinkisland
in
Thyroid UK
6 months ago
Erleada or Xtandi with Orgovyx, preference one way or the other?
Dx 2015 Gleason 7, prostatectomy 2015, seminal vessel invasion one side, fast forward 3 years recurrence and 39 sessions of radiation to prostate bed and back to PSA undetectable. Fast forward to fall of 2019 PSA back to 4.3 PSMA Pet scan shows iliac crest area met along with lymph nodes prostate bed
Dx 2015 Gleason 7, prostatectomy 2015, seminal vessel invasion one side, fast forward 3 years recurrence and 39 sessions of radiation to prostate bed and back to PSA undetectable. Fast forward to fall of 2019 PSA back to 4.3 PSMA Pet scan shows iliac crest area met along with lymph nodes prostate bed
Wynnsts
in
Advanced Prostate Cancer
3 months ago
Allopregnanolone as a Regenerative Treatment for Parkinson's Disease (Allo-PD)
I just happened upon this trial and it is something I had never heard of. It looks like a very small trial being conducted in Tucson, AZ. https://clinicaltrials.gov/study/NCT06263010?locStr=Arizona&country=United%20States&state=Arizona&cond=Parkinson%20disease&aggFilters=status:not%20rec&rank=2 Detailed
I just happened upon this trial and it is something I had never heard of. It looks like a very small trial being conducted in Tucson, AZ. https://clinicaltrials.gov/study/NCT06263010?locStr=Arizona&country=United%20States&state=Arizona&cond=Parkinson%20disease&aggFilters=status:not%20rec&rank=2 Detailed
Boscoejean
in
Cure Parkinson's
3 months ago
Rising PSA with little shown on PSMA PET
Greetings all. I've been on this forum for years. I've only commented a handful of times, and never made a post. I prefer to usually just read from the sidelines. First of all, a bit about my path thus far. I was diagnosed in May 2010 (age 49) (PSA 4.7 and Gleason 7), had radical surgery in July 2010
Greetings all. I've been on this forum for years. I've only commented a handful of times, and never made a post. I prefer to usually just read from the sidelines. First of all, a bit about my path thus far. I was diagnosed in May 2010 (age 49) (PSA 4.7 and Gleason 7), had radical surgery in July 2010
velobard
in
Advanced Prostate Cancer
3 months ago
Sjogren's Syndrome
Was diagnosed with PMR 3 years ago. Under control at moment and injections down to monthly. Has anyone on this site gone on to develop Sjogren's Syndrone with PMR?
Was diagnosed with PMR 3 years ago. Under control at moment and injections down to monthly. Has anyone on this site gone on to develop Sjogren's Syndrone with PMR?
Bothan
in
PMRGCAuk
6 months ago
Next NoSilverBullet webinar on 17th of June: Sackner-Bernstein, MD, on "Why I am optimistic that we might now have a Silver Bullet for PD".
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 17th of June. Jonathan Sackner-Bernstein, MD, will be talking to us about "Why I am optimistic that we might now have a Silver Bullet for PD". Please use the Eventbrite link
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 17th of June. Jonathan Sackner-Bernstein, MD, will be talking to us about "Why I am optimistic that we might now have a Silver Bullet for PD". Please use the Eventbrite link
Michel0220
in
Cure Parkinson's
3 months ago
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
- https://www.researchgate.net/publication/380600451_The_40_Hz_flickering_light_restores_synaptic_plasticity_and_mitochondrial_phenotype_in_experimental_model_of_Alzheimer
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
- https://www.researchgate.net/publication/380600451_The_40_Hz_flickering_light_restores_synaptic_plasticity_and_mitochondrial_phenotype_in_experimental_model_of_Alzheimer
Bolt_Upright
in
Cure Parkinson's
3 months ago
what is the risk from ALA?
What is this community’s take on ALA, as found in flaxseed oil? Is there risk for prostate cancer? If there is “risk”, is that solely an association with increased PSA? i.e. do significant amounts of flaxseed oil cause a change only in one’s baseline PSA? i.e. does it promote the [i]
production[
What is this community’s take on ALA, as found in flaxseed oil? Is there risk for prostate cancer? If there is “risk”, is that solely an association with increased PSA? i.e. do significant amounts of flaxseed oil cause a change only in one’s baseline PSA? i.e. does it promote the [i]
production[
lokibear0803
in
Advanced Prostate Cancer
3 months ago
What are the options for splitting the dose of Low Dose Naltrexone (LDN)to treat Sjogrens and Lupus?
