Diuretics

[rmbroadh]

I have pretty severe edema in feet and occasionally legs.Is there a diuretic that does not trigger rls?

I have tried Bumex and Metolazone. Had very bad rls soon after taking each one.

I am on low dose Ropinirole -.9mg .

It didn't even calm it.

Appreciate any input.

[SueJohnson]

Unfortunately all diuretics can make RLS worse.

[rmbroadh in reply to SueJohnson]

Depressing as that is, thanks so much for responding. I'd rather have elephant feet than rls!

[ChrisColumbus]

Bumetanide (Bumex) is a loop diuretic; metolazone (Zaroxolyn, Xaqua) is a thiazide-related diuretic.

While we are warned that ALL diuretics are bad for RLS, potassium-sparing diuretics such as spironolactone (Aldactone) and eplerenone (Inspra) reportedly help to maintain the balance of salts within the blood and *may* bring fewer side effects.

HOWEVER this has not been said about RLS symptoms to my knowledge, and in any case you'd have to check that these are suitable for your condition anyway.

[rmbroadh in reply to ChrisColumbus]

Thanks Chris for helping. Those two - not the loop or thiazide-that you mentioned are the only ones I haven't tried. I'll ask my doc what he thinks about trying one of them.

Again much appreciate your input.

[ChrisColumbus in reply to rmbroadh]

Going by advice from rls-uk and rls.org there can only be a slight chance that these will help without triggering RLS. IF you do decide to take that chance do let us know how they affect RLS either way.

[rmbroadh in reply to ChrisColumbus]

Definitely will share .

[0rangetulip]

i was put on spironolactone after my cardiac arrest and my rls went through the roof very quickly. I no longer take it.

[rmbroadh in reply to 0rangetulip]

Thanks for letting me know.

[ChrisColumbus in reply to 0rangetulip]

Thanks for that - sounds as though potassium-sparing diuretics are *not* a solution and the advice that *all* diuretics can exacerbate RLS stands.

[Eryl]

Wouldn't you rather solve the problem of why you are retaining fluid rathar than just remove it? youtu.be/0pEjjaaFaVs?si=rEI...(Not working as expected?)

[rmbroadh in reply to Eryl]

Thanks Eryl, Interesting video.

[Eryl in reply to rmbroadh]

Remember that if you decide to reduce sugar you should not just reduce refined sugar but also reduce starch consumption as starch molecules are made of sugar molecules jined together that are easily split by enzymes in the gut.

[ChrisColumbus]

Unfortunately I note, after looking into this on another thread, that a common side effect of the drugs taken for RLS - including pramipexole, ropinirole, gabapentin and pregabalin - is oedema. Doubly unfortunate that diuretics tend to exacerbate RLS.

Interesting to watch the video that Eryl shared, particularly in this case the point about diuretics expelling potassium: unfortunately my hope that potassium-sparing diuretics would help seems unlikely just based on Orangetulip's feedback...

If dietary changes can help, great - always worth a try!

[rmbroadh in reply to ChrisColumbus]

I knew one of Ropinirole's side effects was oedema. I'm also dealing with lymphodema and fluid around my bronchial tube's which causes sever shortness of breath. ( I have COPD - stage 4 and only 1 lung)Today, I took one half of the Bumex dosage and 100mg of Magnesium Glycinate. Had no rls at all.

Going to take another MG 100mg tonight before sleep.

Maybe I can work up to the full dose eventually.

Enjoy chatting.

[Whippetmama]

FWIW, I take Lasix (20 mgs) and do not react at all, in any way. It is an old drug so readily available in generic form. It is also inexpensive, so if you decide to give it a try, you won't break the bank. I was told, many years ago (and on this site) that this is the only diuretic that is RLS safe. Good luck

[rmbroadh in reply to Whippetmama]

That's good to know! Thanks