What are the options for splitting the dose of Low Dose Naltrexone (LDN)to treat Sjogrens and Lupus? Answered by Sebastian Denison, RPh https://youtu.be/izCwZrpqJlg
What are the options for splitting the dose of Low Dose Naltrexone (LDN)to treat Sjogrens and Lupus? Answered by Sebastian Denison, RPh https://youtu.be/izCwZrpqJlg
Shewulf
Administrator
in
LDN Research Trust
6 months ago
The role of PSMA PET/CT in predicting downgrading in patients with Gleason score 4+4 prostate cancer in prostate biopsy - W Jour Uro 5/21/24
[i]An interesting investigation aimed at validating the use of PSMA PET/CT in patients to adjust the Gleason score (downward) of their cancer based on conventional pre-surgery biopsy, scans (ultrasound & MRI). In this instance the focus was on downgrading from a high-risk of 8 to an intermediate-risk
[i]An interesting investigation aimed at validating the use of PSMA PET/CT in patients to adjust the Gleason score (downward) of their cancer based on conventional pre-surgery biopsy, scans (ultrasound & MRI). In this instance the focus was on downgrading from a high-risk of 8 to an intermediate-risk
cujoe
in
Fight Prostate Cancer
3 months ago
Any Carnivore dieters who are taking Parkinson’s medication?
Hello, I am a 42 year old woman, diagnosed with Parkinson’s, 17 years ago, at the age of 40. started Kinson Parkinson’s medication 4 years ago but I’m experiencing increased meds off times. I heard about the Carnivore diet and I am very interested in trying it, but I am not sure joe I can do it successfully
Hello, I am a 42 year old woman, diagnosed with Parkinson’s, 17 years ago, at the age of 40. started Kinson Parkinson’s medication 4 years ago but I’m experiencing increased meds off times. I heard about the Carnivore diet and I am very interested in trying it, but I am not sure joe I can do it successfully
Seekerofhealth
in
Cure Parkinson's
3 months ago
Protein supplements
I've been reading a lot about needing proteins to help with thyroid issues. Has anyone embarked on this route ?
I've been reading a lot about needing proteins to help with thyroid issues. Has anyone embarked on this route ?
HHHJC
in
Thyroid UK
3 months ago
What other tests
Hi all. Other than ANA which obviously indicates an autoimmune condition (I'm highly positive) And I have many symptoms of what I feel is Lupus. I'm just wondering what tests are available once referred to rheumatology. So I am armed with Knowledge and don't get fobbed off. Is there anything further
Hi all. Other than ANA which obviously indicates an autoimmune condition (I'm highly positive) And I have many symptoms of what I feel is Lupus. I'm just wondering what tests are available once referred to rheumatology. So I am armed with Knowledge and don't get fobbed off. Is there anything further
JCM1992
in
LUPUS UK
6 months ago
PCA Prognosis?
Hi All! I am due for my 4rd Lupron treatment and follow-up next week. My bloodwork is done and my PSA is still <.01 for 9 months now. I have BRCA 1 and 2. When my Urologist gave me my initial diagnosis after my biopsies (Gleason 4+3=7 and 11 of 12 biopsies positive). nHe gave me a full report
Hi All! I am due for my 4rd Lupron treatment and follow-up next week. My bloodwork is done and my PSA is still <.01 for 9 months now. I have BRCA 1 and 2. When my Urologist gave me my initial diagnosis after my biopsies (Gleason 4+3=7 and 11 of 12 biopsies positive). nHe gave me a full report
Sagewiz
in
Advanced Prostate Cancer
3 months ago
Two updates in the Guidelines for PBC
PRACTICE GUIDANCE Primary biliary cholangitis: 2021 practice guidance update from the American Association for the Study of Liver Diseases Lindor, Keith D.*,1; Bowlus, Christopher L.2; Boyer, James3; Levy, Cynthia4; Mayo, Marlyn5 Author Information Hepatology 75(4):p 1012-1013, April 2022. | DOI
PRACTICE GUIDANCE Primary biliary cholangitis: 2021 practice guidance update from the American Association for the Study of Liver Diseases Lindor, Keith D.*,1; Bowlus, Christopher L.2; Boyer, James3; Levy, Cynthia4; Mayo, Marlyn5 Author Information Hepatology 75(4):p 1012-1013, April 2022. | DOI
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
New research
Did anyone listen to the piece on talk radio today about new lupus research? So exciting for all autoimmune diseases! Here is an article I found about it. https://lens.monash.edu/@medicine-health/2024/02/06/1386418/breakthrough-heralds-immune-personalised-medicine-for-lupus?amp=1
Did anyone listen to the piece on talk radio today about new lupus research? So exciting for all autoimmune diseases! Here is an article I found about it. https://lens.monash.edu/@medicine-health/2024/02/06/1386418/breakthrough-heralds-immune-personalised-medicine-for-lupus?amp=1
EllsBells591
in
LUPUS UK
6 months ago
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